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Posted By : mom46 - 4/13/2007 4:47 AM
Hi Everyone,
   I know alot of you have dry mouth issues from Sjogren's/Lupus. I have tried several different types of toothpaste over time. Most I try either cause my gums to be sensitive or leaves a film in my mouth that will peel. For the last couple of months I have been switching from "Crest Vivid White" to "Advanced White by Arm and Hammer". The Crest leaves the film and the Arm and Hammer makes my gums sensitive. Could it just be the whitening type of toothpaste? Any suggestions on another whitening toothpaste that doesn't cause these problems? I have tried Aquafresh and Colgate as well with the same problem. Tks,
                                                             Babs


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Posted By : dbab - 4/13/2007 6:51 AM
I haven't tried it but I plan to when I run out of toothpaste, Sensodyne Extra Whitening. I'm not sure if it works good or not, but one of my co-workers swears by it and she suffers from dry mouth. Maybe worth a shot :) Take Care


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Posted By : hippimom2 - 4/13/2007 6:56 AM
I might have to try the Sensodyne. The only toothpaste I've heard of for dry mouth is Biotene, but I haven't tried it and I don't think it comes in a whitening formula. I know I need to get to the dentist one of these days because my dry mouth is so bad, but it's hard to get there when I have so many other appointments to get to.


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Posted By : dbab - 4/13/2007 7:07 AM
I'll probably be buying some this weekend, so if you want me to try it first before going out and having to buy some... I can give an update for you. I know what works for some doesn't for others so I'm not sure if I'm totally convinced by her but I'm willing to try. :)


"Des"
Co-Moderator ~ IBS Forum
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Posted By : hippimom2 - 4/13/2007 7:34 AM
Des, thanks for offering to be our guinea pig with the toothpaste, lol. I would be interested to see how you like it.


Diagnosis:  UCTD (lupus) 2006; Raynauds 2006; Sjogren's 2006; lupus symptoms began 2003; CFS 1991; Mono 1985
Meds:  Plaquenil 400mg; Prednisone 5-10mg; Tramadol 100mg 3-4x daily; Amitriptyline 10mg; Neurontin 300mg; Prevacid; Steriod Cream and Mouth Rinse for tongue and mouth ulcers; Hydrocodone 5/500 prn for severe pain; Restasis eye drops

 

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Posted By : Lynnwood - 4/13/2007 7:40 AM
A guinea pig with toothpaste - now that invokes an interesting image!


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Posted By : Trying2BFree - 4/13/2007 7:55 AM
I read somewhere (and of course, I can't remember) that those of us with Sjogren's shouldn't use whitening toothpaste. I don't remember why either. :) I have been using the Biotene toothpaste and mouthwash. It definitely helps, but I still wake up during the night and need to use the Mouth Kote spray.


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Posted By : dbab - 4/13/2007 8:09 AM
Thanks Jeannie... I may want to do a search on that before going out and buying the stuff since I hear Sensodyne isn't cheap.


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Posted By : moop - 4/13/2007 11:20 AM
Hi Babs,
I don't have much advice on toothpaste, but I would like to share my experiences on the subject. Having SLE for a few years, I have all sorts of mouth/teeth related problems. My Rhuemy suggests it is the lack of moisture getting to the mouth/eyes due to the effects of the Lupus. For me, it was like a right of passage brushing my teeth or using mouthwash. I remember asking my dentist one time if he could recommend a brand of toothpaste that wouldn't hurt as bad as Crest. I can recall him looking at me as if I was some little girlie-man. Ah the fun of being a guy with Lupus. Anyway... when my mouth is sore and toothpaste is too painful, I'll switch over to using baking soda. But I would also like to suggest a medicine that was prescribed to me a few months ago and seems to be working pretty well and that is: EVOXAC. It is supposed to generate/stimulate the saliva/tear glands to excrete more fluids. It appears to be working for me (I wake up with drool on my pillow) and my eyes don't feel as dry all the time. Using regular toothpaste since taking this medicine has been less of an issue, I suspect my mouth is getting enough saliva to wash away/kill the bacteria in our mouths. Hopefully over time I will notice a decrease in the amount of cavities and gum disease as well. The only down side I experienced with this drug was a feeling of dizziness I would get after taking it. Over about three weeks, that side-effect went away.

Posted By : tink 2 - 4/13/2007 11:41 AM
I use a Rx called Colgate PreviDent 5000plus and I have salagen pills to give me saliva.


Lupus since 2005, MCT since 2005 polymysoitis since 2005,Arthritis since2005 sjogren's syndrome since 2005, vertigo since 2006,migrains since 2006, diabetes since 2006, Depression since 2004. who would not be with all of this.
 
       I just try to make it threw every day as best I can.
        God please remember I am on the diet platter.
                  So many beads so little time.....
 
                   Have a great Lupie Day Denise 


Posted By : omega - 4/13/2007 2:12 PM
Sensodyne is good for sensitive teeth, but I do not know about dried mouth. I do not believe anything that with whitening ingredients. I tried to avoid them because I do not know what kind of damage will do for my teeth. I read long time ago from a medical article about those whitening stuff (especially for whitening teeth) do damge to the teeth, but forgot where I read it. I do not know if it can apply to toothpaste though.

