|The original version of this page can be found at : http://www.healingwell.com/community/default.aspx?f=24&m=3894770|
|Posted By : Janaye - 8/8/2017 6:18 PM|
|Hi! I'm a 32 year old mom of two. I'm waiting to get new insurance so I can see a Dr but from what I've researched I'm very certain I have fibro. Several others (with or without it) have agreed. I'll share a brief (hopefully) background and my symptoms. I know you all are not Drs so I don't expect a diagnosis but just some support as a few of my closest confidants believe I'm just a hypochondriac. |
I'm not sure how long I've had fibro (if I do) but I feel like I've had it for several years at least. So to start, since I was a child I've had anxiety, OCD, depression, and horrible memory to the point where most of my childhood is a blur!
Jump to 18/19 yr old and I experienced the first "pains" that I remember being excruciating. I was a hostess at a restaurant and started having searing pain in the bottom of my feet. I could barely step down out of bed in the morning. I later (only a few years ago) learned that it's called plantar fasciitis. After I left that job and started in childcare the pain mostly went away (I sat a lot more) but I was never able to wear heels or anything. However the pain returned 6-7 years ago. It's now daily and so intense that I can't walk or stand for too long. It's almost immediate pain. It definitely affects how I walk daily!
I've also struggled with headaches and migraines my entire adult life but they got way more frequent and intense after having children when I was 23 and 25. For the last 5 years or so I've also had brain fog. I always associated it to being part of my headaches because I also feel like a band is squeezing my head but now understand it is brain fog. It's so bad most days that I forget things, I feel like I'm day dreaming constantly and people are always asking what's wrong. I usually answer "I'm just tired" which I am but I'm just in a fog. It's scary when I'm driving sometimes because I don't always even remember the trip, just getting to my destination.
about 5 years ago I also started getting lots of pain all over and fatigue. After an 8 hour work day I could barely function! I would even try to nap in my car on lunch breaks! I never woke up in the morning feeling refreshed either. Cooking dinner for my family became a huge daunting task along with house work because I was tired and sore. I feel like my bones are aching like I'm coming down with the flu but I never do. Many of my joints hurt constantly. Knees, ankles, hips, elbows and wrists usually hurt. Most recently my tailbone has flared so bad that I can hardly sit,even on a couch! If I sit it hurts but then if I stand my feet are on fire! I get a huge pinch/burning feeling in the back of my left leg if I stand too long. My left leg mostly but sometimes my arm feel like they're going numb too.
Constant muscle twitches, several benign cysts, heartburn/reflux after almost everything I eat, heart palpitations recently, liver and heart results came back abnormal from a blood draw for life insurance, hair thinning, irritability, mood swings and dizziness.
This all still continues today. The big difference is that I'm no longer working. I chose to quit working 4 years ago because I was always so tired and sore that I felt miserable. I homeschool my children now to be able to stay home. My husband makes great money to provide so I don't really "need" to work but he doesn't want me to sit at home doing nothing. He thinks this is all in my head and doesn't understand at all. I get it kind of because I've always complained about one thing or another but it's real!
Sorry for the long post, I guess it wasn't brief lol. I have read many posts on here the past few days and I almost cried because I was happy to see I'm not crazy and it's not all in my head.
Post Edited (Janaye) : 8/8/2017 10:37:19 PM (GMT-6)
|Posted By : Janaye - 8/8/2017 7:36 PM|
|See... I just thought I turned off the stove, even told my husband I did & a few minutes later he was like, "um, it's still on!" 🤦🏻♀️|
|Posted By : Ljm2014 - 8/8/2017 8:17 PM|
|You certainly sound like a classic case..|
Mine also started quite young, my mom and an older sister had it also..
The first thing that helped my fatigue was corvalen m, i buy another brand now at better health interntional..you may want to research that..
Also had the foot pain as an early symtom and got worse after pregnancies..
I love topical pain relievers for pain..as i am med sensitive.
Biofreeze is easy to find
I hd orthotics made for my shoes that helped, but spenco hard form arch supports at amazon work just as well in sneakers. Get the full shoe size, they do not slip around
I love a acupressure ball to roll your feet on..
And a trick i learned was to kinda wad a towel and stand on it..the uneveness kinda stretches that tightness in the bottom of the feet
Also the standing calf stretch, relieves that area..
Just know that there are so many ways both your dr.and you can help this condition..
I had no help when i was younger, but i always research and try new things, and you can feel so much better..
A dr. Will have to rule out other things
welcome and this is a great site, lj
|Posted By : Janaye - 8/8/2017 10:44 PM|
|LJM thank you for your response. I will definitely try some of those tips for my feet and hope to get insurance soon to see a Dr. for a diagnosis of some kind.|
I forgot to mention my mom. She hasn't been diagnosed but has all the same issues as me as well at 70 years old and has had them for years too.
|Posted By : Misty*Love - 8/9/2017 6:17 AM|
|I felt the same way when I read other posts! Its was an overwhelming feeling of relief. |
The foot pain is a struggle. I was on my feet most of the day yesterday and by the time I climbed in bed I was in so much pain I couldn't fall asleep. My elbows and hips hurt a lot also.
