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Posted By : JennyBeanx4 - 4/6/2017 12:27 PM
Howdy everyone, my name is Jenn, mom to 4 boys, wife to an army veteran. I was diagnosed with Fibromyalgia around 3 years ago, after years and years of tests. It seems like I've tried every medicine under the sun, but I seem to be prone to crazy side effects. I'm currently taking, gabapentin, nature thriod, V.D and cholesterol meds. It seems to take off the edge but that's about it. I was wondering if anyone else faints a lot? I am a chronic fainter especially in a stressful situation. I look forward to hearing everyone's journey with this crazy syndrome and hopefully picking up some great ideas.

Posted By : Ljm2014 - 4/6/2017 8:21 PM
Hi,

Welcome,

It's tough but with trial and error..what's works for you specifically

You can feel better..

I also have medicine sensitivities. So like you ,with meds I can keep the edge off.

I get more help with alternative methods.

Such as: topical pain relievers..like bio freeze or pain erase

I have had fibro for decades, raised my kids with it..so I have quite a few tools in my fibro tool box..

Like acupressure pad, light relief, etc..

Stretching is really important for us..if I skip it my pain increases a good bit.

Others will share their go to favs I am sure

Ask questions as you like.

Lj

Posted By : Sherrine - 4/8/2017 6:30 AM
Hi, Jenn, and welcome! No, I don't faint and I have never heard that is a side effect of fibromyalgia. I think you have something else going on. Are you sure you are fainting? I knew a person who had epilepsy and would just go "blank"...right out of the blue. It happened to me with him when we were dancing. All of a sudden he stopped, his arms went down to his sides and he just stared...not moving, not responding. This went on for about 15-20 seconds and then he snapped out of it. Even if this doesn't sound like what is going on with you, I would highly suggest you see a neurologist and find out what is going on. The fainting could be dangerous for you..especially if you are driving and it happens! You want to stay safe and keep others safe also.

For fibro, a lot of us really hate taking these "high powered" medications because we have had reactions in the past. I'm one of those people. Most everything I take is over the counter medications with one exception. I use ibuprofen with food, Tylenol, vitamin D3, magnesium malate, and a prescription muscle relaxer called Robaxin that has made a significant difference in my pain. I also walk daily as a gentle form of exercise. If you sit or lay too much you will be stiff as a board and have more pain. I do pace myself when doing things and I use Trigger Point Therapy on myself.

I bought The Trigger Point Therapy Workbook on Amazon and it shows where to find the trigger points that are causing you the worst pain. It's usually somewhere in my back or sides. I use a tennis ball against the wall to reach these spots and then I press against the ball and move slowly like I'm massaging the area. This does really work.

Do read Fibro 101...the first thread on the forum. There are links to good info about fibro and you will learn a lot there. I have had fibro for decades but am still learning new things about this illness. There are links about the vitamin D3 and the magnesium malate and how these work in the body. Deficiencies in these can cause pain.


I'm looking forward to getting to know you better. Don't hesitate to ask questions because we are here to help you. Hope to hear more from you soon.

Sherrine

Forum Moderator/Fibromyalgia

Fibromyalgia, Crohn's Disease, Ostomy, Autoimmune Inner Ear Disease, Diabetes, Osteoporosis, Glaucoma, Scoliosis, Ankylosing Spondylitis
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God does not give us a spirit of fear, but of power and of love and of a sound mind. 2 Timothy 1:7

Posted By : JennyBeanx4 - 4/9/2017 7:09 PM
Thank you all for the great information!! The fainting has puzzled all my Dr's, and they've done every test on me, from heart ultrasounds, adrenal testing ( one where I had to save my urine for 24 hours ) and so on. I was originally diagnosed with restless legs, which I've read is a common misdiagnosis for fibromyalgia. I was hospitalized for severe colitis, and then things started to add up for me and found a new Dr. I told her everything I've been diagnosed with: shingles, bells palsy, alopecia, rls, ibs and on and on. She finally just took a step back and said I most likely have fibromyalgia. It was a relief to finally have a straightforward answer, I truly felt I was going crazy.
I'm going to go check out all the links, thanks so much for all information!!

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