The original version of this page can be found at :
Posted By : Snue - 5/11/2016 9:00 AM
For years, I have been struggling with chronic illness and trying to continue working. I was dx with FMS and CFS and just kept going down hill. Finally, 16-18 years later I got my Dx of Lyme and have been going through treatment and am finally improving. It has been such a long hard journey. I have lost many friends along the way. Very grateful for my husband who has stuck by me this whole time.

But what is very disappointing has been the facility I work for and my boss and the senior management. They like to walk around and say we are a "family" when in reality they are full of it!!! Once someone gets sick or has problems, that is it, they are looked down upon.

When I was so desperately sick and trying to figure out what was going on with me, and trying to work, etc. I received NO support, no concern, no compassion. And just recently I found out my boss was telling people I was a hypochondriac.

I am SO ANGRY! I really need to find ways to let this go. It is not good for my health. Right now I am feeling better and am looking for other work anyway. I fantasize about my last day and telling people what I really think of them!

Just needed to vent to people who would understand. thanks for listening,
Chronic Lyme Disease.
16 years of being misdiagnosed with Fibromyalgia and Chronic Fatigue Syndrom.
Also have RLS, UARS (like sleep apnea), hypoglycemia.
Infected with Lyme Disease 1999.
Started Lyme Disease Treatment 2014.

Posted By : DaveNJ41 - 5/11/2016 9:25 AM
Sinue...there is really only one way I can put this, and sorry to be so blunt...but **** them!!! I have the EXACT same situation at work. You have two options- find a new job, somewhere where hopefully they respect you and can be empathetic or stay there and learn to let go of the anger and other bad feelings; because in reality, no one will know what you're going through, not even on this forum because we all experience different symptoms and a different struggle. Corporate america does not give two craps about you, your health or anything else. I wouldn't burn any bridges though if you want to remain iny our field, if say you find a different job. It may feel good to tell people what you think of them, but in the long run is it worth it?

If you really hate it there, I may suggest to look for a new job. That's what I'm doing. Been here 3 years. Mostly everyone here knows I'm going through chronic lyme treatment, but because I look healthy, they either assume I'm fine or making it up. And working from home or getting special considerations for my health? Forget about it.

Posted By : Snue - 5/11/2016 10:05 AM
DaveNJ41, thanks for the response.
Now that I am feeling much better (lyme literate doctor and treatment helping me) I have been looking for a new job, plus we want to move out of the area we are in. But the market really sucks out there, so it's been hard. But I think I have a plan that will hopefully lead to a move.

I know what you mean and you can be as blunt as you want. I totally agree. F them! It's just been a lot and it has been hard to go through.

But it's not just me, I see the same scenario with others here as well.

When the time comes and I am ready to go, I will think of something to say that is appropriate, says what I mean without burning bridges and being mean. Can't wait till that day!!!!!!!!! Been here almost 17 years. Beyond time for a change!
Chronic Lyme Disease.
16 years of being misdiagnosed with Fibromyalgia and Chronic Fatigue Syndrom.
Also have RLS, UARS (like sleep apnea), hypoglycemia.
Infected with Lyme Disease 1999.
Started Lyme Disease Treatment 2014.

Posted By : Girlie - 5/11/2016 12:17 PM
I had a boss who was very cool...and not sympathetic at all. But, I had some great co-workers who made up for that.

It's been three years for me - not at work - and that boss has moved when I go back I don't have to deal with her.

That's great that you have a plan...and it will be so sweet to say your 'piece'.
Moderator, Lyme Forum
Symp started April/2013; Buhner's Lyme May 15-July24/14; Igenex pos. July 3/14
Doxy: July 4-Aug.24/14;Zithro July26-Aug24/14; Amox + Proben. Aug. 29/14; added biaxin Sept. 26/14 Disc. amox,added Ceftin Nov. 20th.; Disc. biaxin added Buhner bart herbs Dec/14;Jan/15 pulsing Tinda (w/ Ceftin); Abx/herb break Apr-July/15; July-mino; Aug. added Rif; Nov. switched mino to biaxin.

Posted By : Traveler - 5/11/2016 12:55 PM
When you are ready to leave that company, go to HR or at least your Boss's boss and tell them what was said and how it affected your productivity and feelings of "family" there at work. Think of things to tell them about that they WILL care about. The things that they don't want - unproductive workers, loosing money and bad publicity!! devil

This is the one reason why I've been at peace with not being able to work for most of my adult life. I don't have to deal with the idiots that have no compassion for others.
Herb only treatment for Lyme & Bart ended 12/11 - no active symptoms for 2 yrs -Herb only treatment for Babesia ended 12/12
Had Lyme, Bart, Babs, RMSF, Ehrlichia, Myco, Anaplasmosis, EBV
New Lyme case 8/2014 - Healed 1/31/15 - unknowingly had Asymptomatic Babs and Asymptomatic Bart, being treated now though (2/2016)

Posted By : Rikky1 - 5/11/2016 12:56 PM
The only way such folks will ever truly understand your situation is if they walked in your shoes. Unfortunately (well fortunately for them) almost none of them will. It would be great if we could impart our symptoms on others for just a week and see how they fold like a cheap suit.

One thing this disease teaches all of us is to be more compassionate to those who are struggling and are not "normal" so speak as we've been the recipient of that same insensitivity and lack of understanding during our trials and tribulations.

©1996-2017 LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer