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Posted By : fireandice93 - 2/26/2009 10:02 PM
Hello all!
I was just wondering, since I'm new to fibro, does/can fibro cause the white blood count to be high?  
Thanx for any help,

Posted By : julieleaps - 2/26/2009 10:07 PM
Hi Michelle,
I don't believe that fibro has any impact on the white blood count - that's an indicator of infection, which fibro is not!

Still learning how to manage my Fibromylagia, and all the lovely gifts it brings.   
I had severe spinal stenosis, had fusion done on C5-7, and my life has changed. 

Posted By : fireandice93 - 2/26/2009 10:46 PM

Thanks Julie,

That's what my common sense told me but just checking since my doc blames everything on the fibro.  I have a low grade fever everyday and my white count stays between 16,000 and 20,000 for over a year now.  I feel sicker and sicker everyday.  My lungs/ breathing are so bad now that I fell into a coma last year for 12 days.  They had me on IV antibiotics when I was in the hospital so of course the wbc came down but as soon as I was back home and off the antibiotics the count went right back up.  I live in a small town in AZ and it just doesn't seem like anyone cares to find out whats wrong with me except to say "You have fibromyalgia, get lots of exercise and find ways to deal with the pain".  Exercise!?!  Sometimes I think the effort it takes to get to the bathroom will kill me!!!  I went to my daughters school concert the other night and collapsed on the way into the auditorium.  I was so humiliated and I know my kids must have been too.  I have started with a HORRIBLE strange sensation in my arms, hands and legs and they are very very weak, much worse on the left side, so I keep falling and dropping everything.  I don't know,  I'm just so confused!!!  I'm sick of being sick and my kids are sick of me being sick.  My youngest son (13 y.o.) just left me to go live with his dad in another state because "I don't take them anywhere or do anything fun out of the house".  I really do try my best but I can't drive and we live in the middle of nowhere.  GOD I am feeling so lost and confused and hurt.  I miss my baby boy, but can understand him not wanting to be around me anymore.  I don't even want to be around me anymore!  I have an appointment with a lung doc tomorrow because my IGE level is 2000 and my gp says it is suppose to be under 100. So lets see if tomorrow brings any answers.  Sorry for going on and on.  I have no one to talk to and sometimes its hard keeping it all in my head.  Thanks for letting me vent!

Posted By : Sera Smiles - 2/26/2009 10:47 PM
Michelle, I agree with Julie's opinion on this. Can you give us a little more information? For example- when did you have WBC tested and what prompted the test? has your dr said anything about why your WBC is high? I hope you are feeling alright. Let us hear from you.

"A butterfly is most vulnerable immediately after its metamorphosis."
Dx FM- 2003
Rx Meds- Ultram, Flexeril, Toprol, Cymbalta, Buspar 
OTC meds- Benadryl, Claritin, Melatonin, Valerian, B Complex, Multi Vitamin

Posted By : fireandice93 - 2/26/2009 10:53 PM

Hi Sera Smiles!

My gp repeated the wbc the day before yesterday and told me today that it is 18,000.  But he didn't say anything else about it.




Posted By : cnkfla - 2/26/2009 11:31 PM
To the best of my recolection when I origionally was diagnosed my white blood-cell count was high, but I also have inflamation that is not explained by anything. So I don't know.

~I will figure this out~

Posted By : ladybugdreams - 2/27/2009 1:11 AM
What kind of a Dr are you going to?  have you tried a rheumatologist?  Alot of your symptoms sound like my daughters, falling down, dropping things, light headed, fever.  The white blood cell count I don't know for her but it is an indicator of infection like Julie said.  It is not "nothing".  My daughter was dx'd with Mixed Connective Tissue Disease & Rhuematoid Arthritis.  MCTD is a combo of Auto Immune Diseases.  She has Lupus, Polymyocitis & Sjogrens along with the RA & Fibro.  Once her immune system was supressed, she has felt so much better.  Auto Immune diseases can cause all of the symptoms you are talking about so that is one area to look, along with those your Dr is looking into now.  If your Dr isn't giving you the help you need then find another who will.  Never stick with a Dr who isn't trying to help you.  Do some research yourself on the internet. 
I am sorry about your son, how sad that must have been for you.  Maybe once you get dx'd & on the right meds you will feel well enough for him to come home.  I will be praying for you.  Never apologize for the length of a post, it is never too long & you were not going on & on.  You were reaching out & I hope we can help you in some way, even just to let you know that we care.  Hugs, Denise

