The original version of this page can be found at : http://www.healingwell.com/community/default.aspx?f=29&m=3852675
Posted By : Dee716 - 5/22/2017 1:28 PM
Hi all,

Ive been diagnosed with acid reflux and put on an antacid since 6 months ago. I was out in the sun the other day and got an itchy mosquito like rash from the sun. My doc said my medicine shouldnt do this. I was tested for autoimmune diseases and everything was fine.
My question is did your bloodwork show the positive ANA test or how were you diagnosed?

Posted By : Lynnwood - 5/22/2017 3:31 PM
A Lupus diagnosis is made by a rheumatologist, they are the experts when it comes to Lupus and several other auto-immune diseases.

Typically, four or more of the following criteria must be present to make a diagnosis of systemic lupus.

The “Eleven Diagnostic Criteria”

1. Malar rash: butterfly-shaped rash across cheeks and nose
2. Discoid (skin) rash: raised red patches
3. Photosensitivity: skin rash as result of unusual reaction to sunlight
4. Mouth or nose ulcers: usually painless
5. Arthritis (nonerosive) in two or more joints, along with tenderness, swelling, or effusion. With nonerosive arthritis, the bones around joints don’t get destroyed.
6. Cardio-pulmonary involvement: inflammation of the lining around the heart (pericarditis) and/or lungs (pleuritis)
7. Neurologic disorder: seizures and/or psychosis
8. Renal (kidney) disorder: excessive protein in the urine, or cellular casts in the urine
9. Hematologic (blood) disorder: hemolytic anemia, low white blood cell count, or low platelet count
10. Immunologic disorder: antibodies to double stranded DNA, antibodies to Sm, or antibodies to cardiolipin
11. Antinuclear antibodies (ANA): a positive test in the absence of drugs known to induce it.

You may have something as simple as heat rash -- there are several slightly different rashes that can result from sun and heat.

Best wishes,
Lynnwood, Lupus & Sjogren's Moderator, Dx: 2000
DIAGNOSING LUPUS & HW's LUPUS 101
"Life is far too important to be taken seriously." - Oscar Wilde

Posted By : Dee716 - 5/23/2017 6:44 AM
Thank you. I only have #3. I guess I will just avoid the sun for now. Its just so odd!

Posted By : yvoedd - 5/23/2017 8:57 AM
I don't know what to think. Lupus???or other disorder
My 8 year daughter has been complaining of aches and pains, legs, arms, " her heart hurts" even that " she feels that she can't take enough air into her body". I kept telling myself that it was nothing. I took her to her PCP, he referred her to sports medicine DR who took x-ray of her knees. Outcome was , she needs physical therapy to strengthen her muscles. I've been doing exercises with her at home. She still complains of pains, now headaches, found out her vision got worse when I took her to get her yearly vision screen. My daughter is 48 inches and weighs 45lbs. She has little appetite and complains of always being tired. I took her back to her pcp, I insisted that she needed a complete physical and bloodwork. He orders CMP, CBC, UA, Ferritin ( her dad dx of hemochromatosis), RF, CRP, and ANA.
Blood work was good and negative except for the ANA was positive, Pattern was Homogenous and Titer was >1:80.
Does this indicate that she has lupus or another autoimmune disorder???
She was referred to a pediatric Rheumy which I was told that appointment can take a couple of weeks to be seen. For now I'm just about going crazy wondering. ( PS. My mother has RF since she was 30 years old, she is now 64 and bed confined)

Posted By : Dee716 - 5/23/2017 7:18 PM
Hi there,

Was her heart checked? What about an MRI?

Posted By : yvoedd - 5/24/2017 9:38 AM
Not yet, I found a pediatric rhematologist in Corpus Christi that will take her next week. All I read and search points to lupus :/

Posted By : Lynnwood - 5/24/2017 10:13 AM
Yvoedd,

From the symptoms you've supplied, only one seems to point to Lupus, and that is the ANA. A positive ANA can mean many things OTHER than Lupus -- all it really means is that something is wrong and that a rheumy needs to be consulted. Many people have a positive ANA without ever developing an auto-immune disease.

Once you've set up the rheumy appointment, try to put worry aside. (And don't read anything else about Lupus!) The rheumy is the expert and they will get to the bottom of this.

Meanwhile, make sure your daughter is eating a healthy diet, getting mild exercise, and getting restful sleep.

Best wishes,
Lynnwood, Lupus & Sjogren's Moderator, Dx: 2000
DIAGNOSING LUPUS & HW's LUPUS 101
"Life is far too important to be taken seriously." - Oscar Wilde

Posted By : yvoedd - 5/24/2017 12:08 PM
Thank you for your comforting words. I will wait for appointment and hope all is well with her.

Posted By : Dee716 - 5/24/2017 4:02 PM
Good luck! Think positive and have faith. smile

Posted By : Furrow - 5/28/2017 4:17 PM
yvoedd said...
Not yet, I found a pediatric rhematologist in Corpus Christi that will take her next week. All I read and search points to lupus :/
Wow, small world. I'm from CC and my Rhumy is Dr. XX YY. She's been a life saver, literally. Hopefully you won't need a rheumatologist but if you do I highly recommend her.

Edited to remove Dr details for liability reasons.

Post Edited By Moderator (Lynnwood) : 5/29/2017 7:30:33 PM (GMT-6)


Posted By : yvoedd - 5/29/2017 2:37 PM
Dr . AA BB, pediatric rheumy.


Edited to remove Dr details for liability reasons.

Post Edited By Moderator (Lynnwood) : 5/29/2017 7:31:14 PM (GMT-6)


©1996-2017 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer