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Posted By : mybodyhatesme - 4/12/2007 10:44 AM
finally i have a name for why i am almost always purple, pink or blue.
it's livedo reticularis -- anyone else more blue and pink than they are anything else?
is part of the lupus puzzle? it seems like it's almost like having raynauds all over my body.  i had the livedo reticularis  as a newborn, and i remember it in early high school.     i'd do anything to have even skin tone. ANYTHING. especially for my wedding :o( i'm really bummed to read that unless i wear a white sweat shirt down the aisle, that my skin will probably be blue.

jessica, 25
lupus (or something like it)
ulcerative colitis,bone loss, arthralgia,ranaud's, blood clots in fingers, blistering on top of hands, migraines, fatigue, eye pain...i'm sure i'm forgetting something (anxiety, major brain fog) 

Posted By : dbab - 4/12/2007 11:03 AM
I got it on my legs and my son has it on his arms and legs and everywhere else. It likes to appear when I'm cold. I didn't realize that was connected with Lupus. I don't think that its strictly connected with Lupus though since my son has it. I've had it for as long as I can remember and my doc told me that's what it was many years ago.

Being tan can help to mask it but of course that is not an option for many of us. I did mention Jergen's Natural Glow in another post and I definitely think I'm gonna try the stuff out. I'm like you, I want a nice even tone. :)

Co-Moderator ~ IBS Forum
Dx: IBS 1989, Diverticulosis 2004, Idiopathic Acute Colitis 2006, UCTD 2007
Meds: Plaquenil 400mg, Chlorzoxazone 500mg, Lyrica 50mg, Protonix 40mg, Naproxen 1000mg, Xanax XR 2mg, Miralax 17g, Supplements

Posted By : Ginny - 4/12/2007 1:20 PM
I have it too.  I have it on my right wrist, and right ankle.  That's it!  Yes, it is from the lupus, but mainly a sign of vasculitis.  My patches come and go with the way my lupus is acting etc.  Fun stuff....

I can do anything through Jesus Christ who strengthens me.  I have learned in whatever state I am in, to be content.  Phillipians 4:11-13

Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(stroke),Sjogren's, Raynaud's, seizure disorder, libman sach's endocarditis, vasculitis, sacroiliitis, Neutropenia, thrombocytopenia, food allergies
Prednisone, Imuran, Coumidin, Clobazam, Amitriptyline, micronor, didrocal, monopril, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus

Posted By : hippimom2 - 4/12/2007 7:09 PM
I had forgotten that my old rheumy had written this down on my chart because of the unusual color my skin takes on. I'm like ginny in that the severity of mine seems to correlate with my disease activity.

This disease makes a person feel SO attractive and does wonders for the self esteem, lol. I agree that the lotions with self tanners can even out the skin tone a bit.

Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Amitriptyline 10mg; Neurontin 300mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Restasis eye drops



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Posted By : okie - 4/13/2007 1:41 AM
Jessica your hubby to be will love ya if you are pink with puple po ka dots. But I understand. You want everything perfect. Hofully you can find somthing to cover the areas that will show the most. I have noticed the skin tones you mentioned on my legs when I take a bath and go to shave my legs. they are multi colors of purples and reds and tan. I figred it was from the cold bathroom or somthing. Like the others try some tanning tones. hopfully it will help some.


God Bless
. Possible Lupus Nov 06.Possible CREST, xanax X3,triam high BP, percocet, inhalers,COPD. oxygen Plaquanil400mil, . effexor. spiriva, xopenex.
Come ye, all that are weary and heavy laden, and I will give you rest!
Why do doctors call it "practicing" medicine? 

Posted By : mom46 - 4/13/2007 9:47 PM

I Have had the red and purple dots on my lower legs in the past. When I had this my legs, ankles and feet were swollen. Does that mean it was Vasculitis, Ginny?. It was treated with Pred and got better fairly quickly.

                                                          Tks, Babs

 Co-Mod: Lupus Forum
 Lupus,RLS,RA,Asthma,Fibro,Sjogren's,Raynaud's,Divertic, Stroke,Atherosclerosis,Seizures,Sensory Polyneuropathy
mirapex,advair,foxamax,donnatal,folic acid.
JOB 5:18 For he wounds, but he also binds up; he injures, but his hands also heal.

Posted By : Trying2BFree - 4/15/2007 12:10 PM
I have the purple/red lacey thing going, mainly on my legs and feet. It's not there all the time....comes and goes. My rheumy is the one that pointed it out to me. He acted like it wasn't a big deal...just one of those things.

I use the Oil of Olay tanners and really like it. You might try that.

Jeannie ~
   Mom to Ty (4 yrs old)
   and 3 Shelties
SLE diagnosis 10/05 now changed to RA 3/06, Endometriosis 5/05, PCOS 1990
Meds: Metformin ER 1500mg (PCOS); Loestrin BCPs (Endo); Methotrexate 17.5mg (RA); Metanx 5mg (RA); Remicade (RA); Lunesta 2mg (as needed)

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