 I have:  Fibromyalgia, ME/CFS, Holt-Oram Syndrome, nasal allergies, food allergies, depression, TMJ, anxiety

Married to a wonderful supportive husband & between us we have 4 children & 7 grandchildren

As apples of gold in silver carvings is a word spoken at the right time for it.    Prov. 25:11

Posted By : Ginny - 2/27/2009 10:24 AM
HI Michelle,
It does sound like something autoimmune.  Lupus. You can have high white blood cell counts and definitely and elevated sed rate (inflammation marker). YOur lung issues could be Lupus as well.  I'd be get yourself in to see a rheumatologist as soon as you can.  come visit us in the Lupus forum if you want to learn more.  We'll help you get this ball rolling! 

I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13

35 years old. Diagnosed with Lupus in 2000. Fibromyalgia, Anti-phospholipid syndrome(APS)(stroke, 2002), Sjogren's, Raynaud's, Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck), anxiety, Chinook migraines. Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, Didrocal, Cozaar, Zoloft, Neurontin, calcium, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus
Co-Moderator for the Lupus and Fibromyalgia forums

Posted By : Baloo - 2/27/2009 8:15 PM

Hi Michelle, I've been wondering how you have been doing.  I am glad you wrote. Please let us know how you are doing.  I wish there was more I could do for you. confused   Lots of prayers and hugs.    Denise(baloo)

Posted By : ladybugdreams - 2/28/2009 12:44 AM
Hey Michelle, I was just reading about Lupus & in & it mentioned that Lupus can cause a coma.  I thought you might be interested in that.  Hugs, Denise

 I have:  Fibromyalgia, ME/CFS, Holt-Oram Syndrome, nasal allergies, food allergies, depression, TMJ, anxiety

Married to a wonderful supportive husband & between us we have 4 children & 7 grandchildren

As apples of gold in silver carvings is a word spoken at the right time for it.    Prov. 25:11

Posted By : smitty1998 - 2/28/2009 6:18 PM
Hi I'm Smitty, Usually there is no high white blood ceel count for most people,BUT I have the same problem. My white blood cells have been in the 17000 or little higher for the past 2 years. I have been to the hemo clinic, but show no signs of anything but that. Probably something they put in our water! Just kidding?Have you been to a specialist?

Posted By : Jeannie143 - 2/28/2009 7:03 PM
There are lots of things that could be causing your problems and one of them could be your DOCTOR!!! Please remember that 50% of all doctors graduated in the bottom half of their class. YOURS COULD BE ONE OF THEM!

I would be looking for a new doctor at this point.

~ Jeannie, Forum Moderator/Diabetes & Fibromyalgia
I know God will not give me anything I can't handle. I just wish that He didn't trust me so much. ~Mother Teresa

"People are like stained glass windows: They sparkle and shine when the sun's out, but when the darkness sets in, their true beauty is revealed only if there is light within."- Elizabeth Kubler-Ross

Posted By : realpain - 3/2/2009 11:01 AM
I was in the ER a month ago with severe abdominal pain and the only thing they came back with was that my WBC was on the high side of normal. I actually called my doc today and requested they check it again before I come back in to see him on the 11th.  I have been suffering from sever headache's and nausea, almost everyday, for months now.  I went to see the rheumy last monday and lets just say I will just wait to see my doc again.  I agree with everyone though... if you can find a good rheumy you should see them, they can be a lot of help if they are understanding to fibro anyways. 
I have two children of my own and now that they are getting older, they are getting less understanding to how my pain interferes with things.  It breaks my heart sometimes, because I miss the old me too!!!!!  I know the feeling of being alone and not knowing who to turn to with all these problems... I am sure majority of us do!!!!  Fibro is a hard road to go down.... I hope that you find your answers soon!!!!  (((((HUGS)))))

Wishing everyone a great day, ((((hugs))))
Partial thyoidectamy (hyperthyroidism), fibrocystic breast disease, low blood pressure, hypertension, depression, and anxiety, severe headaches, joint and muscle pain due to fibromyalgia.
Wellbutrin SR 150mg twice daily, Ultram 50mg once every six hours, Propranolol 10mg once every 4 hours, and Xanax .50 every 6 hours, Flexeril 10mg once at night.

Posted By : Luneybin - 4/18/2017 11:47 PM
Hi, I'm new here, I have fibro for about 10 + yrs, I also have a high white count that runs 14000 to 19000, I have been to a blood Dr and.he said he can't find anything wrong with me. All the testing for lupis, ms, and other diseases come back negative, I just found out my daughter has a high wc and was told that since I have that too they're not to concerned.

Posted By : Ljm2014 - 4/18/2017 9:16 PM
Still, please find a dr. That does not just's the fibro

My mother had ridiculous fibro and rheumatoid arthritis..never your symptoms...

Keep searching until they figure it out..

One of my physical therapists, says we have inflammation hiding in the cells as neuroinflamation, so it does not show in our blood work but it's still there..

Hope they will get you figured out..

And hon ,kids can just about kill us with their tudes at times, but they grow up eventually and maybe because you are not holding too tight right now, your relationship can improve with time.

I often had to remind myself that ,at times you have to lose a battle to win the helped me with parenthood, and fighting illness😊


Posted By : Luneybin - 4/19/2017 7:11 PM
Hi rockon ,
Thank you so much for the information, I have an appt with my Dr next week and I will bring it up to him. It has been very frustrating trying to find out what's going on with my white count. Usually they rush to do tests and when they come back negative they give up. I had on Hemotologist tell me the second time I was referred to him 10 yes apart that he didn't know why my white was high 10nyrs ago and still doesn't know and why was I wasting his time. Again thank you for this information.

Posted By : Luneybin - 4/19/2017 7:15 PM
Hi Ljm2014,
My daughter has been great with me and my issues, it was the doctors who decided that since I have a high white count too they didn't need to worry about hers. Thank you for your support it is nice to talk to people who are going through the same thing.

Posted By : CathyA - 4/20/2017 1:42 PM
Holy Cow!! There's absolutely no reason why a competent doc can't figure out why a white count is that high. There are different parts to a white count and what some of the other parts are can tell you what's going infection versus leukemia, etc. Keep looking for a doc who can help you. I'm just shaking my head in disbelief.

Posted By : Ljm2014 - 4/20/2017 2:13 PM
Cathy lol..

Yes we are all having the holy cow reaction to a dr.

There are so many theories with fibromyalgia, one is a low level infection in the nerve might think if it was from an old virus..the blood count could be off..but they have moved in and out of that theory over the years..and quite frankly do not seem to have the handle on the cause or the treatment.

Others with fibromyalgia apparently have this going on also..

Fibro dr.s will often throw anti virus into their protocols, not that , that, seems to change any symptoms that I have heard of...

It can get so very confusing of my physical therapists.. has seen many of his patients go through many protocols, sometimes at about the ten thousand dollars ranges..and still end up back needing the myofascial work.

Fighting barometric changes today

Posted By : CathyA - 4/20/2017 7:02 PM
I also wonder if she should have seen an infectious disease doc.

Posted By : cilly - 4/20/2017 11:21 PM
High WBC means a lots of stuff but checking with infectious disease specialist can be an eyeopener.

I also had very high WBC before being diagnosed fibro and lupus.

I have not checked it recently.

that would tell us more.

Posted By : CathyA - 4/21/2017 12:48 PM
I wonder whatever happened to Fireandice. I hope she got some help.

Posted By : Luneybin - 4/27/2017 9:55 AM
You guys are awesome, I have spent the week writing down all my symptoms cus the minute I get in the Drs office I have a major brain fart, a couple of things I remember to put down is how I can use a face cream and all of a sudden I'm allergic to it and I end up with a chemical burn on my face, if someone opens a fragrant candle, or deodorant or room deodorizer near me I get an instant headache. I have an appt with my doctor today and going to request he refer me to a hemotologist, I have really felt like crap the last couple of weeks. Wish me luck.

Posted By : Luneybin - 4/27/2017 5:16 PM
When I went to the doctor today I asked him about mast cell and he said he never heard of that. I explained it as best I could but I did get him to refer me to a hemotologist. He said the the one white cell that was elevated had to do with fighting viral infections. He said that my white count might be normal for my body but he was under the impression that they had tested my bone marrow. I informed him that they hadnt. So now I am on to research viral infections that can be active for 11 yrs. I know its not contagious because I have given blood and never received anything in the mail from blood banks except please donate again. I have o neg. Thank you for your help. After my appt today I feel like we are moving forward.

