The original version of this page can be found at : http://www.healingwell.com/community/default.aspx?f=24&m=1565084
Posted By : Chutz - 8/16/2009 12:03 AM
Hi all...

A long time ago we had a list of the most common fibromyalgia symptoms and it became buried and loaded with posts, several pages of them. So I am re-posting the list since it is a comprehensive one. This list was compiled by a friend/member of Healing Well named Radio. He also has listed this on his personal web page.

I hope you find this list useful and for me and many others is also can give you a sense of relief. That feeling that you are NOT crazy or weird but what you are feeling is this darn disorder, Fibromyalgia. Please remember though that if you have a new symptom that is on the list the first thing you should do is report it to your doctor. It is likely part of fibro, but only the doctor will know for sure.

Chutz

*******************
1. PAIN- in the muscle: often described as aching, burning, throbbing, gnawing, shooting, tingling. Almost always exacerbated by exercise and may or may not be present at rest. Can be migratory and differing from day to day.

2. FATIGUE- From feeling tired to exhausted and requiring rest periods during the day.

3. SLEEP DISTURBANCE- not being able to fall asleep and or able to stay asleep. Unrefreshing sleep patterns " feels like I haven't slept."

4. PARESTHESIA- numbness or tingling. ( non dermatomal)

5. DEPRESSION- most often reactive as with chronic pain condition.

6. ANXIETY- may include panic attacks.

7. PERSONALITY CHANGES- usually a worsening of a previous tendency.

8. MOOD SWINGS

9. SUBJECTIVE SWELLING OF EXTREMITIES- i.e. feels swollen but no-one can find anything.

10. HEADACHES- tension and or migraine.

11. COGNITIVE FUNCTION PROBLEMS: calculation difficulties, memory disturbances, spatial disorientation, difficulty with concentration, short
term memory loss.

12. FREQUENT UNUSUAL NIGHTMARES- or being unable to dream.

13. DYSTONIA- stiff muscles due to involuntary contracture. Difficulty in moving tongue to speak.

14. FREQUENTLY SAYING WRONG WORDS

15. BURNING SENSATIONS

16. LIGHT HEADEDNESS- "Fibro Fog", spaced out, cloudy.

17. MORNING STIFFNESS

18. EASY BRUISING

19. MILD BUTTERFLY RASH- (LUPUS TYPE) May be photo sensitive.

20. NEUROGENIC INFLAMMATION- rashes, may be severe itching. NI causes the symptoms and signs of Dermatographia.

21. DISEQUILIBRIUM- Vertigo

22. MUSCLE WEAKNESS- variable with no "objective" abnormality to formal testing.

23. SCIATICA- like pain

24. PHOTOPHOBIA- Intolerance of bright lights.

25. ALTERATION OF TASTE, SMELL and HEARING.

26. LOW FREQUENCY, SENSORINEURAL HEARING LOSS.

27. DECRESED PAINFUL SOUND THRESHOLD.

28. TINNITUS- ringing in the ears.

29. OCCASIONAL EXAGGERATED NYSTAGMUS- involuntary rapid movementof the eye ball.

30. CHANGES IN VISUAL ACUITY- impaired function of the smooth muscle used for focus as well as skeletal muscles for tracking.

31. INTOLERANCE OF ALCOHOL

32. ENHANCEMENT OF MEDICATION SIDE EFFECTS

33. INTOLERANCE OF PREVIOUSLY TOLERATED MEDICATIONS

34. WEIGHT CHANGES- usually gained due to the lack of exercise through pain and or tricyclic antidepressants

35. RESTLESS LEGS

36. HEIGHTENED AWARENESS- of symptoms of HYPOGLYCEMIA 9 when blood sugar falls)

37. POSSIBLE CARBOHYDRATE INTOLERANCE

38. SYMPTOMS OF IRRITABLE BOWEL SYNDROME (I.B.S.)

39. HEARTBURN- secondary to I.B.S.

40. SUB-NORMAL TEMPERATURE

41. NIGHT SWEATS.

42. SENSITIVE TO TEMPERATURE EXTREMES

43. HEART PALPITATIONS

44. BREATHING DIFFICULTIES

45. HEART MURMUR-Mitral Valve Prolapse appears to be more symptomatic in FM than normal.

46. IMPOTENCE- reactive and occasionally.

47. SEVERE PREMENSTRUAL SYNDROME

48. FREQUENT VAGINAL YEAST INFECTIONS.

49. MUSCLE SPASM- twitching.

50. NON-CARDIAC CHEST PAIN- which may simulate cardiac disorder.

51. PELVIC PAIN.

52. ABDOMINAL WALL PAIN.

53. DRY EYES AND MOUTH.

54. TEMPOROMANDIBULAR JOINT DISORDER- usually due to abnormal muscle tone.

55. RAYNAUD'S- like symptoms.

56. CARPAL TUNNEL SYNDROME-possible related condition.

57. HAIR LOSS-secondary to psychological stress from FM.

58. VULVODYNIA- Vulvar discomfort or pain, burning, stinging and irritation.

59. PLANTAR ARCH-or heel pain. Exacerbated in FM.

This list of symptoms has been correlated by the Arthritis Foundation S.A.


"Knowledge is knowing that a tomato is a fruit, but Wisdom is knowing not to put it in a fruit salad."

(\_/)
(o.o)
(> <) Co-Moderator Fibromyalgia & Chronic Pain Forums
Fibromyalgia, PTSD, UC, Diabetic on insulin, collapsed disk, arthritis scattered around and a few other delights.

Post Edited (Chutz) : 1/18/2010 9:46:22 PM (GMT-7)


Posted By : Chutz - 5/23/2010 9:43 AM
This list hasn't been on the first page for quite a while so I dug it up and here it is. I hope it helps!

Chutz


Gravitation is not responsible for people falling in love.
Albert Einstein

(\_/)
(o.o)
(> <) Co-Moderator Fibromyalgia & Chronic Pain Forums
Fibromyalgia, PTSD, UC, Diabetic on insulin, collapsed disk, arthritis scattered around and a few other delights.


Posted By : lostspirt - 5/23/2010 5:54 PM
The list does help alot Chutz thank you..
though when I go to the dr and hand him my list of symptoms,some all fibro,some other symptoms,the drs do not deal well with so much... I find!!! Some of my symptoms are pretty bad and nothing is said..Now I will be going to a pain clinic and am afraid to hand the dr my long list...just wonder what he will take seriously and what he won't.All my symptoms are real..I just want the dr's to know this.I know that all my symptoms can not be treated all at once,but I must know that they will be or atleast the dr speak to me about them..I am just not feeling so hopeful at the moment,
But the list has helped me pinpoint my fibro symptoms,so thats a good thing!
Lostspirit(Lee)

Posted By : SillyMe2 - 5/23/2010 7:37 PM
You get the butterfly rash like redness from Fibro? I've never seen that listed before.

Posted By : Chutz - 5/23/2010 10:49 PM
Hi SillyMe2!

Nice to meet you and I hope you're finding things you are looking for in here. Always ask if you need some help.

One thing I'm curious about...I've never heard of a 'butterfly rash' with fibro. The only Butterfly Rash I know of is a very typical sign of Lupus. It appears across the bridge of the nose. Some people can get it to go away and others just live with it. A friend of mine had lupus severely but worked her way back to a productive life after being immobile for a couple of years. Her daughter also has it. But the daughter has the butterfly rash and mom doesn't. If you have read or heard this some where can you share it with us? We're always interested in leaning new things.

Keep in touch...
Chutz


Gravitation is not responsible for people falling in love.
Albert Einstein

(\_/)
(o.o)
(> <) Co-Moderator Fibromyalgia & Chronic Pain Forums
Fibromyalgia, PTSD, UC, Diabetic on insulin, collapsed disk, arthritis scattered around and a few other delights.


Posted By : SillyMe2 - 5/24/2010 6:53 AM
19. MILD BUTTERFLY RASH- (LUPUS TYPE) May be photo sensitive

I was referring to the list. I have that butterfly like rash and omg.. it can sting at times. But then my entire face is red now which I am being tested for Lupus. That was the only thing that confused me on the list above because I've never known anyone to have that without having Rosacea or Lupus. Is there another condition that produces that? anyone know? I believe I have Anjidrosis as well. I feel like I'm truly shutting down and falling apart. :(

Posted By : Chutz - 5/24/2010 11:05 AM
Wow Silly! I'm the silly one here. I've looked at that list dozens of times and never caught this discrepancy before you mentioned this. I'm SO glad you posted about it.

I did look around and never found anywhere that said the rash was linked to fibro. The many who made the list was a great member and I believe has a web page out there for his wife, who has fibro. That's been a while tho. What do YOU think? Have you ever heard of anyone having a lupus type rash that was diagnosed as being related to fibro?

I am glad you are getting tested though. There are good treatments out there for Lupus if you get a great health care team. The treatments are tailored to each individual since the disorder is so different in everyone.

And please don't worry about "shutting down and falling apart". Look around at some of the peoples' signatures and what all they deal with. Most of us have at least 1 other "issue" to deal with besides fibro and the large majority have more. But we are here...together...and that's what makes the difference. We reached out to find people who understand what we are living with and who can share their experiences. There's a fairly good chance I'm older than you are ;-)... and I have many things wrong with this body. Some days I feel like all I do is take pills and poke myself. (insulin dependent diabetes) But I'm not going to let it control my life. I do most of the things I want and enjoy even though some of them are in a modified form.

I remember one day when I was still working I was talking to a colleague who used to do nursing. After I listed off all of my ailments she looked at me and said... "you need to get your frame jacked up and get a new body put inside there!"...lmbo Very true but it got me laughing. Stick with us Silly, and we'll get through this together. Even me, who can't read a list...lol...intends to push on and enjoy my life. Coming with us??? ;-)

Chutz


Gravitation is not responsible for people falling in love.
Albert Einstein

(\_/)
(o.o)
(> <) Co-Moderator Fibromyalgia & Chronic Pain Forums
Fibromyalgia, PTSD, UC, Diabetic on insulin, collapsed disk, arthritis scattered around and a few other delights.


Posted By : SillyMe2 - 5/24/2010 8:03 PM
Thank you Chutz! I've been trying to figure out what was causing this redness on my face and found that I probably have Anhidrosis and never realized it before. But I also have that Red Rash so I went to the Dermi and the guy is kinda rude. Asked who told me it was Rosacea. Told him and he said nothing. Said if it isn't better in two weeks when I see him again he was going to do a biopsy of a welt I have on my face but said it doesn't look like Rosacea. Now Rhuemy is testing me for Lupus again but again from the description of the rash it doesn't look like my face ya know? I dunno and am just coming out of Limbo Land so still learning. Happy to have found a doctor that isn't stating it's Anxiety or PMS. grrrrr

Posted By : ohsofibro - 6/2/2010 3:24 PM
ty Chutz the non cardiac chest pain im never going to get used to :( i did phone one of the uni hosps tho ty hun


~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~~

Fibromyalgia/CFS, Hypermobility Syndrome, Post Traumatic Stress Disorder,Anxiety,Depression,
Somatization Disorder, Sciatica, Carpal Tunnel Syndrome

Sodium Valproate, Diazepam, Thyroxine, Citalopram

Posted By : Chutz - 6/2/2010 7:51 PM
Hi ohsofibro!

I'm glad you found something useful on the site...that's why we all are here, including you now as a Family Member. ;-) I started out here over 5 years ago and thought I was knowledgeable about Fibro...WOW, did I have a lot to learn. So many of the symptoms I'd had over the past dozen years or so were mostly all related to fibro...couldn't find any other reason for the symptoms. Plus everyone was so warm and kind, how could I not love it here.

