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Posted By : Spunkymom - 1/4/2017 9:04 AM
Hello all! I have found sparse reference to fibro rash on the web. I was wondering if any of you have experienced it. If so, what did it look/feel like? Do you notice any specific triggers? Do you have it a lot or on and off? Thanks for the info!

Posted By : Ljm2014 - 1/5/2017 11:28 AM
Not familiar with this aspect..but there are differing forms and many people have coexisting conditions.

One of mine is a very active sensitivity to meds, smells, and other things ..i have to use lower doses of meds or tritate up slowly..
I have to advoid newspaper print, or smelly ads, fresh flowers in my house..i know others with fibro with these sensitivities but not all have it...

I imagine it would be much the same with rash. Be interesting to see what others say on this

Posted By : Luvzminis - 1/5/2017 5:11 PM
Hi Spunkymom: Like Lj said, this is something not familiar to me, either. But, yes, you know how odd fibro can be, and how it can vary from person to person.

You maybe already have read this, but I'll post it in case you haven't. I thought it was interesting:

I hope others here will respond, too. New to me! Hope you get some answers. yeah
"You've only got 3 choices in life: Give up, give in, or give it all you've got."

Posted By : Browniaurelie - 3/17/2017 8:03 AM
Hi Spunkymom: If you are referring to the rash that is associated with multiple chemical sensitivities, it's one of my biggest issues with fibro. Long before i was diagnosed with fibro i was getting these weird allergic reactions to EVERYTHING! My doctor would prescribe topical after topical. I'd been to every dermatologist. No one could figure out what was wrong. Well, last year I was FINALLY diagnosed with fibro after having the pain and many other symptoms basically my whole life and my doctor said that one of my symptoms was MCS (multiple chemical sensitivities). The rash is caused from sensitivities to chemicals and environmental stuff. Mine is a really bad reaction to chemicals, medications, cleaning products. The hugest one is lotions and body products. I basically can only use cetaphil products. Sorta sucks because i want to use those pretty smelling girly products but i'll pay for it for the next week. I also will pay if i go in a pool. The chlorine gives me a huge reaction. MCS kick starts really bad fibro flares for me too. I'm not sure if this is what you're talking about but it's my experience.

Good luck.
Fibromyalgia, Carpal Tunnel, Complex PTSD, Sleep Apnea, Anxiety, High Blood Pressure

Posted By : Ljm2014 - 3/17/2017 1:35 PM
Ok I have the multiple chem sensitivities,

I do not get much of a rash, but itchy..

Did you know that scented products, cane have over 100 chemicals in them..always unscented for me

Posted By : Akkami - 3/18/2017 7:21 PM
Yes i have a "rash" that I have asked many, many doctors about. Most of them don't have any answer. I went to the Mayo Clinic and the rheumy there said it wasn't really a rash. It's more like the blood vessels just restrict/expand unusually. So it basically looks like a rash. Don't know if that helps at all.

Posted By : maeri554 - 3/26/2017 2:51 PM
When I was little I had a weird reaction to being in tall grass, i.e., weeds. about 2 -3 months ago the grass in the back yard was high. I walked out there for something. It started st the top of my foot and ankle. Now it is up the out side of the top of my right calf. It itches like a *****. I also have a spot that itches just under my ankle on the inside of my foot. It almost lookes like psoriasis, but was not diagnosed as such. I hate the itching that comes with fibro. Sometimes all it takes is a puff of air on my face at night in bed and I feel like bugs are crawling on my face and head. Something else to keep me from sleep.

Posted By : Hallahan - 4/3/2017 4:40 PM
I had an awful rash on my left foot that they couldn't figure out what it was from. It was painful and itchy.
The derm told me to put Vaseline on it an wear a cotton sock over it when I went to bed.
That helped a lot.
The doctor called a few days later and referred me to a Pain doctor who specialized in fibromyalgia.
What???? This was before I was diagnosed. I did have pain, sleepiness etc but thought it was part of growing old.
They did the pain points thing and all the tests at a large university and thus I was diagnosed with fibromyalgia. I was 64.
But how the dermatologist suspected this I have no clue. She relocated to another city. She had mentioned they had a special committee where they evaluate rashes etc that they can't figure out what they are. I'm guessing they reviewed my chart and came to their conclusion. There must have been a connection she saw to the rash.

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