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Posted By : bakomom - 6/3/2013 2:19 AM
Hi, I've been posting all over the place because I have so many issues.

For about 2 years I had pain in my arms that caused them to be real weak. I kept going to the doctor and he kept telling me it's just wear and tear. I would go back again and he'd say the same thing and suggested I not carry my baby, which was impossible. I got fed up and went to a chiropractor thinking it might have been my scoliosis. He did X-rays on my low spine and said everything looks ok I just have a deep curve back there, and he pretty much told me the same thing as the doctor. After wasting so much money I switched doctors. I ended up going to urgent care one night because I couldn't do anything and I was having a headache that lasted for days despite Tylenol and Advil. They gave me a toradol shot and the pain was gone. They took X-rays of my neck because I could hardly turn it. They found arthritis so they said that might have been causing my pain, and told me to keep taking Advil for it. Shortly after I was back in with pain. I did the nerve tests in my arms and neck and it all checked out fine. I gave up and went back to the chiro. Eventually I went back to the doctor and told her all that I've been through and she ran a bunch of blood tests and it all came back normal just anemic. She then referred me to the rheumatologist. I went to see him and within a few minutes after listening to me he said I had fybromyalgia. He gave me flexeril and nortriptalyne for it. I didn't feel any better and I think it was counteracting with my other medications so I quit taking it because I was still in pain but I also couldn't mentally function properly. I starated taking all kinds of different herbal supplements and vitamins and started to workout at the gym. I was doing great for about a month and a half. But now I'm back to square one. I'm in pain and it's difficult for me to do anything at the gym. I may go 2 days a week and I literally can't do anything else for days when I was going 5-6 days a week.

I've been in so much pain lately. I was just wondering if anyone else has gone through this. Does it go away and come back? Or is it something that is constant?
 
 
 
 
Bakomom, I added the fact that you're new to your title, so your post won't slip through the cracks.
Debbie

Post Edited By Moderator (Acheybody) : 6/3/2013 4:28:04 PM (GMT-6)


Posted By : clarie - 6/3/2013 3:22 AM
Fibro comes and goes, if you're working out and the pain did go away, you must have done something right at some point. Question is though, did you do your stretching after weights. That's usually the culprit.

For many people including myself, it's part of life. There are some in this forum who has managed to get their condition to near remission only with occasional pain. Different people have different experiences with their fibro.

Another thing is, there are good days and there are bad days and there are days you feel like curling up in bed all day. I keep a pain, medication and food diary, so I can refer back and make notes on how to manage the condition better. At the end of the day, you know your body best. You just need to remember what helps and what didn't. And avoid things that make things worse.
Pain pain go away, please let me have a good night sleep.

Posted By : bakomom - 6/3/2013 4:57 AM
I wish I knew what triggers it. Everyday I wake up in pain and sometimes I force myself to clean through the pain because it seems like if I keep moving I can't tell how bad I hurt, at least until I sit down. Then there's days where no matter what I can't get up. I'll stay in bed knowing what kind of day it's going to be and sometimes it helps and other times it makes the pain worse. Right now I can't sleep because its my legs that are really affected today. I hurt from my hips to my toes.

As far as exercise goes I stretch before my workout and I stretch between each set of weight lifting. If I have time I do when I get home. I always have to stop and stretch during cardio. For some reason my ankle has been hurting and locking up on me and my legs get terrible cramps. I'm a mess. I see older people doing way more than me and I'm only 31. It's so frustrating. It's even more frustrating thinking back to the days when I could run for hours and not be bothered. Now I'm counting down the minutes.

I just wish the doctors could actually help me. I skipped my rheumetologist appointment because during that time I was having other issues and appointments and seeing him was last on my list because I didnt feel too bad. Now I regret it.

Posted By : clarie - 6/3/2013 5:15 AM
I can totally relate. If you have a good Rheumetologist, do try to get another appointment.

I'm in my mid 30s and I felt like a 60 y.o.

I am totally drug dependant, I've not much choice because without them I won't be able to get out of bed at all. I wouldn't really want anyone to be in my position.

