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Posted By : SleepyBug - 4/2/2009 9:24 AM
Hi Everyone :-)

Forgive me if I asked this before...don't think I have, though. Of course, even if I have asked this before, there's a good chance that none of you will remember it either tongue (Oh, don't we love our fibro fog??!!?? eyes )

Anyway-just wondering if any of you ever get this weird symptom that I do-I will randomly feel this sensation that is almost like I am being pricked with a pin or needle. It's always in a very small, concentrated area, and doesn't feel like it's coming from my insides at all, but more like it's in my skin. Not ON my skin, exactly, but IN my skin, yet it doesn't feel like it goes any deeper than that. Like, I don't feel it on a deep internal level..does that make sense? I get this feeling totally randomly and in different spots. Yesterday I felt it in the tip of my middle finger and in the center of my abdomen. Like I said, it's not an all over burning sensation or an ache and it doesn't last very long. It really is just like someone came up and poked me with something sharp in one small area. I really don't know how else to describe it..

So-anyone else have this lovely symptom?

love and hugs

fibromyalgia, ibs, gerd, anxiety

We either make ourselves happy or miserable. The amount of work is the same.~Carlos Castaneda

I wish you all the joy that you can wish.~William Shakespeare

Housework, if you do it right, will kill you.~Erma Bombeck

Posted By : vestabula - 4/2/2009 9:27 AM

Yes, danielle....I get this sensation quite often.  At first I thought I was being stung by a bee or something that got under my clothes.  I've had it on my toes and fingers and thighs the most.  I LOVE fibro!



fibro, menieres disease, RLS, anxiety disorder, disc compression, scoliosis, spinal stenosis TMJ  Meds: Lexapro and valium

Posted By : SleepyBug - 4/2/2009 9:30 AM
Yes, Donna! Just like a bee sting. Couldn't think of that word-big shock. lol

One of the things I love about this place is that it's filled with wonderful people who will reassure me that I'm not nuts! It's all just part of the fibro, bay-bee!

love and hugs

fibromyalgia, ibs, gerd, anxiety

We either make ourselves happy or miserable. The amount of work is the same.~Carlos Castaneda

I wish you all the joy that you can wish.~William Shakespeare

Housework, if you do it right, will kill you.~Erma Bombeck

Posted By : Tootiebug58 - 4/2/2009 9:33 AM
I have had that right in the middle of my tummy. Its a prickly, warm feeling, and I usually notice it first thing in the morning. It goes away during the day.
I have no idea what it is, but am sure it is related to this lovely fibro.


anxiety/panic attacks...osteoporosis....Fibro

Posted By : SleepyBug - 4/2/2009 11:00 AM

Yup-I get it on my tummy. And my fingers and toes. So weird and annoying and even though it doesn't last a long time, wow does it hurt when it happens!

love and hugs

fibromyalgia, ibs, gerd, anxiety

We either make ourselves happy or miserable. The amount of work is the same.~Carlos Castaneda

I wish you all the joy that you can wish.~William Shakespeare

Housework, if you do it right, will kill you.~Erma Bombeck

Posted By : pattipanda - 4/2/2009 11:08 AM

Hey Danielle!!!

I get that too and in exactly the same spots that Donna does.  I don't know why my hands and feet seem to be such a problem for me.. but for some reason they're very effected by the wonderful thing called fibro. AURG!!!!  When I'm not in a flare they almost seem like a tingly itchy feeling.. but if I'm in a flare they really hurt more.

Who knows what causes it.. but I definately get it.


Fibormyalgia, 4x Lyme Disease Survivor, Depression, Anxiety Disorder, Dyslexia, 2 Lumbar Disk Herniations, Allergies, Bi-lateral Carpal Tunnel, Psoriasis. 
Meds = Elavil, Tramadol, Xanax, Lipitor
"Shoot for the moon, even if you miss, you'll land among the stars" - author unknown

Posted By : rache1020 - 4/2/2009 11:29 AM
I just had this happen last night on my big toe, then my index finger. Just out of nowhere -- bam! something just stabbed my toe and the pain lasted maybe five seconds. Maybe two minutes later, Bam! happened again. Then it didnt happen again the rest of the night.

Stupid fibro.

Posted By : Binki - 4/2/2009 11:47 AM
Yep, me too!
Yesterday I was feeling it near the top of my head (like something came out of nowhere and stung me real hard) and I have had and having again lately it in my hands(palm side), just above the bend of my wrist. I have gotten the sensation on my bum b/4 too. :-)

Hail, hail suck! LOL!

Dx Fibro 1/2008, gastritis
600mg Gabapentin, 50mg Pristiq, Ultracet and/or Fentanyl patch as needed, Vitamin D3, Menopausal Support Multi-vitamin

Posted By : pattipanda - 4/2/2009 12:21 PM
LOL... Lori!! I get 'em in the bum too.. but didn't know what word would be appropraite!! Thank you for putting it so well.. and I totally agree with your closing line!!!!! turn

Fibormyalgia, 4x Lyme Disease Survivor, Depression, Anxiety Disorder, Dyslexia, 2 Lumbar Disk Herniations, Allergies, Bi-lateral Carpal Tunnel, Psoriasis. 
Meds = Elavil, Tramadol, Xanax, Lipitor
"Shoot for the moon, even if you miss, you'll land among the stars" - author unknown

Posted By : TarheelMama - 4/5/2009 10:09 PM
Odd that you have this here, I thought I was alone! It feels like I'm getting bit by a fire ant, but there's nothing there! I also get sensations at times like cobwebs are on me.

~Fibromyalgia, Arthritis, Carpal Tunnel Syndrome, Lordosis, Chronic Fatigue, IBS, Chronic Cystitis, PCOS, Cancer Survivor, Dyslexia, Memory Loss, Anxiety, Depression, ADD, Kidney Disorder, Kidney Stones, Migraines, Allergies, Diabetes, Bulging Disks, Weak Ligaments in Knees~
(Insulin, Gabapentin, Cyclobenzaprine HCL, Zolpidem, Rozerem, Hydrocodone ES, Toradol Shots, Steroid Shots)

Posted By : Littleneck - 4/6/2009 1:09 AM
The first time that feeling happened to me, I was riding in the car sitting next to one of my sisters and I thought she kept poking me with a pin to be funny. "Cut that out!" I kept telling her. Now I know why she thought I was crazy. :)

Posted By : leemadd - 4/6/2009 5:48 AM
I get the same thing and it is in certain spots like near my rib cage or elbow or knee . It sure is strange.

Posted By : Baloo - 4/6/2009 6:16 AM
Yes, and it is like a bee sting or fire ant. I have to keep looking to make sure i haven't been stung, becuase I am deathly allergic to bee stings and wasps.

