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Posted By : Maenad - 10/31/2008 9:56 AM
Well, THAT wasn't fun.
I had the flu for the first time since lupus came into my life. Apparently, my immune system is too busy misbehaving to do what it's supposed to do.
I was useless for a whole week -- high fever, throat so swollen I couldn't swallow anything but clear fluids. Too bad I don't need to lose weight, cuz I dropped 8 pounds (only 4 of which have come back now that I can eat). The following week I worked, but it took all my strength to walk to the bus stop and I was a zombie as I went through the day.
Is this what I have to look forward to anytime I get the flu or something? I so do not approve!

Often she hid at the sight of wild beasts,
forgetting what she was; and, though
herself a bear, shuddered at sight of other bears.
   -- Ovid, Metamorphoses

Posted By : Serina - 10/31/2008 10:22 AM

Welcome to the forum Maenab.

I would expect that yeah probably you do have this sickness everytime you get the flu.  I thought for a long time that because Lupus is overactive in its pursuit to attack bacteria, that we would never get the flu or other bugs and have them last very long.

Others will come along I think who can help you better than I can to find the answers you seek.  before I came here to this forum, I tended to not pay much attention to this disease.  Pain was due to lupus, so I  did not pay much attention to it, because there is no cure for it.  But the people here guided me to a place where I now know the importance of paying attention to the pain and sickness that Lupus, or some other autoimmune disease can cause.

I was advised by people here, and it was excellent advice, to keep a journal of the symptoms I experience through the day, every day.  then take it to my doctor when I see him again.

Getting it to him timely is not working as well as it could have, but i did get them to him eventually.  and I have started on my new pain journal to take to him next time.

Not only is this a good thing to do to take to the doctor, but also I can read my pain/symptom journal and know that I need to be a little less critical of myself.

Sorry for the long post.  Hope you find the info you want.


Lupus diagnosed 1996, Heart by-pass 1998, breast cancer 2000, stroke2002, vascular surgery 2005, heart attack in 2007, and had a stint put in, Sjogren's Syndrome 2008
aspirin, multivitamin, Arthrotec , Meclazine ,  plaquinil, Metoclopomide, Doxepin , Metoprolol, synthroid,  Amlodipine, Crestor, Lasinopril, Plavix, phenagrin,  Restasis  

Posted By : mygrljes - 11/1/2008 7:15 AM
Hi Maenad,

Getting the flu when you have lupus is horrible. Getting sick with anything when you have lupus is horrible. I am currently getting over bronchitis, and it sucks big time.

The good news is, you can get a flu shot every year, and I highly recommend it. My doctors have been very good about remembering to give it to me without my having to ask for it. I hate shots, I hate needles, but am thankful to not get the flu every year.

dix: lupus sle Jan. '99, hypo-thyroid Mar. '06
rx: pred. 5mg/day, plaquenil 200mg/day, levothyroxine .112mg/day, premarin .45mg/day, methotrexate 7.5mg/week, folic acid 1mg/day
Also a wife and mother of three.

Posted By : Maenad - 11/1/2008 8:42 AM
Thanks mygrljes -- that's what I was afraid of. Sigh.

My plan was to get my flu shot the exact same week I came down with it. Now that things have settled down and the fever is gone, I shall go get poked. I'd rather not lose another two weeks to whoever coughs on me on a crowded bus or whatever my roomie who works at the downtown wet drunk shelter brings home.

Note for next year: Get in line on the FIRST day the shot is available!

Often she hid at the sight of wild beasts,
forgetting what she was; and, though
herself a bear, shuddered at sight of other bears.
   -- Ovid, Metamorphoses

Posted By : okie - 11/1/2008 9:32 AM
Hi Maemad, welcome to the group. Technically flu and lupus = flupus! lol. The first time I had a flare it felt just like you decibed with 103 temp and crying in my sleep. litterally. I do agree with you though. If this is what we have to go through every time lupus flares up I want no part of it! Gee do you think that will help?
I'm glad you are feeling better though.

Prayers,hopes and dreams!
Possible scleroderma.  stage 4 COPD, sleep apnea, Osteoporosis,osteoarthritis
Prednisone,plaquanil400mg,azythromyacin,vicodin 4x5mg,Evista60mg, Effexor 150mg,Xanax 1.0 x3,Singular,nitro spray, spirivia,aciphex,lasix,inderal,pot.chlor.,B12 

Posted By : JessicaGirardo - 11/22/2016 12:40 AM
I had a horrible reaction to the last flu shot I got and since I usually don't get the flu, I quit getting the vax. Then a few days ago I got sicker than I ever have. Inflamed bowels/stomach, severe writhing pain all over, nausea, swollen awful throat, can't eat and can barely drink. I've lost 9lbs since Sunday. Its just now Tuesday. I've never been this sick. Like... ever. In 20 years! I was dx'd at 12 w sle which bloomed into mixed connective tissue disease and other complications. I'm 33 now, have had hundreds of surgeries, but this flu tops them all! Headed back to er Tomorrow for help! I can't live like this

Posted By : Lynnwood - 11/22/2016 6:25 PM

Welcome to HW. You've posted on a thread from 2008, so you won't get any responses from the original posters.

Feel free to create a new thread to introduce yourself!

Hope you can get some help, generally when we Lupies get the flu it ends up being worse than "the normal" version.
Lynnwood, Lupus & Sjogren's Moderator, Dx: 2000
"Life is far too important to be taken seriously." - Oscar Wilde

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