I know I am getting a bit better lately, I don't go to the gym, but I do some light exercise to strengthen my muscles, my upper body is more managable nowadays, anything from the waist down is still bad. I need to alternate between sitting and standing regularly, otherwise I'd get frozen. I find driving exacerbate the pain. I can't cross my legs, if I do, I felt pins and needles on my feet. I need to keep massaging my thigh muscles because it always felt tight and fatigue.

All I can tell you is hang on there, find a doctor who can emphatise and help you find the solution to manage your problems. Everyone has their very own experience, there's no one size fits all solution with Fibro. Having said that, rest and reduce stress is the key to have your pain in control. If you keep forcing yourself it'll make it harder to manage your conditions.
Pain pain go away, please let me have a good night sleep.

Posted By : Sherrine - 6/3/2013 4:02 PM
Hi, Bakomom! Are you new to the fibro forum or is my fibro fog kicking in? I don't recall seeing your name. Anyway, to answer your question, I've never had the pain leave me. I will have good days and bad days and some flares thrown in. We sometimes can tell why we are feeling worse....being too stressed, overdoing, etc.....and sometimes there is no rhyme or reason to it. It's just best to take one day at a time and live it to the best of your ability.

I use ibuprofen, Tylenol. Malic acid/magnesium supplements, vitamin D3 supplements, and a muscle relaxer that has made a significant difference for me. I also do gentle stretching exercises. I walk daily as a form of gentle exercise, and I pace myself. All of this has helped me live a full and enjoyable life in spite of this illness. You just need to try things to see what helps you get in control of your pain. It's trial and error because what works for one doesn't necessarily work for another.

If you haven't already, read Fibro 101...the first thread on the forum. There are links about fibro and you will learn a lot there that can help you.

By the way, have you tried massaging your neck? I do this and it really helps. I also do neck exercises and have gotten much more range of motion, too. This is part of stretching. I also have a book called The Trigger Point Therapy Workbook that I use to find the trigger points that are causing me my worst pain. I hope, tomorrow, to do a post on this. I've been saying that for about a week but time gets away from me. I'll really try and you can check that out, too.

Sherrine
Forum Moderator/Fibromyalgia

Fibromyalgia, Crohn's Disease, Ostomy, Autoimmune Inner Ear Disease, Diabetes, Osteoporosis, Glaucoma, Scoliosis, Ankylosing Spondylitis
************************
God does not give us a spirit of fear, but of power and of love and of a sound mind. 2 Timothy 1:7

Posted By : miss lynn - 6/3/2013 4:07 PM
I'm so glad I found this site, even though I'm trying to read through my tears (of joy I think to see so many people who can relate) I understand every line every post every person! I'm so sorry you all have this, it's a terrible illness that has taken my life as it was n reduced me to most days of getting up making my bed n then lying on it, on n off all day.

Posted By : Sherrine - 6/3/2013 4:24 PM
Hi, Miss Lynn! I'm glad you found use too! We have wonderful members who live to help one another and we do care about each other too. I think you will like it here.

Now, I have a favor to ask. Could you post an introductory thread so all our members will see you and greet you? I'm on my iPad and can't help that way. You can get lost in this thread. Thanks!

I'm looking forward to hearing about you and we will see how we can help you. You know, I've lived a full and enjoyable life in spite of this illness. Hopefully we will get you back into living life again. You've come to the right place.

Sherrine
Forum Moderator/Fibromyalgia

Fibromyalgia, Crohn's Disease, Ostomy, Autoimmune Inner Ear Disease, Diabetes, Osteoporosis, Glaucoma, Scoliosis, Ankylosing Spondylitis
************************
God does not give us a spirit of fear, but of power and of love and of a sound mind. 2 Timothy 1:7

Posted By : Acheybody - 6/3/2013 4:41 PM
Bakomom,

Hi! Glad you found your way here - but sorry you're hurting. You sound like me....I was young and loved working out too when Fibro started getting its claws into me. Nautilus was my favorite. I just couldn't understand why I could do less and less, but hurt more and more....and then to have people tell me I needed to exercise more ;( ugh!