Fibromyalgia, Hashimoto Thyroid disease, Chronic pain.
 All things are possible thru Christ Jesus who strengthens me

Posted By : Marlee2 - 4/6/2009 7:55 AM
When this first started I kept telling DH that we had bugs in the house that were biting me. I also get itchy spots on my body like an itchy bite and it might last for hours, I have one on my left thumb this morning, there is nothing there but it itches. And we wonder why people have a hard time understanding this DD. turn
luv and hugs

Forum Moderator Fibromyalgia
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium and Osteoarthritis
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches and Tramadol
Co Q 10, Super B Complex, Extra B12, Multi vitamin

Posted By : vestabula - 4/6/2009 8:01 AM

Yesterday, I felt like I was being pricked in my eyeball with a pin!  I love it when that happens!



fibro, menieres disease, RLS, anxiety disorder, disc compression, scoliosis, spinal stenosis TMJ  Meds: Lexapro and valium

Posted By : BMadron - 4/7/2009 6:04 PM
I get this too. I thought I was crazy. I happens in random spots all over my body. It feels like tiny pin pricks or bug bits. Being brushed by a spider web is also a good description. I have not officially been diagnosed with fibromyalgia but I also have Psoriatic arthritis. I get referred muscle pain due to the arthritis. When this started happening I though that I was allergic to Lortab, but it does not occur everytime that I take it. I am Neurotin for pheriphal neuropathy in my feet. I was on Lyrica but had to go off it for insurance reasons. I do not know if the neuropathy has anything to do with it. I was just at my Rheumatologist and forgot to tell her about it.

Posted By : BabyRuby - 6/22/2009 7:46 PM
smhair  OMG!  I have experienced this irritating pin sensation for a month now; just when I think it is subsiding, it escalates again.  I have pin pricks in waves.  Like I'll get one on my arm, then my face, then my stomach, and the top of scalp.  This is enough to drive one insane.  It seems to get much worse in the evening hours.  I'm pretty good most of the afternoon, with may a few pins through the day - by the time 5 p.m. hits, they start up.  I've suffered from numbness and tingling in the past, but this pin thing is entirely different.  I have an appt with a rheumatologist next month so hopefully she'll research this.  Meanwhile, let me know how your pins progress or if they stop. 

Posted By : noklu - 6/22/2009 8:13 PM
I get it on my fingers and toes. It drives me to drink, I mean nuts!!!

anxiety, avascular necrosis, costochondritis, depression, cfs, hypothyroidism, fibro, gerd, thyroid, uc 
in trying times, don't quit trying          

Posted By : Littleneck - 6/23/2009 1:37 AM
Scalp, hands, feet, thighs and back. I have backscratchers in every room because it will itch after the pinprick feeling. I also get LOT of goosebumps lately!

Posted By : Marlee2 - 6/23/2009 8:00 AM
Hi Baby Ruth and welcome. I'm glad you joined the family. We do get some weird feelings with fibro. Read the fibro 101 thread, second on first page, it contains lots of great info. Ask questions and read and we will be here to help you.
luv and hugs

Forum Moderator Fibromyalgia
Fibro,Sjogrens, Anxiety, Gastroparesis, IBS, Gastritis, Allergies, High Blood Pressure, Low Blood Sodium and Osteoarthritis
Amitriptyline, Celexa, Xanax, Synthroid, Zyrtec, Micardis, Spironalactone, Tylenol, Reglan, Lidoderm Patches and Tramadol
Co Q 10, Super B Complex, Extra B12, Multi vitamin

Posted By : boo32 - 6/23/2009 8:37 AM
i'm never questioning my fm again. A bee sting is exactly what i get, mostly on my back and legs. It makes me jump.
While we're on the subject are any of you prone to static shocks when you touch metal, my husband says i should have those strips that hang out the back of cars on my heels.

BikeBoo, biking with my boo since 1999
Of all the things i've lost, i miss my mind the most!
Fibro and spinal arthritis, trying to mange it with diet, exercise and accepting my limits, as i'm allergic to EVERYTHING!
TTC NO1 since Jan08

Posted By : SheTiger68 - 6/24/2009 5:43 AM
Not only do I get the pin-prick feeling a lot (mostly in my hands and arms), but I also get shocked a lot when touching something metal. The first few times it happened I figured maybe it was because I had been walking across a carpet and built up static electricity, or perhaps my hands were wet. But I started taking notice, and realized it was just randomly happening, no matter what. I have learned to be wary around metallic stuff, and just adapted to getting shock therapy every day, lol!

Live, Love, Laugh. We only get to ride this ride once!

Posted By : Positronic - 7/4/2009 7:13 AM
Itching and pin point electric shocks experienced mainly on hands, feet, legs, thighs - extremities. Itchy eyes. It feels to me as though the hair follicles are drying out and that causes the itching...but why the shocks?
This started in 2000, almost overnight, after having moved into a house with new carpet. I immediately developed a red dot rash on the extremities of arms (especially palms and inside wrists) and lowert legs. It was itchy. Electric-type shocks. Ver localised, but enough to get a reaction.
A flatmate suggested Zyrtec. The red dots disappeared but the electric shocks stayed. I've been taking 1 Zyrtec at least every 3 days for 9 years now. It keeps the symptoms at bay.
What are the exact symptoms? They are a specific itchyness at the hair folical. Almost always accompanied by electric shocks to the extremities. It's a surface skin thing. Often a general state of hightened alert accompanies this as I know what to expect. It can make me jerk in response, but not an out-of-control, just a reactionary movement.
Get the feeling that I couldn't cope without Zyrtec. I always stock up on it...and make sure it's available if I'm travelling overseas from Australia.
I've had every blood test known and never found the cause. Allergies have been suggested, but I've changed my diet (reduced sugar / fats) and lifestyle (smoking / exercise) and it makes no difference. I had an allergy screen but nothing. Perplexing.
This is an interesting condition as it's not mental / imagined. If I didn't take Zyrtec, I get the sense that I'd be incapacitated by itching and electric shock type sensations. Not painful, but annoying.
Will look at the suggestions made here.
I have a Son who's 8 and he has no similar symptoms, nor does the fiance.

Posted By : AustenFan - 7/4/2009 8:25 AM
This has been happening to me too over the past week or so.  I was starting to wonder, "Now what's wrong with me?"  Since it seems so common among us fibromites, I guess it's just part of fibro. 
Thanks Danielle for asking the question that's been driving me crazy too!  smilewinkgrin
Hugs - Austen

"There is no charm equal to tenderness of  heart." - Jane Austen
Fibromyalgia, 2 back surgeries, Meniere's Disease, 30+ kidney stones, GERD, IBS, Asthma, Allergies, Endometriosis, Heart Arrythmia, Myofascial Pain, TMJ.

Posted By : Mel5 - 1/27/2010 1:26 PM
I had the same sensation and turned out I had low levels of vitamin D. Seems my nerves are irritated due to a metabolic imbalance. They put me on 2000 IU of vitamin D and my symptoms are going away. Also, don't see a dermatologists have your doctor refer you to a neurologist. It is not the skin, but the nerve endings.

I hope this helps you

God bless

Posted By : luvskermit - 1/27/2010 2:17 PM
I get that bee sting feeling in my fingers. The area tends to get deep red and swells...and 15 minutes later it's gone. I call it the "ice pick". Glad to know I'm not alone, yet sorry you all put up with it, too.

Posted By : Wish I Might - 2/26/2010 8:27 PM
Hi Everyone,
I'm new to the site and so glad to read some of these posts.  I've experienced this as well.  The first time it happened it was in my eyeball.  Just a quick painful shock that scared me to death.  It stayed in my right eye for quite awhile.  It would just come and go randomly, and at first I thought I'd gotten something in my eye.  It was only later that I realized it was something quite different.  Since then, I've been nearly driven over the edge by intense itching and electric shocks all over my body.  I've been reading up on myoclonus, and am beginning to believe this might be what's involved.  Has anyone here been diagnosed with myoclonus?  If so, I would love to hear more about it.  Thanks and God bless.

