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Posted By : TinkerBellPixie - 3/4/2004 6:48 PM
Hi, I am a student trying to make a journal from chatting with somebody with Cystic Fibrosis for a School Project. We have to email, chat, and if possible get pictures. If anybody can and would be willing to explain what Cystic Fibrosis is and what you have to go through living with it, please email me at tinkerbellfaerie222@hotmail.com. thank you so much!

Sara

Posted By : BoeJaker - 3/4/2004 7:05 PM
Try http://groups.msn.cysticfibrosis2chat/ .  You may have to ask to join but it is a much more active group.  Please do them justice in your work.
BoeJaker  51wcf

Posted By : TinkerBellPixie - 3/5/2004 5:48 PM
Hey...this is Tinkerbell ( Sara ) again...Thanks so much for your reply..However...I tried the link and typing it in the box thingie and it didnt work ...


Posted By : BoeJaker - 3/6/2004 8:28 PM
Hi Sara,
I don't know why just clicking on the link doesn't work, but you can go the old fashioned way to get there.  First, go to msn.com.  If you do not have a pasport, get one.  On msn.com scroll down the page and on the left side, in small print, you will come across "groups".  Click on groups.  When you get to the groups homepage, click on "Health and Fitness".  From here choose "Support Groups".  Then choose "Heart and lungs".  This will allow you to choose from a list and one is cysticfibrosis2chat.  Choose that link. I believe you have to request to join the group to enable you to post, but it comes quickly.  Good luck with your project and again I simply ask, please do them justice with your project.  If you have any questions, you can email me at BoeJaker@hotmail.com.  Best of luck.
BoeJaker 51 wcf

Posted By : Drea - 3/8/2004 9:50 AM
Sara
They are one of my favorite groups and the first one I thought of when I read you post.  had to laugh when I saw Joe had already told you about the group!
Andrea
mom of Rachel 5 with CF and a boy on the way, no CF


Andrea, mom of Rachel, nearly 5 with CF


Posted By : ONECFKID - 2/16/2005 10:52 AM
    HI SARA
MY NAME IS DAVID AND I HAVE CF I WOULD LIKE TO HELP YOU WITH YOUR SCHOOL PROJECT PLEASE LET ME KNOW WHAT INFO YOU NEED AND I WOULD HELP YOU MAY ALSO CONTACT ME BY EMAIL AT ONECFKID@MSN.COM  HOPE TO TALK TO YOU SOON
 
 
DAVID


  soon there will be a cure
for cystic fibrosis  
check out my site

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