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Posted By : Spackles - 8/2/2017 9:27 AM
Hello all,

This is my first post.

I am a 62 year old woman with autoimmune disease - Autoimmune thyroiditis, osteoporosis (spine only) and autoimmune pernicious anaemia. Since being diagnosed and getting my medication to the right levels I have been in good shape physically and emotionally. My energy levels have been high and I have a good positive outlook on life.

From time to time in my life I have suffered with pain in the stomach if I go without eating. I have relieved the pain with bicarbonate of soda but mainly, I just make sure I don't starve and I don't get any pain.

A month ago I went to my GP to arrange my yearly thyroid blood tests and mentioned to her the pain I occasionally have. She organised a colonoscopy and gastroscopy and these were carried out last week. I am due to go for a CT scan this coming Friday.

The report from the colonoscopy showed that I had a small polyp in the bowel and this has been sent for biopsy testing.

The gastroscopy report showed that I have H pylori infection, a hiatial hernia, gastritis and, (and here's where I need some advice) stage 4 esophageal varices.

I'm not due to see my consultant until after the CT scan (hopefully next week) but right now I'm in shock. Recent liver function tests have come back as normal and, speaking to my GP yesterday by telephone, she also seemed to be confused by this finding and states that my blood work and a recent ultrasound showed that my liver was behaving exactly it it should.

I used to drink alcohol in excess but have not done so for thirty years. I eat a mainly plant based diet, no dairy and, until this week felt in perfect health.

I'm shocked, stunned and scared and don't know where to go for help - so can you help me make some sense of this? Is it possible to have Stage 4 GEV without liver disease?

Posted By : ppm guy - 8/2/2017 4:49 PM
hello Spackles and welcome,
Good thing your dr responded to your pain aggressively, and is aware of the varices. Hopefully your CT scan will show what is causing the pressure.
best to you, and I hope you find answers soon

Posted By : MamaLama - 8/2/2017 8:54 PM
I think you are on the right path with agressive medical testing, and changes in lifestyle.

they will help put a proper regimen in place.

if things get rough you could escalate with a second opinion at a major medical center like one of the mayo clinics, or mass general, unc, etc...places that do transplants.

not that I am suggesting anything, rather I have heard the cutting edge stuff is going on there. or maybe you are already at pitt or Cleveland clinic, etc.

a person can live a longoing time with a bum liver...if you take good care of it.

mama lama

Mike had stage 4ccirrhosis
MamaLama, Forum moderator - Hepatitis
Partner received liver transplant (May 1, 2011) FL
Hep C 1a Treatment - Sovaldi/Olysio (March - May 2014)
Undetected since week 4. Undetected 12 weeks post treatment.

Posted By : Spackles - 8/2/2017 10:15 PM
Thank you both for taking the time to reply.

Yes, I am very lucky. I live on a small island in the Irish sea with a tiny hospital and I'm very grateful that I have a sympathetic and professional consultant and home GP.

Do you know why I have these varices when my liver has no disease and I do not drink alcohol? Is there another cause?

Posted By : ppm guy - 8/3/2017 1:34 AM
I checked Mayo Clinic website. They are a highly respected hospitals in the US. They state that blood clots blocking the portal vein can cause varices, and very rarely, a parasitic condition..hope that helps.

Have you had the varices banded, or a plan to treat them?

Posted By : Spackles - 8/3/2017 1:36 AM
No, I haven't seen the consultant since the gastroscopy last week. I am having a CAT scan on Friday and hope to see him soon after to discuss what comes next.

Thanks for the info - I wonder if the H. Pylori would be the parasitic condition?

Posted By : ppm guy - 8/3/2017 11:25 AM
without liver disease, Splenic vein or portal vein thrombosis (blood clots) can be the cause of varices..
hopefully your CT scan will shed some light on this.

the parasite, would be schistosomiasis (spelling?) not likely

everything I say here, needs to be checked by a doctor.. I am reading websites and learning with you.

I would ask your consultant, about banding your varices.

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