Posted By : SassyMyKitty - 2/27/2010 7:46 AM
I don't know if this is the same thing or not, but when I lie down for a while, like when I am asleep at night, I wake up and my feet feel all prickly and almost a little numb. I don't sleep in any weird positions, and this happens when I sit for too long as well.

Be who you are and say what you feel because those who mind don't matter and those who matter don't mind. Dr. Seuss

Posted By : Eric.E - 2/28/2010 8:09 AM
Yes, I have the same thing going on... It just started a few weeks ago and the Doc checked it out and could not find nothing wrong. Its like getting pinched with finger nails on Abdominal area and it just happens when randomly. I totally understand.....

Posted By : - 3/1/2010 7:27 AM
I get stingy sensations too, but i don't think it is as painful as a bee sting, I don't yelp or jump because of it. What it feels like to me - and maybe you won't understan this if you didn't grow up in the coutry! - is like getting a tiny thorn from a blackberry bush stuck in me! used to pick blackberries as a kid, and they have the tiniest throns, really more like razor sharp fuzz on their stems. You can get them stuck in you without really noticing, but if you run your hand over the area where they are stuck then it really stings. They are almost impossible to see, and have to be pulled out with tweezers. That is more like what my pricklies feel like. I get them on my toes, fingers, arms, tummy. Often I would go to a bright light and scour the area looking for the tiny thorn, even though I have not been near a blackberry bush for decades! Sometimes they feel like a hangnail too, especially if they are on my toes, I will check the nail side trying to spot the culprit but never find any.

fibromyalgia, Irritable Bowel, restless legs, polycystic ovarian syndrome.

Posted By : Libby08 - 3/1/2010 6:23 PM
Great topic!  I get the same thing, in any random place on my body.  It will sometimes cause me to jump- feels like almost out of my skin.  I always figured it was from the fibro.........Don't you just love it?????

Posted By : upbeat - 3/2/2010 1:23 AM
I get the same bee sting, but mine is in the exact same place (behind my knee) every time and happens when my back is acting up. I have always assumed it was from a nerve in my back. I wonder if Vit B would help those that have it in the extremities - is it B6 that helps nerves? Can't remember, I think my pain meds are kicking in and I can try to go back to bed! :)

Fibro dx 2004, RLS, raynauds

Posted By : Susanlynn9 - 3/2/2010 10:03 AM
I get these "stings" all of the time in all parts of my body, mainly in my hands. Fibro is definitely the disease that keeps on giving!


Breast Cancer Survivor (2005); Bipolar Disorder; Diabetes; Migraines; Fibromyalgia; Knee and Ankle Rheumatoid Arthritis

Posted By : DonniesGirl - 3/2/2010 10:46 PM
Yes!  I get these stinging sensations too.  Another member posted that it feels like a bee sting, and that is exactly what mine feels like.  I had it on my back the other day, and actually took off my shirt b/c I thought there was something in my shirt stinging me.  No sign of anything.  I'm always expecting a mark where it happens...nope.  Just fibro.  :( 
It's nice to see that we aren't alone though, right?  :) 
Hang in there,
DonniesGirl  :)

Fibromyalgia, Chronic Fatigue, GERD, Irritable Bowel, Mitral Valve Prolapse, Depression
Rx:  Lyrica 100mg 2x, Prilosec OTC, Paxil, Xanax
Even though the journey's long,
and I know the road is hard,
there's One who's gone before me,
He will help me carry on...

Posted By : yo-yo - 3/5/2010 3:59 PM
I too think its a nerve ending thing.  I've only had these electric nerve shocks a couple of times.  Last night I woke up out of a sound sleep with a sharp shocky type nerve going wacko between my big toe and the next one!  Shot me right up out of bed!  It just kept zapping me like an electric fence which makes me think its a nerve ending thing.  After zapping me for a few minutes then it got itchy!  What fun! 

Posted By : angelwngs - 4/21/2010 10:23 AM
 Hi everyone, I am new here. I've not been diagnosised with Fibromyalgia, but I have been having many issues which led me to this forum. In July 2009, I had a stabbing pain in my left eye. It lasted overnight. The next morning, a Sunday, our eye dr met us at his office thinking I had gotten a sliver of metal or wood in my eye. There was evidence of trauma but nothing lodged in my eye. From that day on my eye has been weeping sticky clear fluid. The eye lids sting profusely. Then occasionally upon walking the top of my head would hurt so badly it felt as if I had to hold it to keep it from coming off. This feeling continued on and off for months. Then the bee stings and electric shock sensations began. They were first confined to my face & then moved to my hands & then to my feet... Now they are all over my body. Sometimes they are tolerable & feel as if I have fallen into a fire ant bed. Other times I feel sharp, DEEP Stabbing sensations accompanied by electrical shock which literally make me want to jump out of my skin. They attack over my body, including my private parts like blinking Christmas tree lights. I never have a clue as to where they will hit next or how intensely. There are two spots on both sides of my forehead which when these sensations hit there, extreme waves of nausea come over me. In May of 2009, I pulled a tick off of me. There was already a very large red round rash around the tick & where it was attached to me. The next morning I went with my husband to our family dr who immediately put me on 8 days of antibiotics. Then came what my dr thought was pneumonia & I got more antibiotics, breathing treatments & steroids. Since then I've been to rheum, 2 ENT's, 2 Eye dr's & a neurologist. I have had a CT, 3 MRI's & 16 blood tests. The only thing abnormal is
my ct showed some sinus infection. Since June I have had 6 rounds of antibiotics! Now
 my Vitamin D is low at 15 when normal low is 30 & my blood sugar was 63. (I have had it as low as 39/as I was told years ago I was hypoglycemic.) Tests show negative for Lyme
Disease, MS and basically every other disease known to man for which which dr's have tested. Now, Neuro wants to do Spinal Tap/Nerve Conduction Study& an EMG- I've tried Lyrica and Neurontin & become agitated and like I'm on diet pills on both. I don't know what to do next.... I'm at my wits end. Please help with any advice if anyone has any suggestions....

Posted By : bygrace123 - 3/21/2011 3:21 PM
I am new to being diagnosed and I have these same sensations. Mine have come on with a vengence when I am trying to sleep. So ontop of my body not going into deep sleep, I am slapping, itching and trying to wiggle away the fire ant type pains randomly moving all over my body.
Has anyoe found any relief from it and what did you try?

Posted By : The-Abyss - 7/26/2011 5:12 AM
To start, I apologize if what I say isn't as clear and concise as it could be ( brain fog.) I am not a Dr. and anything I say is open and welcome to scrutiny..... But here are my thoughts.
I have had symptoms similar ( for about 4 years) to you all plus some. I'm pretty sure I have Lyme disease, but can't get a dr to diagnose anything to save my life. Regardless, pretty sure I have fibromyalgia as well as a number of other things. I have done a ton of reading and comparing symptoms and whatnot. From what I can tell, fibromyalgia is more of a symptom than a diagnosis. It seems to be usually associated ( when the dr's can figure out what's wrong) with other diseases and such that affect the brain, at least in some small part. The brain controls everything.
It would seem ( to me, anyway) that it only makes sense that there is something else either changing brain chemistry or causing some brain damage, therefor sending out bad signals. Dr's still have no real understanding of what causes fibromyalgia, and diagnose it when they get stumped and have no other idea of what it could be. Personally, I would never accept fibromyalgia as anything other than a symptom ( just feels like a cop out on the dr's parts) and would get a 2nd, 3rd, 4th (etc, etc) opinion until one of them comes up with the real reason.
Anyway, that's my 2 cents on this.

