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Posted By : ivy6 - 7/19/2008 5:39 PM
Hi statgeek,

Would you be able to tell me more about your pain and stiffness journal, please? What was its layout? What sort of things did you include?

Thanks heaps,


Co-Moderator Crohn's Forum.

Posted By : Statgeek - 7/20/2008 12:58 PM
Hi Ivy, sorry for the late reply - just saw your post. :) I've only kept a day specific journal for one day. Before that I kept notes. In the notes, I have notes of pain that seem to come out of nowhere, how it feels and how it limits me. I also put in there that for periods of time I wake up with swollen face, feet and hands and I have not had exess salt. And frequently when I sit too long, especially on the floor, I have trouble unbending back into a straight position. I don't sit in the same position, I move about, but getting up from the floor after a period of time, is very difficult.

I started the day specific one yesterday and wrote in there that I woke up stiff and stayed that way for about 45 minutes. Also recorded hip and hand pain all day, trouble getting up from the outdoor swing due to stiffness and soreness, stiff neck and back and nighttime migraine. Also included measures I took to alleviate the migraine (ibuprofin, ice and bed). Once in bed, muscle spasms all up an down my back - used heat for that.

In addition, I recorded a little soreness from working in the yard, which wasn't more than one would ordinarily expect.

Today so far, I wrote that I woke up with minor stiffness that was alleviated with stretching and that I felt great. Hip and hand still bothering me today.

It is laid out very casually. Last night I was thinking that if I had not written all the pain, soreness, stiffness down in the journal, I probably would have thought I felt fine all day. Writing it down, brings it to my attention more. Like when I cannot stand up, I just ouch and groan and get straightened out and then I don't think about it again, but writing it down makes me remember.

Do you think these are the right things to put in the journal? I am trying to follow the advice of one of the members or moderators who welcomed me on my first post and the info on fibro 101.

Posted By : ivy6 - 7/20/2008 6:26 PM
Thanks for that, Sue. That's really helpful.

I'm still coming to terms with my fibro, as it is a recent diagnosis and not my main clinical problem. It's only now that my Crohn's is a little more controlled that I'm able to start working out what symptoms are being caused by which illness, and I'm grateful to you for sharing information on your symptoms diary, as it sounds a good way to chart symptoms.

I'll leave it to one of the more experienced fibro people to tell you whether you could include any other information in your journal.

Thanks again,


Co-Moderator Crohn's Forum.

Posted By : Chutz - 7/22/2008 1:44 PM
Here's a link to a free journal online. I print off 2 weeks worth at a time. It's very thorough and easy for me to do.


Co-Mod Fibromyalgia & Chronic Pain Forums
Fibromyalgia, Ulcerative Colitis, Insulin dependent diabetic, collapsed disk, dermatitis herpetiformus, osteo arthritis in spine and other locations.

The only difference between genius and stupidity is that genius has it's limits. Albert Einstein: (1879-1955)

Posted By : mamanan - 7/22/2008 1:47 PM
Chutz, I looked at that one, but it was so small to write everything. How much do you include?

in the land of Limbo, taking OTC meds only.
Don't know what's wrong, can't fix it, doctors are so sloooow!!!

Posted By : Statgeek - 7/22/2008 2:05 PM
Thanks Chutz, that looks like a good and thorough journal. mamanan, I think you just put a dot on the graph each hour for your level of pain, then you include the other information on the notes portion and on the body diagram.

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