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Posted By : Melissa D. - 4/3/2017 9:50 PM
I am seeing a neurosurgeon tomorrow for a consultation on having a pain/nerve stimulator implanted for my neck and back. I have very mixed feelings about this and was wondering if anyone has had one and what their experience was?

I have anxiety because I know the device is about 2 inches wide and about a 1/2 inch thick and is implanted on your buttocks or stomach. On a good day I weigh 92 to 95lbs, my entire rib cage, spine and pelvic bones show. I've had to have ports for my infusions moved to my upper arm because they rub and become extremely painful. I really, really need this stimulator, I am hoping it will allow me to eliminate the quarterly steroid type injections I am receiving to help control the pain. As well as the many other things that are being done to help combat the numbness, pain, etc on a daily basis.

Posted By : Lynnwood - 4/4/2017 7:10 AM
I don't recall anyone here ever getting one, but if you check over on the Chronic Pain forum you'll find many people who have them, and many threads on the subject.

Best wishes,
Lynnwood, Lupus & Sjogren's Moderator, Dx: 2000
"Life is far too important to be taken seriously." - Oscar Wilde

Post Edited (Lynnwood) : 4/4/2017 8:00:38 AM (GMT-6)

Posted By : Melissa D. - 4/4/2017 7:32 AM
Will do thanks Lynnwood.
Lupus SLE 1996, Sjogrens, Raynauds. My worst nightmare was imagined when my son was diagnosed with RA and Lupus NPSLE at 19.

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