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Posted By : Lisabeans - 1/17/2017 1:44 PM
Has anyone been on this drug? I am starting it tomorrow. So far have not had luck with any other drugs. StI'll no diagnosis. Rheumatologist says this drug is used a lot for RA. On my summary sheet he circled Inflammatory arthropathy and wrote one. He also circled long term medicine use and wrote 2. He underlined SLE but didn't number it. I am just so frustrated. He had no answers for the vertigo symptoms I have right now and seems like he rushes me out. Might be time to find a new rheumatologist but am so sick of the thought of starting over. Plus my husband just went on short term disability. One of us needs to be healthy for the kids. Sorry to vent but no one else understands like this group.
Lisa
Ulcerative Colitis (remission) on lilada
Reflux on dexilant
Recently low positive ana and now on plaquinal

Posted By : Lynnwood - 1/17/2017 2:25 PM
I think Melissa D. takes Arava - otherwise it looks like some HW members on the RA forum have experience with it. (Choose SEARCH, on the right hand side of the second blue bar from the top to find the posts referencing Arava.)

I don't think any Drs have good answers for vertigo, so I wouldn't replace him just for that, but if you aren't happy in general there is no shame in getting a second opinion. You can do that and still go back to your existing Dr if the 2ond doesn't give you a good feeling.
Lynnwood, Lupus & Sjogren's Moderator, Dx: 2000
DIAGNOSING LUPUS & HW's LUPUS 101
"Life is far too important to be taken seriously." - Oscar Wilde

Posted By : Melissa D. - 1/17/2017 7:44 PM
I've been on a combination of 10 mg of Arava and 2000 mg of Cellcept daily for about 5 months. I am out of treatment options to control my SLE, so my rheumatologist is trying this regimen, so far it's doing okay with the exception of the fact my liver counts are slowly rising. My son has RA and SLE, he was on 20 mg of Arava for about 9 months, it helped him quite a bit but he had to stop taking it because it affected his liver.
Lupus SLE 1996, Sjogrens, Raynauds. My worst nightmare was imagined when my son was diagnosed with RA and Lupus NPSLE at 19.

Posted By : Lisabeans - 1/17/2017 7:47 PM
Thanks . I am nervous starting a new drug but also excited. My liver was affected by sulfasalzine.. Hope this works.
Lisa
Ulcerative Colitis (remission) on lilada
Reflux on dexilant
Recently low positive ana and now on plaquinal

Posted By : couchtater - 1/17/2017 10:39 PM
I take it, Lisa.
I'm on 20mg once a day. It has helped my arthritis symptoms a lot. My doctor has me on it and plaquinil 2 times a day.
Joy
Lupus, RA, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, Depression, Allergies, diabetes, and benign familia tremors

When life throws you lemons....
Pick them up and throw them right back at them! :))

Posted By : Lisabeans - 1/18/2017 8:34 AM
Thanks Joy. I started it today. I am still on prednisone but starting to taper off. I have to take 100 mg for the first 3 days and then 20 mg a day thereafter. Fingers crossed for relief!
Lisa
Ulcerative Colitis (remission) on lilada
Reflux on dexilant
Recently low positive ana and now on plaquinal

Posted By : PattyLatty - 1/18/2017 7:38 PM
Hi folks, I was checking in after a long time away and saw your question about Arava, Lisa. Years ago, when nothing else seemed to help except more prednisone, my Doc put me on Arava and the results were fast and positive. Your rheumatologist will probably check your liver on a regular basis & unfortunately, it had a negative effect on my liver. I hope it doesn't yours because I still remember how good it made me feel.

My son has suffered from vertigo for years and has gone to so many doctors. Recently a doctor told him that migraines & vertigo can go hand in hand so he's going to start using a migraine drug. He hasn't told me whether or not he's had any relief but if he has I'll be sure to let you know.

Posted By : Lisabeans - 1/18/2017 7:43 PM
Thanks Patty. I get migrainesome quite often. Would love to know other options
Lisa
Ulcerative Colitis (remission) on lilada
Reflux on dexilant
Recently low positive ana and now on plaquinal

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