The original version of this page can be found at :
Posted By : Leta - 4/15/2007 2:01 PM
Hi everyone,

I know I have not been here for a while but so much has been going on that I have had to stay away. I can see where it has taken a toll on me too. I went to the Rheumie for a bunch of tests and feel like they keep finding something new all the time. Now it is that I have severe vitamin D deficiency. On scale of 1-100 mine is 13 sad I have to start Vitamin D at 50,000 iu and I know this is going to make me feel really sick. The thing is my body is not happy with change and this will be good for me but at first we all know how this makes us feel while our body gets itself out of toxic mode. LOL!! I have to do this ASAP or I may end up in the hospital for IV treatment which at this point I don't care because I am so angry. I cannot go in the sun, and now I want to get my Vitamin A tested along with Potassium and Magnesium checked. And also Vitamin K.

I just get sick of this because my lupus labs come back negative and I still have issues with Sjogren's Syndrome, Porphyria, etc. Anyway sorry to complain. I am not looking for sympathy, just venting.

Have a good day everyone.

sle 99 w/cns & autonomic involvement 11/05, photosensitive 04/04, sjogren's syndrome 99, ra 99, fibromyalgia 8/05, sinus tachycardia 6/04, asthma 96, allergies to artificial dyes, sulfa, penicillin, cephalosporin 06/04, idiopathic neuropathy/neuro pain 11/05. Epilepsy 3/06, prob mini-stroke 5/06, Porphyria 5/06, Vitamin D deficiency severe 4/07. Meds are baclofen 40 mg, prenatal tabs, calcium, potassium, vit D prescription 50,000 iu, qvar, albuteral, singulair, plaquenil 400 mg, tramadol 400 mg, darvecet 100 mg, artificial tears, stuff for the sjogrens.

Posted By : jhmom - 4/15/2007 2:06 PM
((((( Leta )))))) I am sorry you are going through a rough time right now, feel free to vent whenever you need to. I pray your vitamin levels return to normal soon and that you begin to feel better. Still no answers? I know how frustrating it is, hang in there, it just takes time. Hugs and love


Trust in the Lord with all thine heart, and lean not unto thine own understanding ~ Proverbs 3:5 ~

DX: Hashimoto's 1999, Celiac Disease (gluten sensitivity)2003, Raynaud's 2004, Lupus 2005 and Sjogrens 2006
Meds:Imuran, Plaquenil, Flexeril, Sulindac, Levoxyl, Folic Acid and magic mouthwash (as needed)

Posted By : CaptSue - 4/15/2007 3:00 PM

I too have vitamin D deficiency though I do not have the numbers. My PCP prescribed a vitamin supplement in big doses but I read

and saw that the usual prescribed Vitamin D is not the "best" vitamin D supplement. I take what I call "funky" vitamins (Dr Sinatra) and they have the good kind of Vitamin D in them.

Good luck,

Diagnosis: Mixed connective tissue disease (systemic lupus, scleroderma, polymyositis), Raynauds phenomena (both diagnosed in 2006)

Meds: prednisone (5.0 mg wish I could taper), Imuran (2X50mg), Prilosec (20mg), Prozac (off now)

Posted By : Barbara Lee - 4/15/2007 6:58 PM
Hi Leta:

Gentle (((hugs))) I'm sorry that you're having troubles. I know how frustrating it is to keep hearing that this or that is wrong when you see the doctor. I'm always hoping to hear that something has improved, not that I've got something in addition to what I already have. You come and vent anytime here. We're here for you all the time and I'm praying for you. You're always in my prayers and I hope that you start feeling better soon.

Take care,

dx fibro, SLE, glaucoma, cateracts, bells palsy, depression, migraine headaches, gastreopaersis, chronic anemia, MDS (Blood Cancer). Mediport and tons of meds.

Posted By : mom46 - 4/15/2007 7:13 PM
Hi Leta,
  I'm also sorry to hear your having rough time...((Hugs)). I hope things turn around for you soon so you will feel better. Like the others said, vent anytime you need too. We are here for you. Please take care and update us when you can. You are in my thoughts and prayers.
                                                         (((Hugs))) Babs

 Co-Mod: Lupus Forum
 Lupus,RLS,RA,Asthma,Fibro,Sjogren's,Raynaud's,Divertic, Stroke,Atherosclerosis,Seizures,Sensory Polyneuropathy
mirapex,advair,foxamax,donnatal,folic acid.
JOB 5:18 For he wounds, but he also binds up; he injures, but his hands also heal.

©1996-2017 LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer