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Posted By : Jenbug731 - 9/6/2008 10:34 AM
Just wondering if anyone here wakes up with their headaches ? It seems like 9 times out of 10 i wake up with my headaches. I know if i sleep long i will get one so i usually try and get up at the same time every day. I woke up with one today...just a small one ( a 2 on a scale of 1-10) but its annoying. I took my dose of keppra this morning, along with 2 tylenol , my calcium with magnesium pill and 200mg of B2. ..and i drank 1/2 a mocha for the relief so far. I have some xanax and im wondering if that would "loosen" things up for me...cause the pain in my head it a TIGHT feeling. anyone else wake up with headaches like this? and if so, what helps?

Chronic Daily Headaches/Migrains

Meds-Keppra 1000mg/day, Imitrex, Relpax

Posted By : ryand - 9/8/2008 12:15 AM
I actually wake up with headaches quite frequently. I am fortunate that I only get a full on migraine every few months, but when they do happen, they almost always come on during the night while I am sleeping. I am typically woken by the pain and nausea and by that time I'm in the middle of a full blown migraine attack and cannot keep anything down to treat it. Often for me this means an eventual trip to the ER. In the last 10 years or so I have begun to have an occasional migraine that comes on during the day, which has led to the discovery that I do indeed get the "aura" before the pain. The first time it happened it scared me half to death b/c I'd never been awake for that part before. I thought I was having a stroke or something!

Anyways, since most often my migraines and even basic headaches do come on during sleep, I've had to try to find ways to mitigate this. None of the migraine abortive meds have worked for me, and I haven't tried any of the daily meds since the migraines are not super frequent for me. The one thing I've found, though, that I swear by, is IcyHot patches. I know - sounds weird! I have found that if I start to feel a headache coming on or wake up with one, I get up and get an IcyHot patch and put it right on my forehead and then go back to bed and try to get back to sleep for an hour or two. The menthol scent in the patch helps a little, and the cool feeling from it penetrates my forehead and relaxes the blood vessels that are in spasm causing the headache. For me, this works better than any medication ever has for most headaches. It does not cut a migraine for me, but as I said when I get those they are full blown before I can do anything about them, so the only thing that helps me at that point is IV meds at the ER. But for all other headaches, I can't live without my IcyHot patches! They are even on my list of essentials to pack every time I travel!


Posted By : Jenbug731 - 9/8/2008 2:37 PM
Thanks for the tip...i may try that. I often will wake up and get a cold rag for my head..but then get up multiple times to re-wet it so the icyhot patches sounds like a great thing to try! Thanks!

Chronic Daily Headaches/Migrains

Meds-Keppra 1000mg/day, Imitrex, Relpax

Posted By : sweetradish - 9/21/2008 10:59 PM
my friend had this problem and she sleeps with a mouth guard to prevent it. She found out she was biting down very hard in her sleep. They have mouth guards at the pharmacist about $15

Posted By : headcase3 - 9/21/2008 11:18 PM
I often wake up with a headache---sometimes a migraine, but more often a regular headache that I know will turn into a full-blown migraine if I don't lie down in a dark room. So I spend a lot of my time sleeping by day and staying up late at night. Thanks for mentioning the IcyHot---I will try it this week.

I am on a combination of Klonopin and Keppra---has anyone had success with these?


Posted By : iluvsunflowers15 - 9/22/2008 5:14 AM
I usually wake up with a headache every morning as well, but I wonder if its a rebound headache due to the medication havng caffeine in it????

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Posted By : diamond girl - 10/12/2009 4:48 AM
For the past 4 months, I have been suffering from waking up from headaches.  It starts out from the back then works its way to the sides of my head.  Just recently, I have also been slightly feverish.  As soon as I get up, and massage it away or take some asprin, it tends to go away.  Then after about an hour or so, I will sometimes fall back asleep, only to wake up in the same condition as earlier.  I have been to my doctor and he says it was due to high blood pressure.  Well, I am currently on medication for it, but I am still experiencing these headaches that are really working my last nerve.  I tried cutting down on salt, eating smaller portions, and waiting for at least an hour after eating before going to bed (assuming that was the problem at one time).  Would anyone know what could be causing this, and what solutions I could use to remedy this problem?  Thank you.

Posted By : onlyafterdark - 10/12/2009 9:09 AM
This could be a serious issue. I've had migraine almost all my life but never experienced this. Do see a doctor about it. Also, you can ask about fioricet. This is my pain reliever for bad days. This might help you too.

Posted By : april417 - 10/12/2009 6:30 PM

Ryand and anyone else

I was just wondering, when you go to the ER for your migraines what medication do they

give you???


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Posted By : nursejenn1012 - 10/13/2009 5:58 PM
get checked for sleep apnea......

God will Give me nothing i cannot handle--i just wish he didn't trust me so much

Posted By : april417 - 10/13/2009 7:47 PM

I never had a sleep study.  The only problems I have with sleep is not sleeping and when I do sleep I always wake up dripping wet of sweat.  I'm not sure what that is from but I do have to change my pj's and my sheets about 3xs a night.

Nothing in life is easy...............

                                   Total Coletomy Feb. 07
                               Total Hysterectomy Oct 08          
Synthroid, Lamictal 50mg, Cymbalta 60mg, Trazodone 50mg, propranolol ER 60mg for migraines,  and Ambien CR

Posted By : tysmyboo - 10/14/2009 2:00 AM
It sounds hormonal and according to your signature you had a total hysterectomy, I understand that hormonal changes (night sweats/hot flashes) are pretty common.

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Posted By : mercyme - Yesterday 3:58 AM
  I'm up at 4:00am with a migriane that woke me during the  night.  I't 6:00 am right now and I still have the  migraine.  I've been dealing with migraines most of my life. I also dealt with epilepsy for over 25 years of my life, but since my brain surgery I've been seizure Free.  These migraines are getting worse as time has gone by.  I'm 46 years old, otherwise healthy. I deal with migraines almost on a daily basis, the one I have this morning is really bad.  I got up and took a fiorcett it's not kicked in yet, not sure it will help.  I've been on so many migraine meds with no results. I go to my neurologist next week, but I really don't know why, there seems to be little he can do. He has started all over giving me meds that he gave me a couple of years ago, not sure that's the answer.   He has mentioned botox but my insurance will not pay for that.   They inject it into your head and neck, was hoping to get this done, but I can't afford it.  I know there a migraine brain surgery also, but I really don't want to go through another brain surgery.  Things are getting bad, and I need some relief soon.  I am under stress right now, so I'm sure that is only making things worse.  Thanks for reading my post.  God Bless you all, I understand your pain.

Posted By : paultxrn - Yesterday 5:28 PM
I suggest you see a dentist to evaluate for teeth clenching. Waking up with a headache is a classic presentation, especially with tightness in the face, head and shoulders. I am now wearing a device (NTI) that keeps my teeth from touching at night. It has made a significant difference for me. I also take Neurontin 300 mg twice daily as a preventative, and Midrin/Frova as abortives. I am very pleased with the NTI. I paid $512 but it has been worth it. Google it and go their web site. That's how I found a dentist in my area who was able to make the device for me. I have gone from taking Midrin every day and Frova once/week, to taking Midrin once or twice a week, and have not needed any Frova since I got the device. Good luck.

Posted By : mercyme - Yesterday 7:10 PM
I have seen a dentist, and there is no problem with my teeth. I had brain surgery several years ago, and had crainoplasty surgery this year. I think it's just a combination of things. (crainoplasty surgery (incase you don't know) is when they go in and repair your skull. I had some large indentations from the first brain surgery so the surgeons fixed that and took out the screws. guess after reading this you understand why I would have migraines.


Posted By : OnTheRocks - Yesterday 9:16 PM
Besides the obvious things like checking for sleep apnea or dental problems (TMJ, clenching, etc.), I'd recommend: maintaining a routine sleep cycle, sleeping in a cooler environment, and not eating or drinking anything besides water 2-3 hours prior of when you go to sleep.