-- Question everything. --

Posted By : tara_ - 7/26/2011 9:47 AM
The-Abyss: interesting view. I've been thinking the same for a while now but have never really put it into words. When the pain and fatigue is bad, I tell people I'm having a fibro flare. But when anyone asks what I have, I tell them doctors don't know yet. I'm not sure if I'll ever accept the fibro diagnosis. As one of my doctors explained to me, fibro is nothing but a cluster of symptoms put together for diagnostic purposes when the real cause isn't found.

Posted By : Klambert1 - 7/27/2011 6:02 PM
I don't think I will ever accept the fibro diagnosis either. I am always searching, reading and trying to come up with something else that "could" be wrong with me. It's crazy to think that so many people have it that they could figure out what is going on. Who knows, sometimes I think it could be toxic chemicals in the air or some biological war chemicals we are exposed too, lol, and maybe we are told it's fibromyalgia...haha, random thought, but it has crossed my mind in these times.

I do get the pin prick sensations, but honestly I thought it was normal for I never really thought it would be fibro. See when you have fibro, you sometimes don't know what is normal pain for everybody and just fibro pain only. Well to me anyway, lol. I get them in different areas and I would try to quickly look and catch to see what was biting me, and nothing was ever there. HAHA I used to think it was maybe a bug so tiny I couldn't see it, but now I see that fibromites have it too..hahaha, tiny bug.


Posted By : The-Abyss - 7/27/2011 7:44 PM
Yeah, this stuff is crazy. Most of the time I'm not sure whether I want to laugh, scream or cry, lol. My family thinks It's "all in my head." My friends believe me, but none of them can ever truly understand it, even though they try. It's nice to have a place to share thoughts and feelings with people that understand (not that I wish this crap on anyone.) I guess that's all I have for now. Stay strong.

Posted By : SummerPixie - 7/30/2011 11:26 AM
Hi ! I am new to forums, in fact this is my first post to a "thread". I came here because I am experiencing these strange pin prick sensations on the bottom of my feet mainly at night when I'm trying to go to sleep as well as random though infrequent ones all over my body esp. legs, thighs and back. I am noticing this more now that I have stopped taking any and all medications for my Fibro pain. I was worried it may be radiation causing this ( I live on the coast of Northern California ) because I seem to be so sensitive to everything. The pinprick feeling on the bottom of my feet is sudden sharp and makes me jump sometimes. The pricks on my legs feel like there is a bug or something and and I always feel & look to see if anything is there of which I find nothing . I had decided to stop medicating this Spring as I wanted to really feel what was going on with my body and see if I could let my body find it's natural rhythm again and make a better assessment of my Fibomyalgia that the rheumatologist had diagnosed me with. I had been given many different meds from anti-depressents to Vioxx , etc. sticking mainly with Vicodine w/out Tylenol as it was ( or so it seemed ) most effective for treating my discomfort and helping me with energy without so many horrible side effects and feeling like an alien had taken over my body ! I had used this as I had been recovering from a bad car accident, multiple traumatic dental surgeries ( several root canals,etc. ) illness from black mold where I had been living & breathing the stuff, moving to a new house where there was a slow carbon monoxide gas leak for three months ( making my fibro flare up severely ) a divorce, death of three loved ones within a year , lots of stress , moving back to this country after a decade overseas ( culture shock ) , Mono-Epstein Barr Virus , other illness/virus/bugs from traveling and living in remote countries .
While the pain relief from the medication was helpful during the worst parts of my flare ups I noticed as I started to feel better that the unfortunate side effects of the pain meds ( constipation , nausea, fatigue , brain fog ) seemed to be exaggerating my fibro symptoms . I felt more achey and would have endless inflammation and pain in my scapula that caused me to want to be massaged very vigorously almost to the point of bruising because I could never "get" to the pain. I was almost experiencing a "boomarang" effect, I couldn't tell the difference between what was my "fibro" pain and what was caused by "withdrawals" from my body wanting it's dose of medication. That's why I needed to do a cleanse and to find out where I really stood. It was a difficult passage to stop the meds . I was worried I wouldn't be able to even stand for long w/out them, do any normal tasks . It took about two weeks to taper the meds and two weeks to go through the worst of the withdrawals. I did notice a remarkable difference in my Fibro. I wasn't getting as much inflammation & flare ups . I still have the discomfort but right now ( the last five months ) it has been manageable. I went to a free clinic at the local Ayurvedic Hospital where I got support with my diet and some supplements to help balance my digestion and for sleep/ pain. overall I am feeling so much better I am able to get more exercise which in turn makes me feel better both mentally & physically which lessens the doomed feeling of being a disabled fibro victim for life as I had felt cry .
Now as I am finding out where my body truly stands I am noticing that my metabolism seems to have slowed and I have gained weight though I am exercising more and eating healthier . I know it is worth it because I feel so much better . Also I now have had the worst acne ( never had it acne in my life ) ! The pinpricks are awful and aggravating . Also , I am unable to stay up late like I was used to and cannot sleep in . I feel the need for deeper rest and don't want to take pills for this ! I have tried herbs , baths , etc. I think the meds suppress a lot of functions in the body and effect the nervous system by depressing it then the body acts out over time by becoming even more aggravated and sensitive / jumpy. So my conclusion is that if you can maintain yourself with healthy diet, ROUTINE, sleep and exercise ~ and have a strong mind, healthy emotions and surround yourself with healthy people ( emotionally , mentally, physically and "spiritually" ) you may be better off in the long run dealing with your Fibro . The body is capable of many amazing miracles and I am going to keep believing and working toward healing yeah

Posted By : CrushFibro - 7/30/2011 12:21 PM
My "bee sting" sensation always occurs in the same spot -- my left shoulder. It drives me mad when it happens repeatedly because I keep trying to find something there, but like everyone else, it's invisible. I also attribute it to nerve pain.

I've taken my shirt off on more than one occasion and replaced it with a different one hoping it would make it better. Sometimes the placebo effect helps in that I "think" I am doing something to address the problem. haha... oh, the goofy things we are willing to try in an effort to make our symptoms go away.

As far as my take on fibromyalgia, it does appear to be a cluster of symptoms that many of us have in common. I don't care what they call it or if it's an actual diagnosis or whatever; I just want them to continue researching to see if they can find what causes these symptoms (in the hopes that we could prevent others from suffering in this manner), find effective ways to treat it, etc.

I don't feel as though the doctors have "missed" anything and that I have something else.

Posted By : Greendesigner - 8/24/2011 8:48 AM

Posted By : Greendesigner - 8/24/2011 8:52 AM
Hi everyone. Whenever I get this pinprick sensation I take a swig or two of a product called Ferroglobin. I find it also helps with the brain fog and tinitus. To the point where all my symptoms disappear. I think it is because I am low on vitamin B12, not being a great meat eater,but this replaces it for me. It really works and quickly too. You need to find what dose works for you and don't overdo it as this can be quite bad too. If your stools turn black and you become constipated your taking To much. Below is the website for the product. I promise you I am in no way connected with this company, I stumbled across it through having an interest in finding a way to help myself together with some training in the area having studied biopsychology at university level. After experimenting with several different types of supplements (convinced that it was a dietary caused problem) I found this to work well for me. I hope it is of help to yourselves

Post Edited (Greendesigner) : 8/24/2011 9:04:02 AM (GMT-6)

Posted By : applevenus - 8/24/2011 10:15 AM
I've had this sort of stab/pin prick pain in my fingers for years and more lately in my toes. It was way before I had the fatigue and the all-over body aches. I figured it was like arthritis pings. I guess I thought other people had them sometimes too. Whoops apparently not. The more I hear, the more I think I have been dealing with this for more than the 10 years I have lately guessed. I can't seem to pinpoint when all this started for me.
46F, Fibromyalgia, Vitamin D deficiency, allergies/chemical sensitivities, possible Chronic Fatigue & IBS (only God knows what else is going on!)

Posted By : The-Abyss - 8/24/2011 2:13 PM
To Applevenus: Normal people usually don't feel that but every once in a while, maybe. The pains and such sound like they could be fibromyalgia (which is an underlying problem/symptom) You need to try to keep seeing Dr's until one gives you an actual answer and treatment plan that works. As far as Dr's go, if you're being completely honest with them and they seem to blow you off, go to another one.

Posted By : ROCKTAN - 9/3/2011 6:18 PM
Donna and Daniele I have the same exact thing , a tiny needle pin point random prick throughout my body , I mean it travels throughout my body my hands to legs ,legs to tummy , head I mean everywhere , it doesn't discriminate when it travels , it is not coming from inside my body nor from outside of my skin ,it's like right underneath of my skin or something ,, I hope it 's not anything serious
.... what is that , ? this has been happening for 3 years time to time now,,

Posted By : ROCKTAN - 9/3/2011 6:30 PM
guys this thing going throughout my body and it is very uncomfortable
and weird...................... seems like nothing serious, , doesn't it?>

Posted By : Namian - 9/4/2011 12:22 PM
I get the bee sting pains too...I've been getting those for years, long before I was diagnosed. Tiger...I'd never thought of the shocks with metal being an effect with fm! I was going through Costco yesterday and i was constantly being zapped by the shopping cart. It was really annoying!
Mom to three
Newly diagnosed with FM, Migraines, IBS, hearing loss, tinnitus

Posted By : toughenough - 9/4/2011 2:15 PM
I agree with Mel5 abiut the vitamin D BUT if you have it in your feet like I do it could be nerve damage. For years I've complained about my feet. My toes and ball of my foot tingle, go numb, it feels like a sock is wadded up in the ball of my foot, etc. I went to a foot doctor over 5 years ago and they found nothing wrong, even tested for neuropthy. I blamed it on fibro for years.

I went to a rheumy a few months ago and she said it wasn't from fibro. I went to a different foot doctor and he diagnosed it in less than 5 minutes as Morton's Neuroma. I'll probably end up getting surgery and my internist says it will be relatively minor. If I can walk without pain then I can walk and get some exercise they are always telling us to do.

Sorry you guys are having these problems - it's anoying and frustrating - not to mention painful.
Hysterectomy 1996, UC diagnosed 1997 - 1st surgery 11/2/10 colonectomy, 2nd J-Pouch take down 12/29/10, incisional hernia surgery 7/5/11, Restless Legs syndrome, Sleep Apnea,
Fibromyalgia diagnosed 1998, GERD diagnosed 2005, Morton's Neuroma diagnosed in both feet 2011 (symptoms 8 yrs)

Posted By : Swansonmjs - 9/4/2011 5:08 PM
Fibromyalgia, Anxiety Disorder, Sad, GAD, Degenerative disc disease
Lexapro, Nortryptiline, Melatonin, Ambium (as needed), Gabapentin (Neurontin), Tramadal (as needed),Vitamins B, CALCIUM, D, FISH OIL, MAGNESIUM, Malic Acid, Apple Cider Vinegar, TYLENOL

"I have Fibro - Fibro doesn't have me"

Posted By : Going crazy 2011 - 9/22/2011 7:49 PM
Can anyone comment on the bug bites or cobweb feelings

Posted By : McFibro - 9/22/2011 9:18 PM
I thought a spider was in my jeans-we were in a store and I pulled my pant leg up as far as I could so my husband could see it, but no spider. I've also been poked in the eye and the back. The most recent was little needles being hammered in the top of my head. None of it lasts very long, but it's so annoying. Glad to not be alone with this! Take care, Anne

Posted By : Femangel - 9/23/2011 2:44 AM
Yeah i get them all the time. never lasts long and it can be in random places. It is similar to beeing stung only it doesn't really burn afterwards. Over time i've kinda gotten used to the pricks, so much so that i when a wasp DID sting me a couple of weeks back i didn't norice at first, thaught it was just on of them things tille my bf pointed out that the back of my neck was swelling lol.

"Live in the present, remember the past, but fear not the future, for it doesn't exist and never shall" (Christopher Paolini - Eldest)

Fibromyalgia, Scoliosis, Degenerative Disc Disease, Parasomniac.

Posted By : Digglerswife - 10/31/2011 8:26 AM
Question...Before any of you guys were diagnose with Fibro , did anyone ever misdiagnose you for having dry skin,scabies, or other skin condition?

Posted By : mamahorstman - 11/1/2011 2:59 PM
Okay, so I started reading all these systems and although all these post are old did anyone ever figure out what it was? I feel like someone has a voodoo doll on me. I get this pin prick on the left side of my neck and the left side of my stomach at the exact same time. Been happing the last 4 days...just comes and goes...last for about a second.

Posted By : darkshadow2 - 12/11/2011 8:09 PM
Can lupus cause the bee sting affect also, and if so what can be done for it?  Mine has gotten bad esp when I get home from work and take my shoes off for the night.I have discovered soaking in white vinegar and epson salt helps  a little. also rubbing absorbin jr on it.I am 52 years old and I have lupus.diabeates,chf.vaveluar heart diesease,copd,asthma,pulmonary hypertension,rh,severe gout osteoporsis and osteoarthritis. turn

Posted By : yellwdaisy - 12/11/2011 9:44 PM
I too have experienced this "prickly sensation", although mine have been on my toes and my calves of my legs. It doesn't last long and may come and go but it is painful. Glad to know others out there have experienced this as well. Chalk it up to is weird how we seem to have the strangest complaints and yet for a large group we have them in common. It's nice to know we are not alone.


Posted By : Zac Conway - 1/25/2012 2:24 AM
Hey guys! I get the same pinpricky feeling, but all over,my body. And when i get it it hurts alot. I dont know if this is an effect of my add medication or accutane, or just my anxiety and mdd kicking in. (major depression disorder). Also when i get this feeling my skin becomes red and almost itchy, but painful. If anyone has any answers i would really apreciate it because it gets annoying when ur trying hang with ur buds and all ur focused on is the pain.

Sincerly, an 8th grade guy who would rly benefit from some answers :))))

Posted By : Redion - 4/8/2012 1:32 AM
I get that feeling very often. Around my lover back area.

Posted By : Mealmaker - 4/8/2012 2:35 AM
Ah I get this too!! Generally in the evening and was beginning to think I had bugs in my favourite chair and in bed!! I will get the 'prick' sensation and then rub the area thinking I've been bitten by something however there's nothing around. I knew I wasn't nuts but sometimes the mind boggles. I'm sooooo glad to know that it's not just me. Our wiring is definitely faulty.

Dx Fibromyalgia, CF, Severe TMJ, Osteopenia of lower spine, arthritis of L hip, bursitis of L shoulder and hip, GERD, Perimenopause and query RA. Deleting Dairy and sugar out of my diet was what set me on the road to recovery.

