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Posted By : mamaof7 - 3/27/2017 11:28 PM
I was diagnosed with fibromyalgia in 2009 but some of my symptoms are different than what I read about and would like to know your opinions...

I do have all over body pain, muscle burning and joint aching.
I am consistently dealing with fatigue.
I get overwhelmed easy (this was NEVER an issue before diagnosis)
I have frequent severe headaches.
My immune systems is poor.
I find it difficult to concentrate.
If I do not stay on top of my emotions depression sets in very quickly.
I sleep like junk.


But I don't have the morning stiffness that I read about. I usually wake not hurting as bad as when I went to bed but after being up about two hours the stiffness and pain starts setting in....BAD!
I have most all of the tender points but all of them are a few inches away from where the graphs show.
I have almost no digestive problems.

What are your thoughts?

I gave you a subject so you will get more responses.

Sherrine

Post Edited By Moderator (Sherrine) : 3/28/2017 6:10:34 AM (GMT-6)


Posted By : Sherrine - 3/28/2017 6:08 AM
We all have a different variety of symptoms. The hallmark of Fibro is pain in all four quadrants of the body that has continued for months. Most have cognitive memory problems. Some have headaches and some have irritable bowel syndrome symptoms. Nearly all of us have problems sleeping. Fatigue is part of Fibro and some have more fatigue than others.

There is no set rules for fibro except the pain. They now aren't using the tender point test as much because that is a variable too. Some doctors push harder than others, etc. so that isn't part of the criteria in diagnosing fibro anymore according to the American College of Rheumatology.

If you are concerned, get checked out again. Fibro shares many of the same symptoms as Lyme disease, lupus and other illnesses. Check out What Else Could It Be in Fibro 101.

Sherrine

Forum Moderator/Fibromyalgia

Fibromyalgia, Crohn's Disease, Ostomy, Autoimmune Inner Ear Disease, Diabetes, Osteoporosis, Glaucoma, Scoliosis, Ankylosing Spondylitis
************************
God does not give us a spirit of fear, but of power and of love and of a sound mind. 2 Timothy 1:7

Posted By : S Miller - 3/28/2017 9:39 AM
There is a super website called...It has extensive research on FMS, and thinks there is a connection between salicylates in our body and products we use. They use the Mucinex protocol. There are active lists you can download for free on symptoms, and products that are safe to use. Their studies state that the SSRIs like Cymbalta don't do any long term good. I for one was on Cymbalta for 5 years and it never helped...and my BP shot up to 185!

There is also a body chart along with a list of possible symptoms.

I was fortunate to have found decent answers at the former Fibromyalgia & Fatigue Centers in Dallas, Tx. (they may be closed now..) Back then it was "pay as you go," and ALL tests run by Quest were covered. The insurance company DID NOT cover the "out of pocket" costs.

This was the ONLY PLACE where the doctors did NOT roll their eyes at me. They ran tests for all sorts of "insidious" viruses and bacterias. I worked around MOLD for 3 years and they ascertained that it knocked out my immune system. I had a type of pnuemonia associated with mold, that there was no cure for..and they tested for Lyme, other tick diseases, heavy metals, etc. They DID discover a PREVIOUS Epstein Barr Virus (Mono) infection. (and they mistakenly called it "an active infection" when it was not (according to an infectious diseases doctor that I just saw..) And a heavy Candida load. I was on anti-virals for almost 2 years..off and on for 2-3 weeks at a time. They also "discovered" low thyroid (but I was leery of that Dx) and also low testosterone and consequently had me on HGH hormone and many other "exotic" protocols like a Glutathione drip, etc.

I had PREVIOUSLY (before going to the FFC in Dallas) been Dx with TMJ, IBS and sleep disorders (people with FMS or CFIDS do NOT often reach REM stage sleep, therefore are NOT well rested. Hence, "fibro fog" and memory issues.) Also had what I thought were "bladder infections" due to pain and urgency issues and those were all NEGATIVE..but spastic bladder IS a side effect of FMS.

Basically, I had gone to various doctors for 2-3 years, racking up diagnosed issues, BUT NO ONE put them ALL TOGETHER for the Fibro Dx. (Also, I had extensive bone scans done..and have SEVERE OA..Osteo-ARthritis is a HUGE MARKER for Fibro..not RA..) This is WHY they BELIEIVE that MUCINEX helps..people with OA have a build up in their body of phosphates and salicylate...and the Guiafenesin in the Mucinex helps flsuh these from our bodies..

Anyway, Fibro is real and it is NO FUN..and you can have good days and bad days..AND something SIMPLE like a weather change can cause a flare up!

I took out the name of the site because it was selling products.

Sherrine

Post Edited By Moderator (Sherrine) : 3/28/2017 11:20:12 AM (GMT-6)


Posted By : Sherrine - 3/28/2017 11:12 AM
Hi, S Miller, and welcome! The guaifenesin protocol has been discussed on this site. Some members have tried it but haven't had good success with it. There are many limitations too.

A former mod who used to be a nurse wrote this about the guaifenesin protocol...

"The guaifenesin protocol was debunked (in 2006, I think) after it was proven in a double blind placebo study that the results were no better than placebo in pain relief. Because of the negative results Dr. St. Armand did not publish his findings in any of the medical journals. He is still selling books stating that this protocol works... (sigh!) and still making money on those books.

Even after the study showed that guaifenesin performed no better than a placebo, and the blood/urine tests revealed that it could not possibly work as suggested by Paul St. Amand, M.D., the guaifenesin controversy is still alive. If you think it helps you, carry on. The mind is a mysterious organ and even placebos have their place in treatment.
~ Jeannie"

Buyer beware. We do have a Google Custom Search at the top of the page. Type in guaifenesin protocol and you will see the threads where this was discussed.

The link below is very long but explains the Truths and myths of guaifenesin protocol.

web.mit.edu/london/www/guai.html

Sherrine
Forum Moderator/Fibromyalgia

Fibromyalgia, Crohn's Disease, Ostomy, Autoimmune Inner Ear Disease, Diabetes, Osteoporosis, Glaucoma, Scoliosis, Ankylosing Spondylitis
************************
God does not give us a spirit of fear, but of power and of love and of a sound mind. 2 Timothy 1:7

Post Edited (Sherrine) : 3/28/2017 2:00:43 PM (GMT-6)


Posted By : Ljm2014 - 3/28/2017 2:49 PM
Thanks sherrine for posting that..i think at times our fibro people just get till they are willing to try almost anything..

Also feel like we get relief at times just knowing we are trying something..hence the placebo effect..?

Fighting a weather system today 😡

Posted By : Ljm2014 - 3/28/2017 2:54 PM
Oh i got distracted mamaof 7

Welcome, our symptoms can vary pretty wildly..

I do not wake up with morning stiffness unless i am flaring , then all bets are off..

Most your symptoms fall under the fibromyalgia umbrella..we all do not have all of them..

Always research for self help measure..my doc helps me about 50 per cent but i get a fair amount of self help...

Take care , ask any questions lj

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