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Posted By : TAS-MS/lupy - 2/25/2017 10:20 PM
I am new to this site so here goes: In 1993 I was diagnosed with MS. I was only 20 years old at the time and decided against doctors advice to not go on any meds. I felt my symptoms were not bad enough at that time to subject myself to liver or kidney problems due to the meds. Over the last 20+years I learned to live with and deal with my MS. I was a very energetic(I had my days however, esp in the summer)hard working, self motivated person who just like to go,go,go and "raise the bar" at my job as high as I could. No one could believe someone with MS(mine very mild) could be that strong, have that much energy and work in such a fast past factory! That is until summer of 2013 when all that started to change. That summer I was hit with a huge amount of pressure and stress due to some life changes and almost worked myself to death! During that time I was getting new & different symptoms daily. I realized a lot of the symptoms were my MS but I also knew something else was wrong! A long story shortened, after weekly trips to different doctors because all they wanted to do was say it was my MS in Feb 2016 I tested as they told me "antibody" positive for Lupus!!!After that diagnosis and some new meds things for me continued to get worse. Currently, a shell of the person I once was, I had to take a medical leave from work, I can hardly get out of bed without tears from the aches and pains let alone go to work. On Feb 15th I was told my Lupus was quiet and that I have Fibromyalgia!! HELP, where do I go from here?? In May I will lose my job of over 15 years if I do not return to work!!

Posted By : Butterflake - 2/28/2017 3:27 AM
Welcome to our forum TAS-MS/Lupus. You are not the first person who has come to our forum who has had MS and another diagnosis. I know neurologists treat MS, but I hope that you are also seeing a rheumatologist. They are the Docs who diagnose and treat autoimmune diseases. Many Lupies had fibromyalgia before Lupus and Lupus is not diagnosed by just an antibody. Please refer to our Lupus 101 at the top of our page for the criteria used to diagnosis Lupus. BTW I also see a rheumatologist and a neurologist, but I see my neurologist for short term memory loss and balance. I also had to take the Family Medical Leave Act and I know how incredibly hard it is going back to work.

As for your real problem, if you do have Lupus or MS and fibromyalgia they often completely change your life. Many Lupies go through the stages of grief over having lost their previous life, but while you are struggling your rheumatologist should be treating your fibromyalgia and/or Lupus. Their goal is to keep you working as long as possible using medications for your illness and pain management. Some meds work quickly and others take a few months to work, but you should get relief and be able to go back to work for a while. Please check our fibromyalgia forum too. There is hope! Please let us know how you're feeling and if you have any questions please ask. Love, Butterflake
SLE '05, Sjogren's, Fibro, Raynaud's, major depressive disorder, anxiety; CVID (Common Variable Immunodeficiency); IVIG infusion monthly; Hypertension; Osteoarthritis of the spine, right knee, fingers, toes; Osteoporosis, CNS problems, GERD, angina, 1st stage kidney disease. Many meds: Better living through chemistry

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