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Posted By : Sherrine - 3/23/2009 11:45 AM
I have mentioned this before but I think I'll bring this up again.  I was diagnosed with low vitamin D last year even though I was taking 1,000 IU a day.  My doctor upped my dose to 1,400 IU daily and I was still deficient.  Then he upped it to 2,300 IU a day and I STILL am deficient...I just found out today.  So now he wants me to take 3,500 IU a day.
 
Many with fibro and chronic fatigue are deficient in vitamin D.  Since I started taking the higher doses of D, my pain and fatigue seems to have decreased.  The jury is still out on whether or not this is just a good period for me with the fibro OR if it's from the added vitamin D.  I will know for sure in a few months when the rainy season hits here in Florida.  But, today it is a drizzly day and I don't have the extra pain I usually do!
 
Anyway, it might be good to ask  your doctors about having the blood test to check your vitamin D levels.  Vitamin D (make sure you use D3) is very inexpensive.  I get mine at Walmart.  It would be wonderful if this could help many members on this forum so I wanted to share what was happening with me. 
 
I tried posting the link to this site that tells you a little about vitamin D deficiency and fibro but it wouldn't go through.  So I pasted it here.  Hope this helps you.
 

Vitamin D & Muscle Pain:

Low vitamin D levels can cause muscle pain and weakness. Studies show that as many as 25% of people with fibromyalgia (FMS) and chronic fatigue syndrome (CFS or ME/CFS) have low vitamin D levels, and that supplementation may help lower pain levels in some cases. One study shows that vitamin D-deficient people need twice as much narcotic pain reliever as non-deficient people.

Your body needs vitamin D to help with calcium absorption and for bone growth and strength. Along with calcium, vitamin D protects you from osteoporosis.

Vitamin D Dosage:

Some FMS and ME/CFS experts recommend between 1,000 to 2,000 IU of vitamin D daily, which far exceeds the FDA's recommended daily allowance. In fact, the National Institutes of Health considers 2,000 IU the highest tolerable daily amount. However, recent discoveries about the importance of vitamin D for overall health are changing opinions about how much is enough. Make sure to talk to your doctor about how much vitamin D you should be taking. If you take a high dosage, your doctor may want to test your levels periodically.

Vitamin D in Your Diet:

Vitamin D is naturally available in eggs, Swiss cheese, and several fish, including salmon, mackerel, tuna and sardines. You also get it from sunshine. Food makers add it cereal and milk to help prevent rickets in children.

Side Effects of Vitamin D:

Too much vitamin D is potentially toxic. Side effects:

  • Nausea
  • Vomiting
  • Poor appetite
  • Constipation
  • Weakness
  • Weight loss

Your doctor can help guide your vitamin D regimen.

 
Sherrine 


Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7

Post Edited (Sherrine) : 3/23/2009 11:51:30 AM (GMT-6)


Posted By : Statgeek - 3/23/2009 11:56 AM
Thanks Sherrine. I was also just diagnosed with vitamin D deficiency and high cholesterol. I am taking weekly vitamin D for 12 weeks and then will switch to daily. Can't remember the dosage.
Sue

Posted By : ladybugdreams - 3/23/2009 12:45 PM
Sherrine, this is so important for us to know, thank you. My vitamin D levels have always been good, I drink alot of milk, but this last Fall I switched to fresh milk & so I have began taking Vitamin D3 1000 IU's this winter. I was so worried I would become more depressed then normal for this time of year, but I actually faired alittle better. Keeping everything in balance is so necessary for having a good life & not living in pain, fatigue & depression 24/7. Hugs, Denise


 I have:  Fibromyalgia, ME/CFS, Holt-Oram Syndrome, nasal allergies, food allergies, depression, TMJ, anxiety  Married to a wonderful supportive husband & between us we have 4 children & 7 grandchildren As apples of gold in silver carvings is a word spoken at the right time for it.    Prov. 25:11


Posted By : Marlee2 - 3/23/2009 1:28 PM
I had to cancel my last app with rheumy due to Ken's problems but I did finally find out that mine is a 12 and it should be 30-80. Guess I better get on vit D. I can't get in to see rheumy til the middle of next month to see what he recommends but I'm going to go ahead and start taking it now.
 
Did your doc say why your having such a hard time getting your's up Sherrine???
 
Thanks for bringing this up again.
 
luv and hugs
Marlee


Forum Moderator Fibromyalgia
 
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium and Osteoarthritis
 
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches and Tramadol
 
Co Q 10, Super B Complex, Extra B12, Multi vitamin


Posted By : Tootiebug58 - 3/23/2009 1:48 PM
Very interesting Sherrine....Thanks for that information. I had my Vit D level checked in Dec and he said he was very pleasantly surprised that is was high, since I have osteoporosis. I guess eating fortified cereal twice a day and drinking tons of milk has helped. He didnt even recommend a supplement. Geeez, I actually got good news for a change LOL Thanks for sharing

Hugs

Sue


Tootie
-------------------------------------------
anxiety/panic attacks...osteoporosis....Fibro
 xanax


Posted By : Binki - 3/23/2009 2:25 PM
I am deficient in Vitamin D. I take 4,000 IU (D3) a day. When my doc (ob/gyn) checked it back in December, I was awfully low. She started me on 500000 IU once a week for 8 weeks, then back in for another blood test to check my level.

As for a pain difference, I can not positively say that it changed quickly. For the last week my r. hip has changed dramaticly with the type of pain I was having, it did become a little more prominent late yesterday and today. (the weather became really cold for me over the weekend, it was so nice last week.) In general as far as my daily FM symptoms go are still the same.


Lori  
 
Dx Fibro 1/2008, gastritis
 
600mg Gabapentin, 50mg Pristiq, Ultracet and/or Fentanyl patch as needed, Vitamin D3, Menopausal Support Multi-vitamin


Posted By : MEG25801 - 3/23/2009 2:44 PM
I am also Vit D deficient. I had it checked 3 months ago and was low.  He ut me on 50000 IU once a week for 4 weeks.  Had it rechecked in 2 months and was lower than what I was initially  (from 25 to 22)  He again has put me on the 50000 IU  once a week but this time for 6 weeks and I will have it checked again then.  I do notice a difference about the 3rd week of taking it but then about  2 weeks after quitting the pain and fatigue was back.  Hopefully this will bring it up for good.
 
Missy


Diagnosed with Panic Disorder(16 yrs ago)-GERD(12 years ago)-GAD(16 yrs ago)-IBS(12 years ago)-DDD(6 years ago)-Arthritis(since teenager)-Controled HBP(2 years ago)-Diagnosed with fibromyalgia 9-29-08.
Meds: Cardizem CD~Prilosec~Klonopin(prn)~Daily Vitamin~Tylenol~Lyrica


Posted By : Sherrine - 3/23/2009 2:51 PM
I'm at 26.9 and have been fooling around with this for over a year.  I was taking 1,000 IU's daily for nearly three years before I found out I was deficient.  I can't imagine how low I would have been without doing that.
 
Sherrine


Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


Posted By : Agmaar - 3/23/2009 4:03 PM
Last Apr. mine was checked and it was 9.  It was a record low for my clinic.  I'm been taking 2000 or 3000 IU daily.  I think last time it was checked it was around 55.
 
I feel like not only was it part of the excessive fatigue - it was a big contributor to some mood swings I was having.  Symptoms were similar to hypomania.  The mood swings pretty well cleared up after taking D3 for a while.
 
B. hates the Seattle area cause it's so overcast.  I'll never hear the end of this low vit. D thing. 


Rich
 
Lyme, anxitey, depression, chronic C. Pnuemoniae
 
"... expect the unexpected ..."  (O. Wilde)
 
"I am an old man and have known a great many troubles, but most of them never happened." (Mark Twain)
 
 


Posted By : donnaeil - 3/24/2009 12:04 AM
Almost everybody is deficient in Vitamin D. Only a small amout of the world's population can get enough through sunlight.
So your children may need it also. Every single African American, fibro or not, was deficient. Only extremely pale caucasians are ok. Extremely pale,

Donaneil

Posted By : AustenFan - 3/24/2009 3:22 AM
I just had mine checked recently, and it was fine.  Donnaneil, I do fit into the "extremely pale" category (you kind of have to wear sunglasses to look at my legs in the summer with all of the glare, lol).  I have to stay out of the sun because I burn so easily, but I guess there is an upside in that I absorb Vitamin D better.
 