As you'll learn from the people here, and Fibro 101, we have many of the same symptoms, but we vary so much as far as what helps us. I think the main thing is that you do have to lower your expectations in some areas - especially in the beginning, until you find your footing. If you can possibly, slow down a bit and be gentle with yourself. (But don't be totally sedentary or stay in one position too long; that backfires.)

Talk to you later!

Debbie
Moderator, Fibromyalgia Forum

Fibromyalgia, herniated disc L4-5, (recent discectomy), DDD, Hashimoto's thyroiditis, IBS, migraines, visual disturbances, tachycardia, hearing loss (probably Menieres,) balance issues, chemical sensitivities

Posted By : almost medfree - 6/3/2013 5:09 PM
Hi Bakomom,

So sorry you're hurting. My pain and tightness from fibro has never left me but different days for me bring on different levels of pain.

If I don't get enough sleep I'm in more pain. The weather can cause me more pain. If I overdo for example lift too much or do too much I increase my pain, eating something that doesn't agree with me increases my pain.

I just heard on the Dr. Oz show today that gluten increases inflammation. There are so many things to learn. I am medication sensitive and I'm on several nutritional supplements that help my immune system to stay strong so I don't get sick on top of dealing with the fibro.

Good luck to you.
Fibromyalgia, CFS, MCS, scoleosis, herniated disks, spinal stenosis, osteoarthritis, sjorgens, sleep apnea, asthma, allergies, headaches. On a regiment of different supplements including sleep supplements. I eat nutritiously and do not eat foods I'm sensitive to and ever since a back injury triggered my fibromyalgia, I have been doing prescribed stretches twice daily.

Posted By : Nal - 6/3/2013 10:32 PM
I was diagnosed when I was 27. I am now 41. I do know how this affects your life with children. Just wanted to say hi earn to say that my fibromyalgia did go into remission for 2 years and came back. Hope you find some relief
Nancy

"life is 10%what happens to you, 90% what you do with it"
Injured back during a horse riding accident 1995 Diagnosed fibromyalgia 1999 at age 27. Later diagnosed with Lyme disease, acid reflux , interstitial cystitis
Currently on:
Felexeril
Hydrocodone
Hydroxyzine
Ativan
Nexium
Flonase
5 amazing kids ages 8-22. Newly remarried sept 2011. Hernia repair with fundoplication dec 2011

Posted By : bakomom - 6/3/2013 11:14 PM
Thanks for the posts. I actually found this site after I was diagnosed because it left me confused. I really like it because I have multiple problems like anxiety, phobia, IBS, fybro, and chronic migranes. So it's nice to have a place for all. I've read all I could and when I found this site Fybro 101 was the first thing I read. I was down literally for months at a time when it would trigger and it was so frustrating going to the doctors. The medication they gave me didn't help that much. Really the only help I ever got was that Toradol shot and the doctor told me its not for fybro which confused me more because it really did take the pain away. They also gave me Tramadol which does nothing I might as well take a children's chewable Tylenol. I have no idea what triggered this attack. I was doing so good. And it seemed like the more weights I was lifting the better I felt. But now my days are decreasing and so is my weight amount. Which is why I haven't posted in so long because exercise was easing my pain but now I think it's doing the opposite. I've tried multiple supplements but a lot if them mess my stomach up. I also have trouble with a lot of perscription medications too.

So I don't know what to do. I can't say I was 100% pain free but it was definately better than I was. It's nice to know that I'm not alone in this roller coaster. It's just really hard being a stay at home mom of 3 boys and I constantly have things to do around the house because no one helps. And by the time I'm done doing what I have to do I have to hear how miserable everyone's life is because I don't feel well. Not to mention insomnia has been really bad lately and I'm sleeping in too late yet I'm not getting much sleep because I don't fall asleep till 4-7am.