Posted By : Ides - 4/13/2007 2:23 PM
I use Biotene Dry Mouth toothpaste and Biotene mouthwash. They has really helped the burning and cut the dryness caused by Crest Extra Whitening.


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Posted By : dbab - 4/13/2007 2:33 PM
May have to do without the whitening part Babs :(  I don't care for Biotene toothpaste so I may try Tom's of Maine for dry mouth (I'm sure I will have to order it as I haven't seen it at any of the stores here)


"Des"
Co-Moderator ~ IBS Forum
Dx: IBS 1989, Diverticulosis 2004, Idiopathic Acute Colitis 2006, UCTD 2007
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Posted By : mom46 - 4/13/2007 8:39 PM

  Tks everyone for all the great advice! I was taking Salagen at one time. I really don't remember why I stopped. I will try some of your suggestions for toothpaste to find the one that works best for me.... :-)

   Des, what is Tom's of Maine? I have never heard of that before.

   Thanks again everyone. You have all helped me alot.

                                               Love and hugs, Babs


 Co-Mod: Lupus Forum
 Lupus,RLS,RA,Asthma,Fibro,Sjogren's,Raynaud's,Divertic, Stroke,Atherosclerosis,Seizures,Sensory Polyneuropathy
Meds:Arava,plavix,aspirin,protonix,gabitril,zanaflex,xanax,
mirapex,advair,foxamax,donnatal,folic acid.
 
JOB 5:18 For he wounds, but he also binds up; he injures, but his hands also heal.


Posted By : dbab - 4/13/2007 9:08 PM
Babs, Its a brand that you can find at almost everywhere, they sell different kind of toiletry products. My grandmother uses their regular toothpaste because the popular brands make her gag and this one doesn't.

They have a dry mouth toothpaste that is apricot flavor YUM! but I can't find the dry mouth toothpaste anywhere. I can find the regular one though. I think they have a website if you do a google search and you can look for the product. I kind of like the idea of apricot flavored toothpaste :)


"Des"
Co-Moderator ~ IBS Forum
Dx: IBS 1989, Diverticulosis 2004, Idiopathic Acute Colitis 2006, UCTD 2007
Meds: Plaquenil 400mg, Chlorzoxazone 500mg, Lyrica 50mg, Protonix 40mg, Naproxen 1000mg, Xanax XR 2mg, Miralax 17g, Supplements


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Posted By : mom46 - 4/13/2007 9:18 PM

Tks Des,

  I will google it and see what I can find. Sounds good..yumm!

                                                     :-) Babs


 Co-Mod: Lupus Forum
 Lupus,RLS,RA,Asthma,Fibro,Sjogren's,Raynaud's,Divertic, Stroke,Atherosclerosis,Seizures,Sensory Polyneuropathy
Meds:Arava,plavix,aspirin,protonix,gabitril,zanaflex,xanax,
mirapex,advair,foxamax,donnatal,folic acid.
 
JOB 5:18 For he wounds, but he also binds up; he injures, but his hands also heal.


Posted By : CityGirl - 4/14/2007 1:21 PM
The "film" you are feeling might be the baking soda used in many whitening toothpastes. Does it feel sort of gritty? I hate that feeling!

I have sensitive teeth, I have my whole life. I *love* Rembrandt Intense Stain Whitening Toothpaste. It is expensive, I think 8.99 for a 6 ounce tube but the results are great. It doesnt leave a film and it doesnt hurt my sensitive teeth at all. My other suggestion would be to invest in a Sonic Care electric toothbrush - they run about 100.00 but I couldnt live without mine! It makes a huge difference in cleaning and helps with sensitivity issues.

Posted By : okie - 4/15/2007 10:33 AM
I'm glad city girl mentioned sonic care because I was afraid you would think I was nuts. Actually I have a water pick. It works great for removing anything thing that sticks to my mouth tongune or gums. I don't know if it would be to hard on you but it might be a suggestion. If it doesn't work you could take it back and get your money back out of it. When I first started it hurt my gums but they toughened up eventually.

hugs
carol


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Posted By : PattyLatty - 4/15/2007 10:55 AM
I use Biotene, but Des, I'm going to look for Tom's of Maine as well. Maybe with something tasty I'd look forward to brushing my teeth instead of dreading it.

Moop, you say you're a man who feels bad? How dare you! Women are tagged as neurotic, and men are labled as girlie-men. We're all just too sensitive, aren't we. I guess a good sense of humor is our best defense.


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Posted By : PattyLatty - 4/15/2007 12:49 PM
Good news! I googled Tom's of Main and learned that their products (all natural and animal friendly) are sold at Eckerds, Walgreen's and Albertson's.


Lupus, Rheumatoid Arthritis, Sjogren's, osteoarthritis, fibro, ibs, renauds, restless leg, hiatal hernia, double vision.

cellcept, neurontin, prednisone, plaquenil, synthroid, triamterene, cymbalta, tramadol, lunesta, actonel, meridia, tricor, aciphex, multivitamin, calcium w vit D, fish oil, aspirin


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