Austen


"There is no charm equal to tenderness of  heart." - Jane Austen
 
 
Fibromyalgia, 2 back surgeries, Meniere's Disease, 30+ kidney stones, GERD, IBS, Asthma, Allergies, Endometriosis, Heart Arrythmia, Myofascial Pain, TMJ.
 
 
 
 
 
 


Posted By : Sherrine - 3/24/2009 5:27 AM
Only about 40% of Americans have a vitamin D deficiency.  It's still high but not as high as you are thinking, Donnaeil.  But people with fibro are more predisposed to this problem.  I live in Florida and am in the sun a lot.  I take vitamin D supplements and still have a deficiency.  Fibromyalgia is definietly playing into this.
 
 
 
Sherrine


Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


Posted By : GamJill - 3/24/2009 8:03 AM
Good topic Sherrine- I have never had a Vit. D level done and my Dr. ordered one a couple weeks ago. Mine was 25. She put me on 50,000IU once a week for 12 weeks. It will be interesting to see if it helps the pain and fatigue. I have taken two doses now.
 
Statgeek- I had low Vit. D and sky high cholesterol, they had me repeat the fasting cholesterol and went in for that yesterday AM because they want to make sure it is reading right. Vit. D deficiency and high cholesterol seem to go hand in hand with some of us with fibro it seems?
 
GamJill
 
 


 
 
Fibromyalgia, Depression, Anxiety, TMJ, Arthritis/neck, SAD
 
Zoloft, Tylenol 4000 mg., Darvocet  


Posted By : SleepyBug - 4/2/2009 6:20 AM
Bumping for our new member Drowsy!


love and hugs
~danielle


fibromyalgia, ibs, gerd, anxiety

We either make ourselves happy or miserable. The amount of work is the same.~Carlos Castaneda

I wish you all the joy that you can wish.~William Shakespeare

Housework, if you do it right, will kill you.~Erma Bombeck


Posted By : Marlee2 - 4/10/2009 9:15 AM
I am bringing this back up cause I know since I have been taking the 1600 IU of vit D a day I have more energy and more motivation than I had before. I can't stress enough how important it is to have your vit D checked. I wish I had insisted on having mine checked long ago. I still don't have enough energy and I have my down times but I surprised myself yesterday with all I did and I wanted to do it. I can't wait til my doc app on the 20th to talk to him about it.
 
luv and hugs
Marlee


Forum Moderator Fibromyalgia
 
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium and Osteoarthritis
 
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches and Tramadol
 
Co Q 10, Super B Complex, Extra B12, Multi vitamin


Posted By : Sherrine - 4/10/2009 9:30 AM
Marlee, I'm taking 3,500 IU a day!  LOL  I'm not nearly as tired.  I'm so glad this is helping you!
 
Sherrine


Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


Posted By : GamJill - 4/10/2009 10:06 AM

Sherrine/Marlee- I started my high dosage of Vit. D a little over a month ago and I am starting to notice some increased energy and pain is easing up. Now I'm not sure if it is the nicer weather getting here too, but whatever it is, I'll take it!!!

GamJill


 
 
Fibromyalgia, Depression, Anxiety, TMJ, Arthritis/neck, SAD
 
Zoloft, Tylenol 4000 mg., Darvocet  


Posted By : Sherrine - 4/10/2009 11:42 AM
That' great news, Gamjill!  Love to hear some successes on here!
 