Posted By : Sirai - 5/30/2017 12:16 AM
Hello all. I was recently told I 'might' have fibro. I've been dealing with the usual nerve and muscle issues typical to it for over 3 years now, and they steadily are getting worse for me. I ended up here after searching 'is high wbc typical of fibro'. My wbc has been in the 16k+ range for over 6 years now. I saw a hematologist a couple months ago who ran a very small number of tests and said it was due to inflammation, and sent me back to my rheumatologist, who is generally useless.

I'm only on 25mgs of Indocin 3x's a day (more like 2x's a day since I spend most of it in a brain fog/coma in bed in a ton of pain and simply forget to take it). I've recently discovered that all of the rest of my symptoms resemble fluoroquinolones toxicity. So I was curious about the wbc. I see some people say they think they had high wbc when they were first diagnosed, but seemingly don't have that issue now. Was there something you did that brought that down? I've been on the indocin for 4 months now and my inflammation just gets worse and worse, and now I'm having stabbing pains in my eyes that are really concerning me. I hate that I have few options for doctors, as I can't drive and live in a generally desolate area. My doctors really just don't seem concerned. 4 years ago I was a healthy and active 30 year old and now I feel like 120 and can't wait to just leave this world of pain. I've lost all my 'friends' and live alone, barely able to clean up behind myself and my poor old cat.

Well back to the topic, I'm definitely interested now that someone has mentioned an infectious disease specialist. I learned recently that my ex-fiance, who left me when things got rough 2 years ago, suddenly has the same symptoms that I do, but unlike me, he hasn't been put on over 6 courses of Cipro in the last 6 years (which would blow my theory of fluoroquinolones toxicity out the window). Very curious. Just because my inflammation is high, doesn't mean I can't ALSO have an infection, does it?

I'm forced to wait 3 months between appointments with every single doctor except for my therapist (thank god for that), so I'll have a lot to talk about by the time I get back in with one. Unfortunately they can only cover 1 or 2 'problems/symptoms' per visit due to time constraints, so it might take me another year to get to that, since I have problems dating a year or more back that they don't even know about yet cause they wont give me enough time to rattle off the whole list. Plus this darn anxiety, I forget almost everything once I walk through the doctors door!

Posted By : Sherrine - 5/30/2017 7:07 AM
Hi, Sirai, and welcome! I'm really sorry that you have limited choices of doctors. They might be good but totally overworked. Maybe if you wrote things down that you are concerned about and took it to the office weeks ahead of your next appointment and ask for the doctor to read it before your next appointment and before it's put in your chart, he would do so and that would give him time to mull things over before your appointment. It's worth a shot and he would know how concerned you are because you did this. I would write it in list form...not paragraph form. Also, if you have a printer, do the list on your computer and this way you can print the list for any doctor you see about this illness plus it's easier to read. If it's something he can scan quickly, he just might do that.

Actually, with fibro you do need to keep moving. If you sit or lay too long you will be stiff as a board and have more pain. Fibromyalgia isn't considered an inflammatory illness so, if you are dealing with inflammation, you could have something else going on. I have fibro and also several autoimmune illnesses so I do have a lot of inflammation in my system but it isn't caused by my fibro. I have my list of illnesses in my signature.

I would request tests for lupus and Lyme disease. It's just far too easy to slap a diagnosis of Fibromyalgia on someone when you don't know what is causing the symptoms. Lyme and lupus have many of the same symptoms as fibro but different treatments are used. If you live near a wooded area and happened to be bitten by a tick, you could develop Lyme disease and this also could explain why your ex-fiancé now has the same symptoms. He could have been bitten also. I'm just guessing here. We do have a Lyme forum and a lupus forum on HealingWell that you might want to visit.

I take ibuprofen with food, Tylenol, vitamin D3, magnesium malate. And a muscle relaxer called Robaxin that has made a significant difference in my pain. I walk daily and pace myself when doing things. I also keep a positive attitude and that has helped my so much. I look at my blessings and all the beauty around me and I focus on other things besides my health, and the pain fades somewhat in the background. All of this has helped me live a full and enjoyable life in spite of this illness.

I do think that once you find what works best for you in controlling your pain, your life will improve greatly. But, what works for one with fibro doesn't necessarily work for another. It's a trial and error type thing.