Posted By : Namian - 6/3/2013 11:48 PM
Bakomom, Welcome! I've been in your shoes. Last August I was nearly pain free and doing the best I'd been doing since my diagnosis. Then my MIL and BIL came to visit with only a few hours warning on Labor Day weekend, when I already had a ton of plans and a messy house. The stress through me into a flare and it took MONTHS to get back to where I was. I do find that as I've been feeling better for longer and longer that I'm more resilient and don't automatically flare when I'm stressed any more. Now if I could just get a handle on my fatigue!

Keep doing what you were doing and allow yourself to relax. I'm not sure how old your boys are, but as a mom of three teenagers I'm going to share my wisdom developed from experience: they won't help until you demand it of them. I sat my kids down, told them that I had a chronic condition and that I was no longer their slave. I told them they were responsible for their own laundry (my youngest was 11 at the time) and that they'd better start picking up after themselves. It's been a long road, but the message is getting through. I won't be a martyr and I won't be a slave.

I've also told them that whining stresses me out, and stress makes me sicker, so I won't allow that around me. I have two teenage girls...and they are champion whiners, when they start I'll listen for a bit then say "Stop, you hit your limit. Come back tomorrow." That usually makes them laugh. When they were younger I told them I didn't speak Whinese.

Sorry if I sound like I'm lecturing...but I have a lot of friends who complain how their kids treat them and wonder why my kids aren't like that. I'll tell them that your kids will treat you the way you allow them to.

If your kids are younger try to enlist their help with all the chores you can. Recently I needed to clean the car interior. I was about to drive into town so I pulled out the cleaning wipes (the kind you toss after using) handed them out to the kids and told them to clean all of the parts of the car they could reach. It was followed by window wipes. Nothing like the car getting cleaned on the move, LOL! Before Fibro I would've used washcloths because they were more environmentally sound, but now I have to care for myself too.

I hope you feel better soon!
Joy
Mom to three
Fibromyalgia, Migraines, GERD, gastritis, hearing loss, tinnitus, dairy intolerance, teenagers (I might be kidding about the last one)

"Make no judgments where you have no compassion." Anne McCaffrey

Posted By : Nal - 6/4/2013 12:22 AM
Zwhen I was first diagnosed my daughter Heidi was just turning 5 and my daughter Erica was not even 2 yet. A truly believe there are parts of their young ones that I don't remember because I was in such a horrible state of mind with this awful disease. In 2000 and 2 I'll believe I went into remission I have no idea what I did to make it go away but I was glad that it had stopped. In 2004 I gave birth to my third daughter Audrey who is no nine and a half. Shortly after giving birth to her all of my symptoms came back and they have never actually fully left me.

I have had many other stressors in my life including a divorce and then re marriage into a man that I thoroughly love with all my heart. I took on a stubborn stepson and a step daughter who lives on her own however stuff still gets to me quite often. I do know what it's like to raise young children with this disease. Many others on here have done the same thing. And like you I have learned that there are just days that I have to push through for the sake of my kids and to make them understand what it is that I feel on a daily basis. My oldest is no 18 and she fully understands this disease. I have a 15 year old who understands it but understandably lives in her own world lol. My 9 year old doesn't always get it but she does know that there are times that mami just does not feel well. Its hard but we get through it

I apologize if some of my words are not coming out right on here. I am using a talk to text option on my phone since typing is very hard in my arms right now. I hope you find relief soon
Nancy

"life is 10%what happens to you, 90% what you do with it"
Injured back during a horse riding accident 1995 Diagnosed fibromyalgia 1999 at age 27. Later diagnosed with Lyme disease, acid reflux , interstitial cystitis
Currently on:
Felexeril
Hydrocodone
Hydroxyzine
Ativan
Nexium
Flonase
5 amazing kids ages 8-22. Newly remarried sept 2011. Hernia repair with fundoplication dec 2011

Posted By : clarie - 6/4/2013 12:40 AM
Namian, I like your "whinese" idea... going to use it on my 6y.o. He's pretty good most of the time, have trained him to help out quite a bit and nowadays on mornings, he will even go on autopilot and get ready without being told allowing me to sleep in if I feel bad.

