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Posted By : HHRose - 2/27/2017 10:11 AM
HI, Thank you in advance to anyone who can help.

Has anyone here diagnosed with Fibromyalgia also have a positive ANA test?

I was sent to an RA specialist because I had a positive ANA, but after a series of test my doctor has decided on Fibromyalgia. My symptoms were a factor, but my test are 50/50 one will say I have an autoimmune disease and then another will say I don't.

I know I should consider a second opinion, but I am having trouble with insurance right now and could really use some advice and would like to know if I'm not alone in this.

Thanks again!!

Posted By : Sherrine - 2/27/2017 12:14 PM
Hi. HH Rose, and welcome! Fibromyalgia is not considered an inflammatory problem. It isn't considered an autoimmune problem either because inflammation is one of the first signs of autoimmune problems. We get pain but not heat, swelling redness, etc. Also, we don't develop damage to the tissue or joints that happen with autoimmune inflammatory illnesses like rheumatoid arthritis. We just have the pain. We have members with no inflammation showing on tests. I have several autoimmune illnesses but fibro isn't one of them.

This is from the Mayo Clinic site.

"An ANA test detects antinuclear antibodies (ANA) in your blood. Your immune system normally makes antibodies to help you fight infection. In contrast, antinuclear antibodies often attack your body's own tissues — specifically targeting each cell's nucleus.

In most cases, a positive ANA test indicates that your immune system has launched a misdirected attack on your own tissue — in other words, an autoimmune reaction. But some people have positive ANA tests even when they're healthy.

Your doctor may order an ANA test if he or she suspects you have an autoimmune disease such as lupus, rheumatoid arthritis or scleroderma."


This is from the University of Maryland Medical Center site. Note the last sentence

"Fibromyalgia has symptoms that resemble those of some rheumatic illnesses, including rheumatoid arthritis and lupus (systemic lupus erythematosus). These are autoimmune diseases in which a defective immune system mistakenly attacks the body's own healthy tissue, producing inflammation and damage. The pain in fibromyalgia, however, does not appear to be due to autoimmune factors, and there is little evidence to support a role for an inflammatory response in fibromyalgia."


This link explains the ANA test much better. It is from the American College of Rheumatology. You can have an infection that could cause a positive ANA.

www.rheumatology.org/I-Am-A/Patient-Caregiver/Diseases-Conditions/Antinuclear-Antibodies-ANA

I hope this information helps you. Your ANA could be negative the next time it is checked! If you continue to show a positive ANA, I'm sure more tests will be run to see if you have lupus or something else.

I'm not a doctor but right now stop worrying about it. Worrying can make pain worse in fibromyalgia.

Be sure to read Fibro 101...the first thread on the forum. There are links to good info about fibro and you will learn a lot there. A good link for you to check out is called What Else Could It Be since many symptoms of Fibro are also symptoms of other illnesses. Be sure to be checked for Lyme disease also.

I'm looking forward to getting to know you better. Don't hesitate to ask questions because we are here to help you. Hope to here more from you soon.

Sherrine
Forum Moderator/Fibromyalgia

Fibromyalgia, Crohn's Disease, Ostomy, Autoimmune Inner Ear Disease, Diabetes, Osteoporosis, Glaucoma, Scoliosis, Ankylosing Spondylitis
************************
God does not give us a spirit of fear, but of power and of love and of a sound mind. 2 Timothy 1:7

Posted By : HHRose - 2/27/2017 7:11 PM
Hi, Sherrine, Thank you so much for taking the time to help me and hank you for all the information. I will definitely read Fibro 101. I really want to have a better understanding what is going on with me and ways to cope with fibromyalgia. Thank you again.

Posted By : Ljm2014 - 2/27/2017 10:38 PM
Hi,

Fibro 101 does list all the symptoms that we have and is a useful place to start...


Ask any questions you have , nice people here on the forum

Lj

Posted By : HHRose - 2/28/2017 9:32 AM
Thank you, Lj I will.

Fibro 101 had more information than what I was anticipating. The list of symptoms was quite surprising to me; I have had a few symptoms that I thought could not be related to fibro, but to know that they are helps me understand that this may be the accurate diagnosis. The articles were great, the compilation of questions and answers in the first article gave such good directional focus for my confusion.

I am very thankful that there is somewhere like this that I can turn to.

I have suffered from pain that I can't explain, for a long time, doctors always dismissed me and said you are to young to be having that much pain. So I myself dismissed it and tried to find ways to deal with it such as breathing and trying to rub the pain away or telling myself that I am just imagining it and do my best to focus on the task in front of me.
If I juxtapose the pain I have today to the pain I had when I was younger, back then wasn't so bad, but my body has been through a few things since then.
Again, I am really grateful for all of this. I look forward to learning more and I hope that I can be helpful in the future.

-Rose

Posted By : Sherrine - 2/28/2017 11:51 AM
I'm so glad you like Fibro 101. I thought it was a good idea to put the major info all in one spot so members could refer to it. There are two sections...17 entries so far... so I hope you didn't miss anything.

It is extremely important to have good doctors. I search my doctors out and they are all board certified plus nearly all of them are diplomates. Diplomates have to keep abreast of new things in the medical field and, according my doctor up north, they have to take a test frequently to keep the title of diplomate. Do make sure your doctor/s believe fibromyalgia is a true illness. There are still doctors out there in the Dark Ages when it comes to this illness. I point out that 50% of the doctors graduated in the lower half of their class. A good doctor will run you through a myriad of blood work and maybe other tests to rule out other illnesses that have many of the same symptoms as fibro. There is no good test for a fibro diagnosis.

The doctor who said you were too young didn't know what they were talking about. They were basically saying it was all in your head! We used to have a mod who actually had this all of her life. When young, she thought everyone felt the same way. We've had a few high school members who received help and, the last I heard, they were doing well in college. Fibro usually strikes from 40 on but that is not set in stone! We have many members who developed this in their 20's or 30's. I developed the symptoms two weeks before my 40th birthday. So make sure your doctor believes in Fibro and treats fibro patients.

I use ibuprofen with food, Tylenol, magnesium malate, vitamin D3, and a prescription muscle relaxer called Robaxin (methocarbomol is the generic). I don't need to take much of the muscle relaxer but this really did make a significant difference in my pain. I walk daily as a gentle form of exercise, do stretching exercises, get a gentle massage once a month, do Trigger Point Therapy on myself, and I pace myself when doing things. It took me quite a few years to figure all of this out but it works well for me and I have lived a full and enjoyable life in spite of this illness. I do keep a positive attitude too. That helps soooo much! But what works for one doesn't necessarily work for another with fibro. It is a trial and error type thing. But you will get more ideas from other members so do read back posts if you get a chance. There is a lot of good info there too. I did put links about magnesium malate and vitamin D3 in Fibro 101 since many seem to be deficient in these and they do help with pain.

I hope you get in control of your pain soon and make sure you have a good doctor. I use an Internist and I also have a rheumatologist. Both are good with fibro.

Sherrine


Forum Moderator/Fibromyalgia

Fibromyalgia, Crohn's Disease, Ostomy, Autoimmune Inner Ear Disease, Diabetes, Osteoporosis, Glaucoma, Scoliosis, Ankylosing Spondylitis
************************
God does not give us a spirit of fear, but of power and of love and of a sound mind. 2 Timothy 1:7

Post Edited (Sherrine) : 2/28/2017 10:56:28 AM (GMT-7)


Posted By : vestabula - 3/2/2017 7:29 AM
My son works in a lab and says the ANA test is the most frequently repeated test there is. It can go from positive to negative in a matter of hours...something as insignificant as an infected hang nail can affect the results. My doctor always ran the test twice, to make sure the results were accurate.

Donna

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