"Behold the turtle who never makes progress unless he sticks his neck out" Unknown

Posted By : BrightSunshine - 9/11/2012 12:29 PM
I have also been getting the pin/needle poking sensation on my toe, finger and side of stomach. Started a week ago. I jumped and took off my shoe to check if a needle was in there. Nothing. Then i felt it in my thumb and other fingers.

I've been looking online and people with Peripheral Neuropathy also report such symptoms.

What i notice is that almost everyone here who has the pin prick, also has fibromyalgia. I wonder if it is related.
Also, nearly everyone on this thread has a back/dick/spine issue and anxiety. I wonder if those factors can therefore be a related cause. If a nerve in the spine is compressed or irritated, maybe it can make the nerve cause this pin prick thing. Other possibilities are Vitamin B deficiencies.

Has anyone found a cause or a solution to eliminate the pin/needle pricks?

P.S. How can we inbox people on this forum?

Posted By : Luvzminis - 9/11/2012 5:22 PM
I got a nasty shock a few weeks ago.
I was dipping zucchini into a beaten egg, then in another pan I had bread crumbs. Kept getting 'jumping' shocks as I went from the metal bowl with the egg, to the metal bowl with the crumbs, to the frying pan. Man--they were some nasty shocks, too! A very "shocking experience"! :)

So do we with fibro just have 'too much' electricity in our bodies?

Posted By : Breeze530 - 11/7/2012 8:19 PM
darkshadow2 said...
Can lupus cause the bee sting affect also, and if so what can be done for it?  Mine has gotten bad esp when I get home from work and take my shoes off for the night.I have discovered soaking in white vinegar and epson salt helps  a little. also rubbing absorbin jr on it.I am 52 years old and I have lupus.diabeates,chf.vaveluar heart diesease,copd,asthma,pulmonary hypertension,rh,severe gout osteoporsis and osteoarthritis. turn (I love the old Dark Shadows from the 60s!)  I've been reading this post today. I have this problem too. I will just be sitting, standing or lying down & suddenly my back, leg, arm, toe or finger will feel like an insect is biting me or I'm being stung by a bee. In the beginning it was excclusively on my back only and was followed by intense itching . I'd stratch and then later it would look like a bug bite. I started researching and the 1st thing I came up with was bed bugs. I do occasionally buy things at thrift store, so I was on a roll.... I couldn't stop thinking about bugs. I ended up calling this company that has "bed bug dogs" that can find any sign of them. They are almost 100% accurate. They found absolutely nothing. Believe me, I was glad to find out that wasn't the problem, but I was still left with unanswered problems.
Recently I've read about a dermatitis that some people get from the hairs of the nymphs of carpet beetles. It also feels like something is just running across me sometimes. This is the best answer I've ever found. I asked my GP about it and she sort of smiled and said she'd never heard of it. From what I've read people get it from not vacuuming enough and after they have been around for awhile. That part is sort of embarrassing. But having fibro and other med problems I can't always vacuum when I should. I hate even writing this because I don't want anyone else to freak out unnecessarily. But if it is your problem, it's better to know how to get rid of it. Since I've been vacuuming a lot more it seems to be much improved. Here is a link:

Posted By : baccsurfs - 7/7/2013 5:19 PM
I have been getting lots of weird sensations lately:

Feeling of something between my toes
Feeling raindrops randomly all over my body
Pin prick sensations all over
stinging/burning pain (not sure how to describe it) mainly in my feet but occasionly in hands/finger and calves
cobweb/creepy crawling sensation (mainly on legs0

I also hear a low whistling/buzzing sound (worse at night especially when I wake up in the middle of the night which is frequent)

I was told I had Fibro in December and then they backed off that diagnosis and now have been told Connective Tissue disorder. The Fibro diagnosis did not explain a few of my symptoms especially the results of the Pulmonary Function Test.

Restrictive Airway Disease, Multilevel Degenerative Disk Disease, Undifferentiated Connective Tissue Disorder

Posted By : Marilee1948 - 6/2/2014 6:04 PM
I haven't been diagnosed with fibro by my current doc, but a rheumatologist said I had it about 3 years ago. Lately I've been having increased pinprick pain. It's like a bee sting and lasts only a quick few seconds, but it hurts like crazy when it happens. It's mostly in my feet, but I've had it in my fingers, my legs and my arms. I resisted accepting the fibro diagnosis, but I'm starting to think maybe it was correct. I'm being treated for polymyalgia rheumatic, which has some of the same symptoms. Fatigue, sleep interruption, widespread aching that feels like it goes to my bones. I could sleep for 12 hours and wake up tired. Whatever it is, it's awful!

Posted By : JustWantAnswers - 8/26/2014 8:39 PM
I've been having vague symptoms for years (nausea, vomiting in morning, not pregnant, bouts of sleepiness) but I'm eagerly seeking an answer to my weird pains... as more and more tests show nothing, I'm starting to think it's fibro. Esp after reading these posts. Last august my fingers would feel numb/tingly for a couple hours prob 3 times that month. Then not again until Feb. It became more and more often, and since May it's been pretty constant. EMG ruled out neuropathy, carpal tunnel, pinched nerve/nerve damage, etc. I'm on vit D and B12 supplements, bloodwork is fantastic (negative for lyme, have great liver, kidneys, electrolytes, A1C (diabetes marker)). I was diagnosed with epilepsy at age 21 which is a really unusual age. I'm 31 now. All my MRIs have been normal, so no MS or tumors. My seizure med levels are stable. I'm getting more in depth testing for tick born diseases, but beyond that, all that's left is fibro. Anyone know other avenues worth pursuing?
I'm jumping around a bit (fibro fog?), but in July I started having these sharp shooting pains everywhere. It would shoot through my hip, then my foot, then my arm... it's happened in my chest so bad I almost went to the ER, up my neck, I feel crazy trying to explain it to ppl. It's the same shooting pain, just EVERYWHERE, and so sporatic, it just doesn't make sense. Each pain only lasts a split second, but sometimes they'll come for hours. Sometimes its enough to make me jerk an arm or leg. One night it had me flailing about, an arm then a leg then my arm again... scared the @(#* out of me. A few days after those sharp shooting pains started (the first 4 days were super strong, causing violent jerking, scary), I started occasionally having that bee sting sensation. Its usually my big toe, my stomach, or my back but can happen anywhere. Yesterday and today I just feel exhausted. I slept 8 solid hours, was up for 4 hours, then couldn't fight off the need for a nap. And trying to wake up from my naps is almost impossible. I could sleep straight into the night if undisturbed. It happens from time to time and its awful. Just suddenly boom, I NEED to sleep, I cant fight it, doesn't matter what I'm doing or planning on doing, I just have to nap.
I'm not having joint pain, my muscles all feel tense, my thighs always feel bruised to touch.
I'm seeing a rheumatologist next month but in the meantime, this sucks! It really helps knowing I'm not alone and I'm not crazy. No matter what the underlying cause in my case, knowing other ppl feel these weird things makes me feel better. I feel like everyone around me things I'm making a big deal over "nothing"... the "bad things" were ruled out so I should stop worrying or thinking about it. It's attributed to stress, being psychosomatic. I don't accept that, I know I'm stressed but this is more than stress.
Oh, and I've become so cloudy headed, I feel like I'm becoming stupid. I feel like I'm stoned all the time or something, I've been making mistakes at work and its not good. That is most embarrassing :(

Posted By : Ljm2014 - 8/27/2014 10:19 PM
Yes, i think its the nerve endings...i get that sometimes in the evening, often on my shins.feels a lot like a bee sting and sometimes just that area will itch..

