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|Posted By : 911medic - 9/6/2017 9:51 PM|
|In 2012 my husband received a liver transplant. We we're told the liver had been exposed to Hep B but had never had an infection. He was on Epivir post tx but was taken off because the doctors felt that since he had the Hep B vaccine he should be fine. 2 weeks ago we went for our yearly appointment and they checked all Hep B labs. Got a call from the PA stating that he now had Hep B and would be starting him on Baraclude to eliminate the virus. We have been on edge since because now it not only affects him but myself and our children. |
The doctors seem to feel that he will pass this but obviously we are concerned. I now also have to go get tested now too. Have any of you been told that after liver transplant you are more susceptible to getting Hep B?
New Liver for my husband July 15, 2012, UPMC Montefiore, Pittsburgh PA
|Posted By : ppm guy - 9/7/2017 2:21 PM|
|Hi 911medic and welcome back,|
sorry to hear this news. My situation is different. I had a hep b exposure many years ago, and my immune system knocked it out. Years later I got cirrhosis from hep c and alcohol. I had to treat the hep c.
I was given the hep b injections, which did not work. I cleared the virus without much trouble. A year later, I needed treatment for MS, which involves immune suppressants. Since I had the hep b exposure years ago, I was told hep b exposures can be reactivated by immuno suppressants. I was also given a anti viral(interferon) post treatment.
Your dr can test family members, and advise on whether your husband is contagious. The dr will keep your family as safe as possible. Hopefully some of the old gang will chime in here.
Let us know how you two are doing.
|Posted By : 911medic - 9/7/2017 3:13 PM|
|They started him on Baraclude. I have to meet with our family doctor who is a joke and explain the situation to him so I can get tested. Obviously I have the greatest risk but the kids are at risk too. The Baraclude kicked his butt the first few days but seems to be tolerating it a little better now. |
I figured I would stop back because my friends here we're helpful before transplant. It's been a while!
|Posted By : MamaLama - 9/7/2017 11:16 PM|
|Hi, ML here. I remember your story. Mike was May 1, 2011 for his transplant. He has done well, liver wise, but he is looking for a record of the most surgeries post TP NOT liver related. 2 hernias, 5 ortho surgeries (3 shoulders, an elbow, and major back surgery, and an aortic valve replacement. But he is good liver wise. Oh and radiation for skin cancers.|
He is down to .5 mg of prograf daily, and at 10 years his doc says he will try him with NO antirejection meds.
But no Hep B, and that is not my expertise.
Mike had Hep C, and we lived with it our entire relationship. The transmission is similar...blood, but Hep B is also in semen and other bodily fluids...so easier to catch. WE have always had twin sinks, used one toilet each, separate bars of soap, 2 different sets of towels done in two separate washes, his white, always the last load done with a strong bleach (though I don't know if that helps.) We kissed and had lots of sex, but I would think that that would need some thinking through for you guys. We have been diligent about blood...keep surgical gloves in each bathroom, even in the car, are VERY careful, even now, though he his Hep C free for 3 years, just in case the learn something in the next years, for first aid. I would never tend to an injury with blood gloveless. On my own guy. I think you need to have some protocols like that for the kiddos also.
I am sorry to hear about all this. What a crazy world we live in.
Though this is a trial for you both, the choice of NOT having a transplant at that time is not an option. An organ with a glitch was better than losing a husband and father way too soon.
Let us hear from you as this unfolds.
MamaLama, Forum moderator - Hepatitis
Partner received liver transplant (May 1, 2011) FL
Hep C 1a Treatment - Sovaldi/Olysio (March - May 2014)
Undetected since week 4. Undetected 12 weeks post treatment.
|Posted By : 911medic - 9/8/2017 10:46 AM|
|Thanks ML, this has been a shock to us including the way we were told about it, the PA basically laughed about it when she told me. I was so offended!!! |
Glad to hear everything is going well for you 2!
I am not sure how we move forward at this point, I am just moving day to day. It's very difficult, the kids are pretty much unaware of what is going on, which is good. Now that they are teens and busy with multiple activities.
We will get his blood work checked again in 2 weeks, that should be about a month since the meds were started. They did take him off of cell cept but kept him on prograf at 3mg. Everything looked good until the Hep B results came back.
We will get thru this, I have faith!