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|Posted By : missmolly - 8/6/2008 8:27 PM|
|I have been diagnosed with a migrainous stroke and am terrified. There doesn't seem to be alot of info. on it out there, can anyone tell me about it or share your experiences with me if you have had a migrainous stroke. It would be greatly appreciated, and I hope you all have a migraine free evening. |
|Posted By : ryand - 8/9/2008 1:43 PM|
|Hi, missmolly. Welcome to HealingWell. I don't usually post in the Migraine forum as my migraine are blessedly somewhat infrequent (I usually only get one every 6-9 months). But I wanted to respond to yours because it sounded a lot like something in my family history. My mother also suffered from migraines, as did her grandmother, and they both also suffered from a condition we were told was called "Transient Ischemic Attacks" or TIAs. These were in essence "mini-strokes" that they suffered. My great-grandmother had something like 100 of these TIAs during her life. She died of a stroke, but not until she was in her late 80s. My mother had at least two TIAs that we know of. She died of an aneurysm in her early 40s. I have had one migraine which my doctors suspect may have in fact been a TIA, but I have had no further indication of the condition. I did have several scans and tests done which had some initially kind of scary results, but ultimately they have decided that I just have garden variety severe migraine with aura. Again, I am just thankful that they are no more frequent than they are.|
I have not heard of migrainous stroke, but the name itself sounds so much like the TIA issue that my family has dealt with that I thought perhaps they are different names for the same issue? Or different variations of similar conditions? Check out the TIA information you can find on the web and see if that relates to what you've been told already. Maybe it will help.
I wish you the best of luck and hope you are able to find some good information. I do not blame you for being scared. Be sure you keep your doctor informed about how you are struggling with the diagnosis too. They may have some ideas of counselors or even other patients you could speak with who could help you to process all of the information.
|Posted By : Parrotrosie - 8/10/2008 7:49 PM|
I went for five years with a diagnosis of a TIA or ministroke or stroke brought on by migraine. I ended up in the emergency room with total one sided numbness and partial blindness. All symptoms passed within an hour and I had a raging headache afterwards. Just this year, after five years of follow up tests, I finally got to a Neurologist that is a headache specialist and after he looked at all my tests , he informed me that it was NOT a TIA or stroke of any kind but a 'complex migraine' and they are fairly common. If you look up that terminoligy your search should yield better results and see if your symptoms match
So, I am not sure who diagnosed you, but you may want a second opinion from a headache specialist just to alleviate your concerns and save you years of tests that you might not need. And if it was a true stroke or mini stroke , you would want proper treatment for that particular issue as well so long term you have the best health outcome possible.
In my case, I have not had any other issues like the one that landed me in the hospital, just the regular run of the mill migraines that annoy the crud of you on a weekly basis Got good treatment from my new doc and have decent relief finally so my story ends well, so best of luck to you with your health as well
|Posted By : kglbryan - 9/29/2008 10:17 AM|
|Hi. How are you and have you learned anything more? I hope you are well.
I have suffered migraine with aura for many years but not too frequently. In the last 2 months the frequency has increased to 1-3/week and after a particularly bad migraine 3 weeks ago, all my visual symptoms did not subside. Since that time I have had constant visual distortions, resembling, though not as severe as my migraine aura. The doctors suspect migrainous stroke and I am scheduled for an MRI this week. I too am terrified and wondered how you are and if you have learned any more?
|Posted By : Leroy - 1/4/2009 7:05 PM|
|Dear missmolly: Just found your post as I was researching migrainous stroke. Almost two years ago I had a migraine, then experienced stroke symptoms and ended up in the hospital for two nights. I was diagnosed with a stroke. While the neurologists at the hospital dismissed a tie-in with the migraine, I was later referred to a neurologist by my physician. After listening to my description of my migraine history as well as my recent stroke, he called my stroke a "migrainous stroke." He seemed very familiar with the problem, and printed out a lengthy article from a journal that described migrainous strokes.|
Fortunately, my recovery has been complete. I had some visual-field limitations for a short while - couldn't pick things up in my left eye peripheral vision - but that resolved the next day.
I totally understand your fears - since then I have had a lot of trouble dealing with a new-found sense of mortality. I must admit it still pervades my thoughts - that's how I found your post, as I was once again looking for any new info out there. What I have done is alter my life style as much as possible - exercise, reduced fat intake, reduced salt intake, no more alcohol. In some ways the stroke was a wake-up that has made me reassess how I'm living my life. I am now on a statin for cholesterol and a calcium channel blocker for blood pressure as well as the headaches. My BP was never really an issue, but during the hospitalization it was elevated and there were some artifacts of some issues shown in all the testing done. I also take an aspirin each day.
Interestingly, my headaches have all but disappeared. There is a report out there somewhere that the same thing - decrease in migraines - has been noted in other victims of migraine-related strokes. If you search enough, there is some info on the 'net, but it's limited and not too informative.
Enough about me - I hope these last few months have been good ones for you, and that you can get your episode off your mind. My greatest advice would be to do everything you can to reduce any and all risk factors you have -
|Posted By : INR - 11/18/2011 5:06 PM|
Hi. I am new to this forum. I was wondering if anyone has similar symptoms after stoke as described by KGLRYAN above regarding "constant visual distortions, resembling, though not as severe as my migraine aura".