Posted By : Nomoremigraines - Today 10:49 AM
I suffered from chronic daily severe migraines and over the summer heard about PFO & ASD both of these are small holes in the heart that have been linked in the last couple of years to migraine headaches.  Some of the bigger research hospital sway that 50% of all chronic migraine sufferers have this.  You can look it up on the internet by doing a google search for PFO & Migraine headaches it will bring up several articles for you to read.  The internet will tell you there are usually no symptoms but a Cardiologist will tell you differently.  Here are some of the symptoms:
Shortness of breath
Chest infections/tightness/ wheezing 
Migraine headaches
My Dr also said that in the 30th and 40th year of life these symptoms get much worse.  Just a thought.  Some people truly have 'classic migraiones' but others like myself have this PFO.  I had mine repaired 9/29/09 and feel like a different person.  I haven't had a migraine since.   I was lucky that I had not already suffered a stroke which is usually the way this is found.  Severe daily migraines would be about the 2nd.  Some Doctors would probably disagree but I went to UAB in Birmingham Alabama which is a huge teaching and research facility.  One of the top 10 in the US.
I am currently getting off all preventive meds (Topamax etc)
Good luck!

Posted By : kandyman - 10/22/2009 11:33 AM
I have woken up many times with a migraine and they are SO NOT FUN. I have found that when I heat up one of the rice bags and lay it across my eyes, it helps so much. It helps with that pressure you get from behine the eyeball and the sides drop down to my temples and the heat help me. Now I still have to take my Midrin, but this is a good relief until it kicks when. Hope this helps.

Posted By : zachharris420 - 5/6/2010 7:55 AM
iv been waking up the past few days at 4 in te morning with a heead ache. remedy(i swear this works try i): hop in the shower. on full blast just relax and breathe calmly and relax your face. get eather a rag and warm it in the microwave or get one of those hand warmers. icy hot works to., amazing.

Posted By : cymba - 9/24/2010 12:33 AM
   I too have been waking up with headaches for many years now.Still cant figure it out.Seems as soon as I lay down within a few hours I wake up with pain in my head and sinus area pressure.Just had my ears nose and throat checked by specialist and they were all clear.He seems to think it is sleep apnia.I do not sleep well and never have but I could see waking up in the morning and having a headache, but only after 2 to 3 hours of sleep i wake up with a headache.I have to sit up usually on my sofa and take some excerine migrane and massage my face area to relieve some pressure but then my body is nervous from the pain and scared to ever lay back down.I have had headaches since 15 years old and I am now 41 and has interupted my life enough.I actually have to plan my day around a headache.I need some relief quickly because I am starting to get stressed out and that makes my headaches worse.I am thinking of getting a mouth guard and trying that.Where do I have one made if anyone knows? 

Posted By : Lotusrising - 10/14/2010 12:48 PM
Try Migraine Ice for cooling patches! I love them and often sleep with one on, secured by a thin headband.

things swell when you have REM sleep

i think it's not unusual therefore to feel migraine-y in the morning
and yes rebound can make it worse
but what can you do?
sometimes dealing with it earlier prevents worse things.

Posted By : leemaria - 10/21/2010 12:44 AM
Yoga is a good way to keep away from the headache . Yoga not only provides you physical fitness but also provides mental peace and it helps to relives the stress .

Posted By : DawnR - 10/22/2010 6:17 PM
Hi, I suffer with daily headaches and migraines and have done for sometime.

Last week I went to see a doctor at the City of London Migraine Clinic. I had to do a headache diary for 3 months and she has come to the conclusion that although I don't take painkillers every day, I tend to take them every time my head is very bad, that they are making my head worse. I was taking a painkiller called Syndol which is only available in the UK. It is meant for tension headaches but has caffeine within the tablet. The Doc said this is making my head worse so I need to come off these and take aspirin or paractamol only and she is giving me amitripyline to take 3 hrs before bedtime.

She also looked at what I ate and drank. I am only allowed one glass of diet drink a day and must drink at least 2 litres of water a day. She also mentioned it is good to have a snack/piece of fruit between dinner and bed as sometimes the drop in sugar levels makes you wake up with a bad head so this may help.

So it may be worth you trying a painkiller without caffeine or eating an hour or two before bedtime.

I have followed her advice for a week now and my head is already better. Some days the pain scale has been a 3 rather than previously 8/9 but 3 days out of the 7 I have been painfree, the best I have felt in months. I have to trial this for 3 months and see how I get on.

Posted By : IamOctober - 11/13/2010 7:02 AM
I get the SAME symptoms of "diamond Girl"

I wake up with SEVERE migraine, and SEVERE nausea-
Then as soon as I stand up and deep breathe it is gone, and the migraine turns into a dull headache for the rest of the day...
But then I go to sleep and wake up again (always TOO early) with these severe symptoms.
Im not grinding my teeth and dont have sleep apnea.
My neck is sore too and if I push on the back of it I get nasuesous.
I never had this before in my life. Then monday night I ate canned pumpkin and the next morning it started this cycle. So At first I thought I had some kind of tetnus causing mucle spasms in my neck giving me a headache, then my dad thought I had an anneysrm but I dont have vision issues. Then I thought I had vertebral artery syndrom but I dont get vertigo or nystagmus.
Why would I have these symtpoms SO bad when Im lying down and not standing up? My blood pressusre = 110 / 60 ?!

Posted By : Beth5245 - 11/17/2010 7:28 PM
I have had shortness of breath for several years due to a rare type lung cancer (fortunately slow growing). A few years ago I started getting morning migraines and frequently be awoken with a migraine. My doctor prescribed oxygen for shortness of breath and sleeping at night. Guess what? Once the correct titration was set -up (too low at first) no more migraines. I had gone to a migraine expert and he couldn't help and all he wanted to do was prescribe meds. My gynecologist thought it was hormonal and perscribed Frova - that helped until my insurance company wouldn't pay for it. Next I discovered 2 Excedrin migraine pills and a coca-cola would help relieve the symptoms BUT nothing helped better than prevention of the migraines with sleeping with oxygen at night. If one has migraines after sleeping I would suggest #1 at least a sleep study where C02 is measured as well as oxygen saturation. #2 get your doctor to prescribe a concentrator at night and try that. :-)

Posted By : Moonlightraine - 1/3/2011 10:03 AM
Just figured out that eating too many sweets causes me to wake up with a severe headache. Over the holidays, I woke every single day with one (I don't use the "M" word as my mother has debilitating migraines). After the fifth day, I realized I had been eating a lot of desserts, and quit. Next day, no headache. I also can only rarely drink, and then only with food and very little. If you use caffeine as part of your routine to reduce the pain, which I do, you might try using splenda and nixing the chocolate. BTW fioricet, works for me usually, but be careful it is highly addicting. And, yes, your body does build up a tolerance to it.

One more thing I do: binaural beats. I use a headache killer one in my ipod after I take coffee and Tylenol (can't take aspirin of ibuprofen any more). I lay down and listen for about half an hour. Works well with most of my headaches.

Posted By : Cynthlu77 - 6/12/2011 10:48 AM
I have the symptoms that nomoremigraines describes as PFO symptoms. I have headaches (mainly migraines that vary in intensity), vascular headaches (sharp stabbing pains lasting from a few minutes to hours), to just your plain ole' dull throbbing headache. I wake up with a headache about 90% of the time as well. I also have a form of asthma, but I've only been told that I have mild allergic asthma...yet I've had attacks that would send most to the hospital (I take a nitroglycerine pill of my dad's when I have an attack). The fluttering feeling is what I would also call palpitations. I stay tired ALL the time, it's not the normal kind of tired either. I am constantly having bronchitis, which is absolutely annoying since I'm in nursing school. Another thing that annoys me is that I'm in the medical field yet no one seems to want to actually dig deep enough to really help me. They just prescribe this and that and I usually have some horrible side effect and have to stop. I'm a 33 year old single mother of three so this all affects me being able to provide for my kids and to finish nursing school without any issues. I also read where it was stated that PFO ususally worsened around age 30 and up, well that's definitly true in my case! I use to not have such a hard time with feeling so bad, but now I almost feel like I'm in my late 60's or older. I have really become depressed over my situation and I am desperate to find an answer, but I have no health insurance and couldn't afford it even if I wanted to. Where's the help for those of us who desperately need it? I mean the new Obama Healthcare won't help me at ALL! I can't afford insurance now so what makes him think I'll be able to afford his new plan???? Really there should be more control over who recieves help, let's take those who are just baby making, drug addicts and so on...just so they can have a medicaid card and dump them off on Obamas plan. They might put on some protection and go to rehab or AA...
Anyway, I'm just feeling at my wits end with my lack of energy, headaches, tiredness, palpations, and about ton of other stuff. If I could afford to I'd definitly go find out if I have this PFO!!

Thanks for the post on that, the public is very in the dark when it comes to new things out there!

