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Posted By : Dustmite - 2/5/2017 3:05 PM
Tomorrow is my first appt with my new rhematologists since finding out the middle of December that I may have lupus. I have had problems with multiple bacterial infections that have put me in the hospital since May of last year. Because of this and fevers and exhaustion, facial rashes , swelling joints and joint pain, stage 3 kidney disease (diagnosed in July) and no apparent reason for these things my family doctor took blood tests. All my autoammune tests came back positive. She also went through all my medical records. Because of this she wants me to see a rheumatologist to see what's going on. I have kept a journal of daily symptoms and fevers. I know I won't remember everything when I get to my appt tomorrow. I'm also very nervous about this appt. Any suggestions? I want to be taken seriously. Because of past suggestions on this site I'm not going in with any foregone conclusions. Any suggestions that you may have from past experiences are welcome. turn

Posted By : Lynnwood - 2/5/2017 4:28 PM
Check out the suggestions in Lupus 101 - make a concise list of symptoms from your journal, make a list of questions, don't use any makeup that might conceal facial rashes. Take copies of the relevant tests the family doctor did - copies the rheumy can keep.

Don't "tell" the rheumy the diagnosis, tell them the SYMPTOMS. Let them sort thru the possible diagnoses. While the family doctor means well, anything she said about Lupus is out of her field of study. You don't want the rheumy thinking "Lupus" - instead you want them to match your symptoms against the full range of auto-immune diseases that they are experts in!

Let us know how it goes!
Lynnwood, Lupus & Sjogren's Moderator, Dx: 2000
"Life is far too important to be taken seriously." - Oscar Wilde

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