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Posted By : GenM - 7/5/2017 4:37 PM
So I went to the GP last week to see why I had lost 25 pounds and my hair was falling out. Deep down I must have known, but I truly thought it would have been my thyroid. I take synthroid and my tsh was 1.2 BUT my bg was 556. My A1 is a 13.5. Diagosis Uncontrolled Diabetes. So he sent my home with Lantus(40mg at bed) and Apidra(12 mg with meals) 1800 calories 3meals/3 snacks.

I feel like crap. I didn't feel this bad with the high bs. Anytime I get near a bs of 100, I am spent/befuddled/dizzy/shaky feels like my heart is racing. If I go under a 100 forget I am ruined for the day.

Help please. I feel like I am crazy. I am logging and measuring all my food.

I keep my carbs between 45 and 60carbs depending on how much fiber and my snacks 15-25 carbs. I could stand to reduce the fat and raise the protein, but I was going with what was in the house at the time.


Posted By : Lanie G - 7/5/2017 5:55 PM
Hi GenM and welcome to HealingWell! Yeah, that's high. The best thing is to learn everything you can about blood sugar and diabetes, make changes to your diet and lifestyle and do all this slowly.

Please read the link in my signature under my name. That is to a website that is nicknamed BloodSugar 101. It will tell you everything you need to know about blood sugar.

Next, you can also read the stickies at the top of the forum, the Diabetes Forum, for more information.

I know there is a lot to digest (pun intended!) but if you basically understand that carbohydrates raise blood sugar, then you're off to a good start. For nutrition, we do not need the carbs in bread, potatoes, corn, rice, sugar, flour or any food made with these things. Any nutrition and fiber for a healthy life we can get from vegetables: leafy greens (all the fresh salad greens and other green leaves in the produce section), vegetables like broccoli, cauliflower, bell peppers, mushrooms, celery, eggplant, okra, green beans are all full of fiber and nutrition. A piece of chicken, pork, fish or beef and you have a balanced-meal.

Some snack ideas are nuts (unsalted), unsweetened yogurt, string cheese, hard boiled eggs, peanut butter and celery,

Someone living for awhile with very high blood sugar may feel odd when the blood sugar comes down to normal levels and because of this, I think it's best to start slowly by changing diet, then adding some kind of regular exercise (like walking, biking, swimming) and medication. The "off" feeling could be feeling dizzy, queasy or even confused but these feelings will pass as the body gets used to normal blood sugar again.

I know this might be somewhat overwhelming at first but I know you will get the hang of it. I promise!

I'm glad you found our forum. Please keep us updated! yeah

diabetes moderator
diabetes type 2 controlled by diet and exercise and
very low carb way of eating

Check out the following site for more info on blood sugar:

Posted By : GenM - 7/18/2017 8:46 PM
So we adjusted my dose and the lows are not as bad. That being said. I am hungry all the time. I eat something every 2.5 hours and can't go much more than that. I am on 1800 calories a day. 3 meals 3 snacks. I have learned to eat my last snack as late as possible to prevent lows in middle of the night.

I am still miserable. I don't think it should this hard.

Posted By : Lanie G - 7/18/2017 8:56 PM
Hi and welcome back. No, it shouldn't be this hard.

Are you taking your blood sugar before you eat and about two hours after you eat? What are your readings?

What food are you eating?

Have you looked at the website that's in my signature?

diabetes moderator
diabetes type 2 controlled by diet and exercise and
very low carb way of eating

Check out the following site for more info on blood sugar:

Posted By : GenM - 7/19/2017 5:11 AM
I am taking my BS at meal at start of meal( ususally between 80 and 100) . 2 hours post meal ( usually about 130) and any other time I feel like crap. My average for the last 14 days is 114 and since all this started 139. I am following the 1800 calorie diet. 3 meals 450 is with 45 to 60 grams of carbs depending on amount of fiber and 3 snacks at about 150 cals each with 15- 25 carbs each. Everything is weighed and logged.

The overall ratio is 50 % carbs, 25 % protein, 25 % fat.

I was also on flucanoid (steriod) for 6 months. Stopping the day after my first visit. I stopped because what was bothing me went away suddenly the day I got the keytones out of my urine.

I have looked at it several times.

Posted By : Lanie G - 7/19/2017 6:22 AM
I can give you my opinion on your food but I'm not a doctor at all. Diabetes is on my mother's side of the family and I've been dealing with diabetes/high blood sugar for more than ten years. So, if what I suggest is not what your doctor is having you do, it's because of what I have learned as a diabetic and the following is my opinion.

I think the diet the doctor has you on has too many carbs. With the amount of carbs you're eating your blood sugar is probably going very high and you have to take medication to bring your blood sugar down to normal.

Back in my first response post to you, I described a food plan that has worked for me. I do not eat potatoes, rice, anything made with flour (no noodles, bread, etc.) because those are pure carbs that will make everyone's blood sugar high. In a diabetic, that food will make their blood sugar go sky high. We don't need grains (whole grains or not) for fiber. If you eat vegetables and salad food everyday, you will get all the fiber you need: broccoli, cauliflower, all kinds of leafy greens including parsley and cilantro, bell peppers, mushrooms, etc.

What was the steroid for? Steroids will raise blood sugar and while people are on them, sometimes their doctors have to prescribe diabetes medication to help control blood sugar.