Be sure to read Fibro 101...the first thread on the forum. There are links to good info about fibro and you will learn a lot there. There are links about the vitamin D3 and magnesium malate and how these work in the body. Many are deficient in vitamin D and also magnesium and that can cause more pain! There also is a good link about how to maintain a positive attitude when you have chronic pain. All of Fibro 101 is good so do read it.

I'm looking forward to getting to know you. Don't hesitate to ask questions because we are here to help you. Hope to hear more from you soon.


Forum Moderator/Fibromyalgia

Fibromyalgia, Crohn's Disease, Ostomy, Autoimmune Inner Ear Disease, Diabetes, Osteoporosis, Glaucoma, Scoliosis, Ankylosing Spondylitis
God does not give us a spirit of fear, but of power and of love and of a sound mind. 2 Timothy 1:7

Post Edited (Sherrine) : 5/30/2017 11:11:11 AM (GMT-6)

Posted By : Sirai - 5/30/2017 9:36 AM
Thank you for the reply. I have been on D3 (5,000/day) for 6 years, and my blood sat is up at 70. They've tested my magnesium multiple times, as I continuously get muscle cramps, but they say its fine. Moving causes the muscle cramps, moving also causes my joints and tendons to quickly and suddenly hurt (and they will hurt bad for a week or more afterward) and that really dampens my want to get up and try to move around, as I just get hurt worse trying to do so. They had ruled out Lupus, how I don't know. I just found out I have an aunt that has it, so I might press that issue again. I've gained so much weight since I have lost a lot of mobility and it's insanely frustrating. The depression is causing me to stress eat constantly.

I just got home from a visit to the sleep clinic to try to find out why I wake up 30 times in a 6 hours span. Was told I need jesus and to deal with my 'issues' (assuming she means things bothering me mentally). So, yet again, no help there. Not even a recommendation for a new sleep study. I'll just have to assume it's my pain causing me to wake up constantly, as I'm forced to shift positions.

My Lyme test was negative, but I have read that it can be negative but you still have Lyme. So that's kinda difficult to deal with, as my doctors treat me as if I'm out looking for pain meds, regardless of having turned down anything strong than an anti-inflammatory in the last 3 years (really regret that some days!) and I feel like they simply dismiss every suggestion I give. I don't know how you guys deal with the depression and find some happy cheeriness in it all, I really don't =(

Posted By : Sherrine - 5/30/2017 11:10 AM
Muscle cramping can be caused by low calcium and also potassium. My doctor gives me a prescription for a time-released potassium called Klor-con. It does help me.

If you can, have the doctor draw the blood to check for Lyme disease, and then have it sent to Genex Labs in Palo Alto, California. They are supposed to be the best lab in diagnosing Lyme disease. Our Lyme forum can tell you more about that and how to do that too.

Life is made up of choices. We can be miserable with what life dishes out or we can look forward to the future because it could be really good. If we stay miserable, we will be very unhappy and it will affect all those around us. We lose friends and, in your case, your son left. That is really so sad and I feel badly for you about that.

It's so easy to crawl into bed and pull the covers over our heads but it never helps one iota. You need to push ahead and start living your life. You can't give up!!! For example, you say if you walk your muscles and tendons hurt for days so you don't walk! don't use those muscles and tendons so they rebelled. Plus add the additional weight and that just makes it harder on the muscles and tendons. You can't give up! Your life will never improve with what you are doing right now.

When I started walking daily I could only go four houses down and had to turn around and head back home if I was going to make it! Wow, my muscles hurt! Now, I could have said "forget this!" But I didn't. I went out the next day...with a cane in my hand...and was able to go a little further! Every day I went further and every day my muscles didn't hurt quite as much. And now I walk a mile with my dog every morning. I hate to exercise but know I need to in order to feel better. While walking I look around at all the beauty around me...the trees, sky, landscaping, critters gathering their breakfasts, bugs, etc. I find I'm smiling and by the time I get back home I have less pain and more energy and ready to face my day. And I'm happy!