It's harder at the end of the day, when everyone is tired and that's when whining comes in. I use early bed time which usually works, the whinese idea definately will reinforce the stop whining part. Thanks :)
Pain pain go away, please let me have a good night sleep.

Posted By : bakomom - 6/4/2013 2:44 AM
Great advice Namian

I struggle with my boys a lot. They are 13, 8 and 2. My 2 yr old is a nightmare the other two are just lazy. I've tried to tell them I need help because I have multiple conditions. Their whining and fighting for sure makes my anxiety high. I also homeschool them so I literally never get a break. It's like they just don't care. Some things I can get them to do but the majority of the stuff I have to because I know it won't get done right and it'll just make it harder on me. I just spent 2 days cleaning my house because when other people clean things just get shoved in corners so when it comes time for me to step in its craziness. My baby refuses for people to feed him but he doesn't have spoon/fork to mouth concept too well so most of his food gets spreaded. If he has jello or yogurt it ends up on my couch and floor. He also likes to smash his food into the carpet so I have to steam clean s lot. He's managed to figure out how to spill a sippy cup. It's literally a nightmare in my house. I wish I could get a motel room for myself for a couple of days just to relax because I can't at home.

I sure hope I can continue the gym and get back to where I was. With all my medical conditions I've been laying down a lot for the past couple of years and gained more weight than I'd like to have.

Posted By : clarie - 6/4/2013 3:31 AM
bakomom, is there a reason for home schooling? There are ways to use their fighting energy for cleaning. My child psychologist's advise for my son is tough but fair and follow through with your threat. Eg. if you fight, you won't have TV... then follow through with it. It'll be hard for the first few days because they will whinge at you none stop, step 2 is timeout... his advise is use some place really boring, one in bathroom, the other one in toilet. That works for me... well I've only one so he goes into the toilet for 5 mins. Add extra min for each year, and every extra whinge gets extra min as well... They will learn to be quiet by the time they spend 20 mins in the toilet staring at the wall.

The other one is early bed time, that is really effective for me too... my son's bedtime is 7.30pm, but if he plays up, it will get earlier by 5 min increment... and they really hate to go to bed early.

As for cleaning, my son has to clear his toys away once he's done, or there will be consequences. 1. It may get vacumn away. 2. I won't play with him until he cleans up. 3. I'll take them away if he argues.

I'll admit the 13 y.o may be harder to deal with using these technique, do try them on your two younger ones.

Also, little children will always be messy... I set boundary on where he can eat. Eg. no food in front of TV. Eat in Kitchen.

Hope this help.
Pain pain go away, please let me have a good night sleep.

Posted By : almost medfree - 6/4/2013 11:50 AM
Bakomom,

For sleeping I wouldn't be able to fall asleep without my sleep supplements l-theanine and melatonin. I have no side effects with them. They don't always work well for me, I have to not overdo during the day or I can't eat something that doesn't agree with me.

I was married for many years to a man who raised our kids to not help me around the house. Unfortunately he wasn't helpful either. What I found I had to do to try to survive the marriage with my limitations was go on strike when it came to a certain chore. I just sat down and informed the family I couldn't do anymore.

Luckily even though therapy didn't help this situation, my therapist helped me to become strong enough and brave enough to leave the marriage. Not that I'm encouraging you to do anything drastic, just wanted to share with you how you might be able to take a stand.
Fibromyalgia, CFS, MCS, scoleosis, herniated disks, spinal stenosis, osteoarthritis, sjorgens, sleep apnea, asthma, allergies, headaches. On a regiment of different supplements including sleep supplements. I eat nutritiously and do not eat foods I'm sensitive to and ever since a back injury triggered my fibromyalgia, I have been doing prescribed stretches twice daily.

Posted By : clarie - 6/4/2013 1:06 PM
second that.
Pain pain go away, please let me have a good night sleep.