And don't get me started on the acid reflux!!!!! lol
Make sure you have them check your thyroid when you are able to get to the Doctor. Some of your symptoms could be related to thyroid issues.
I struggled with the insurance stuff a few years ago also. I ended up finding a company that I could Work from home and it provided full benefits.
I hope your insurance kicks in soon so you can get to the Doctor.
|Posted By : Sherrine - 8/9/2017 6:42 AM|
| Hi, Janaye, and welcome! I had plantar fasciitis very bad also and my mother suggested I try Birkenstock sandals/shoes. I did and it took me about a month to get used to the sandals. I would wear them a few hours a day and as the month went on, I could wear them longer until I was wearing them all day long. The plantar fasciitis got continually better and within six months I had no more pain. I now have 22 pairs of Birkenstocks and haven't had any plantar fasciitis pain in 23 years. I can even walk barefoot now! The interior of the sandals are designed like the shape as if you stood in sand. This keeps the tendons stretched properly and helps prevent plantar fasciitis. |
The criteria for a diagnosis of Fibromyalgia is pain in all four quadrants of the body that lasts many months. Also, most have cognitive memory problems (brain fog). You seem to fit the pattern but you do need to see a doctor to make sure fibro is truly what you are dealing with. Self-diagnosis isn't a good idea.
Do try to find a good board certified rheumatologist that treats fibro patients. There are still some doctors out there in the Dark Ages that still don't believe fibro and is a true illness. The rheumatologist will run many tests to rule out other illnesses, like lupus and Lyme disease, that have many of the same symptoms. There is no reliable test for fibro.
Be sure to read Fibro 101...the first thread on the forum. There are links to good info about fibro and you will learn a lot there.
I'm looking forward to getting to know you better. Don't hesitate to ask questions because we are here to help you. Hope to hear more from you soon.
Fibromyalgia, Crohn's Disease, Ostomy, Autoimmune Inner Ear Disease, Diabetes, Osteoporosis, Glaucoma, Scoliosis, Ankylosing Spondylitis
God does not give us a spirit of fear, but of power and of love and of a sound mind. 2 Timothy 1:7
|Posted By : sarahc23 - 8/9/2017 8:59 AM|
|Good morning all,|
I too am new here, but not new to fibro. I've been diagnosed since 2011, but it likely was triggered by an injury in 2010. I've also had depression all my adult life and I do believe that is a contributing factor.
I am on Lyrica and Cymbalta and have found that the Lyrica is the keystone of treatment for my pain, with the Cymbalta helping to alleviate breakthrough pain most of the time. Currently there are many stressful things in my life and I am finding the fibro more difficult to manage - significant breakthrough pain and mental fog, difficulty concentrating and staying motivated - and so I've started a beginner yoga practice daily to try to build in quiet time and stretches morning and night.
My husband is supportive, but it still feels lonely when I am late to work because I can't move in the morning, and I have trouble meeting deadlines at work because I can't concentrate enough to make a decision about what to do next, and I am exhausted by 3 in the afternoon. I know that there are millions of people who are dealing with debilitating symptoms, and I am not alone and that tomorrow there is the possibility of a better day. Still I am thrilled to have found this forum to give and receive support.
Thank you, All!
"All shall be well. And all shall be well. And all manner of thing shall be well." Julian of Norwich
|Posted By : Luvzminis - 8/9/2017 10:35 AM|
|Welcome, Janaye (and also sarahc23!).|
You've already been given great advice. Just wanted to chime in a bit regarding sore feet.
I have very high arches, and along with fibro, a separate non-specific neuro condition where I was told my "muscles are 'so' good that they're 'too' good at times. My feet are very stiff and I have to walk on tiptoes, and try to bend and stretch them every morning and just keep moving in general (BTW, I laugh at the exercise where you pick up a wash cloth with your toes--oh, don't I wish they would bend like that!). Moving in different positions, even if I'm super stiff, helps some. I think it's important and helps with flexibility.
Did you mention if you take a muscle relaxer? I take Flexeril for flexibility and Neurontin for nerve pain. My doctor has allowed me to take them as I need them, as my issues aren't constant, but that's just for me-- be sure to check with your doctor on how to take your meds. Everyone is different.
Lj mentioned a topical cream. I like those best and I try avoid meds when I can. Massaging muscle rub creams can help with stiffness fairly fast. Heating pads, and "bed buddies" (microwavable) can feel good, too, as can an electric blanket (but I've yet to break down and buy one. Many here have them, though, and love them).
I don't know what your climate is like, but we get cold winters, and keeping warm is a must.
There are other threads here if you do a search (above) on "feet" or "arch supports" or something similar. Seems many of us deal with foot issues! To me, it's one of the more frustrating fibro issues.