Take one day at a time. I look forward to each new day with anticipation because it could be a good day. I make arrangements to go out to lunch with friends as finances allow me. Tomorrow I'm having a friend come to my house for lunch and I'm making my famous chicken salad today to serve. I'm happy and excited about spending time with this lively lady. It takes a lot of effort, planning, and pacing myself but it is well worth it. I set doable goals each day and when I complete them I pat myself on the back and, again, smile. I do smile a lot...even when I'm out in public. It's amazing how my smile can bring a smile on the grumpiest faces. 😊 If the day isn't the greatest, I know I can deal with that day and look forward to the next day. This keeps me moving, happy, I feel I'm accomplishing things, and I'm enjoying my life. After all...things could be worse.

I was quite overweight for the same reasons you described. I started counting carbs and only allow myself about 100-120 carbs a day. There are a lot of low carb things to snack on...lots of vegetables...but I like to get sour cream dips to dip the veggies in. And I love the 100 calories mini popcorn bags. They hit the spot. Anyway, I lost 85 pounds doing this and have kept it off for eight years so far. I feel sooooo much better and I don't seem to hurt as much. After all, it was like I was carrying around an 85 pound suitcase all day long. Of course my muscles would hurt! I can't even lift 85 pounds. If you are interested in what I did, you will see a little envelope under my name at the left of this post. Click on it and it sets you up to email me. I will then send you what I have done and am doing to keep the weight off.

Lastly, read the link on how to maintain a positive attitude when you have chronic pain. This really helps and gives you great ideas. I know you can switch your mindset. If you are successful, you might not be as depressed. I don't suffer from depression generally. I make myself get busy and do something constructive and that helps. In one of my worst times dealing with depression. The only thing that helped was going for a walk and getting out in the sun and looking at beautiful things.

I hope some of this helps you. You do not want to spend your life doing what you are doing. Do keep your search up and find out for sure what is going on with your health, too. You owe that to yourself. You deserve more in life. You are a special person and I know people love you. You just have to face this head on and not let illness run your life anymore. You will be glad you did.


Forum Moderator/Fibromyalgia

Fibromyalgia, Crohn's Disease, Ostomy, Autoimmune Inner Ear Disease, Diabetes, Osteoporosis, Glaucoma, Scoliosis, Ankylosing Spondylitis
God does not give us a spirit of fear, but of power and of love and of a sound mind. 2 Timothy 1:7

Posted By : Luneybin - 5/30/2017 12:16 PM
Hi everyone,
I'm so sorry that you are going through all of this alone,.
I remember when I first started going through this my family didnt know what to think, i believe they though I was making it up and being lazy but after yrs of watching me get worse they came around and are now very supportive, my extended family still think it something I just need to get over so I don't spend a lot of time with them and I don't talk about what's going on with me. A couple years ago my husband was fighting throat cancer and lost his ability to speak but is now cancer free and then had to have open heart surgery to replace 2 valves and a bypass so they talk about that and think I'm making more out of that then they think is necessary. Just stay strong and don't let anyone try to define who you are, take care of yourself.
So I went to the hemotologist and was basically ignored, he said that my white count is high because I smoke, I told him I had quit for two yrs previously and my wbc was still high, he didn't believe me, when I told him about my daughters high wbc and that she didnt smoke he said she was a different person and it didn't relate to me. Needless to say I cried my eyes out because its always the same, they don't know, they grab a hold of whatever is convienent and that is their diagnosis. Now I am on a mission, I am quitting smoking so I can prove that is not the cause of my high wbc.


Posted By : Sherrine - 5/30/2017 1:26 PM
I just posted a good link from the Mayo Clinic about what causes high white blood cell counts. Here is the link I posted.

Hope this helps. Please stop stressing since stress can raise white blood cells. So can smoking and medications. Talk to your doctor. It you don't trust your doctor, find one you do trust.

Forum Moderator/Fibromyalgia

Fibromyalgia, Crohn's Disease, Ostomy, Autoimmune Inner Ear Disease, Diabetes, Osteoporosis, Glaucoma, Scoliosis, Ankylosing Spondylitis
God does not give us a spirit of fear, but of power and of love and of a sound mind. 2 Timothy 1:7

Posted By : Sirai - 5/30/2017 3:47 PM
I was actually already sent to a hemo for leukocytosis and was told it was due to inflammation. My C-Reactive was up to 8 from the high of 4 a year before. (The test I took had a reference range of 0 - .08) Was sent back to the rheumy, who said to go to the sleep clinic, since I was stressing that I felt that if I could just get some sleep then maybe my body could heal some. Was told my sleep apnea is actually better (.8 aph vs the 14 when I was first diagnosed) and not the cause, and that I simply 'need jesus'. The pain med the rheumy has me on for inflammation, Indocin, actually helps, but it's negligible. I can tell when it's worn off and it sometimes gives me an extra hour maybe a day that I can do some light housework and clean up after my old cat.

