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Posted By : Coach Patrick - 8/1/2017 1:38 PM
Dear FibroFriends:
I get very bad nightmares I believe due to my fibromyalgia.
I think it is my brain trying to make sense of the pain it is
feeling while I am sleeping.

Most of the time it is a dream about people beating me up.
Sometimes I am trying to find my way through a maze where
the walls are bumping into me or me into the walls.

I have also had dreams where I am dying a very painful death
and nobody will help. I have even died with my mind trapped
inside my dead body that is twisted in stiff rigor mortis while
children are playing with my dead body.

Too much information?

Does anyone else suffer from such dreams that seem to you
to be triggered by your fibromyalgia?

Does anyone know of anything that can be done to help?

Sincerely,

Patrick

Posted By : Ljm2014 - 8/1/2017 5:01 PM
Hi,

Those are some dreams😞 . Are there any medications that could be contributing?

I completely get the maze part..its a confusing disease..

Also ..one that unless you have it , or some of the ones like it..it is very misunderstood by those around us..even people who try..

Have you tried any of the sleep and relaxation tapes at night? There are many online..maybe just changing the messaging going into sleep time could help?

If you are spiritual..praying into sleep is great..

I have considered hypnosis for calming the pain signals..wonder if that might help

Just some thoughts..lj

Posted By : Ljm2014 - 8/1/2017 5:05 PM
Oh ps,

I have awakened from dreams where i was so busy and active , or they would be stressful..so i would feel exhausted as i woke..

Sleep is usually an issue with fibromyalgia which i am sure you know..

Posted By : Coach Patrick - 8/1/2017 8:43 PM
Thanks LJM
I appreciate your replying and positive thoughts and suggestions.
I have a duel problem. I also have sleep apnea. Really bad.
I don't go to sleep. I fall asleep. Like one moment awake and
the next I'm waking up in the middle of the night. Having not
put on my CPAP I don't get REM sleep. Not getting a good night's
sleep means that my fibro pain is much worse the next day. The
added pain makes it hard to get a good night's sleep... around and
around.

I came up with the idea of combining my MedCenter clock (sold
on Amazon) with my CPAP machine waking me up to remind me
verbally to turn on my CPAP machine AND put the mask on. But
I can't get CPAP manufacturers to make it. I don't want to get
into being an inventor because I don't have those skills. I just
want and need the end product.

Anyway, when I can I turn off the TV, turn off the lights, put my
CPAP on and listen to soft music to go to sleep. But at best that
is only about 25 percent of the time. I have also heard that
untreated sleep apnea has been linked to Alzheimer's disease.
I am also having memory problems. Especially short term memories.
Especially short term memories. I am also having memory problems. LOL

Anyway, I take non-opoid pain medications like Lyrica and Tramadol. I don't
know if they cause dream problems but I literally can't live without them. Without
them I am constantly miserable and can't do anything.

Thank you for your empathy. So many people read this thread and did not
comment. I appreciate you just commenting so that I don't feel so alone in
my suffering.

I am a Christian and I do pray often. If someone was ever healed from fibro.
I might have some faith that it could happen to me even though I know that
God could do it. But I realize that God has His reasons for my situation.

Please let me know if you try hypnosis. I have tried Mindfulness but it only
helps for short periods. That is a lot like self-hypnosis.

I sleep in a recliner because I have not yet found a bed that I can sleep in.
If it does not give enough my shoulders and hips and lower back hurt to the
point that I have to get up. I can't afford the beds that move into a raised
head, raised feet recliner-like position.

When I have a nightmare (weekly) I flail my arms and legs knocking objects
off of the table next to my recliner making a mess. Once the recliner fell over
backwards and I was left upside down in a position I could not get out of and
making it hard to breath. Yelling, my wife saved me. I have put a stool behind
my recliner so that that cannot happen again.

When having these dreams I also make noises and scream for help that
wakes up my wife in the other room. The effect must be scary for her and
I am glad sometimes that we don't sleep together as I might hurt her.

So any way, sleep apnea combined with fibro. is a real mess. I just wish
someone would invent the alarm clock to remind me when my CPAP is not
on and mask is not on. I also have "middle of the night insomnia which a
lot of people have.

Anyway, thanks again for your thoughts and positive suggestions!
I really, really, really, really, really appreciate it! I wish more people were
as nice as you. 42 views so far an only you were nice enough to comment.
I appreciate your being my psychiatrist for the evening. smile

Thankfully

Coach Patrick

Post Edited (Coach Patrick) : 8/1/2017 9:45:55 PM (GMT-6)


Posted By : Ljm2014 - 8/1/2017 11:13 PM
Well i am sure its tough to wake up from those dreams when they get bad..

