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Posted By : sirenshooter - 4/15/2014 9:00 AM
Hi, visiting y'all on behalf of my dad (again). :)

My dad has both spherocytosis and diabetes... I know it affects your sugar and he is unsuccessful in lowering his. Do any of you have both of these conditions? And how do you deal with them? Any tips?

He formerly had a poor diet but has been making a better effort lately to eat healthy. Does his body maybe need time to adjust?

My mom's getting worried about him. My uncle had both of these diseases as well and died just last year from complications. Most of the doctors didn't seem well versed in how they affect one another. I appreciate any help! I'm visiting him soon so if you need more info I should be able to get it. Also, he can't really exercise - bad arthritis, reconstructed ankle, and taking care of my disabled mom.

Tips or resources much appreciated :)
24yr old female diagnosed with UC-pancolitis in 2005 at age 15
150mg Azathioprine, albuterol, Flovent
Arthritis
Also: asthma, acid reflux, and Raynaud's Syndrome

Posted By : Lanie G - 4/15/2014 9:40 AM
Hi Elephant Pipe, welcome back! I don't know the answers to your questions. I hadn't heard of this so I looked it up. I didn't see any relationship to diabetes but that might be from what was available to read online.

Since it involves blood cells, I guess a hematologist would be the specialist to see if his regular doctor isn't familiar with this.

From what I gathered, sometimes the spleen is removed depending on the case. Vitamin B supplements are also prescribed because anemia is a problem.

As far as the diabetes goes, I would think that he should continue to eat food that will not raise his blood sugar (and you know that this is mentioned in the two stickies pinned to the top of our forum). Regular blood tests will tell him and his doctor how his blood sugar is being controlled.

I wish I could help more. I hope your dad is doing ok. He does need to be checked out by another doctor, maybe.
Lanie

diabetes moderator
diabetes type 2 controlled by diet and exercise and
metformin
very low carb way of eating

Posted By : sirenshooter - 4/15/2014 10:20 AM
He is tired a lot. I would think a doctor would notice anemia but maybe he should be tested. I have such a hard time getting him to take supplements because he's stubborn and on so many pills. But I'll chip away at him. I'll tell him too maybe he should see a hematologist. I imagine they would have a bit more knowledge.

My uncle's spleen was removed a long time ago... One of his doctors figured out spherocystosis was affecting his sugar/readings but by then I think it was too late. And that doctor is in Kentucky so I can't send him there! :P

I'll check the stickies to make sure he is doing things right and keep checking back to see if anyone else knows anything :)

Thanks, always so helpful here :)
24yr old female diagnosed with UC-pancolitis in 2005 at age 15
150mg Azathioprine, albuterol, Flovent
Arthritis
Also: asthma, acid reflux, and Raynaud's Syndrome

Posted By : Lanie G - 4/15/2014 11:50 AM
This is one of the websites that talks about it: http://www.healthline.com/health/congenital-spherocytic-anemia#Overview

It does seem to be hereditary so since it's in the family, it would seem to me that you and any siblings you have as well as cousins on your Dad's side should be tested. The article says a complete blood count and maybe other blood tests are needed. And, as I said, anemia is a symptom so that must be why he's tired.

If the doctor is not following up on these tests, then for goodness sakes, he needs another doctor who will! It took just seconds to Google this and get information about it!

Keep us updated. You're a good daughter to seek the best care for both your parents! yeah
Lanie

diabetes moderator
diabetes type 2 controlled by diet and exercise and
metformin
very low carb way of eating

Posted By : sirenshooter - 4/15/2014 2:26 PM
I have been tested :) My brother hasn't and we think he may have it. Everyone in my family is impossible (even me at times...).

Thanks again :)
24yr old female diagnosed with UC-pancolitis in 2005 at age 15
150mg Azathioprine, albuterol, Flovent
Arthritis
Also: asthma, acid reflux, and Raynaud's Syndrome

Posted By : Davidmuhn - 7/30/2017 3:55 PM
Hi, I have had type 1 Diabetes since I was 13 and was diagnosed with Spherocytosis at 14, most Doctors don't understand way one would affect the other but if a cold of flu affects our blood sugar, then Anemia would too. It can be difficult to have an Endocrinologist understand because of the lack of studies done on this subject. When I am Anemic my Blood Sugar goes where it wants to, I test more times then just to keep it as close to normal as possible.

Posted By : Lanie G - 7/30/2017 4:20 PM
Welcome to HealingWell, David. I understand this is a rare condition. What is the treatment, if any, that you have had for this? I'm sure it's hard to control blood sugar while being anemic.
Lanie

diabetes moderator
diabetes type 2 controlled by diet and exercise and
metformin
very low carb way of eating

Check out the following site for more info on blood sugar:
www.phlaunt.com/diabetes/

Posted By : Davidmuhn - 7/30/2017 10:46 PM
My Spleen was removed at the age of 14 for the Spherocytosis and I use both food and iron supp. for the Anemia about 4 to 5 times per year when needed. I have an Organic Farm so its easier for me to understand what nutrients are in what I grow.
about 3 years ago I had a Low Blood Sugar hospital stay and they found an irregular Heart Beat in one lower chamber of my Heart, I was Anemic at the time and they wanted me to take medication for this Heart Beat issue, with no thought to what could happen to my Blood Sugar (Verapamil was what a Cardiologist wanted me to take). I then waited two weeks had yet another EKG and everything was fine, once the Anemia went away. It was being caused by my Red Blood Cells changing. I had no problems with Cholesterol and no Blockage in my arteries. Most Doctors can't understand why one affects they other, Sad to Say.
Type 1 Diabetic with Sherocytosis

Posted By : Lanie G - 7/30/2017 5:12 PM
Maybe you're an unusual case? But you are wise to understand your situation. I hope your doctors have made notes of this on your charts!
Lanie

diabetes moderator
diabetes type 2 controlled by diet and exercise and
metformin
very low carb way of eating

Check out the following site for more info on blood sugar:
www.phlaunt.com/diabetes/

Posted By : theHTreturns... - 7/30/2017 11:27 PM
thx for sharing, and keep strong.

Posted By : Davidmuhn - 7/31/2017 2:07 AM
Thank You!
Type 1 Diabetic with Sherocytosis

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