Good luck and keep us posted!
Chutz


Gravitation is not responsible for people falling in love.
Albert Einstein

(\_/)
(o.o)
(> <) Co-Moderator Fibromyalgia & Chronic Pain Forums
Fibromyalgia, PTSD, UC, Diabetic on insulin, collapsed disk, arthritis scattered around and a few other delights.


Posted By : angeleyes2970 - 11/30/2010 6:48 AM
 
Chutz said...
Hi all...

A long time ago we had a list of the most common fibromyalgia symptoms and it became buried and loaded with posts, several pages of them. So I am re-posting the list since it is a comprehensive one. This list was compiled by a friend/member of Healing Well named Radio. He also has listed this on his personal web page.

I hope you find this list useful and for me and many others is also can give you a sense of relief. That feeling that you are NOT crazy or weird but what you are feeling is this darn disorder, Fibromyalgia. Please remember though that if you have a new symptom that is on the list the first thing you should do is report it to your doctor. It is likely part of fibro, but only the doctor will know for sure.

Chutz

*******************
1. PAIN- in the muscle: often described as aching, burning, throbbing, gnawing, shooting, tingling. Almost always exacerbated by exercise and may or may not be present at rest. Can be migratory and differing from day to day.

2. FATIGUE- From feeling tired to exhausted and requiring rest periods during the day.

3. SLEEP DISTURBANCE- not being able to fall asleep and or able to stay asleep. Unrefreshing sleep patterns " feels like I haven't slept."

4. PARESTHESIA- numbness or tingling. ( non dermatomal)

5. DEPRESSION- most often reactive as with chronic pain condition.

6. ANXIETY- may include panic attacks.

7. PERSONALITY CHANGES- usually a worsening of a previous tendency.

8. MOOD SWINGS

9. SUBJECTIVE SWELLING OF EXTREMITIES- i.e. feels swollen but no-one can find anything.

10. HEADACHES- tension and or migraine.

11. COGNITIVE FUNCTION PROBLEMS: calculation difficulties, memory disturbances, spatial disorientation, difficulty with concentration, short
term memory loss.

12. FREQUENT UNUSUAL NIGHTMARES- or being unable to dream.

13. DYSTONIA- stiff muscles due to involuntary contracture. Difficulty in moving tongue to speak.

14. FREQUENTLY SAYING WRONG WORDS

15. BURNING SENSATIONS

16. LIGHT HEADEDNESS- "Fibro Fog", spaced out, cloudy.

17. MORNING STIFFNESS

18. EASY BRUISING

19. MILD BUTTERFLY RASH- (LUPUS TYPE) May be photo sensitive.

20. NEUROGENIC INFLAMMATION- rashes, may be severe itching. NI causes the symptoms and signs of Dermatographia.

21. DISEQUILIBRIUM- Vertigo

22. MUSCLE WEAKNESS- variable with no "objective" abnormality to formal testing.

23. SCIATICA- like pain

24. PHOTOPHOBIA- Intolerance of bright lights.

25. ALTERATION OF TASTE, SMELL and HEARING.

26. LOW FREQUENCY, SENSORINEURAL HEARING LOSS.

27. DECRESED PAINFUL SOUND THRESHOLD.

28. TINNITUS- ringing in the ears.

29. OCCASIONAL EXAGGERATED NYSTAGMUS- involuntary rapid movementof the eye ball.

30. CHANGES IN VISUAL ACUITY- impaired function of the smooth muscle used for focus as well as skeletal muscles for tracking.

31. INTOLERANCE OF ALCOHOL

32. ENHANCEMENT OF MEDICATION SIDE EFFECTS

33. INTOLERANCE OF PREVIOUSLY TOLERATED MEDICATIONS

34. WEIGHT CHANGES- usually gained due to the lack of exercise through pain and or tricyclic antidepressants

35. RESTLESS LEGS

36. HEIGHTENED AWARENESS- of symptoms of HYPOGLYCEMIA 9 when blood sugar falls)

37. POSSIBLE CARBOHYDRATE INTOLERANCE

38. SYMPTOMS OF IRRITABLE BOWEL SYNDROME (I.B.S.)

39. HEARTBURN- secondary to I.B.S.

40. SUB-NORMAL TEMPERATURE

41. NIGHT SWEATS.

42. SENSITIVE TO TEMPERATURE EXTREMES

43. HEART PALPITATIONS

44. BREATHING DIFFICULTIES

45. HEART MURMUR-Mitral Valve Prolapse appears to be more symptomatic in FM than normal.

46. IMPOTENCE- reactive and occasionally.

47. SEVERE PREMENSTRUAL SYNDROME

48. FREQUENT VAGINAL YEAST INFECTIONS.

49. MUSCLE SPASM- twitching.

50. NON-CARDIAC CHEST PAIN- which may simulate cardiac disorder.

51. PELVIC PAIN.

52. ABDOMINAL WALL PAIN.

53. DRY EYES AND MOUTH.

54. TEMPOROMANDIBULAR JOINT DISORDER- usually due to abnormal muscle tone.

55. RAYNAUD'S- like symptoms.

56. CARPAL TUNNEL SYNDROME-possible related condition.

57. HAIR LOSS-secondary to psychological stress from FM.

58. VULVODYNIA- Vulvar discomfort or pain, burning, stinging and irritation.

59. PLANTAR ARCH-or heel pain. Exacerbated in FM.

This list of symptoms has been correlated by the Arthritis Foundation S.A.


Posted By : angeleyes2970 - 11/30/2010 6:55 AM
Hello, I am new here. I am so happy I found this site and this thread. I have been sick for 3 years. Only my Family Doctor has diagnosed me and finally I go to a specialist on Decemeber 23rd. My symtoms have severely taken off and I'm a mess. I just hope that the new doctor can do more then just pain pills. I would love for some of the symptoms to go away.

Posted By : Sherrine - 11/30/2010 12:05 PM
Hi, Angeleyes, and welcome!  I'm so glad you found us and joined in.  So you liked the list of symptoms, huh?  Be sure to check out Fibro 101...the first thread on the forum.  There are links to good information about fibro and you will learn a lot!  One of the links is this list of symptoms from Chutz, too.  So be sure to read it.  It's chocked full of information.
 
