The original version of this page can be found at : http://www.healingwell.com/community/default.aspx?f=29&m=3879792
Posted By : Dustmite - 7/10/2017 11:46 AM
Greeting from rainy, overcast and somewhat foggy Florida. So have been awake and in pain since 2:45am. My flare seems to have come in with the rain.I have arthritis in all my small joints from my elbows down. And I can tell you when the set weather is coming in. Also I have been getting bad migraines again with almost every rain storm. I was given a steroid pack that I take for six days. How has this worked for other women. Especially those with late onset SLE. That was what I was diagnosed with in February. Also those who also have kidney disease not caused by the lupus, did the steroids effect your kidneys at all? Damage them further? I was surprisingly diagnoised with kidney disease last July, 2016 (stage 3, down to 49% and seems to keep spiraling)?. I was actually being tested for iron deficiencies because I am exhausted all the time for over a year. Also multiple infections and sepsis last April ,scary that one. Anyway any input or advice about the steroid packs and injections that helped or harmed your lupus or kidneys or anything that worked or really didn't work my ears are open. Today thats about the only thing that doesn't hurt. God Bless. Dustmite.

Posted By : colobabe - 7/30/2017 2:25 PM
Hi there sweetie,

No steroids never did anything with my kidneys , but having the gastric bypass in 2010 and losing 260 pounds and having lupus, did not help due to we have the gastric bypass and they are finding out now ,years later , that we are not absorbing like we should be for nutrition, and it has caused problems with very low iron levels to the point they are 6 to 7 and they like them around 70. Your doctors should be doing blood tests often to make sure other organs are doing well, and also see if there is other areas that need extra attention to make it a little easier on you and your body.
Also, I too. Had a very bad sceptic infections in my kidneys, and did not even know I had one, until I wake up my boyfriend shaking the bed cause I was so cold but had a fever at 104, and was rushed to the ER, and was kept there for a week. They say that sometimes that sceptic infections do not show in people who have lupus until it is so dangerous or too late cause some doctors think it is something to do with lupus or lupus type symptoms and don't look at other areas.
I thank god for my 5 doctors (in other areas of problems I am having), cause they listen to me and not scared to try other things that might work for sometimes work for other things in other health issues and other medicine that work for one disease ,can help with lupus.
And for other symptoms you are having like headaches, please see a neurologist for the headaches. I get margarines, a lot, and I was put on Vimpat , which is used for seizures, and I have had small ones, helps with my margarines.
I hope that you are starting to feel a little comfort and listen to your body and make sure you make a journal and pictures if possible. I do and trust me it really helps at each appointment. Sometimes you have to be your own voice.

I hope you have a good day and god bless,
Your lupus friend from Colorado,
Terri
Terri Duvall

©1996-2017 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer