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Posted By : Ilovebunnies - 4/2/2017 1:38 PM
Hi ! So about a year ago I went to an endocrinologist because I was having trouble with fatigue,muscle soreness, and an overall feeling of being unwell. He did a couple tests and told me to exercise more. It resolved for a little bit, but around christmas I started to feel very fatigued again. I have dealt with a lot of stress in my life, and know the difference between feeling worn out and feeling sick. I am pretty active, and have a dietitian so I know my meal plan is fine. I just know there is something wrong, and people can tell when looking at me that something is off.

Symptoms:
- severe fatigue
- nausea
- Scalp hair is thinning away
- always cold
-Light sensitivity
- joint stiffness
-muscle soreness
- headaches
- blurred vision sometimes
- irritability
- bruising easily
-mouth ulcers
- pain behind the eyes
-brittle nails
- balance issues
-confusion
- stomach discomfort


The only tests that have stayed consistent are the ANA being positive , blood in urine, and vitamin D being low regardless of how much I take in a supplement and am outside.

Other vitamins and minerals are normal and all tests for tick related illnesses are false.

My new endocrinologist is intrigued by my case, and my neurologist cleared my mri and eeg. I see a rhuematologist soon, but I was hoping to get some insight. I would really appreciate it.

Thanks !

Posted By : VLou* - 4/5/2017 1:21 AM
Hi I'm sorry that you have no replies, hopefully someone will be around soon.

Your symptoms are the same as mine. Do you get splinter hemorrhages in your nails? Sun sensitivity?

I'm yet to be diagnosed. Rheumatalogist wouldn't diagnose me, says I don't have enough criteria but I clearly do. I'm at Guys and St Thomas' in London tomorrow so fingers crossed.

Posted By : Ilovebunnies - 4/5/2017 5:09 AM
Hi ! Thanks for the reply ! I have very brittle nails, but don't have the hemmorage . I am extremely sensitive to sunlight and it makes me extremely nauceous and dizzy and gives me a headache.

Posted By : hannahrdog - 4/5/2017 5:50 AM
Tick test are very inaccurate.....

Posted By : VLou* - 4/5/2017 5:58 AM
Me too. And my nails come off.

Tick test?

Posted By : Ilovebunnies - 4/5/2017 3:12 PM
yes - I had a few tick tests and they all came back negative. My neck is killing me and Its so common in ticks, thats why we tested.

Posted By : Lynnwood - 4/5/2017 3:36 PM
Are you talking about Lyme Disease? This is the Lupus forum, we don't know much about Lyme...
Lynnwood, Lupus & Sjogren's Moderator, Dx: 2000
DIAGNOSING LUPUS & HW's LUPUS 101
"Life is far too important to be taken seriously." - Oscar Wilde

Posted By : Ilovebunnies - 4/5/2017 7:05 PM
Yeah - no someone said test results for tick bites aren't accurate and I was just explaining why we tested for it ever . I still see rhumetologist tomorrow

Posted By : VLou* - 4/7/2017 8:58 AM
How did your appointment go?

Posted By : Ilovebunnies - 4/7/2017 9:12 AM
They're retesting my thyroid functions and antibodies . At this point I'm still a mystery , and might be waiting a week for results .

Posted By : VLou* - 4/7/2017 10:28 AM
Keep us updated.

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