Sherrine


Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


Posted By : MT Lady - 4/10/2009 11:54 AM
Well sorry to say, this isn't a success story. I have been taking...are you ready for this?? 150,000 units once a week and my D level is still at 20, which is just too low. On Monday, I will be having a colonscopy and endoscopy, with tissue samplings, to see if they can find out why I am not absorbing the D. Wish me luck! :)


Fibromyalgia, Osteoarthritis, scoliosis, back problems, hypothyroidism.


Posted By : pattipanda - 4/10/2009 12:21 PM

Yikes!!! Good luck Miriam!!!  I need to do that too.. Just chicken!!!! 

Hugs and be brave!!!  I'm proud of you!!

I'm not sure about my D count.. I haven't had it done yet but will ask about it at my next appt (mid May).. but since it seems to be an issue with everyone else I decided to go out and buy some (and I might even remember to take them once in a while.. LOL).  I figured 1000 mgs a day wouldn't hurt.

I find it so interesting that everyone seems to share this difficency.

Later....

 


Patti
 
Fibormyalgia, 4x Lyme Disease Survivor, Depression, Anxiety Disorder, Dyslexia, 2 Lumbar Disk Herniations, Allergies, Bi-lateral Carpal Tunnel, Psoriasis. 
Meds = Elavil, Tramadol, Xanax, Lipitor
"Shoot for the moon, even if you miss, you'll land among the stars" - author unknown


Posted By : MT Lady - 4/10/2009 1:39 PM
Thanks Pattil, you are so sweet! And no need to be chicken about these tests. They knock you out. I was there for my husband and he did not remember a thing and he had both at the same time too. Only unpleasant thing is the day before, the prep for the tests, tol "clean you out" and I have to be on clear liquids for 24 hours. I've already warned my husband, be prepared for cranky me because I won't be able to eat a thing. I will be 58 soon and haven't had a colonoscopy yet, so I am really overdue. I too have put it off for a long time. For the past year or so, I've been having some bowel "issues" along with with low D, so I really need to find out what's going on. It may be a gluten intolerance and I've tried to be gluten free, but I don't stick with it, I love bread and things so much! I need to hear from a doctor that I have to stay away from gluten in order to really give it up, so that's another reason for the tests. Anyway, I'll let you know how it goes and what I hear. Also, I do a lot of research on many things, including FM, and it seems that a deficiency in vitamin D is very common in people with FM, so...one more thing we lucky fibromites have in common! The symptoms of low D are muscle pain and fatigue, so we wouldn't really know, but, once you normalize it, hopefully, it will help alleviate some pain and fatigue. All we can do is try!
be well
Miriam


Fibromyalgia, Osteoarthritis, scoliosis, back problems, hypothyroidism.


Posted By : MinnyMouse - 6/5/2010 11:51 AM
Wow... I find this information so helpful. I have been sick for many years, dr. to dr., treatment to treatment, surgery to surgery. Last week I found a Rumy that finally did the bloodwork and I mean tons of it. Found out my Vit. D is at 10. He put me on 2000IU Daily and 50,000 weekly. I have never been a believer in vitamines and usually stop taking them after about two days.  You guy's make me WANT to continue taking them to see if this is a big part of the issue. He said it's Fibro and pretty advanced. Thank you for the discussion. I have alot to learn. He also did not rule out Lupus. Right on the edge, one of the three tests were positive. Thanks again.

Posted By : MsBunky - 6/5/2010 12:45 PM
I've been taking 4000 IU per day for several months now and my Vit. D count is still low. I see my doctor in July and will have blood tests repeated so she can compare to 3 months ago, and then we'll see what the next step is. I had a bone density test done recently and all looked fine, so we'll see what happens.

We get tons of sunshine in Calgary, even when it's really cold out (or especially when it's really cold out!) so I'm getting lots from being outside. Not sure why it stays low.

Pam


Conditions: Fibromyalgia, Severe Myofascial Pain, Chronic Pelvic Pain (with permanent muscle damage), Femoralacetabular Impingement (CAM and Pincer), Reynauds, IBS, Surgical Adhesions, Ophthalmic Migraines, Severe Hot Flashes (both Surgical Menopause and medication related), plus physically unable to vomit due to the Nissen, and I have extremely tiny veins with a lot of scar tissue...a joy when it comes to having to give blood or get an IV started

Surgeries: Appendix, Uterus, Nissen Fundoplication for GERD, Left Ovary, Gallbladder, Right Ovary, TVT

Medications: Oxycontin, Cesamet, Tramacet, Cymbalta, Flexeril and Clonidine plus Laxaday, Vitamin D and a Multi-Vitamin daily


Posted By : Sherrine - 6/5/2010 2:58 PM
Hi, MinnyMouse, and welcome!  Well, I'm now taking 4,500 IU a day of vitamin D3 and am doing even better.  Summer is usually the worst time for my fibro because I live in Florida and we have a lot of stormy weather and humidity in the summertime.   It's warm now and we are getting the rain and so far so good!  I'll keep you and everyone else posted.
 
Sherrine


Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


Posted By : Alcie - 6/5/2010 5:03 PM
I read a study published in Medscape that said for every 1ng you are low you need 100 units of D. For my level of 18 I needed 4000 units a day (in winter, and on top of what I already was taking in calcium, etc) to get to 58, or normal.


Alcie
 
 


Posted By : libertykitty - 6/6/2010 12:45 AM
I've been taking 2000 IU daily for about a year now, I think, and I'm testing in the normal levels. I've noticed no change at all since I started taking Vitamin D supplements, but apparently my blood is healthier! I have noticed that being out in the sun makes me feel better, either because of the warmth or the naturally-produced Vitamin D. Laying out is no good, but if I'm outside gardening or something, it's easier for me on a sunny day than on a overcast one.


Dx'd with: fibromyalgia February 2008, dysthymia & dysnomia January 2009, biliary dyskinesia January 2010

I had a laproscopic cholecystectomy in January 2010.

Meds: Savella, Vitamin D, Lyrica


Posted By : Libby08 - 6/6/2010 5:26 AM
Sherrine.  How did you feel with your vitamin D levels low?  I have been having some testing done but haven't gotten results back.  My legs have been very weak and sore and my arms a bit too.  I had a time yesterday where the legs got really weak and I felt for a few moments like I might possibly faint.  Glad you're doing better with your levels.  Have a great pain free day.

Posted By : Sherrine - 6/6/2010 3:27 PM
Libby, I didn't have a clue that my vitamin D level was low.  I just ached, had a lot more pain, etc., and knew it was fibro.  Then my doctor checked my vitamin D levels because I was complaining the the pain was getting worse.  I was quite low, even though I had been taking 1,000 IU for over a year!  He had me take 2,500 IU and checked the blood three months later.  I was still low.  Then he bumped me up to 3,500 IU...still low again.  When he bumped me up to 4,500 IU I noticed a difference in my pain levels in a couple of days!  I'm now just barely normal.  The scale at the lab is 32-100 is normal and I'm 33.  I want to take another 1,000 IU but want to talk to him first. 
 
My pain is not as intense and I'm not as tired either.  We are getting into the summer season and that usually is my worst time with fibro.  So far, I've been really good.  Also, in the winter, I suffer from bad pain in my feet.  This has been going on for years but it didn't happen this winter.  I started the extra vitamin D in January.  Hope this helps.
 
Sherrine


Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


Posted By : Nanners - 6/7/2010 7:43 AM
I like Sherrine got a lot of relief with my feet pain with the Vitamin D. I was so miserable, but haven't had that pain for awhile now, and I attribute it solely to Vitamin D3. Good luck!


Gail*Nanners* Co-Moderator for Crohns Disease 
Crohn's Disease for over 34 years. Currently on Asacol, Prilosec, Estrace, Prinivil, Diltiazem, Percoset prn for pain, Zofran, Phenergan, Probiotics, Calcium, Vit D, and Xanax prn. Resections in 2002 & 2005. Also diagnosed w/ Fibromyalgia, Osteoarthritis, & Anxiety. Currently my Crohns is in remission, but my joints are going crazy!
*Every tomorrow has two handles.  We can take hold of it by the handle of anxiety, or by the handle of faith"*

Posted By : CajunGrl - 6/10/2010 11:55 PM
Sherrine,

I wanted to pop this post back up because recently, I was in alot of pain and haven't had this much pain since starting Savella. I thought that maybe it had stopped working. Anyway, I was prescribed 50,000IU of vitamin D and haven't taken it in over a month. My vitamin D was extremely low. I took a pill yesterday and about 3 hours later, I felt so much better. I wasn't hurting as much and I felt better overall. Thanks for posting this because it reminded me to take my vitamin D.


Lyme disease, Fibromyalgia, Hashimoto's Thyroiditis, Adrenal Fatigue, Rheumatoid Arthritis(Just diagnosed)
Prescription Meds: Savella, Tramadol, Hydrocortisone, Plaquenil
Supplements: Thyro-complex, Magnesium, Calcium, Potassium, Folic Acid, Fish Oil, Vitamin C, Probiotics, GI Repair, Vitamin D 50,000IU and Joint Supplement

Co-Moderator Lyme Disease Forum


Posted By : Sherrine - 6/11/2010 10:09 AM
Cajun, I finally got my levels in the low/normal range and feel soooo much better.  It really is helping with pain and fatigue.  I take 4,500 IU daily and want to up it another 1,000 IU but also want to talk to my doctor about it first.  This really does help and many of us are deficient!  I"m glad it's helping you!
 
Sherrine


Forum Moderator/ Fibromyalgia
***********************
Fibromyalgia, Crohn's Disease, Ostomy, Diabetes, Autoimmune Inner Ear Disease, Osteoporosis
~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~
God does not give us a spirit of fear, but of power and of love and of a sound mind.    2 Timothy 1:7


Posted By : eat2bwell - 9/24/2014 8:12 AM
I am a big believer in the importance of vitamin D in a persons health. Most people are deficient because we do not spend time in the sun. Vitamin D is the sunshine vitamin and you will have a hard time getting enough from your food. I was eating salmon and taking cod liver oil thinking my vitamin D was Ok. When I had the test done I found out it was 19 ng/ml. My doctor prescribed 5,000 units of D2 a day for 12 weeks then 2000 units of D3 for 12 weeks. Everything I have read suggest that D3 is the better form of vitamin D. I started taking 5000 IU of D3 everyday and spending 10 minutes a day in front of a sunscreen. After 3 months my level was 72.2 ng/ml. The healthy range given to me by the doctor was 30-96 ng/ml. If the units are nmol/L you have to multiply by 2.5 to get the numbers. People who are sick need more vitamin D because the body uses it up. Read as much as you can about the benefits of vitamin D because it could make a difference in your health.


http://www.naturalnews.com/027345_Vitamin_D_exposure_sun.html

Posted By : Ljm2014 - 9/24/2014 10:08 AM
I got mine from 19 to 46, in 3 months of 4,000 a day , plus getting into the sun for 20 minutes about 4to 5 days a week.

I was in bad shape at 19.. I was weak, in a lot more pain, confused

My pain became better after about a month...even at 46 i am still working on the weakness, it comes and goes... I had read it could take 6 to 12 months for all the symptoms to go..

This subject coming back up as we go into fall is good..we need to think about it as we will be in the sun less...

Posted By : Sherrine - 9/24/2014 10:12 AM
I'm in the sun all of the time since I live in Florida so I was surprised that my D levels were low. But I always wear sunscreen and vitamin D cannot be absorbed through sunscreen. This is another reason I take the supplement.

Sherrine

Forum Moderator/Fibromyalgia

Fibromyalgia, Crohn's Disease, Ostomy, Autoimmune Inner Ear Disease, Diabetes, Osteoporosis, Glaucoma, Scoliosis, Ankylosing Spondylitis
************************
God does not give us a spirit of fear, but of power and of love and of a sound mind. 2 Timothy 1:7

Posted By : Lily'sGma - 9/24/2014 10:18 AM
My vitamin D was at 14, which my Dr said was very very low. I see someone said moodiness is a symptom. Is this true? If so, I cant wait to start feeling better. My Rhuemy has my on 50,000 units a week. I am so hoping this helps very soon. I also have a hard time concentrating. Is this part of it too? And the fatigue is almost unbearable. Who knew a Vitamin can cause so much havoc.
Lily's Gma
Panic Disorder, Depression, Degenerative disc in neck and back, Acid Reflux, Fibromyalgia.

