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Posted By : Dustmite - 2/10/2017 7:43 AM
My appointment with the rheumatologist isn't until 27 Feb. I picked my lab results from the base yesterday. Nuclear an w/ cascading reflex came out positive (H) and the Smith+Ribonucleoprotein Extractable AB came out1.9(H) the Smith Extractable Nuclear Ab came out 0.9 ESR 16 and Creation Kinase 174 . So I looked up all of this online. The internet says it is sle but could also be drug induced le. I have taken calcium channel blockers for 10-15 years for high blood pressure that was diagnosed when I was 27. Could this be it? I'm so confused now. I didn't think this was even a possibility. Its suppose to be rare. Need some advice please. shocked

Posted By : Lynnwood - 2/10/2017 10:19 AM
This article lists most of the drugs known have the potential to cause drug-induced Lupus. /en.wikipedia.org/wiki/Drug-induced_lupus_erythematosus. Have you been taking one of them?

I caution you against self-diagnosis. A positive ANA doesn't necessary mean you have a disease, it's just an indicator telling the Dr to check you for symptoms of auto-immune diseases. And the nuclear pattern is most often seen in scleroderma patients, not Lupus.

Read our Lupus 101 thread on how to prepare for your first rheumy appointment. Take the Dr a list of your symptoms and when they occur, as well as a list of your medications and how long you have been on them. Let the Dr decide on which, if any, diagnosis fits. Avoid mentioning any particular diagnosis, it can cause the Dr to inadvertently fail to consider things that may be real possibilities.

Let us know how it goes!
Lynnwood, Lupus & Sjogren's Moderator, Dx: 2000
DIAGNOSING LUPUS & HW's LUPUS 101
"Life is far too important to be taken seriously." - Oscar Wilde

Post Edited (Lynnwood) : 2/10/2017 10:31:25 AM (GMT-7)


Posted By : Dustmite - 2/11/2017 8:27 AM
I am taking maxzide and Calan a calcium channel blocker. I've been taking these drugs for high blood pressure for about ten years. From what I have read this is a rare problem. With my test results is this what it might be? Like I had said before I had never expected this since I have been on these drugs for years. Are either of these test considered a histone test? I would appreciate any answers.

Posted By : Lynnwood - 2/12/2017 1:55 PM
Your best bet is to consult your rheumatologist with these questions.

I don't see either of the drugs you mentioned on the list, but I don't think it's a complete list.

Sorry, we are just fellow SLE patients and not Drs...
Lynnwood, Lupus & Sjogren's Moderator, Dx: 2000
DIAGNOSING LUPUS & HW's LUPUS 101
"Life is far too important to be taken seriously." - Oscar Wilde

Posted By : Bsime - 2/12/2017 9:27 PM
Doubt that the meds you are taking caused lupus if that is what you have. Your cpk number is in normal range. As Lynnewood advised diagnosing yourself based on the internet usually leads to a wrong conclusion.

Lupus is usually an idiopathic autoimmune disease and rarely can an exact cause (actually a trigger) be determined in individual cases. AI diseases have a genetic component....that is, you have a set of genes that predispose your immune system to a disruption which causes it to attack some part of your body. What that disruption (trigger) is rarely known.

Bill
MCTD (SLE Lupus, polymyositis, scleroderma). Diagnosed 2005. Kidney, liver, GI tract, dysphagia, raynauds, barretts esophagus, quadriplegic in 2005. Recovered and now active in downhill skiing, golf, hiking. Meds: amlodipine, benezapril, omeprazole, potassium, folic acid, vitamins, maxide.

Remain Optimistic and you can overcome.

Posted By : Dustmite - 2/13/2017 8:59 AM
So with a positive ana and a high positive am r n p would those test results indicate sle? Along with my other results I have listed in my other threads. My joint pain. Stiff joints, it takes me about half an hour for my hands and feet to work, thier so stiff and sometimes swollen in the morning.. Low fevers almost every day. Exhaustion, sleep never helps. Depression and anxiety, bright whites fingers that go numb just by putting my hands in cold water. Weight loss. Shingles that took over my summer for four weeks. Ultrasound says I have fluid in some of my joints (wrists and knees) and a hole in the bone of my big toe. Is this arthritis? Broke three bones last year. Three major infections, the first one bacterial that started to turn sepsis and almost killed me. All three put me in the hospital for a number of days. A red rash on my face and neck from stress, the sun, hot showers and during flares. So with theses symptoms and blood test results can this be lupus or something else. Any of your input from those of you who have been diagnosed with lupus would be appreciated.
Oh and Iam a 56 year old female, if that makes any difference. (My first visit two years ago with a rheumatologist. I had a red rash on my face. The rheumatologist refused to do any tests and told me I was too old to have lupus). Great experience.

Posted By : Bsime - 2/13/2017 9:11 AM
I was almost 65 and a man and got lupus. It is much more common for women to get lupus during child bearing years but lupus can start at almost any age with either men or women.

Diagnosis of lupus is by clinical symptoms confirmed by labs.

http://www.lupus.org/answers/entry/diagnosing-lupus

http://www.lupusresearch.org/lupus/symptoms.html?gclid=CKGcj_OsjdICFdC4wAodQg0BPQ

Your symptoms could be lupus. Are you currently on any controlling meds? If not you should find a rheumatologist who is experienced with lupus. Hope you find answers soon.

Bill
MCTD (SLE Lupus, polymyositis, scleroderma). Diagnosed 2005. Kidney, liver, GI tract, dysphagia, raynauds, barretts esophagus, quadriplegic in 2005. Recovered and now active in downhill skiing, golf, hiking. Meds: amlodipine, benezapril, omeprazole, potassium, folic acid, vitamins, maxide.

Remain Optimistic and you can overcome.

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