The above are exactly the same symptoms I am having after my visual stroke which happened on 10/08/2011. They have improved but are persistent for close to 6 weeks. I was wondering if anyone else experienced similar symptoms?
|Posted By : ShortcakeamI - 2/18/2012 11:36 AM|
|So sorry to hear you are suffering from these horrible, and scary migraines. They are however called Hemaplegic Migraines. It took them several years, tons of test and an array of meds to figure this out. I am allergic to triptans, but come to find out, if you have such migraines you DO NOT take them, they can lead to an actual stroke. Unfortunately, I have to go to the hospital and receive I.V. medication of..Solu-medrol(steriod) which stops the stroke like symptoms, pain and nausea meds and of course fluids and oxygen. I hope you and your doctor can come up with a preventative med that can keep them from being so frequent. I take Neurontin, which does help.|
All the best,
|Posted By : Paininthe - 2/20/2012 8:11 PM|
|G'day Miss Molly,|
I am 33 and have had migraines since i was 12 or so. They were always predictable, in that every time i had one there were always 3 similarities, It would always be a bright day, cool temperature, and i would have been doing some exertion like a light jog etc. I had several optometrist examinations and all they would always reveal was that i had very thin blood vessels in my eyes, so i always attributed it to this. Typically my migraines would begin with an aura, and then about 5 minutes later, my migraine headache would start. At the start of january this year, i had a migraine headache begin instantly with the aura, and hit me hard. I drove home and slept for 3 days straight without being able to keep food down due to the nausea. My wife had the sence to take me in to emergency where they made me wait several hours, administered me an injection to deal with the nausea, and the, gave me something for the headache. The aura remained. I saw my gp, and he refered me to an optometrist the following day. A week after the first symptoms, i saw an optometrist, which did a basic test by making me look with each eye in turn directly at her and holding several fingers up on each hand at different positions in my perifery discovered that hte aura was in the upper right quadrant in both eyes. She had basically discovered that the issue was not my eyes, but my brain. She directed me to my gp, who recommended i go to the eye and ear hospital that night for a ct scan. CT scan showed i had infact had a stroke. I was transfered to another hospital which carried out further tests. Cholesterol, sugar all fine. Eventually they found a hole in my heart which apparently affects 25% of the population. Mine was slightly bigger than average. The theory was that when someone has a normal heart, any clots that form go straight into the lungs which "filter" the clots prior to going through the brain etc. with me, they bipassed the heart and caused the damage to a portion of the occipital lobe. My vision defect has a name "quadrantanopia", luckily i am able to drive, and although the vision damage is permanent, i feel i dodged a bullet. I am on warfarin now for the clotting, and in the process of seeing a cardiologist to see if it's worth fixing my heart. I chuckel at the stroke posters which i see around prompting people to be aware of the simptoms, as i feel a lot of migraine related strokes go unnoticed, and people may not know they're having one, but may still be at risk of a major one. As they say in hindsight everyone's a genius, but looking at the circumstances associated with my migraines, i feel i may have been having TLA's, due the bright light constricting my vessels, the cold thickenning my blood, and the physical exhertion forcing things through the hole im my heart. I once read that strokes were more common in england during winter for similar reasons.
Hope this helps someone.
|Posted By : Hoagie - 8/3/2017 8:11 PM|
|I just ran across this. I was sure I had Lyme, and maybe I still do, but after reading this thread and a recent brain MRI, I feel this is what is going on.|
OK, so since I was a young teenager, I have gotten migraines with aura. They were never a normal occurrence though. I would have a couple per year as a teen, then go years, then have one one maybe another later that year. I went a good 10 years without having one, then when I was 31, I was going through an exceptionally stressful period, and I got one. Always the aura first with nausea, fatigue, and a headache about 20 minutes after. So, I ended up having 2 or 3 that year. Then none for like 7 years, then 2 within a few month period. I remember I got one while driving and pulled over. I remember not being able to comprehend simple words during the aura period. I remember think I might be having a small seizure or stroke.
A couple years go by and I have another couple. I figured out at that point how to avoid the headache and nausea eating a full meal, drink plenty of water, and taking 2 excedrine migraine capsules at the onset of the aura.
So, I went camping in VA last year last Spring. Found a tick on me, a couple actually, but one on my ankle ended producing the classic bulls eye rash. I ended up getting abx for it and thought I was done with it. Since the bite I have been migraine central. I had 2 in one week one time. Another time I had the aura, it went away, then another aura an hour later. Really strange. Anyway, I have recently started having issues walking. Ataxia like symptoms with my left leg being the worst. I had another migraine 3 weeks ago and since then noticed some tingling in my left arm and difficulty using that hand a little. Luckily I have seen a neurologist 2 weeks ago. At that pointy in time I mentioned the migraines, but told him that I had the feeling that the walking issues I am experiencing is due to Lyme.
They ordered and EEG and brain MRI. The day after my brain MRI, yesterday, I received a call from the neurologist office and they told me i need to go get another MRI with contrast because they found some abnormalities on the MRI and they wanted one with contrast to compare it with. That is all they said and they were about to hang up with me. I was like, Whoa, you can't just leave me with that. I needed some more info. So, they put my doctor on and he explained that it was nothing life threatening, but my MRI had showed some lesions that looked as if I had been having mini strokes. But, he couldn't be sure. He suspects that they might be from the Lyme. And maybe Lyme is involved with the uptick in frequency of the "migraines", but I am almost convince, now, that I have been having mini strokes.
Luckily, I can control them, thus far, by staying hydrated. I have a horrible habit of just not drinking water. So, until I get this next MRI and see my neuro in 2 weeks, I am drinking a gallon of water a day and taking supplements that support healthy blood circulation.
I hope we find out whats wrong and can reverse the walking issue.