Are you saying you get them more when you forget your mask?

Hope tonight is better for you! πŸ’€πŸ’€πŸ’€πŸ’€πŸ’€πŸ’€πŸ’€πŸ’€πŸ’€πŸ’€πŸ’€πŸ’€πŸ’€πŸ’€

Posted By : Coach Patrick - 8/2/2017 1:55 AM
Dear Ljm
I don't really forget my mask. I rarely have the opportunity
to put the mask on because I fall sleep so quickly. The other
day I took a drink of water and set the jug down and before
I swallowed the water I fell asleep. No joking. I know this is
what happened because my jaw went slack and the water
came out of my mouth and fell down on my chest waking
me up. It would be funny if it was not so tragic. I don't have
narcolepsy. One funny thing that used to happen to me is
that sitting on a couch I would fall asleep and my head would
ball back and hit the wall which would wake me up for about
15 seconds when I would fall asleep again and my head would
fall backwards hitting the stucco wall waking me up again etc.

You can imagine my wife's confusion when she was in then other
room and would hear..............thud.....................thud.............
..............thud.................thud......................thud..................

This was before I got tested for sleep apnea and got my cpap machine.

Once while driving home in the middle of the day I fell asleep and hit
the raised median in the center of the road and going about 40 miles
per hour dented the rims so hard that both left tires went flat.

Luckily I no longer drive. When I started taking my pain meds I no longer
trusted my judgment. Once I made a left hand turn onto a 4 lane road not
being sure if I could make it into the road before the approaching car got
there. Luckily there was plenty of room and I made it, but I so scarred myself
that I haven't driven since. That was about 8 years ago.

I am homebound, as I would gather many fibros are. Is it okay to use that
word as a noun? I don't mean to be mean. Anyway, I don't leave the house
because I can't stand for more than 2 minutes because the pain in my feet legs
and back is so bad I am driven to the ground or the nearest seat. I can't sit on
a hard surface for more than about 5 minutes with intense pain in my glutes forces
me painfully to stand up again. And this is with my pain medications.

The only relatively release I get is when fully reclining in Betsy (my recliner)
distributing my body weight throughout my back. Even sitting up in my soft
recliner I can only type about a paragraph before I have to recline back for a
while. So I have had to recline 7 times to write this so far.

There is a formula with my fibromyalgia. Pressure + Time = Pain or P+T=Pa
My little 25 lb. dog can't sit between my legs when I am reclined and rest his
little head on my leg for more than 30 seconds before I have to shake my leg
and make him raise his cute little head.

This may help someone. I have to moan or say ouch when lightning bolts of pain
run down my legs or I am stabbed by an imaginary needle...anywhere. This happens
about every 10-20 minutes or so. My loving wife says, (when I first got fibro.) "Do you
have to make that noise?" And I would reply, "Yes, if someone stabbed you with a long
needle wouldn't you have to say "ouch" every time?"

Well I recognized that I needed to know that she cared whether or not I am in pain. My
yelling or moaning in pain can get on her nerves to. Well we came up with something.
Our love name for each other when falling in love was "Boo Boo" as in Yogi Bear and his
buddy Boo Boo. I can do a fair imitation of Yogi. She would laugh. Anyway when I make
an "ouch" or I moan she (not EVERY time) says "Oh, poor Boo Boo." This makes me feel
loved and not ignored. She gets to express her love without always having to feel empathy.
Feeling empathy all the time can be emotionally tiring. Sometimes she says it with little
expression which I still appreciate and when it REALLY hurts she says it with more meaning.
I think this alone can save a marriage.

Anyway, I am hurting and my arms hurt from typing so bye for now. ;)

Coach Patrick ( I bet you will never guess what I coached!)

Posted By : straydog - 8/2/2017 7:38 AM
CP, Healing Well has a huge reader base, this is why you have such a high number view. Only members of Healing Well can post.

I do not have Fibro, however, many years ago I had very vivid dreams that left me exhausted the next morning. I have no idea what brought them on either. This went on for about 6 months & they stopped as quick as they started. I hope you can get a reprieve from the dreams. My son has sleep apnea, many of your symptoms you have described he too experienced. Once he became use to the mask, he says he has never slept & felt as rested as he does now.

Take care.
Susie
Moderator in Chronic Pain & Psoriasis Forums

Posted By : Coach Patrick - 8/2/2017 7:55 AM
Hi Susie
Thanks for the well wishes. One challenge with having both fibro and sleep apnea is that as some have suggested to me you can't just put on your cpap before the time you might fall asleep because remember pressure + time = pain even the pressure of a cpap mask on the facial muscles. I have many times put on my mask but after about 15 minutes I have to take it off because my face hurts so bad and then I fall asleep.

My best guess for these dreams are due to the fact that if you don't get REM sleep for a few days that your brain makes up for it by having very vivid ones which seem during the dream to go on and on. Combine that with your brains need to make sense out of the pain messages that are coming in result in the very bad nightmares (VBN's)

I have a couple of questions. Does anyone else have what I call "painful wakeups" where it feels like your skin is on fire or you have a bad sunburn all over your body? This lasts for about 1/2 hour.

The second thing is I just saw another ad for this Quell device. Is it worth the investment?

Thanks all

Coach Patrick

Posted By : Sherrine - 8/2/2017 8:31 AM
Hi, Coach! Sorry I wasn't here yesterday...only to check for spam. I have a family member here for three weeks who is going through a horrible time and I'm busy helping them. I also want you to know that the number that shows how many have read your thread doesn't represent all HealingWell members, I believe. People on the Internet can read our posts but cannot respond or write their own posts until they become a member. This is why I never let people put personal info, like email addresses, in their posts because anyone in the world can read them.

Most of us are leading a fairly normal life. Being home bound isn't typical for fibro. I've had fibro for 30 years and have traveled around the country, raised three children, and now I'm a widow and live alone but yet take care of my home and many gardens along with walking my dog every day. I'm not telling you this to make you feel bad. I'm telling you this so you will get out of Betsy and start moving....especially moving to see a different doctor. I'm not a doctor but I'm willing to wager you have other things going on along with fibro.

Please see a board certified rheumatologist who treats Fibromyalgia. They will run you through tests to determine if anything else is going on. Coach, five years ago I almost couldn't walk. I had to use two canes to get around and was even not eating or drinking much so I wouldn't have to get up to use the bathroom! I not only had bad back pain but also hip pain and raw nerve pain that would shoot down both legs from my groin to the middle and of my calves. I was blaming everything on fibro until I started getting progressively worse. Fibro isn't a progressive illness. My Internist tried to help me by giving me first Tramadol and then Vicodin and neither touched my pain. He finally suggested I see a rheumatologist to see what was going on.

I got a board certified rheumatologist who is also a diplomate so he has to be on the cutting edge of medicine plus he treats fibro patients. He took a long family history and then proceeded with many x-rays, blood work and sent me for two MRI's of my back and hips. I was diagnosed with ankylosing spondylitis and also sacroillitis along with fibro. These are inflammatory diseases but fibro isn't. He said he thought I'd had these problems, along with fibro, for years but I had kept it under control with ibuprofen! (I had been taking ibuprofen for 25 years at this time and developed an ulcer so I wasn't taking ibuprofen for about six months when this extreme pain started. I did start ibuprofen back up and my Internist prescribes another medication that helps protect my stomach from ulcers. So far, so good! This is a quality of life issue for me.).

So, I started up the ibuprofen again and he gave me a muscle relaxer called Robaxin that has made a significant difference in my pain! The prescription says I can take two tablets four times a day. I started taking one tablet four times a day when I took the ibuprofen and I now only need to take ibuprofen twice a day and the one tablet of Robaxin twice a day! The beauty of Robaxin is it is a scored tablet so I could even cut it in half and take even less if I wanted to. I have no drowsiness, dizziness, etc. and am totally independent. I drive my car, which is a must since I live by myself, and I'm back walking the stores, walking my dog, gardening, etc. So, PLEASE get yourself checked out! You are accepting all of this pain and your life is passing you by! Do not let illness rule over you.

Nightmares. Yes, yes, yes, Lyrica can cause nightmares, along with other things you have mentioned. Check out this link from the Mayo Clinic about Lyrica.

www.mayoclinic.org/drugs-supplements/pregabalin-oral-route/side-effects/drg-20067411

You also can google "Lyrica nightmares" and see for yourself. Again, you are accepting these horrific dreams and blaming them on Fibro. This isn't normal to have dreams like what you described...especially so often. I think your body might be having a reaction to medication.

Guess what? Tramadol can cause nightmares too! Don't be afraid to try other things. You can't get worse than you are now but you could get a lot better!