Its a very fibro thing...if i haven't had it in a while i will jump when it happens.

Posted By : Artsrobn - 3/21/2015 7:25 AM
I have a feeling in my middle finger as if there's something in it. Have soaked in epsom salts, nothing comes out. Doesn't seem to have an entry point, either. At the same time, I have been having problems with my left shoulder and the muscle underneath my upper left arm. Could these things be related?

Posted By : KvegasLady - 3/25/2015 11:22 AM
   I get the pin pricks in different spots on my face, fingers, toes mostly, but other places on my body too.   And the static shocks are awful!   Getting things from the frozen food aisle is the pits!   The look on one guy's face was precious when I reached for a cooler door handle and it was actually an arc shock you could see!   I'm so paranoid when pumping gas bcz I know static can cause a fire with the gas fumes.
   Has anyone found anything that helps with either situation?  I've never been diagnosed with Fibro.   I was researching to find out about the pin pricks and came upon this site, so now am starting to wonder.

Posted By : Bananaz - 1/21/2016 7:06 PM
Over the past week or two I just started having some pinprick sensations on my fingers, maybe toes too. The first time I looked because it was quite intense but not painful. The last two days I had intense pain when sitting down, like i sat on a pin. I swore I must have but there was nothing there and my skin was intact. I then figured it must have been a shock. Later it happened again, the next time I sat down. Again that day, then once today, being the worst. It felt like I was shocked by a really hot needle while it pocked me in the but as I was sitting down. I jumped! Almost cried.

Don't know if that helps.

I read Mayo Clinic info about Fibromyalgia and it doesn't mention this and I don't have the majority of the symptoms they list.

Posted By : FlyRed - 1/20/2017 2:11 PM
I get them too, mostly feet and legs, but also back and shoulders, abdomen, anywhere is game! In fact I get them often enough that one night lying in bed I told my husband I just got stung. He did not believe me, Ten minutes later I decided to have a look because this sting was not going away. There was a wasp in my bed!

Posted By : FlyRed - 1/20/2017 2:19 PM
Oh my gosh. I have said for years there is too much electricity in my body. Watches die when I wear them. I also can create a serious amount of electricity. Sometimes it feel like a 9-Volt current running between my upper and lower teeth that have metal fillings. I shock people who touch me on a regular basis. It makes sense when you have overactive nerves!

Luvzminis said...
I got a nasty shock a few weeks ago.
I was dipping zucchini into a beaten egg, then in another pan I had bread crumbs. Kept getting 'jumping' shocks as I went from the metal bowl with the egg, to the metal bowl with the crumbs, to the frying pan. Man--they were some nasty shocks, too! A very "shocking experience"! smile

So do we with fibro just have 'too much' electricity in our bodies?

Posted By : Leipensa - 5/16/2017 8:42 AM
I don't have fibromyalgia (or not that I'm aware of) but repeatedly get that sudden bite like sensation under the right side of my jaw - same place, just in the skin. It drives me nuts because it happens at any given time which makes me yell out in pain! Good job most of my colleagues are literally deaf!

Posted By : Sharon Bradshaw - 6/3/2017 7:06 AM
For those of u that get the stabbing electrical type painin ur feet hands arms or legs, make
sure to get tested for diabetis. Also get checked for hep c. Both hep c and diabetis can cause something called peripheral neuropathy. Google it. Also if you r hep c positive get tested for
CRYOGLOBULINEMIA. THE word actually means cold blood
CRYO - cold . Globulin - blood.
Actually u can get this if u r diabetic too. Tho it's has a slightly differ t name.
Both can cause shooting pain and or numbness. The feeling of your extremities either being hot or ice cold. And with hep c can make u itch all over.
He used to tell the dr that it felt as the bone marrow was frozen in his bones. That how cold it made his feet/ hands arms and legs. couldn't even stand to have bed sheets touch his feet.
My husband got diagnosed with hepc from a tattoo he got in the navy. He was 20. 30 yrs later he got diag with RA. And hep c.
Sadly they really only promote hep c awareness re IV drug addicts.
So not true. People with tattoos get it. Body peircings too. Make sure u go to a CLEAN PLACE!! Don't get a tattoo at a street fair.
Anyway I wanted to add this info because it applies but is never mention.
Sadly my dear hubby who worked like a horse - that man was ALWAYS BUILDING SOMETHING. LOL.
He got bit by a black widow and died.
Here all these years we'd been worried about his liver giving out. Even tho he didn't drink at all. I think that kept him healthy.
But here a nasty spider is what took him out!! Lol.
It's been enuff time I can laugh about it now.
But I watched him struggle with RA and peripheral neuropathy and try to pretend it didn't hurt. Or keep him from getting rested.
He just kept on keeping on!
Till the BITE! 😬

Posted By : goodluckwiththat - 6/12/2017 12:53 PM
Hi all.

News flash: this isn't fibromyalgia. In fact if you look over the internet you will find that people of any and every condition have complained of the same problem. I have seem identical accounts across multiple sclerosis pages, diabetes pages, STD pages, hepatitis, peripheral neuropathy, and finally, getting closer to the real cause, lymes disease pages and scabies pages.

Stinging and itching like this though is not actually recognised as a textbook symptom really of any of these illnesses, and the cause is something else (i'm not saying you dont have fm too). I have had this mystery skin condition since 2002 when I moved in to a flat in Edinburgh, and have since been unable to shift it.

Its funny (not) because doctors won't or can't help you. I have encountered a few people who have had it (including 2 doctors) who have had it to here in London. Generally it is disimissed as (in your head) but unfortunately it is debiliatating, because of the mental anguish it causes over the years, not knowing how to cure it or the cause.

I'll tell you this, if you haven't heard of it - those complaining of so called "morgellons disease" have the same symptoms. The only difference is many claim to see "fibres" in their skin and have wounds. I cant say if thats true or not, but it's widesly dismissed. But the link has been made between tick borne disease such a lyme and bebesia and morgellons. I don't see any evidence of so called fibres but given they are microscopic you probably would miss them, and its not really much help to go down that path. I can't say if it (morgellons) is real, but the symptoms are similar.

I personally get single red "bite" marks, that have been misdiagnosed as folliculitis at random intermittent intervals when it is bad, however not at the site of the stinging sensations.

Personally I suspect some sort of parasitic condition that is gradually spreading through the population, but medicine is slow slow to pick up these things, and given most doctors dismiss it, it wont be recognised for decades if indeed ever. One big symptom I and others have is that it is always worse in the later afternoon and evening, and this is commonly noted by sufferers across the net. You know what else is very well known to be worse at night? Scabies. If you search for a typical scabies symptoms you might find things of interest. Some people have had identical symptoms, including a very light, crawling/cobwebs dragged over skin feeling, and have succesfully found and treated as scabies. It might alteranively be some sort of worm type parasite I don't know, or even a virus affecting nerves that maybe has some sort of mite or tick as an initial vector.

You will get random itches, stings of varying severity, worse in the day. Sometimes I also get "waves of itchiness" over my whole body.