Posted By : - 10/14/2011 10:11 AM
We do have syndol in North america, but it is marketed under the name of mersyndol ,you can also get generics over the counter with tylenol and codiene and caffiene at a fraction of the cost.
My headaches are are depressing me now , i wake constantly through the night , i dont have any neurological history ,epilepsy ,migraine etc ,after a routine dental checkup my dentist observed that i was teeth clenching and has recommended a night guard ,pray to God that insurance will cover it :(

Posted By : NY Veggie - Yesterday 2:13 AM
I have to use a night guard to sleep as I also clench my teeth (ever since 9/11, I live near by) I couldn't afford the ones made in the dentists office (about $500) so I decided to try to cheap ones sold at our drugstores here. They cost about $25 and are easy to set up with the enclosed directions. I've been using them for a few years now and they have helped a lot
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Posted By : A Curious Woman - 11/14/2011 7:32 PM
I recently made a discovery about my own headaches that seems worth sharing in this thread. I, too, have headaches at wakeup ... have had them all my life really ... and have tried every remedy I've rummaged up over the years, from supplements, to dietary changes, etc. I usually use Zomig to knock em back down again, but I keep searching for the cause ya know? Who wants to be a slave to a prescription med forever. I keep a regular log of my sleep, diet, and headache activity, and have found so many seemingly good correlations, only to have them discredited later on by a resumption of the headache cycle. One thing that seems to be working for me tho is this ... I avoid eating after around 6 pm in the evening, and go to bed no sooner than a good 5 hours after eating ... 11 pm or later. Why does this matter? Beats me. In fact, I found this headache thread while researching possible reasons for this, but it nevertheless has been amazingly successful at preventing my wakeup headaches. I have found that I can eat a little after 6 pm, but it can only be carbohydrates, and not too much ... no pigging out. Protein is a definite no-no. But the general rule I am following is to be done eating around 6 pm, and no sooner to bed than 11 pm.

Hope this helps some of ya ... I definitely know that feeling of despair! Good luck!! :)


Posted By : duneunit - 11/15/2011 10:43 PM
High quality Omega 3 fish oils have dramatically reduced the number of migraines and headaches I get. I am sharing this little history because it might help someone else...

I had been getting migraines all my life since I was 7 or 8 years old. When I was a teenager, I drank a lot of coke and the caffeine made things worse. Particularly withdrawals. By the time I was 19, I quit drinking anything with caffeine. After this, any time I had even the smallest amount of caffeine, it would trigger a migraine.

Around that time, I starting questioning my diet and I became vegan for 10 years. (In retrospect, not a wise move for me.) From 20 to 30, the migraines would come and go. Some months I would get one. Others it seemed like I'd get 2 or 3 in a month. Basically, I'd be in horrible pain and could function for 12 hours or more. I had a horrible sleeping schedule. Stayed up late. Did not eat regularly. Etc. By the time I was 32, I woke up with a headache every other morning. And got a bad migraine about 2x a week.

I avoided alcohol and drugs in my life, including pain-killers. (Everything I tried for pain just made the nausea worse and I couldn't keep them down. That, and they didn't make a dent on the pain.)

This went on for over 3 years. It was awful. I did everything I could to avoid the triggers. I did my best to go to bed early, eat at regular times, and I always avoided caffeine, chocolate, nitrates, MSG, canned tuna (I know, a strange one, but definitely a trigger for some people), red wine, and a few other things. Those things would have made everything worse, I'm sure, but I still suffered tremendously.

One day, researching migraine stuff (again) I read about norepinephrine's possible role with migraines. Then, an hour later, an I read an article about Omega-3 fish oils effect on norepinephrine and other neurotransmitter production. My girlfriend at the time had just bought some fish oils, so I asked if I could try them. At that point, I was waking up with a headache every other day or so. And I was getting migraines about 1.5 times a week. I started taking the fish oils. AND THE HEADACHES AND THE MIGRAINES NEARLY STOPPED. 1 week after I started taking the Omega 3 fish oils, I was shocked that I hadn't had a headache in a week. That was over 8 years ago. And the difference is night and day.