Posted By : bakomom - 6/4/2013 1:23 PM
Thanks. We do have our punishments around here. First they get a warning and if it continues then their possessions start to be taken away and depending on the offense is what determines how long. If that doesn't help then its their privileges. I don't allow anyone to eat or drink in their room but the little one selectively remembers that one. I remember a couple of weeks ago he went to sleep really early and I thought he was going to sleep through the night, but he woke up around 1am ready to party. It was only me and him up. He got out of bed and I figured he went to lay down with his brother like usual. I started to watch something on Netfix on the iPad and had earbuds in. When I got up I didn't see him. I walked toward the kitchen, the door was wide open and something on the floor. I went to walk in the kitchen and slipped, fell and busted my knee pretty bad. He decided to throw every egg we had all over the kitchen. That was extremely fun to clean up 40 eggs on linoleum. So it's hard to keep things from him when he can figure out locks and doors. He also can climb up on the counter so things up there aren't safe either. He's a handful and a half.

As far as homeschool.... I don't know where everyone is from. I live in California and all our schools are horrible. I just started a year and a half ago. I was tired of my 8 yr old being bullied by his teacher and he wasn't understanding and getting help. I went to the teacher myself to ask for help because she sent him home with a bunch of stuff and I had trouble understanding. She refused to talk to me without a conference. I waited over a month for her to call me back and never did. She wasn't allowing him to have any recesses because he couldn't finish his work and I was just tired of it. My 13 yr old was way behind and I didnt even know it. I figured out where his problem was though he couldn't multiply/divide and he struggled to read. So I pulled them out and they are doing better now. They are my kids and not the states, I'm not going to have the state raise my kids. But beside that the no child left behind act has really messed things up. My son is a prime example. He couldn't do a lot of things but they couldn't hold him back. My stepson is another example. He just failed 8th grade, what did they do to him? Absolutely nothing. He gets to go to high school even though he failed. The only thing he couldn't do was participate in the ceremony. Plus me and my husband don't agree and don't find it necessary for our children to learn about homosexuals. And I could care less who was an important person and gay. So that's where we stand on that.

Posted By : clarie - 6/4/2013 5:51 PM
Your 2y.o sounds like a handful. What punishment do you lay for him? I'd thought 2.yo can be controlled by timeout, they hate being alone at that age. Anyway, I only got 1, so I am definately is not qualify to give any advise.

I'm in Australia, my son goes to public school, they have zero tolerance on bullying, but it can still be an issue. Cyber bullying is increasing in Australia, especially with teenagers on their mobile phones and social networking site. I'm quite lucky though, my son is in one of the "better performing" public school. A few years back, the Australian government decided to publish a country wide ranking of each of the public and private school on discipline, academic to extra curricular activities. It does give you some transparency to how a school is performing, at the same time, it also cause problem to the better performing school because people would tend to want to send their children there which make the property prices in our area somewhat unattainable.

Personally, I definately couldn't be care less whether Ellen Degeneres is gay or straight, or whether it's ok for her to marry her sweet heart. At the same time, I support their life choices; which I think is important for children to understand that we should respect everyone regardless of their race, gender, single, divorced, sexual preference, etc.
Pain pain go away, please let me have a good night sleep.

Posted By : Fishchris - 6/4/2013 6:33 PM
Hello Bako :) Welcome. I'm sorry, I thought I had already replied...

But anyway, I'm sure you have seen many different responses, since Fibro can be different for everybody.... though you can mention any crazy symptom under the sun, and I bet their will be people here who have had that... or at least something close.

For myself, I always had so many different things going on, that even when one thing got better, something else often got worse ! I've had Fibro for 26 years, but during my last few years of full blown fibro (up to 42 mo ago), I don't think I had "any" days where I felt completely normal {no pain or discomfort}

Skip forward to now, I'm a health and fitness freak :) Fibro 95% remission, IBS 100% remission :) Ta Da ! NEVER give up hope !

Best wishes,
Fish
On a mission to help at least one person with Fibro / IBS, knock it into submission like I have. More than one person would be even better though ;)

Posted By : bakomom - 6/4/2013 6:45 PM
I wish my IBS would go away. But I gotta see the GI doc first and figure out how to deal with my abnormal intestines. I'm hoping I won't need the LADDs procedure. It sounds scary.