I hope your doctor ran a battery of tests on you.  They usually do to rule out other illness that have many of the same symptoms as fibro.  There is a link in Fibro 101 called What Else Could It Be.  They want to rule those out first because they are treated differently than fibro, for the most part.
 
I'm looking forward to getting to know you.  Don't hesitate to ask questions because we are here to help you.  I hope to hear more from you soon.
 
Sherrine
Forum Moderator/Fibromyalgia
************************
God does not give us a spirit of fear, but of power and of love and of a sound mind. 2 Timothy 1:7

Posted By : angeleyes2970 - 11/30/2010 1:52 PM
Hi, Yes they have ran many test. I have even had an MRI of my brain because I have head pressure and pain. I have Lupus in my family so they test me every year for that, but is always a no. I have had a stress test because of chest pain. Of course again NOTHING! Today actually they just added Cymbalta. So I pray that helps out. Yes I will read all I can here. I am currently working on a list for the new doctor.

Posted By : CharleyBee - 12/20/2010 9:33 PM
Thank you so much for this list. I am a new member and so happy I found this forum! I was just recently diagnosed with fm but I think I have had it for at least 10 years. My doctor has prescribed Savella for me and it is just a miracle for me. Don't get me wrong, it has some side effects that I am having to deal with, but I haven't felt this good in a VERY long time. I still have some fm symptoms and this list is helping me work through them. Funny how you can think some of the symptoms are just part of living and you just presume that everyone hurts like you. And then when you see it in black and white, you realize what's actually making you feel that way and that it's not normal at all - but maybe there's hope that you can eventually feel better. Thanks again.....

Posted By : courageous - 12/21/2010 5:34 AM
Oh my goodness! Thank you very much for the list. Yes and yes too many times... Its good to have the list so i can let my family know im not nuts its just fibro. But of course they know but i think i need it for me! I was diognosed 1 1/2 yrs ago but most likely had it for 3 yrs before that but just didnt realise it, thought it was continual viruses.

I too am a new member and very happy i have found this site, amen.

Posted By : Sherrine - 12/21/2010 6:42 AM
Hi, CharleyBee, and welcome!  I'm so glad you joined our family.  We have wonderful members that love to help one another and, as a bonus, we really do care about each other, too.  I think you will like it here. 
 
Be sure to check out Fibro 101...the first thread on the forum.  There are links to good information about fibro and you will learn a lot there.  There are some great things that you can print out for family and friends to help them better understand what you are going through.  A couple would be The Spoon Theory and also A Thorough Explanation of Fibromyalgia.
 
I'm looking forward to getting to know you better.  Don't hesitate to ask questions because we are here to help you.  When you get a chance, start an introductory post about  you so members know you are here!  Courageous did that already.  I hope to hear more from you soon!
 
Sherrine
Forum Moderator/Fibromyalgia
************************
God does not give us a spirit of fear, but of power and of love and of a sound mind. 2 Timothy 1:7

Posted By : CharleyBee - 12/22/2010 8:44 PM
Thank you, Sherrine, for your gracious welcome! You have really sparked my curiosity by telling me about the "Spoon Theory" - I'm headed there right now! I am planning on making this my home away from home but if I find I need help navigating, it's good to know you won't mind helping me - thanks again!
CBee

Posted By : jsieleman - 12/27/2010 8:34 AM
Thank you so much for this list!

I am trying to get diagnosed with something that I've been suffering from for two years this January and I believe it may be Fibro. The Rheumatologist I've been referred to has put me on Diclofenac twice a day and 30mg of Cymbalta (weird I know, but it does help Fibro patients) for the pain.

I have a mildly elevated RH factor and a mildly elevated ACE level.

Does anyone know if those are common with Fibro?

Thanks much for any information you can give!! Merry belated Christmas and God bless! :)

Posted By : Jenny Lynn - 7/27/2011 1:11 PM
Thank you sooooo much for this list...I have some of these symptoms that I have not been able to confirm anywhere else!! Thank God for kind people like you all for sharing your information! Getting an MRI tomorrow to rule out other diseases....just praying it is only FM at this point. It seems I will be able to cope after finding this site. Thank you, again!

Posted By : tara_ - 8/1/2011 2:17 PM
This list is so informative. Thank you so much for sharing!
*Fibromayalsia, chronic fatigue syndrome, restless leg syndrome

Posted By : Swansonmjs - 8/3/2011 9:06 AM
Thank you!  I have been researching Fibro for over a year 1/2 now and found some symptoms on this list that I was unaware of ... and was an ah ha... moment.. yep (got that one too)
Lissaj68
Fibromyalgia, Anxiety Disorder, Sad, GAD, Degenerative disc disease
Lexapro, Nortryptiline, Melatonin, Ambium, Gabapentin (Neurontin), Tramadal,Vitamins B, CALCIUM, D, FISH OIL, MAGNESIUM, Apple Cider Vinegar, TYLENOL

http://survivingfibro.blog.com/

"I have Fibro - Fibro doesn't have me"

Posted By : nana68 - 8/4/2011 5:58 AM
I get these feelings like I have a bladder infection with no infection
treacheal stenosis,fibromyalgia,panic disorder,ptsd and who knows what else

Posted By : Kidz Mom - 8/6/2011 6:33 PM
The butterfly rash jumped out at me too. I used to be able to be in the sun for hours on end. I was just diagnosed with FM last winter but it hit me last Fall when I would be out of the sun anyway. This Summer I have to wear at least a 30 sunscreen or risk being very burnt and so sick the next day. Even when I haven't been in the sun for weeks I get the butterfly rash, my husband and friends have commented on it. They say they notice it more when I'm stressed out. I took pictures last time and took them to my doctor. He ran a test for lupus. The nurse called me to tell me it was negative and I should just "keep moving" to control my fibro pain. I replied to her I work and 8-10 hour day and then often go to the store or do some housework after that. She replied "well you should take a walk when you get home from work." I wanted to scream!!!! Thank God my doctor gets it. I resisted my instinct to fight it out with her. I'm very happy the test for lupus was negative but I didn't realize it could be one of the FM symptoms. Thank you for posting this!
DD- diagnosed with Fibro 1/2011, hypothyroid, hysterectomy in 2009, slipped disc L4/ L5, migraines. Daily: tramadol, soma, Nortriptyline, Plus HRT.