Do you take an antidepressant? If so, you might be interested in this link from the National Institutes of Health. This person was having violent dreams along with the flailing of his arms and legs...just like you...and it was his antidepressant causing this. Medications can do a lot to us so it's very important to pay attention to symptoms and, if you are having reactions, let your doctor know. Get really good doctors because 50% of the doctors graduated in the lower half of their class and you don't want one of those doctors to be taking care of you! Here is the link I mentioned about the bad nightmares.

/www.ncbi.nlm.nih.gov/pmc/articles/PMC1978339/

I use ibuprofen, Tylenol, magnesium malate, vitamin D3, and Robaxin (I use the generic called methocarbamol.) I walk daily as a gentle form of exercise. It's really important to keep moving with fibro. Of course I couldn't when I had so much pain but I didn't sit there and take it. I searched and found out what was truly happening to me! I do pace myself when doing things and I keep a positive attitude which helps a lot.

I hope some of this helps you and gets you moving to a very good second half of your life! Don't just sit there and take it. Stand up and fight! Gee...I sound like the coach now! πŸ˜‚πŸ˜‚πŸ˜‚. Have a good day!

Sherrine
Forum Moderator/Fibromyalgia

Fibromyalgia, Crohn's Disease, Ostomy, Autoimmune Inner Ear Disease, Diabetes, Osteoporosis, Glaucoma, Scoliosis, Ankylosing Spondylitis
************************
God does not give us a spirit of fear, but of power and of love and of a sound mind. 2 Timothy 1:7

Post Edited (Sherrine) : 8/2/2017 8:37:02 AM (GMT-6)


Posted By : Coach Patrick - 8/2/2017 8:48 AM
Hi Sherrine
I do move. The most I can do is walk back and forth from one end of the house until another for about 2 minutes until the pain is so great that HAVE to sit down. No option. I try to walk more steps every day but with the limited time it is impossible.

I have heard of people who live fairy normal lives and that makes me think that there is a wide range of fibromyalgia. Assuming that it is caused by attacking and damaging nerves so as to make them more sensitive, mine have been damaged to a greater extent than others. It is not the same for everyone. If you can stand for more than two minutes without being forced to the ground then you don't have what I have.

I do see a rheumatologist who treats fibromyalgia. That is how I know I have fibro. I see my doctor 4 times a year, so I do get checked out. I will run the medications past my Dr. and see what she says. I will check out the websites. Thanks for your help!

Coach Patrick

Posted By : Sherrine - 8/2/2017 8:59 AM
I have severe pain if I don't take the things and do the things I told you about. Just taking a step would have tears streaming down my cheeks from the extreme pain. I couldn't lift my foot more than an inch to take a baby step. Trying to get my legs in bed was a real trick! I know all about debilitating pain but I didn't settle for it. I found things that work for me and I now have my life back.

Sherrine

Forum Moderator/Fibromyalgia

Fibromyalgia, Crohn's Disease, Ostomy, Autoimmune Inner Ear Disease, Diabetes, Osteoporosis, Glaucoma, Scoliosis, Ankylosing Spondylitis
************************
God does not give us a spirit of fear, but of power and of love and of a sound mind. 2 Timothy 1:7

Posted By : Ljm2014 - 8/2/2017 11:49 AM
It does sound like something else could be causing you pain,

Just be sure you and your dr..do not just say..oh its the fibro..

If it is fibro..some of our members have had lyrica stop working for them after a while.

Personally , i am med sensitive so i can only take 1/4 of tramadol at a time..but it does help keep the edge off my pain.

My hubby bought a quell for knee pain..he likes it..i have only tried it briefly after a fall..there are many units similar..we own most of them..i can say any of them can dial my pain back ..for example

I have the willow curve..if an area like my knee is bothering me that day ..say the pain is a seven..using it can dial my pain back to a 3 or 4 . That is a great value to me..but it cannot be used for back pain..

I like my acupressure pad ..when i feel like i am going into a bad flare ..i will lay on it and i feel my breathing deepen, it helps me relax and i sleep better using it..before bed time..it reduces pain some..

Since i cannot take lots of meds , i need other tools for pain..

I get a lot of help from topical pain relievers..soothenol x2 is the strongest..its pricey but only takes a small amount per area..
I also use pain erase..

So aside from having the doctor maybe reassess , it is possible to find ways to help ourselves also...

With fibro, we need to move..or we tighten up and become even more painful..

hope you can get better help with your pain and get those dream calmed

Posted By : Coach Patrick - 8/3/2017 2:45 AM
Dear Sherrine
I've heard this idea before that out there beyond a mountain of pain, if you just endure enough pain there is a place of nirvana where life is wonderful. If you can just exercise enough, if you just keep going no matter how much pain you are in, if you can get over that mountain of pain, there is a place where you can do anything.

Well I'm sorry. I'm not John Wayne. I just can't take a bullet to the shoulder and keep fighting the Indians until I have saved the damsel in distress. I am a coward. I admit it. When I take the bullet to the shoulder I fall down in pain and moan until a medic comes to carry me away to the hospital. I can't be you.

I do the best I can. I don't just sit in Betsy all day. I'm up and down all the time. I'm making a library for my descendants. I am writing several books. I do lots of things around the house. I walk back and forth across the house with a step counter to see how many steps I can do in a day. I live a productive life. A live worth living.

I know you mean well, but I am not and will never be the person who muscles through a mountain of pain to get to the promised land. And frankly I resent a little bit a few people I have met who claim to "have their life back." like I don't have a life. Your life is not my life. Your body is not my body. Try to understand that it is not true if I just do what you have done that my body will react the same way and I can "get my life back." Or my pain is my fault because I have not seen enough doctors of tried enough cures or had enough tests done.

I know you mean well, but I think you are the forum moderator because you enjoy telling others about your "success story." I greatly appreciate your suggestions and information that you gave that "might" help me. And I will look into them. But I have not settled for anything! Your last post is definately a bridge too far.

Sincerely,

Coach Patrick

Post Edited (Coach Patrick) : 8/3/2017 7:03:07 AM (GMT-6)


Posted By : Lisabeans - 8/3/2017 8:03 AM
Coach Patrick,

I agree that fibro sufferers never get their life back. I am slowly coming to terms that the me that once was will no longer be. I am a coward when it comes to pain as well. I am not in as much pain as you are from what I am reading. But I do try to find things to work for me. I started aqua therapy this week. If nothing else, it makes me feel great to be in a pool for an hour and move with very limited pain. Talk to your doctor and see if there is a therapy program that might work for you. I know it is hard to muddle through the pain to get to that happy place. I hope that something works to get you over the extreme pain so you can have some quality of life. This is a great forum for support and advise. Everyone here means well and tries to help. Although what works for one may not work for another. I would also ask your rheumotologist if he/she feels that something else might be going on. I am sure they ran a lot of blood work. Sometimes blood work does not tell the full picture. As for dreams, definitely check on your medication. I don't recall my dreams most nights. I do have mild sleep apnea so my rheumotolist feels my exhaustion is from that. I am on my second rheumotologist and am considering finding another one. We really have to fight for good treatment.

I hope that you are able to get a better nights sleep and there are some options to help the pain.

Posted By : Sherrine - 8/3/2017 8:20 AM
Coach, I'm sorry you are offended by my last post. I was only telling you that others, including me, have had excruciating pain also and I was only encouraging you to keep looking for answers. I state in new posts that what works for one with fibro doesn't necessarily work for another. It's a trial and error type thing. I kept hunting until I finally found what helps me and I was passing on that information to you.

I am also a Christian and I'm a positive thinker. You seem to have taken my thoughts and turned them around to make my post negative towards you. NEVER have I suggested to anyone on this forum that the pain is their fault. I just try to encourage people to find ways to improve their situation with the pain they are enduring and get in control of the pain.

Your initial post on this thread only spoke about your pain, how you can only walk about two minutes and have to sit down again, how you can't sit on hard surfaces and need to recline for some relief, and you talked about your moaning quite a bit. Never did you mention your writing books, making a library for your descendants, walking across the house with a step counter, or doing a lot of things around your house. I can only go by what you have posted and that's how I base my response to you. So, let's be fair.

I have been encouraging members to never give up for the twelve years I've been on HealingWell and that will never stop. I have had many serious health problems and almost died twice so I've learned to keep searching and looking for answers to my problems. I don't accept things as my fate if they are negative. That's my positive thinking kicking in. If my trip to the rheumatologist five years ago hadn't produced good results, I would have gotten a second opinion. I learned this lesson the hard way. My husband complained of chest pains for two years. We had a board certified Internist taking care of both of us. He also was a Diplomate. He kept running my husband through stress tests and he did several electrocardiograms and echocardiograms and they showed no problem at all. The doctor insisted it was stress so we accepted that...until my husband had a massive heart attack and died at 51 years old! I still kick myself for not pursuing this and getting a second opinion from a cardiologist! We lived 14 miles from the Cleveland Clinic at the time. So I learned that no matter how wonderful your doctor is, it's good to get second opinions if you aren't getting the results you want to see. (By the way, I was considered disabled by social security from the day my husband died. I have never considered myself disabled, because of my positive attitude, but I did have to start drawing on my husband's social security early so I could get Medicare. I had so many chronic illness that I could find no health insurance company who would cover me!)