As fat as punishing my two year old I don't. I just try to tell him it was bad. It's hard to punish a practical baby.

Posted By : Jasmine Grace - 6/5/2013 11:42 PM
Hi Bakomom,

I don't know if you've tried any of these diets for your IBS or not, but I thought I'd share my story with IBS. I worked with a dietician for 9 months to figure out my food intolerances (i.e. which foods trigger my IBS symptoms), and following that diet helps to control the symptoms, although even if I'm following the diet stress can still trigger symptoms. If you can't afford to see a dietician, then you can just buy the "Food intolerance management plan" low-FODMAP diet book by Dr. Sue Shepherd and Dr. Peter Gibson (which I have found helpful over the years). I think there are other books on the low-FODMAP diet out there now - just google "low-FODMAP IBS". You can do an elimination diet (preferably with the guidance of a dietician, but you can do it by yourself if you're careful to watch out for malnutrition) to figure out your food intolerances. Or, if you're rich, you can just have breath tests to find out (to be tested for all the FODMAPs plus get the standard compulsory test, this would cost you about $650 if you live in Australia).

But do you know what really helped my IBS? The leaky gut cure diet by Karen Brimeyer. Since following that diet in conjunction with low-FODMAP diet, my IBS is almost entirely gone! I have only had the syptoms of it TWICE in the last 5 weeks (I used to have symptoms 24/7) - once was because I broke my low-FODMAP diet in a big way by having mango juice (too much unbalanced fructose at once), and once was because something VERY stressful happened. But I find that now I can break my low-FODMAP diet in small ways - e.g. I can daily have a bit of fruit and honey that contains fructose - as long as I strictly stick to the leaky gut diet.

P.S. No, I'm not advertising for any of these authors. I'm simply sharing who has helped me because I know it's hard to navigate the world wide web of scams out there... In fact, just in case you can't afford the $40 to download Karen's e-book, if you like, I can post a quick summary of the leaky gut diet... just ask if you'd like me to do so.

_______________________________________________________

Diagnosed: Fibromyalgia, Chronic Fatigue Syndrome, IBS, dermatitis, tinnitus, allergic rhinitis, lactose intolerance/malabsorption, etc.

Inconclusive: panic attacks or hypoglycaemia?

Suspected: leaky gut syndrome, mild depression, mild OCD, gluten intolerance

Posted By : Sherrine - 6/6/2013 2:19 AM
Jasmine, leaky gut diets should be discussed in the IBS forum. If you have your email in your profile, interested members could email you to get the info. Thanks!

Sherrine
Forum Moderator/Fibromyalgia

Fibromyalgia, Crohn's Disease, Ostomy, Autoimmune Inner Ear Disease, Diabetes, Osteoporosis, Glaucoma, Scoliosis, Ankylosing Spondylitis
************************
God does not give us a spirit of fear, but of power and of love and of a sound mind. 2 Timothy 1:7

Posted By : almost medfree - 6/6/2013 7:41 AM
Sherrine, I have to respectfully disagree with you.

Many people in this fibromyalgia forum have digestive issues. I appreciate the information Jasmine Grace shared with us in this thread. Jasmine, I was told years ago that I have leaky gut. I've heard that many people do. One of the causes of leaky gut is antibiotics interestingly enough.

Here's a website that talks about digestive issues like leaky gut contributing to some fibromyalgia symptoms:

http://generalhealthtopics.com/fibromyalgia-leaky-gut-syndrome-1098.html
Fibromyalgia, CFS, MCS, scoleosis, herniated disks, spinal stenosis, osteoarthritis, sjorgens, sleep apnea, asthma, allergies, headaches. On a regiment of different supplements including sleep supplements. I eat nutritiously and do not eat foods I'm sensitive to and ever since a back injury triggered my fibromyalgia, I have been doing prescribed stretches twice daily.