Posted By : davina - 8/24/2011 7:29 AM
Hi everyone, hope your all well.

I have just joined this site today upon finding out I may have Fibromyalgia. I have been experiencing quite a few of those symptoms for about 4 weeks now and can't even remember how it all started.

I started with headaches from out of nowhere, hadn't even banged my head. about 6 weeks before that I fell down the stairs and hurt my back and know for sure I didn't bang my head. Every time I type in how my head feels, it keeps coming back to Fibromyalgia.

The back of my head aches, my scalp gets very sore (this i've had before but as bad as it has been recently. I have a sensitive scalp anyway). I get very hot but when I take my temperature that's normal, I feel tired all the time, even after eating. I feel very emotional more so than usual. Certain loud noises literally does my head in and I have 3 children. I am constantly checking my head and it's not swollen. My daughter has also been experiencing some of these symptoms too.

I have made a doctors appointment so we will see if I am right.

Posted By : FibroNana - 8/24/2011 7:54 PM
Hey there Chutz,
 
I was just about to post something and ask about #59...read through the list and there it was at the bottom...speaking of bottom..My left foot, the bottom of my foot, where my heal is and toward my arch has been like a burning feeling..very simiular to what I feel in my left buttock for the past 3 years...well, I've noticed in the past few days it is getting worse..I don't know if I should contact my rhuemy or just see if it passes..I'm on 1800mg of gabapentin and wondering if I need to up that..
 
anyone else struggling with the foot pain??? shocked
 
this is a new one for me..
 
Jerrie/FibroNana
Fibromyalgia,meralgia paresthetica,degenerative disc disease,rheumatiod arthritis,depression,asthma
Trazadone,neurotin,predisone,percocet,Xanax
One day for women/50+, estroven, magnesium/Malic acid, fish oil, probiotics

Posted By : Medically confused - 8/24/2011 11:31 PM
Hi I am new here. I read list of fibromyalgia symptoms and most relate to me.  Rheumy said have lupus even though ana only 1:40 and anti DNA came back as indeterminate 5.  I was put on Gabapentin and plaquenil.  I recently went for second opinion at ny dr (I moved to Fl 5 hrs ago). All my med problems started here the ny dr took tests again and a lot more to see if have lupus which he doesn't feel I have only ana came back this time 1:80 but still on low side of high. No other tests came back positive or abnormal except creatine kinease which came back low ny rheumy SaiD have fibromyalgia not lupus and would not have put me on the drugs I am on which really aren't helping anyway so still on them for now went to neurologist yesterday and wants to up me on gabapentin since not helping and am on such low dose I have an appt next month with new rheumy in Fl that ny rheumy recommended so was going to wait it out a month So not sure what to do but dont sleep like now  . I'm miserable.

Posted By : Medically confused - 8/24/2011 11:35 PM
@fibronana
Yes I have had foot pain for over a yr now been to podiatrist was told plantar facitis had to wear a walking boot and different shoes with orthotics had 3 cortisone shots pain eased little came back. I get throbbing still shoes help little never walk barefoot. But think also fibromyalgia because it occurred for no reason no warning no injury.

Posted By : FibroNana - 8/25/2011 8:04 AM
@ Medically confused,

Have you checked out Fibro101? They have put together some fantastic information. Did you say never walk barefoot?? Oh my!! I am always barefoot and didn't realize until I went for emg testing that I apparently have extremely high arches..the doctor giving my test kept going on and on about my high arches..I just never really had issues and never paid much mind to it...well I am now..I'm noticing this morning the pain seems to be extending to the entire bottom of my foot..I may have to go see a podiatrist but I'm not going to take any shots..I've had those in so many places on my ole body and I'm not going to do that anymore. It just doesn't seem to help and if it does relieve the pain it is very short lived..

I wanted to tell you that I was on Cymbalta for a while and had to change to Trazadone because the Cymbalta was just to expensive. The Trazadone was like 4.00 and the best part about this old school antidepressent?? it helps you sleep!!!! seriously...I have no hangover feeling..I do take a bayer asperin at night with it, to help heart preventive things and because the trazadone can leave you with a residual headache. You may want to talk to your doctor about it..

Another thing I've just begun is weaning myself off sugar and those bad ca ca sugar substitutes..Like so many other fibromites I've gained 15 lbs in over a year.. so, I'm determined to get some of this off!! and I've been researching about sugar and especially corn syrups stuff like that...bad bad stuff...

I wish you well, ask lots of questions, again read over fibro101. The moderators here are very knowlegable and kind.. This is my fibrofamily!!!!

hang in there...also have you tried melatonin? natural sleep aid..

hope to talk to you soon and that you are feeling better,

Jerrie/Fibronana
Fibromyalgia,meralgia paresthetica,degenerative disc disease,rheumatiod arthritis,depression,asthma
Trazadone,neurotin,predisone,percocet,Xanax
One day for women/50+, estroven, magnesium/Malic acid, fish oil, probiotics

Posted By : Femangel - 8/25/2011 8:31 AM
Goodness me! Thats a lot of symptoms....
Loads of stuff on there that i never have related to Fibro or even to beeing ill in general.
Like for example the restless legs... I've got that half the time, goes so far i tend to get on everyones nerves cause i simply can NOT sit still!
"Live in the present, remember the past, but fear not the future, for it doesn't exist and never shall" (Christopher Paolini - Eldest)

Fibromyalgia, Scoliosis, Degenerative Disc Disease, Parasomniac.

