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Posted By : GratefulMimi - 3/29/2017 7:57 PM
Hi everyone: I'm a new member here. I am about to face the biggest challenge since being diagnosed with FMS. After many years of trying all the usual suspects in medication for pain, my doctor and I found what works best: Tramadol. Nothing eliminates pain, but Tramadol takes off the edge enough to allow me to be productive in a limited way.
The challenge is my state legislators have been "playing doctor" with many changes in regulating prescription drugs, so much so my doctor has made a decision to no longer prescribe for patients with chronic pain, effective May 1.
Today I learned that the legislators are now considering a bill to limit pain medication prescriptions to only three days!! Yes, our state has an epidemic of prescription abuse and heroin ODs, but they are now making a broad sweep to paint all of us with the same brush, thus making us feel like a criminal for having pain.
Knowing that it will be impossible for me to find a new doctor who will prescribe Tramadol, my daughter has offered an over-the-counter medication she received in Greece for a broken leg (she didn't know it was broken then, she had done it in Switzerland days before) but the Mesulid permitted her to continue her appointments in Greece, Turkey, and Italy.
(Sorry this is such a long message)When she returned to the states, she and her rheumatologist figured out a comparable drug to treat her RA and Sjogren (sp) Does anyone know of this drug and the long-term side effects? My appreciation for any information.

Posted By : Sherrine - 3/30/2017 7:08 AM
Hi, Greatfulmimi, and welcome! I would not suggest you get a medication without your doctor's knowledge. There are things out there that can give you relief. Tramadol isn't the only thing. I know it works for you but I'm sure there are other things that will help. I personally tried Tramadol and it did nothing for my pain.

If I were you I'd see a different doctor. It's your doctor's decision not to give you pain medication. Below is a link from the CDC that explains this. Opiods can be given under certain guidelines. Some doctors have been handing out opiods like candy for quite a while and it has cause many problems. This is why the CDC is clamping down and set these guidelines. If you fit in the guidelines you should be able to be prescribed Tramadol. A pain Clinic would probably be your best choice if you want to stay on Tramadol.

/www.cdc.gov/mmwr/volumes/65/rr/rr6501e1.htm

I looked up Mesulid and it basically is an anti-inflammatory medication like our NSAIDs here in the States. Fibromyalgia is not considered an inflammatory illness. If you have inflammation it's probably from something else. I have several chronic pain illnesses and they are all inflammatory...except for fibro. So you might want to be checked out by a good board certified rheumatologist and see what is going on...especially if you are getting worse and worse. Fibro isn't considered a progressive llnesses either.

I was getting worse and worse and having horrible back, shoulder, and leg pain a few years ago. I saw a rheumatologist and discovered I had developed ankylosing spondylitis and sacroiliitis along with fibro. I was put on ibuprofen with food and also a muscle relaxer called Robaxin that made a significant difference in my pain. I haven't felt this good in years. Yes, I still,have pain but it is manageable now.

I also use vitamin D3, magnesium malate, and Tylenol. I walk daily and pace myself when doing things. All of this has helped me and many members lessen our pain.

But I can't stress enough about not becoming your own doctor and getting medication elsewhere. Did you know Mesulid has been banned in Ireland because of all the liver problems caused by this drug? I bet you didn't! Also various medications can interact with other medications. If you are taking something on you own and your doctor doesn't know about it, you could end up quite sick! And, right now it is illegal to get medication from other countries. This is why it's so important to find a doctor who will work with you and keep you safe and help lessen your pain. I do hope you will listen.

Sherrine
Forum Moderator/Fibromyalgia

Fibromyalgia, Crohn's Disease, Ostomy, Autoimmune Inner Ear Disease, Diabetes, Osteoporosis, Glaucoma, Scoliosis, Ankylosing Spondylitis
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God does not give us a spirit of fear, but of power and of love and of a sound mind. 2 Timothy 1:7

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