Posted By : eat2bwell - 9/24/2014 11:33 AM
The best way to get vitamin D is from the sun but the sun has to be at a certain angle in order to get the vitamin D. In the northern hemisphere this can be a problem. If your shadow is longer than your height you are not going to get vitamin D from the sun. You cannot overdose vitamin D from the sun. There are people in the tropics who spend time in the sun and have levels of 80-100 ng/ml. Problem is as we get older our bodies are not as efficient in converting the vitamin D into the useful form. The process also require cholesterol so if you do not have enough cholesterol that could be a problem. Everything I have read suggest sick people need more vitamin D than healthy people. Last year when I had mine checked it was 78.2 ng/ml. and I feel fine. If you are taking a supplement make sure it is oil based vitamin D3. Vitamin D is a fat soluble and needs fat to be absorb by the body. There is evidence that vitamin D works better than the flu shot in prevention of the flu.

Posted By : Ljm2014 - 9/24/2014 3:50 PM
Lily's gma,

Yes weakness , forgetfulness, increased pain, muscle spasms, moodiness...so many factors can be involved with low d...you can google it or there is info here at fibro 101.

For me the vit d caused so much more extreme symptoms than fibro ever had...it does take a while to get past the symtoms, even after your numbers come back up...

So glad your dr. Found that and you are getting help!

Posted By : Myself 09 - 9/24/2014 4:29 PM
It does seem to be a common thread. I think our bodies are just wired and powered oddly, so I cannot really buy into the supplement/food/pain med route for maximum management.

I think supplements do help, but are a part of the whole regimen. Vitamin D got 'hot' in doctor's offices 3-4 years ago, and everyone was on the kick of testing/talking about it. My vitamin D was low. I take supplements, which is helpful.
Ulcerative Colitis 2003, Fibromyalgia DX 2005, Crohn's 2013, Enteropathic arthritis, 2013. Family History of Fibro--2 out of 3 siblings diagnosed. Started SCD-June 2013. *There are three kinds of people in the world: ones who see the glass as half-full, ones who see the glass as half-empty, and others who see a big crack in the side which is leaking all over their %$#@# foot

Posted By : ak angel - 9/27/2014 1:06 PM
I like taking the vitamin D that is strictly vitamin D with no fillers. They come in 5,000 or 50,000. I believe they keep your level up better. You dont need a script.

Posted By : skyeblue74 - 9/27/2014 3:57 PM
What a trip you guys are talking about this again. I just had blood test yesterday and got a call from the doctors office today. Everything came back normal except my vitamin D!

I've been taking vitamin D3 5,000 IU from Puritan Pride for about a month. They said to take 8,000 a day. I have 3 bottles of the 5,000 though. I'm just going to double the dose and call the doctor Monday and make sure it's ok. And to find out what my levels are.

I'm really hopeful this will eventually help me somehow. All I know is something has to change because I am beyond my breaking point!

Thanks for having the topic of vitamin D in Fribro 101. The doctor wouldn't have checked my levels if I hadn't have asked him to. I am very thankful for this forum. I feel like I know you guys and I really relate to alot of you.

Dawn

Posted By : Ljm2014 - 9/27/2014 6:29 PM
I would not take 50,000 ones unless they are reg testing you...you can get too much.. I just realized my one a day has 2,000 in it..so last winter i was actually getting 3,000 a day and my numbers were falling...i added 4,000 a day and got into the sun a good bit to get it to 46...but i do notice i do not feel as well unless i am getting out several days a week...so the supplements help but not as much as the sunshine...

Being low in this one supplement made me feel worse than i ever had in my life , happily i am still improving.

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