Posted By : Medically confused - 8/25/2011 10:24 AM
@fibronana thanks will look into it. Yes I was told have very high arches as well. It took and still does take a lot of getting used to wearing then proper shoes all the time and not walking barefoot. Not to mention lot of money buying the right shoes and when went to special shoe store got my true foot size which was totally off and had to rebuy shoes. Very frustrating. I still get pain just not as bad and manageable now

Posted By : FibroNana - 8/25/2011 3:05 PM
@medically confused,

not sure I'm ready to bite the bullet and buy shoes...one of my docs today said it could be peripheral neuropathy.. great..gonna wait till I see my neurologist before I get freaked out about it..
Fibromyalgia,meralgia paresthetica,degenerative disc disease,rheumatiod arthritis,depression,asthma
Trazadone,neurotin,predisone,percocet,Xanax
One day for women/50+, estroven, magnesium/Malic acid, fish oil, probiotics

Posted By : mrs.unique - 10/29/2011 3:46 PM
Why is it when you look up fibromyalgia on other sites they don't say anything about all the other symptom you can have with fibro.?

Posted By : Iamsotired1224 - 11/28/2011 10:15 AM
Thank you for this list...I think I’ve experienced 90 % of these. I felt like I was going crazy and the people around me didn’t seem to believe me when I kept stating all the symptoms I was feeling.

Posted By : McFibro - 11/28/2011 8:06 PM
nana68 - that bladder infection with no bladder infection - I had that and it turned out to be a prolapsed bladder. You might want to check with your urologist or a pelvic dr. to have it checked and good luck-I hope it's just fibro!

Posted By : McFibro - 11/28/2011 8:06 PM
nana68 - that bladder infection with no bladder infection - I had that and it turned out to be a prolapsed bladder. You might want to check with your urologist or a pelvic dr. to have it checked and good luck-I hope it's just fibro!

Posted By : applevenus - 12/10/2011 11:21 AM
Add tinnitis (ringing in the ears) to this list
46F, Fibromyalgia, Vitamin D deficiency, allergies/multiple chemical sensitivities, possible Chronic Fatigue & occasional IBS symptoms.

I take vitamins, Tramadol for pain, Flexeril as needed.

Posted By : Sherrine - 12/10/2011 11:24 AM
Tinnitus is there...#28.
 
Sherrine
Forum Moderator/Fibromyalgia

Fibromyalgia, Crohn's Disease, Ostomy, Autoimmune Inner Ear Disease, Diabetes, Osteoporosis, Glaucoma, Scoliosis
************************
God does not give us a spirit of fear, but of power and of love and of a sound mind. 2 Timothy 1:7

Posted By : fibro ? - 1/4/2012 11:32 AM
A lot of us have gone so far down the rabbit hole that there is no return trip,, I know I have small fiber neuropathy,, I know I have been told I have Fibro,, and was reading yesterday that 30% of people with fibro develop a small fiber neuropathy,, so dont be so quick to say that some of teh stuff is fibro,, there is no reason why a person should suddenly become cold insensitive,, truth is, this is a problem with the nerves closest to the skin,, the ones responsible for sensations, when you start to trip and fall over your own feet,, again dont be so quick to relate it to fibro,, this may be a problem with the motor nerves,, the ones responsible for walking, arm movement,,
I have had problems for over 5 years,, and still have yet to be Dx;ed, they kmnow I have SFN, and sicca,, and yet after so many test and test, I got only this to show for it,, been told its a sereonegative sjogrens syndrome,, but who knows,, I just watch my body lose more every day, it seems in the last month things have gone from bad to worse,, I now have no feeling at all in my fingers,, there just sticks,, no fine motor skills,, I am tripping more,, and a family that has no clue,, I love them to death,, but since I am a man,, and supposed to be the head of the house,, they look at me like Dad is ok,, he would never fail us,, but dad is failing,, hes gone to far down teh rabbit hole

Posted By : Marrit - 1/12/2012 4:43 PM
nana68, I suffered for years with that. It's very similar to interstitial cystitis.
However, my bladder problems improved exponentially after a round of antibiotics for bacterial vaginosis, which I didn't know I had because there were no symptoms.
Might be worth investigating.

Posted By : bestaunt1156 - 1/21/2012 1:58 AM
I just found this today and I have all but just a handful of the symptoms. Nut I was just wondering does anyone have pressure in the head with fibro? Thank you for this list, it has helped me a great deal.

Posted By : libra1019 - 1/21/2012 1:47 PM
Hi Sherrinne,
 
Didn't see dizziness and nausea on the list, or did I just missed it??
 
 
Libra
FM diagnosis 2005

Posted By : Ongomom2 - 1/21/2012 6:52 PM
I just found this site today and I also have all but a handful of the symptoms. I have an upcoming appt. with a Rhumetologist.I don't wish these symptoms on anyone else, but it's finally good to know I'm not alone. I've had osteo arthritis (knees)since 17. Now at 48, both knees need replacement. I'm tired, feel like I have the flu, hands hurt, feet and legs hurt ALL THE TIME!!! I go to bed and wake up feeling more tired than when I went to bed. If I sit for more than 10 minutes I'm stiff, I get up in the morning I'm stiff. I'm either extremely cold or extremely hot and don't forget the night sweats!!! For, at least, the last 3 years I've gone to several dermatologists for facial breakouts. One said adult acne, one said Rosacea nothing seems to work.
I'm sorry I seem to be ranting. If anyone can give me any tips for my upcoming appt., I'd appreciate it.

Posted By : silhouettespass - 2/10/2012 9:43 PM
I'm 26 with a 2 yr old son and was diagnosed with FM about a year ago. I have nearly every single symptom on this list. So many people think I'm crazy, and don't believe me, and I'm sure that complaining all the time gets tiresome. I've lost nearly all of my friends because I sometimes just don't want to get up and leave my house. Being a full time junior in college and raising a toddler on my own is beyond stressful which just makes the FM worse. It's a cycle I can't seem to get out of. But now thanks to finding this forum, I know I'm not alone. I also have been treated for 7 years for: arthritis, GERD, diagnosed OCD/anxiety, and I was diagnosed with ADD but now I think it is just fibro fog. I have tried being on medications for FM, but my blood pressure shot up way too high. I have not seen anyone who specializes in my condition, so my doctor isn't much help at all and I feel completely lost and at my wit's end most days. I pray for the day that things get easier and I don't feel twice my age. Any words of encouragement would be greatly appreciated right now since I spend most nights crying. Thank you all, have a great weekend.

Posted By : Boudicca - 2/11/2012 2:37 PM
I just found this site, it's great. I'm 50 and was diagnosed with Fibro in 2004. I was hospitalized with my first migraine in 2001 but no one made the connection then.

The list of symptoms is interesting, i think i have or have had at one time most of them. I have had SEVERE tinnitus for probably 25 yrs or more. It's beginning to interfere with my hearing.

I don't take any prescription meds with the exception of Midrin for migraines. I can't take regular migraine meds because of my Raynauds, it's contraindicated. I consider myself high functioning and do a lot (i garden, i hunt, i barrel race, work semi-physical jobs) but i'm having more and more problems lately.

I'm glad to have found a place i can get advice and help. :)

Posted By : lb12 - 2/20/2012 1:28 PM
Hello, I am 41 and was diagnosed 2-3 years ago with fibro (after it had taken my mother over 15 years to diagnose). I started with a few of these symptoms BUT since have now experienced a good part of the list given. Could someone tell me if some or maybe even alot of these symptoms are side effects of the medications that have been given to treat them????

Posted By : kimliz59 - 3/12/2012 11:30 PM
This list is great, and I  found a lot of symptoms here that I'm experiencing.  One thing I didn't see listed is lymph node swelling...I have read other places that some people with fibro experience that, and it's something I've been dealing with for the last few months. 
 
Has anyone here had lymph node swelling as part of their fibro "smorgasbord" of symptoms?  rolleyes
Life is not about waiting for the storm to pass; it's about learning to dance in the rain.

Possible Fibromyalgia, Rheumatoid Arthritis, Type 1 Diabetes, Grave's Disease

Posted By : Maximus52 - 3/13/2012 2:43 AM
I have just discovered this site. My daughter, nearly 24, was diagnosed 9 years ago. At her worst she couldn't walk and couldn't use her hands. A pain specialist diagnosed her. She has been on Nortriptilene and Amytriptilene (sp?) This week she has been told by her GP that she is sensitive to gluten. He has also written to the hospital asking for an appointment to see a rheumatologist again. She hasn't seen one for about 3 years. He is concerned that she is so severe. She has severe weakness down the right side and has muscle spasms in her arms, legs and sometimes full body spasms. No warning - they just happen. The specialist who diagnosed her described fibro as the brain short circuiting so you get pain where you shouldn't. She also suffers the chronic fatigue and fibro fog.

Posted By : kimliz59 - 3/13/2012 10:51 AM
Your daughter's experience sounds awful!  I'm fairly new to this site, but I hope you can find some help here--there is a ton of information and lots of nice people. 
 
Does your daughter have Chronic Fatigue Syndrome, or "just" chronic fatigue with her fibro?  Has she ever had swollen lymph nodes?  That's something I'm dealing with right now, and I know that's more common in CFS.
 
Regardless, best of luck to you and your daughter, and God bless!
 
 
Life is not about waiting for the storm to pass; it's about learning to dance in the rain.

Possible Fibromyalgia, Rheumatoid Arthritis, Type 1 Diabetes, Grave's Disease

Post Edited (kimliz59) : 3/13/2012 10:54:17 AM (GMT-6)


Posted By : Maximus52 - 3/13/2012 12:48 PM
Hi kimliz59. The Chronic Fatigue is possibly a separate issue as well as being part of the fibro. Never really been confirmed. To my knowledge she has never had swollen lymph nodes. I presume you would be aware if you did - pain and/or swelling? Thanks for your reply.

Posted By : kimliz59 - 3/13/2012 1:23 PM
Yes, I've had both pain and swelling of my lymph nodes...not sure yet what the deal is there.  I hope you can find some help for your daughter here...keep in touch!
Life is not about waiting for the storm to pass; it's about learning to dance in the rain.

Possible Fibromyalgia, Rheumatoid Arthritis, Type 1 Diabetes, Grave's Disease

Posted By : tprice25 - 4/15/2012 8:12 PM
hello everyone,
My name is Tom, I am 33 yrs old and I am new to this forum. I have been diagnosed with fibro about 1 and half ago - 2 years ago. I would not wish this on anyone. I use to enjoy the outdoors, camping, fishing, walking, riding bikes, dirt bikes, I was pretty active. I did construction most of my life and did some cooking at dif places as well. Well I havent worked since Sept of 2009 because of my condition. I even went back to school online to try to change career paths and I am in my last term of my associates in IT and I am having such a hard time. Not just this term, but for the last 2 terms also. It is so hard to sit down for more than 10 minutes without being in a ton of pain. it feels like there is a 500 lbs bag on back and shoulders. I have takin so many dif meds and nothing has worked. I was getting some relief when I went to the pain clinic but the stopped perscribing me percs because i was not taking them everyday, i was only taking them when I couldnt take it no more and my dr got made that they were not in my system. Sorry I dont like pills. so he wont give me nothing, ny pcp is just trying to give me muscle relaxers( dont do a darn thing), and now I am goin to try Lyrica. I was really questioning taking it, but I am at the point where i have no choice. I and just about every symptom on that list, and it does answer a lot of questions I had about why I was feeling some ways that I do. After reading that list more things start to make sense. I get no sleep, hurt 24/7, lost weight, always tired, cant remember anything anymore. I had alot more I wanted to say but darn fibro-fog hits me hard.

Posted By : tprice25 - 4/15/2012 8:13 PM
great thread by the way

Posted By : kimliz59 - 4/15/2012 8:43 PM
Hi Tom, and welcome!  Since you're new, you should start a new thread to introduce yourself--more people will see it there, and you should get more responses.
 
