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Posted By : Butterflake - 2/15/2017 12:04 AM
Hi Everyone. After two years of Benlysta, today my rheumy said I could stop. As you know I've been sick in bed for months. I recently went to my dermatologist for small nodules on my palms/arms and she said it was a virus probably from the Benlysta. After reading my last two lab reports I've been thinking that my lymphocytes (white blood cells) were getting terribly low and that could be making me sick. I can't say my rheumy agreed, but his PA did. She talked with him and he came in and said, " let's stop the Benlysta." Yea!!
SLE '05, Sjogren's, Fibro, Raynaud's, major depressive disorder, anxiety; CVID (Common Variable Immunodeficiency); IVIG and Benlysta infusions monthly; Hypertension; Osteoarthritis of the spine, right knee, fingers, toes; Bursitis right hip; Osteoporosis, CNS problems, GERD, angina, 1st stage kidney disease. Many meds: better living through chemistry

Posted By : Lynnwood - 2/15/2017 7:45 AM
I hope that help you feel better!
Lynnwood, Lupus & Sjogren's Moderator, Dx: 2000
DIAGNOSING LUPUS & HW's LUPUS 101
"Life is far too important to be taken seriously." - Oscar Wilde

Posted By : Butterflake - 2/15/2017 2:35 PM
Thanks Lynnwood! I hope so too. At the very least it's one less infusion! Love Ya!
SLE '05, Sjogren's, Fibro, Raynaud's, major depressive disorder, anxiety; CVID (Common Variable Immunodeficiency); IVIG infusion monthly; Hypertension; Osteoarthritis of the spine, right knee, fingers, toes; Osteoporosis, CNS problems, GERD, angina, 1st stage kidney disease. Many meds: Better living through chemistry

Posted By : Mrs. Brady - 2/15/2017 2:44 PM
I hope it helps and you feel better soon!
Hoshimoto's Hypothyroidism DX Oct 1997
Pancolitis DX Nov 2013
GERD DX Nov 2013
Lupus, DX Sept 2015
Medications - Synthroid; Hydrocort Enemas (as needed); Prilosec; Iron; Plaquenil; Vit D, Humira
Past Meds: Lialda and Imuran - adverse reactions to both, discontinued

Posted By : Melissa D. - 2/15/2017 3:56 PM
Hope you feel better soon!
Hugs;
Melissa
_____________________________________________________
Lupus SLE 1996, Sjogrens, Raynauds. My worst nightmare was imagined when my son was diagnosed with RA and Lupus NPSLE at 19.

Posted By : couchtater - 2/16/2017 12:53 AM
Great news. Now maybe you will get better.
Joy
Lupus, RA, Fibromyalgia, Glaucoma, Asthma, Hypothyriodism, Sleep Apnea, Depression, Allergies, diabetes, and benign familia tremors

When life throws you lemons....
Pick them up and throw them right back at them! :))

Posted By : Butterflake - 2/16/2017 1:59 AM
Thank you ladies! I'll have to be patient while it leaves my system and I'm looking forward to better days smile
SLE '05, Sjogren's, Fibro, Raynaud's, major depressive disorder, anxiety; CVID (Common Variable Immunodeficiency); IVIG infusion monthly; Hypertension; Osteoarthritis of the spine, right knee, fingers, toes; Osteoporosis, CNS problems, GERD, angina, 1st stage kidney disease. Many meds: Better living through chemistry

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