I said I couldn't cure it, but actually I have managed to become symptom free for a 4 year patch. How? Taking ivermectin - which kills a wide range of parasties including mites and worms, adn treating for scabies. But it recently came back, and I find that dosing for a few days freduces symtoms but it comes back after a few days, hence I am now doing a more sustained treatment. You need to be a littel resourceful to find these type of medicines, but actually it is very safe in medical trials. I also used topcial scabies treatment and it helped. Changing diet by liimting sugar, and in my case gluten, helped also, but the signs and sympoms do not match typical allergic response or somethlike, say dermatitis herpetaformis (the coeliac disease related blistering skin condition).

Some people seem totally unaffected by it (lucky them), and actually that is also a known to common with scabies.

Well there you go folks. You won't get any help from your doctors, and you might well want to dismiss this as post crackpot and go on believing this is "fibromylagia" but you would be wrong, and trust me I have had time (15 yrs and counting of symptoms) to look into this very thoroughly. I even looked over google analytic trends to note that keyword searching for "random invisible itching" and similar have gradually been increasing after the past 10 years, so at least you know you aren't alone (take a look using the google search analysis if you dont belive me).

You may be well advised not to mention parasites to your doctor however because this gives them an easy route to explain it away as "delusions of parasitosis" which is simply parroting back what they have been taught at med school. I also advise you not to go onto a steroids long term if this is suggested as this will weaken your immune system and make everything worse.

One day someone will diagnose it properly, as more doctors get affected I imagine. It is very slow to be recognised, because it is (i guess) still relatively rare and also there is a social taboo or stigma to do with scratching and discussing parasites in the west. So until some bright young spark solves it , check my advice, it is technically possible to cure or suppress the symptoms if you search for the right protocols, but these always involve actual antiparasitical medicines plus antibiotics usually, dont be taken in my the herbal remedies and nonsense magical cures. Good luck.

Post Edited (goodluckwiththat) : 6/12/2017 1:03:22 PM (GMT-6)

Posted By : Sherrine - 6/12/2017 2:38 PM
Hi, Goodluckwiththat, and welcome. Itching most definitely can be caused by fibromyalgia. It's a rare symptom but it does happen. (See the link at the end of my post.). Itching can be caused by some of the medications we take for fibro also. There are things like dermatitis, psoriasis, and other skin problems that can cause itchiness too. Parasites are not the only thing causing itchiness.

Since you developed this problem after moving into a new place, could you possibly be dealing with bed bugs? They leave a red mark and will burn and itch. They are so tiny and hide in crevices, behind pictures, etc. An exterminator can get rid of them. When traveling, I keep my suitcase off the floor and shut tightly unless I'm retrieving an article of clothing. Hotels have had this problem.

It sounds like you are self-medicating which definitely isn't a good idea. According to the link below, you only take the medication you mentioned one time. Plus, it's a prescription medication here in the U.S. You sound like you don't get yours from a pharmacy. It isn't difficult to get here in the States if a medical doctor prescribes it. Please read this link. What you say you are doing could be harmful to you.


I highly suggest that any member who is really concerned about itching and burning skin to make an appointment with a board certified dermatologist and get a correct diagnosis and the correct medication for whatever is causing the problem.

Below are s a link explaining itching and burning with fibromyalgia.

Forum Moderator/Fibromyalgia

Fibromyalgia, Crohn's Disease, Ostomy, Autoimmune Inner Ear Disease, Diabetes, Osteoporosis, Glaucoma, Scoliosis, Ankylosing Spondylitis
God does not give us a spirit of fear, but of power and of love and of a sound mind. 2 Timothy 1:7

Posted By : goodluckwiththat - 6/15/2017 8:55 AM
I find it quite patronising of you to suggest bed bugs - clearly after 15 years of suffering I had considered that, however I have since moved multiple times and also had my flat reviewed by pest specialist. In addition the symptoms of bed bugs are entirely different to what I and what everyone else in this thread describes, which is ongoing stings without rash, some itchiness, and intermittent crawling senstations. Bed bugs tend to cause large bite marks that remain over time and are actively itchy. Still thanks for the tip, I suppose some reading this might have that problem.

Your link shows 3.3% of fm sufferers have itchiness, and 1.7% unusual skin sensations. Hardly a key symptom, its probably the same if not actually higher across the general population. In fact, lifetime prevalence of chronic pruritus is actually estimated at 22% by in this study: / - meaning your link suggests you are LESS likely to be itchy if you have fm.

Certainly I agree if you have this myserious stinging/itching, worse at night, or afternoon, no obvious rash - you should see a doc. Maybe one day it will be recognised as a new condition as I suggest. Upon reflection, I don't actively recommend self medication, but if you suffer long enough and the established medical community can't/won't help, you may be tempted to try and help yourself with various ways. Still, I recognise your suggestion to seek medical assistance (I have, but to so far to no avail, I will keep you posted).

I concede can't say what or what will not help, but my primary point stands that I have seen hundreds of people across a wide range of conditions complain of identical symptoms online, so far unrecognised or diagnosed. They can't all be mad internet nutters. Each patient silo convinces themselves it is X, Y or Z - but if you look at the bigger picture there is clear pattern emerging. My point about google search trends also stands.

Post Edited (goodluckwiththat) : 6/15/2017 9:03:37 AM (GMT-6)

Posted By : Sherrine - 6/15/2017 12:28 PM
I'm sorry if you thought I was being patronizing. You stated this developed when you moved into a flat. I missed that you went from Edinburgh to London. I was thinking you were still in the flat. You said you got single red bite marks so that made me think of bed bugs. I was just putting out an idea that you possibly hadn't thought of.

I have itching, burning, feeling like bugs are crawling on me, feeling like water is running down my leg, and even hot and cold spots. Researchers are now saying they think fibro is a neurological problem. Our nerves are involved and this causes some of these problems. We do have quite a few members with this problem so it can be a symptom of Fibro...or of the medications that are prescribed for fibro.

You came on and stated..." News flash: this isn't fibromyalgia." That is a statement of fact but but that isn't a fact and studies have shown that. Also, there is a lot of misinformation on the Internet. I use sites like the Mayo Clinic, NIH, and other teaching hospitals. I feel I'm getting good, accurate information.

I didn't say itching and burning were key symptoms. I said it was a symptom...a rare symptom. If you are one of those with this rare symptom you sure don't want it to be dismissed because there is such a low percentage. Bottom is a symptom of Fibromyalgia and that is a fact.

I have been a mod on this forum for over 12 years and have heard a lot of different things...things that aren't proven but are strongly believed by the member. I do comment on some when I feel it's important so that's why I had comments about the medication you say has helped you. If you are getting it off the Internet, you don't really know what you are getting or the potency either. You could end up losing your life this way and I do care about you so I took the time to look up the medication and post a link for you. No one but no one should be "tempted to try and help yourself" by taking medications that haven't been prescribed to you by a doctor or gotten at a regular pharmacy. That could end up the biggest mistake of your life.

I do hope you find real answers to your problem. Itching and burning is quite uncomfortable.

Forum Moderator/Fibromyalgia

Fibromyalgia, Crohn's Disease, Ostomy, Autoimmune Inner Ear Disease, Diabetes, Osteoporosis, Glaucoma, Scoliosis, Ankylosing Spondylitis
God does not give us a spirit of fear, but of power and of love and of a sound mind. 2 Timothy 1:7

Post Edited (Sherrine) : 6/15/2017 12:33:01 PM (GMT-6)

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