It sounds like you are having a really hard time.  My fibro is not pleasant, but it doesn't seem as bad as some folks on here deal with, including you.  My heart goes out to everyone who suffers from this!
 
You mentioned that you don't like to take pills, and neither do I.  Some people do get by with just "natural" remedies, and there are lots of ideas and recommendations on these boards.
 
I've only been dealing with fibro for about five months, but many people here have had it for much, much longer, and know more about it than I do, so I'm sure you can get some good suggestions.  Best of luck to you, and as I said, if you'll start a new thread to introduce yourself, you should get more responses.
"Life is not about waiting for the storm to pass; it's about learning to dance in the rain."

Fibromyalgia, Rheumatoid Arthritis, Type 1 Diabetes, Grave's Disease, GAD, migraines, panic attacks, chronic hangnails (just seeing if you're paying attention!) : )

Posted By : eaw - 4/16/2012 6:39 AM
thank you so much for this list . maybe i can get support now. my family really does not help me at all, they look at me like im crazy. so that really makes me feel even worse. again thanks so much

Posted By : ladym - 5/4/2012 10:13 AM
I am new to the site. I found it when trying to find out what is going on with my health. I do not know if I have Fibromyalgia, but I do have at least half of the symptoms on the list. I was wondering if that is normal with Fibro or not? I live near Charlotte, NC. If anyone on here lives in the area, would you please let me know if there is a good Dr. that you could recommend.

Posted By : getting by - 5/4/2012 11:15 AM
Hi Ladym,

Welcome to the fibromyalgia forum. I am not from your area so I can't help you there. Maybe if you look on the internet, you will find some answers. I would make sure that the doctor that you do see believes in fibromyalgia and works with it. Maybe a pain clinic would be the way to go. A lot of people here go to rheumies. I don't though. My doctor is a do.

There is a thread called "fibro101". It is the second thread on the forum. I think it would benefit you to check it out. It has a world of information on it. I think you will find some ideas there.

Do you have a lot of pain and fatigue? Let us know some of your symptoms.

I hope that you feel better soon.

Hugs, Karen

PS If you feel comfortable with it, please feel free to start an introductory thread for yourself. Tagging on another thread doesn't always get noticed. You would probably get a lot more responses that way...
Moderator-Depression and fibromyalgia


fibromyalgia, Chronic fatigue, depression, allergies

Posted By : ladym - 5/4/2012 12:39 PM
Thank you Karen for your reply, I ruptured a disc in my cervical spine in 1993 and had to have it fused. In 2008, I had an injury to my neck and shoulder. MRI showed advanced DDD, bone spurs. Since then I have had pain in my neck, collar, shoulder and started getting really bad headaches. about 2 years ago, the pain started to be in different areas of my body, but not all at the same time. Sometimes they are shooting, sometimes stabbing, sometimes burning. I have times when there is a large area that feels like it's bruised, but it doesn't hurt to a light touch like some people explain, although I have a high tolerance for pain. I find it hard to stay focused at times, I don't sleep well (tired all the time, but not getting more then 4-5 hours a sleep a night would be a problem for a lot of people), ringing in my ears ( more like crickets), heartburn, twitching in random muscles, night sweats, (I wake up, burning up and moments later I'm cold, that just my be age related..LOL). I don't know, maybe I'm just crazy, if a Dr. told me I was crazy I would feel a lot better, at least I would have a diagnosis. I am just so frustrated with Drs. right now, no one seems to want to listen to all my symptoms, they just want to do injections in my neck and I don't think that will solve the problems.

That's enough rambling,
Thanks for listening,

Margaret

Posted By : getting by - 5/4/2012 5:01 PM
It does seem that many pain clinics want to do injections. I don't blame you for not wanting them. My husband has lls and I believe ddd. He has a lot of problems with his back. The most of my pain is in my neck and shoulders. Though I have a hip that aches every morning and gets me up early. That could be arthritis though or sciatica.

I am sorry that you have so much going on and need a dx. I hope that you find a doctor that bellieves and helps you. Don't give up. I would start by calling doctors in your area and find out if they do in fact believe and treat fibromyalgia and your issues with your back. You do need attention. Please don't give up.

Take care, keep posting Margaret...

Hugs...
Moderator-Depression and fibromyalgia


fibromyalgia, Chronic fatigue, depression, allergies

Posted By : ShirleyA - 6/13/2012 5:00 AM
Well according to your list I have fibromyalgia and probably have had it for a very long time undiagnosed. I have had these symptoms since I was a teenager.. I am now 40 years old and people just told me I was lazy or fobbed me off with things.. no doctor took me seriously.

Posted By : Fatiguecare - 7/5/2012 3:11 AM
Hello,

I am suffering with chronic fatigue and i take some suggestion from my family doctor, So he suggest me about Mind Power Rx formula.

Kindly tell me what is Mind Power Rx formula?

Thank You

---------------------------------------------------------------------------------
Chronic Pain Syndrome - Chronic Muscle Pain

Posted By : Fatiguecare - 7/11/2012 1:16 AM
Hi Friends,

I need to know more about Fatigue / Fibromyalgia Symptoms and its more effective treatments. But right now i want to know about antianxiety drugs. What is the antianxiety drugs and when it used?

Thank You

=============================================
Fibromyalgia Treatment - Chronic Fatigue Syndrome Symptoms

Posted By : Sherrine - 7/11/2012 5:11 AM
I am locking this post because it is getting so long.  The list of symptoms are also in Fibro 101...first thread on the Fibromyalgia forum... if you want to check them out.  Hope you join our family!
 
Sherrine 
Forum Moderator/Fibromyalgia

Fibromyalgia, Crohn's Disease, Ostomy, Autoimmune Inner Ear Disease, Diabetes, Osteoporosis, Glaucoma, Scoliosis, Ankylosing Spondylitis
************************
God does not give us a spirit of fear, but of power and of love and of a sound mind. 2 Timothy 1:7

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