I am well aware that we are all different and our life experiences are different and our pain is different. There definitely is no fibro mold. We all do the best we can with what we know to do to help ourselves. I just try to encourage members to learn more about things that could possibly help them lead the life they really want to lead.

Lastly, I'm not a forum moderator to tell members about my "success" story. I'm here because the administrator of of HealingWell asked me to be a moderator for the fibro forum and I'm here especially so I can try to help members feel better and get in control of their pain. I have spent a good chunk of my life doing this, as you can see from my over 17,000 posts, and I will continue trying to help others. I know I have helped many because I have the letters of thanks they have written me to prove it but I'm so sorry I could not help you. I hope you have a good day.

Sherrine

Forum Moderator/Fibromyalgia

Fibromyalgia, Crohn's Disease, Ostomy, Autoimmune Inner Ear Disease, Diabetes, Osteoporosis, Glaucoma, Scoliosis, Ankylosing Spondylitis
************************
God does not give us a spirit of fear, but of power and of love and of a sound mind. 2 Timothy 1:7

Post Edited (Sherrine) : 8/3/2017 8:51:52 AM (GMT-6)


Posted By : Ljm2014 - 8/3/2017 10:46 AM
I think sherrines story is inspiring in that , she went from not being hardly able to move..to leading a more normal life..

We all strive for that..at times we can about get there and at other times we are flaring and not as positive..

Still , we can improve from where we are, which is where she inspires with her story😊

We can all misread what is said or spoken at times

Lj

Posted By : Ljm2014 - 8/3/2017 11:30 PM
Coach, what did you coach? πŸ™‚

Posted By : Coach Patrick - 8/4/2017 3:01 AM
I too am a Christian and I apologize.

This is no excuse for being defensive but as a 62 year old man who has not been able to work for the last 10 years it is very frustrating for me not to have been living my life the way I had envisioned it. Feeling lonely even though I am married because I have to spend the day at home while she works really eats at someone who grew up to believe that a part of a man's worth was in the fact that he was a breadwinner is very frustrating.

So hearing about someone who is doing better than you is not as encouraging as your might think. It is a guy thing and I know that most of the people here are probably women because if I remember correctly fibro hits women more than me for some reason. I have been on disability for about 8 years, but still.

It really helps just to be able to express your emotions in a nonjudgmental environment is a great help, so thank you all.

I coached chess.

Posted By : Sherrine - 8/4/2017 7:44 AM
Good morning, Coach! Your apology is accepted. My heart breaks for you. I do understand where you are coming from as a man. I'm a 70 year old woman and grew up in the same time period and things were different back then. Men were the breadwinners and women stayed home and took care of the home and children. What has happened to you is so difficult for you to work through but, honestly, I am truly trying to help you and so are the other members. We are not passing judgement on you. We are trying to look at things objectively so we can help you. You wouldn't be here if you didn't want help.

I truly think you have fibro PLUS other things going on. This type of pain isn't typical for fibro. Yes, we have constant chronic pain but it waxes and wanes. It doesn't stay intense to the degree you are telling us. I had much of that same pain and at first was blaming fibro for it but then it never relented and I was getting worse. Living like that was unacceptable to me. I had to do something about this!

I really hope you will get a second opinion. It can't hurt but could help you a lot. Another doctor could possibly see something that your doctor missed. I have also seen on this forum members who have seen their doctors and everything is blamed on fibro. Big mistake! We had a moderator who was having mild chest pains and some headaches and it was put off as fibro. She ended up having a heart attack and a stroke! Doctors aren't perfect and do make mistakes like all of us do.

I'm not a doctor but to have that kind of intense pain with the shooting pain sure sounds like an inflammatory problem. Fibro isn't considered an inflammatory illness. We have members who show absolutely no inflammation in their blood work but yet they do have fibro. Many of us have fibro plus some inflammatory illnesses too. I'm a prime example. My inflammation markers are off the charts because I have several autoimmune illnesses but fibro isn't one of them. This is a prime reason why I take ibuprofen.

If you haven't already, please read Fibro 101...the first thread on the forum. You will get good info there and you will learn a lot about what to expect from fibro. And please know that we really do care about you and are giving suggestions to try to help you. I hope you will take those first steps to hopefully get some relief from the pain you are experiencing. I will be praying for you.

Sherrine


Forum Moderator/Fibromyalgia

Fibromyalgia, Crohn's Disease, Ostomy, Autoimmune Inner Ear Disease, Diabetes, Osteoporosis, Glaucoma, Scoliosis, Ankylosing Spondylitis
************************
God does not give us a spirit of fear, but of power and of love and of a sound mind. 2 Timothy 1:7

Posted By : Ljm2014 - 8/4/2017 8:11 AM
Chronic illness is very frustrating..

We all get in that place at times.

I never learned chess..not sure why..but i am good at games so i would do ok with it over time..

Today is busy, wish me luck

Posted By : Coach Patrick - 8/4/2017 9:53 AM
Dear Ljm (off topic)
I have written a book called "The Easy Way to Learn Chess"
Not published yet. Still tweaking it. Would you be my student?
I will send you chapters and you tell me what you think. You
will learn how to play chess in the process. Sounds like fun?
I don't know if I am allowed to post my email address here
but if you want to do it and I am allowed I will give you my
email address.
Good Luck!
Warmly,
Coach Patrick

Posted By : Sherrine - 8/4/2017 10:05 AM
Coach's email is in his profile if you want to do this

We don't put email addresses in our posts because anyone in the world that has a computer can see it. But email addresses in the profile are fine because only HealingWell members can see it.

I do play chess and it's a great game of strategy. My husband and I used to play it all of the time.

Sherrine

Forum Moderator/Fibromyalgia

Fibromyalgia, Crohn's Disease, Ostomy, Autoimmune Inner Ear Disease, Diabetes, Osteoporosis, Glaucoma, Scoliosis, Ankylosing Spondylitis
************************
God does not give us a spirit of fear, but of power and of love and of a sound mind. 2 Timothy 1:7

Posted By : Coach Patrick - 8/4/2017 10:19 AM
Sherrine, (off topic)
You are welcome to join the class. Who knows you might learn something and you and your husband might want to start playing again and with my help you can challenge him if you didn't
before. (You probably creamed him.)

If you did this would help me greatly because I need the positive criticism for my book!
Please? If so just email me! If you both joined it would help so that you were both on
the same page. We would progress at your speed.

Please let me know if you would like this.

Warmly,

Patrick

Posted By : Sherrine - 8/5/2017 7:05 AM
Thank you for the lovely invitation, Patrick! Unfortunately, I have too much on my plate right now. Even if I did improve at chess, I couldn't play against my husband. Remember...he died of a massive heart attack. It will be 20 years in October. I would have to teach my dog how to play chess. πŸ˜‚πŸ˜‚πŸ˜‚

But you said you coach people in chess. Why don't you get a student to read part of your transcript and see if there is an improvement in their chess game. This would give you a good indication if your explanation of how to play chess is as easy as you anticipate it to be. I bet you will be happy with the results.

Sherrine

Forum Moderator/Fibromyalgia

Fibromyalgia, Crohn's Disease, Ostomy, Autoimmune Inner Ear Disease, Diabetes, Osteoporosis, Glaucoma, Scoliosis, Ankylosing Spondylitis
************************
God does not give us a spirit of fear, but of power and of love and of a sound mind. 2 Timothy 1:7

Posted By : Coach Patrick - 8/5/2017 8:49 AM
First, sorry about your husband, I didn't know. Well I DID coach people in chess. Since being homebound I only have people like you to help review my book. I have not had any takers yet. I blame chess fear. In my book I talk about chess fear. Especially in adults. They think it is too hard, will take up too much time etc. Almost any computer has a chess program to play against and there is a program called Chessmaster that give you the illusion of playing against real people with each being slightly more of a challenge. I need people not to spend hours playing chess, just reviewing the material and spending a little time doing simple assignments. I have no students now. You would have been the first reviewer.
Thanks anyway,
Love in Christ
Coach Patrick

Posted By : Ljm2014 - 8/5/2017 2:28 PM
Hey coach,

Unfortunately i am in my busy busy season also..

I got very far behind , cause i stepped in a rabbit hole and banged myself up..so now i am spending my free time in therapy..

Maybe one day i will learn it..

Lj

Posted By : Coach Patrick - 8/5/2017 3:55 PM
That's okay. I'm used to disappointment.
I'm sorry you hurt yourself. Alice smile

Warmly,

Coach Patrick

Posted By : Sherrine - 8/5/2017 4:22 PM
Patrick, I spoke of how my husband died in my post to you in August 3rd. I firmly believe he'd still be here with me if only we had gotten a second opinion. I talked about this to help you. I hope you read it.

Sherrine

Forum Moderator/Fibromyalgia

Fibromyalgia, Crohn's Disease, Ostomy, Autoimmune Inner Ear Disease, Diabetes, Osteoporosis, Glaucoma, Scoliosis, Ankylosing Spondylitis
************************
God does not give us a spirit of fear, but of power and of love and of a sound mind. 2 Timothy 1:7

Posted By : Coach Patrick - 8/5/2017 4:28 PM
Sherrine,
I am having a real problem with short term memory.
Sorry. I'm sure I read it at the time. I got the point.
Warmly,
Coach Patrick

Posted By : Sherrine - 8/6/2017 6:53 AM
Thats fine. I just wanted to make sure you read it.

You might try taking folic acid. It's a form of vitamin B. It seems to help with memory...even cognitive memory...and also depression. I take it every day. Here is a link to. The National Institutes of Health about it. It's a short link.

/www.ncbi.nlm.nih.gov/pmc/articles/PMC1123448/

Here are the summary points of the link.


Summary points
Folate deficiency is associated with depression and dementia

In elderly people it may be related to ageing, poor diet, malabsorption, drugs, or increased demand or be unexplained

Folic acid has particular effects on mood and cognitive and social function

Impaired folate metabolism may result in a pattern of cognitive dysfunction that resembles aging

Sherrine
Forum Moderator/Fibromyalgia

Fibromyalgia, Crohn's Disease, Ostomy, Autoimmune Inner Ear Disease, Diabetes, Osteoporosis, Glaucoma, Scoliosis, Ankylosing Spondylitis
************************
God does not give us a spirit of fear, but of power and of love and of a sound mind. 2 Timothy 1:7

Posted By : Misty*Love - 8/6/2017 9:05 AM
Could these dreams be related to something you are watching on TV or reading before you fall asleep?

Posted By : Coach Patrick - 8/6/2017 10:40 AM
Could be, but not that I have noticed. I try very hard to watch things
that are pleasant, or read nonviolent books or audiobooks. I still think
it is my brain's way of making sense of the pain my body is feeling. If
I hurt all over I must have been beat us and kicked by a gang of mean
men. It just makes sense to me. Sure it might be side effects of my
pain medicine but I had these dreams when I first got fibromyalgia and
I was taking no pain medicine. It took months to find the right meds.
to make life other than purely miserable.

Misty, would you like to help me with the chess book? I just need someone
willing to help. Just 15 minutes per week giving me their opinion and asking
questions of things they don't understand?

Posted By : Misty*Love - 8/6/2017 11:40 AM
I wish I could help. I am super busy with Work, the kiddos and the hubby right now. Have you tried a chess forum to look for someone that would be interested in helping out?

Posted By : Coach Patrick - 8/6/2017 1:52 PM
That was my next stop. But I was hoping to teach someone from scratch.
The problem with people who already know chess they don't understand
the proper way to teach chess and would be getting ahead of themselves
and questioning my teaching methods.

Thanks anyway, like I said, I'm used to disappointment. One of the
first chapters is about ChessPhobia. Most adults have it. They think
it takes lots of time to learn chess and that only very smart people with
high IQ's can learn chess. I teach chess in such an easy way that even
adults can learn it! smile

Posted By : Misty*Love - 8/6/2017 2:35 PM
Sounds pretty awesome! I'm sure there are lots of people out there that would love to learn to play chess!

Good Luck! smile

Posted By : Coach Patrick - 8/6/2017 3:04 PM
Well if anyone 30-60 who is willing to spend 15 minutes a week
learning chess please send them to my
Thanks bunches,
Coach Patrick

Post Edited By Moderator (Sherrine) : 8/6/2017 6:09:44 PM (GMT-6)


Posted By : Sherrine - 8/6/2017 6:15 PM
People who are interested in helping with your book can reach you by getting your email from your profile. I deleted the email out of your post above. Anyone with a computer in the world can see it and that could spell trouble for so we don't t allow that on this forum.

Now, please stop asking people to do this. I've allowed it for Ljm and myself but now you are asking anyone who posts. We are here to help with fibro...not your book. Thanks in advance fo understanding.

Sherrine

Forum Moderator/Fibromyalgia

Fibromyalgia, Crohn's Disease, Ostomy, Autoimmune Inner Ear Disease, Diabetes, Osteoporosis, Glaucoma, Scoliosis, Ankylosing Spondylitis
************************
God does not give us a spirit of fear, but of power and of love and of a sound mind. 2 Timothy 1:7

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