I have to have soft arch support inserts in my shoes. I buy ProFoot in Wal-Mart's foot care area. For shoes, I need something supportive with thick but lightweight soles. Earth Shoes are good. I had a pair of Asics gel soles which were fantastic, a few years ago. But some of the gel soles aren't so helpful. Trial and error!
Yesterday I attended a local fair and since my right foot arch was in spasm, had to sit for a little while. A visiting relative made an off-hand comment about how good (healthy) and important it was to walk. Grrrr.... Yes, very important to walk, but when you've already done some sidewalk walking and cramping/spasms show up, it's time to take a little break! We have to listen to our bodies, especially our 'fibro bodies' and see what they need or can do at the moment. It surely can vary!
Fibro is SO like that, I think. So changeable. We exercise the best we can, but we have to know our limits, too. Pacing is so important, and if you sort of time it the best you can, it will work out. Some days are more productive than others, that's for sure! I often vary sitting with standing as I work around the house.
Also, for me, the pain and "trouble areas" move around every few weeks or so. I know that it won't last forever, and if, for example, my feet are really bothering me as my right foot was doing yesterday, I might spend a little more time off of them, working on other jobs around the house. Anyway, that's the way I deal with it.
Prayer, spiritual reading, hobbies, and pets also divert my mind from my health issues. Getting out and about is good, too, and it helps me to time doing that with how much I'm dealing with. Sometimes that's not long at all; other times, it can be longer.
And this is such a friendly, helpful forum. I've learned so much and the people are great. Hope you find the best ways to deal with fibro. Best wishes!
"Pray, hope, and don't worry."
St. Padre Pio
Post Edited (Luvzminis) : 8/9/2017 10:50:02 AM (GMT-6)
|Posted By : Ljm2014 - 8/9/2017 12:02 PM|
|Varying between sitting and standing..washed a few windows and sat in the sun ☀️☀️☀️☀️☀️☀️☀️☀️|
Before it got too hot..
Gonna sit and pick crab to make for dinner
|Posted By : Luvzminis - 8/9/2017 2:04 PM|
|Good job!! You go, LJ! |
P.S. Crab sounds delicious!!
"Pray, hope, and don't worry."
St. Padre Pio
|Posted By : Janaye - 8/10/2017 10:45 AM|
|Do you ladies feel worse when there's a storm out? We've had hot days, around 100* and storms off and on. Last night was very muggy and stormy and I felt the worst I have yet. I was in tears, but got my self together before my husband saw. Then he accidentally bumped my leg and I immediately bawled. I was already in so much pain and that bump shot right up my leg in a deep ache! He was confused why I reacted like that and I just spewed. I have been saying this and that hurts often but he kind of shrugs it off. But last night I told him for months now I've felt like I have the flu or deep growing pains but it doesn't go away and it's gotten much worse the last few weeks. I think he might finally see I'm not making this up. Between the comments I've been making and he's seen the stuff I've done with the brain fog and he sees me walking like I'm 80 yrs old day in and day out.|
|Posted By : Luvzminis - 8/10/2017 12:04 PM|
|I'm definitely affected by the weather. I'm in the U.S. Midwest, and we get hot and humid in summer, and icy cold in winter. We had humidity last week, then the temp dropped, and it was like we just jumped to a new season. But my body wasn't ready for that! Yes, it can sure feel like a flu bug! Sort of like invisible bruises all over.|
Yesterday we had rain for hours, and by evening, I was feeling like a truck ran over me! Achy spots here and there, and fibro "fog" galore! When this happens, I have to remind myself that this, too, shall eventually pass. And during those times, I'm feeling more wimpy, so I dig into my craft stuff and try to find something fun to do. I also get out my books and take comfort in the spirituality. Those books really give me a lift.
Sometimes, I'll turn on old movies like "Ma and Pa Kettle" or oldie TV shows such as "Father Knows Best," or "Leave It To Beaver." It puts me in an easier time, and a better frame of mind. And the comedy is clean and great.
"Pray, hope, and don't worry."
St. Padre Pio
|Posted By : Janaye - 8/10/2017 5:12 PM|
|Thanks for the response Luv.|
|Posted By : Luvzminis - 8/10/2017 8:16 PM|
|You're welcome, Janaye. Just my 2 cents. Hope it may help a little. |
"Pray, hope, and don't worry."
St. Padre Pio
|Posted By : Ljm2014 - 8/10/2017 10:10 PM|
I am extremely impacted by weather, the east coast has not been great for this all summer..
Its the barometric changes that get us..and wow have we had them..
My nerves get frayed with the storms approaching, sometimes i feel it so strongly i can feel weak or dizzy..
I have learned ways to combat the fatigue, and pain, but the weather changes still really get to me..
I do feel better when we have visited very dry climates..its just not home..
My acupressure mat helps when this is happening.
Wishing you dry weather tomorrow😊