Ketones in the urine mean that you are burning fat and people who are overweight and who go on a low-carb diet will have ketones in their urine as they lose weight. This is not a bad situation if the person is overweight. However, type 1 diabetics who are haven't been diagnosed and are not on insulin will also have ketones and in that case, it's not good. Undiagnosed type 1s need insulin to survive. Dr. Richard Bernstein is a type 1 and a medical doctor whose book Diabetes Solution explains blood sugar, how it works, the different types of diabetes and medications and also has a chapter on food with recipes. I highly recommend this book.

So, those are my thoughts. I don't count carbs because I don't eat food that has significant amounts. I am only on metformin. I have seen a registered dietitian because of diabetes and when I followed the diet given to me, my blood sugar was higher than I had ever seen because of the bread and other food she had me eat. If I had continued, I'd have to be on other medication to bring my blood sugar down. When I returned to my regular doctor and explained this experience and showed her my journal (my daily notes of blood sugar and food), I told her I would not follow what the RD told me and my doctor agreed with me. So that is my experience.

My suggestion is to talk to your doctor about this and explain your concerns (if it's your regular doctor that's got you on this plan). If I were you I would either go to an endocrinologist or find another regular doctor.

I understand your frustration, believe me.

diabetes moderator
diabetes type 2 controlled by diet and exercise and
very low carb way of eating

Check out the following site for more info on blood sugar:

Posted By : jeanneac - 7/19/2017 6:47 AM
Sorry you have diabetes-sad(( Gen,your body got used to very high blood sugars and now that they are normalized, you feel bad b/c your body is not used to that. The body takes time to adjust. The amount of carbs you are eating are over the recommended carbs for a diabetic diet unless you are very young and an athlete. Most RD's recommend 45g of carbs for women for their 3 meals a day. If you want a snack, you have to then eat lower carbs for the meal. Everybody has their own recipe for how they control their diabetes. For men, it's 60 g of carbs. Some, like Lanie go very low carb. Not everyone has the discipline for that and some people need more carbs to feel satisfied and have energy.
However, by eating fewer carbs than you are eating right now, you will be able to reduce your insulin. Some people can come off their insulin entirely in time. Exercise helps too. It just takes time to figure all this out by checking your blood sugars, adjusting your insulin, eating well and getting some exercise. Take it all slow and easy. Good luck.
Sjogrens syndrome 2/15 via lip biopsy: Seronegative RA , fibromyalgia
colitis-resection 11/10, hashimoto's thyroiditis, morphea, GERD
Meds: plaquenil, synthroid, Januvia, nexium, restasis, estrogen patch, prometrium, VSL #3, evening primrose oil, Omega 3 supplement-Maxi Tears.

Posted By : GenM - 7/20/2017 5:40 AM
The only time I go over 45 carbs per meal is when there is fiber to offset it. I skipped my lunch dose of insulin yesterday just cause I had had enough of being low. I got up to 181 1 hour post meal and was down to 145 at two hours. I reduced my dinner dose and still crashed out at 70 two hours after. When reviewing my food I realized I reduced my carbs accidently and ate part of dinner for lunch ( beans). So today I am going to try the lower dose of insulin and eat right again.

I was on several different strong topical steriods for 6 months for psorisis in the genital area. I have always been sensitive to to steriods even topically.
I only gave in because I was miserable with the itching, burning and bleeding. I used to be on humira for chrons/psorisis but have been pretty much in remission since 2013. Oddly enough the burning/bleeding went away the day after I started this program so I am wondering if the keytones had anything to do with the irritation down there.

All of this started because of an antibiotic that started a yeast infection. I have always had sugar issues and was gestational diabetic 25 years ago. But I have also always been able to control it with diet and exercise. I did loose 20 plus pounds in the last 4 months with out trying.

I get what you are saying about no/low carbs but i am not comfortable with eliminating any one source of nutrition. I aim for natural food and not processed. Most of my carbs come from fruits vegis and whole grains. I add very little sugar and don't drink any sweetend drinks.

Posted By : Lanie G - 7/20/2017 5:58 AM
Good morning! As far as I know, steroidal creams do not affect blood sugar but injections and oral steroids do. I had to take both of these last two for bursitis some years ago and my blood sugar spiked, but when the shot wore off and I came off pred, my blood sugar went down to normal.

From what you're writing, it seems like the food and insulin balance is not right.

I still think you need another doctor to evaluate you. What I mean by this is I'm wondering if you're getting the best guidance and instruction about your meds.

I understand we are all different in how to approach diabetes but there is no need to eat so many carbs in order to take medication to bring down the blood sugar. That's what's causing the highs and lows. This has been the usual method of how doctors treated their diabetic patients. This is how it was with my mother and grandmother. They were both type 2 and on insulin and ate whatever everyone else ate but took insulin (and also oral meds in my mom's case) to counteract the carbs.

Now, I am dealing with diabetes at 68 but I have been low carb as I described above and am on metformin only. I highly recommend Dr. Bernstein's book that I mentioned and that website in my signature.

There is no lack of nutrition when you go low carb, by the way. In fact, it's probably better because you are eating more greens and vegetables and getting all the fiber needed for digestion, etc. If a person is also dealing with another condition like UC or colitis and has dietary restrictions because of that, there would need to be another food adjustment.

diabetes moderator
diabetes type 2 controlled by diet and exercise and
very low carb way of eating

Check out the following site for more info on blood sugar:

Post Edited (Lanie G) : 7/20/2017 7:19:17 AM (GMT-6)

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