|Update Post. Since my first post I ended up not taking the infusion. What a mistake that was.|
The methotrexate treatment was going very well up until a few months ago. However, after a routine checkup my doctor found that my liver function was low so they had to take me off the methotrexate. Everyone thought this would be fine since my symptoms had regressed to practically zero. They put me on Imuran in the meantime. But not three weeks later I ended up in the hospital with severe internal bleeding and a blood platelet count of 0.
My doctor put me on the infusion after this fiasco. I look back at my first post and realize how naive I was. Haha, the halcyon days of being terrified by the I.V and needle. Not doing everything I could was underestimating the disease. Perhaps if I had just done the infusion I would of saved myself from a long month of hard times and medical bills.
thanks for this, now that i'm also on Benlysta I'll watch out for some of these symptoms. Will post my own experiences with Benlysta in a few months too.
Melissa D. said...
I received Benlysta for 3 1/2 yrs and recently started IVIG infusions. Benlysta was every 4 weeks for 4 hours. IVIG is every 4 weeks, I am infused over two days, 4 hours each day (out patient) Both have been very beneficial in controlling organ involvement for me. With the IVIG I feel bad for a day or so around the third day after my infusion, after that I have approximately 3 really good weeks then I can tell it's time for my refill.
Hope this info helps.
Post Edited (Furrow) : 5/28/2017 4:53:14 PM (GMT-6)