Posted By : Sherrine - 6/6/2013 12:00 PM
I KNOW that SOME people with fibro have digestive issues.  Unfortunately I am one of them and have had Crohn's all of my life.....before fibro, I might add.  BUT this is a digestive issue and we have an IBS, Celiac Disease, Crohn's Disease, and Allergy forums that discuss this.  We aren't repeating this over and over again here. 
 
As far as leaky gut goes, they think it has something to do with the lining of the intestines...a digestive issue not a fibro issue.  These digestive issues co-exist with fibro but don't cause fibro.  If someone is really having digestive issues they need to go to the appropriate forum. 
 
 
Sherrine
Forum Moderator/Fibromyalgia

Fibromyalgia, Crohn's Disease, Ostomy, Autoimmune Inner Ear Disease, Diabetes, Osteoporosis, Glaucoma, Scoliosis, Ankylosing Spondylitis
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God does not give us a spirit of fear, but of power and of love and of a sound mind. 2 Timothy 1:7

Posted By : Jasmine Grace - 6/7/2013 1:36 AM
Thanks, almost medfree.

I think I forgot to mention... the main reason why I'm so excited about the leaky gut cure is because it ALSO HELPS MY FIBROMYALGIA SYMPTOMS! Although I don't think Karen should call it a "cure"... but still, it's helpful enough for me to go without those things I love, like pies, pizzas and sugar.

Interesting - I had severe pneumonia for a couple months twice when I was younger, and both times my parents gave me antibiotics and Yakult. Yakult is a fermented probiotic milk which I did not drink because it made me feel sick (I now know that I am lactose intolerant). You might ask why my parents didn't just give me something else instead... well, I didn't know why I was supposed to drink the stuff, so I was happy enough to let my brothers drink it and let my parents think that I was the one drinking it! Yeah... 4 months of antibiotics and no probiotics is probably a significant contributor to my leaky gut.

Sherrine - out of respect for you, I won't post anymore about leaky gut or IBS in the FMS forum from now on. I just wanted to reply to almost medfree.

Posted By : Lissa77 - 4/14/2017 7:38 PM
In my experience I'd say yes, it can go away. I was diagnosed with having fibromyalgia about 9 months ago while I was working and since quitting my job 4 months ago I can hardly tell I have it. I still have random pains that do not come from prior injuries but I am in no where near as much pain as I was when I was working. I attribute it to reduction of stress. I have not made any other major changes than quitting my job, which was working in a call center for credit repair. I even told my doctor that I was confused and wondered if I ever really had it. My grandmother had it and we think my younger sister probably has it as well. My feet still really bother me with constant pain in my heels and the feeling of tacks sticking in my heels if I'm on my feet all day. I remember the pain, soreness, and just generally not feeling good though. Everyone is different and every day can be different when you have fibromyalgia, and that can be frustrating.

Posted By : Sherrine - 4/15/2017 6:03 AM
Hi, Lissa, and welcome! I'm glad you are doing well with fibro. It can wax and wane and that might be what is going on with you. Or maybe you were misdiagnosed. You have to have pain in all four quadrants of the body for three to four month before a fibro diagnosis is given. Some doctors out there will diagnose fibro if they don't know what is going on. Hopefully you went through tests that rule out things like lupus and Lyme disease because they have many of the same symptoms. I wouldn't worry much about that right now since you aren't having many symptoms.

Your feet issue could be plantar fasciitis. I had that badly and it got so could barely walk. It felt like someone was driving a stake through my heels. I started wearing Birkenstock shoes and that took care of the problem. These shoes help keep the tendon stretched.

It would be good if you started an introductory thread. I almost missed you! We want the members to know you have arrived.

I'm looking forward to getting to know you better. Don't hesitate to ask questions because we are here to help you. Hope to hear more from you soon.

Sherrine

Forum Moderator/Fibromyalgia

Fibromyalgia, Crohn's Disease, Ostomy, Autoimmune Inner Ear Disease, Diabetes, Osteoporosis, Glaucoma, Scoliosis, Ankylosing Spondylitis
************************
God does not give us a spirit of fear, but of power and of love and of a sound mind. 2 Timothy 1:7

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