I haven't smoked for a year, not sure if my vaporizer would also contribute? It does have nicotine. Though when my WBC started rising I wasn't smoking then, either. But I have on and off through most of my life, generally when the stress gets the worst of me. I've been trying to get a ride to the pharmacy to pick up my Cymbalta prescription for over 2 weeks now. It's insanely hard when you know nobody in the entire state. Everyone I know and trust is a thousand miles south and my ex is a useless lump. I'm on disability and have $18 a month to play around with after I pay the monthly bills, and I have to use that on a taxi for my once a month trip to get groceries. And had already done my shopping before that was prescribed. At least I only need to wait a few more days now. I was told I'd have to be on it for at least a month before I would notice any benefits, if any. They put me on it for both the nerve pain and depression.

I have ptsd, and with it agoraphobia and extreme social anxieties. My ex left me in the middle of a very busy neighborhood, so if I walk it'll need to be indoors or I'll just end up with another stupid panic attack and feeling like an idiot in the hospital. I honestly think every single time that it's a heart attack and not a panic attack 'this time'. Even when I go 'wait maybe it's just anxiety' my stupid brain panics. It really would help to have someone to talk to to calm me down but I just don't have that here.

I did acquire one of those exercise bikes that could work my arms and my legs at the same time, since I felt that might help the muscle cramps, like you say, by getting them moving more often, without placing the stress on them that causes the cramps. So far that's not had any negative impacts on me so I will keep using it. The seat hurts my butt but I do believe that can be replaced with something smaller and more my size.

Due to a simple walk to the mailbox literally crippling me for days I end up only walking down there once a week, sometimes only once every 2 weeks, depending on if I can place any weight at all on my feet. Sometimes I just wake up with them in unbearable pain and they feel like a bag of jello, but look absolutely fine. They feel like they should be swollen huge but look normal, it's bizarre.

The nerve issues in my feet drive me insane at night. Trying to fall asleep I have to constantly kick and shake them as they will itch, or twitch, or I'll get the pins and needles, sometimes all at once. I've had issues with my shoulder and subsequently my hand. I lost all feeling in part of my hand for an entire year, it finally returned to normal literally a week before my surgical consult for ulnar nerve entrapment. I have to say, the nerve tests they ran on my legs to test my feet was one of the most painful things ever. For whatever reason it made my legs a LOT worse for an entire month afterwards. I could hardly walk at all the day after the tests. I never want to go through that again =( It wasn't as bad at all on my hand and arm when they checked that area, but omg it hurt my legs so bad! To my amazement the nerve tests in my legs/feet came back completely normal. Has made me feel like I'm losing my mind. Why would the tests not find anything? I even have area's of numbness on my toes that I was sure would register something, even if I wasn't having a flare up of the other foot issues at the time.

BTW, oddly, my feet problems are 10x's worse at night if I don't wear socks. They don't have to be tight socks or anything, just fabric creating a constant presence. Anyone dealt with anything like that? The only other place I get the tingly weirdness is in my armpit of all places. Utterly bizarre to feel your armpit vibrating throughout the day randomly. The rest of my body is extremely sensitive to pokes and prods, and a few places create a nerve pain type response if they are just lightly brushed. Though those particular places seem to clear up/move from time to time. I'm usually having an active pain in those area's when the light touch reaction occurs.

Posted By : Sirai - 5/30/2017 3:55 PM
BTW, I have tried to write down a list of my problems. The one time I remembered I had the list, I tried to hand it over and was waved away repeatedly, as the woman I was seeing at the time was a very hurried lady who seemed extremely busy and not really all there, as her mind seemed to be miles away. Was very off putting. Since then I have several times written things down, but then forgot I had a list while at the office! I am going to just have to use a big marker and write on the back of my hand 'USE YOUR LIST', and just hope I glance at my hands during the visit! I'm sure its the social anxiety that causes these brain farts when I end up around other people. My brain just stops thinking sometimes, I'll try to grasp a coherent thought but can only shrug and go along with whatever is being said.

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