In the last 8 years, I still get an occasional headache or migraine. Probably once every 2-3 months or so for each. And as I see it, they are almost always connected to a bad sleeping/eating schedule (staying up late is a hard habit for me to break completely). I still avoid the migraine triggers religiously... particularly caffeine. But my life is so much better after trying the fish oils. (If you try this, get the high quality stuff. Nordic Naturals is what I used. The cheap brands taste awful and are, in my opinion, rancid.)

Just thought I'd share. I really hope this helps someone else as much as it helped me.

Posted By : Rachelis - 12/15/2011 6:41 PM
Also if it is cheaper going along with the Icyhot patch idea, you can use Vix Vaporub or an off brand of it. The menthol in there does the same thing. I just rub it on my forhead and try to relax in a dark room. Also I find the smell helps my nausea from my migrains.

Posted By : cellophanemanghost - 12/23/2011 12:23 PM
Most of my migraines occur upon waking, or that's when I feel them :), ...unless they are stress migraines. I keep a Maxalt MLT in my bedside table so I can pop it in without having to get up. If I can stay in bed and go back to sleep for 30 min. or so, it takes care of it. Triptans are the only meds that help my migraines.

Posted By : silke6490 - 2/17/2012 6:44 AM
I've been suffering for the past 2 years severe headaches like i've never felt before. the pain is always in the back of my head, and when i lay down it makes it even worse in pressure back there. I've seen a specialist and he told me i have whats called a Hypnotic Headache. The sad part is, its only found in elderly people and I'm 23 years old (beginning to think i really don't have that type of headache). sometimes when i get the headache showers help. i always get them at night, and sometimes (Rarely) i get them in the day. i can tell when i'm getting them because i start with a tiny headache that becomes worse. my family doctor has me taking 800mg of ibuprofen for it since Tylenol and Advil and every other headache meds no longer work on me. these headaches make it impossible for me to do anything because of the pain. I'm not sensitive to anything, no lights or anything. anyone have this problem as well?

Posted By : cellophanemanghost - 2/20/2012 8:05 AM
sounds like migraine to me. You need stronger meds and should ask your doctor about triptans.

Posted By : frazer - 3/21/2012 6:30 PM
I was waking with headaches every morning for a few years,

someone suggested drinking lots of water, so I tried drinking at least a litre of water each morning, and my headache would go away very quickly.

After a few days of this I didnt get headaches at all any more.

I drink 1 litre in the morning, and try to drink lots throughout the day

I hope this helps some of you

Posted By : jmdoane2 - 7/28/2012 9:32 PM
I had this same problem for years. It was not a normal headache, it didn't "pound". It was just a dull steady pain when I woke up, concentrated on one side of my head. Sometimes the pain felt more like it was in my jaw or my teeth. I began getting sinus infection like symptoms, I felt stuffed up, I had drainage down my throat. Doctors could not figure it out. It got to the point where I could not even lay my head back without getting pain in my head almost immediately.
Finally I did some internet research and on a message board much like this one someone mentioned TMJ - Thrombo Mandibular Joint Disorder. I did some research on that and it seemed to describe my problems precisely. Your mandibular muscle runs from the bottom of your jaw all the way to the top of your head. If you are clenching it at night, it gets sore and sometimes inflamed. This causes what feels like a headache even though it's really muscle pain. Since it also runs right past your inner ear when it gets inflamed it can cause all the symptoms of a sinus infection. If your jaws don't line up with each other, for example an over or under bite, there is a good chance you are clenching your teeth at night and don't even know it.
I looked up in the phone booth for a dentist specializing in TMJ and he confirmed I was clenching at night. He had me fitted for an occlusal guard. Yes, it was pretty expensive, but after wearing it for just a week or so the headaches finally went away. I only have to wear it sometimes now, generally when I've been under stress. Make sure you find a dentist that has TMJ experience and make sure you get an OCCLUSAL guard not just a regular mouth guard. An occlusal guard just goes over your front teeth and has a little blocker-thing in it that prevents your jaws from closing. It's physically impossible for your teeth to clench with this, unlike a regular "grinding" guard that goes over your entire teeth and just prevents damage from grinding back and forth.

Posted By : Sdi2012 - 9/28/2012 9:16 AM
To Jenbug, I too have loved the cold washcloth for my head. Instead of continually getting up ( when you can barely move), try filling a bowl of water with ice in it next to your bed. Put two wash cloths in it, one for your head while the other is soaking. When it gets warm simply switch them. This method after years and years of never having a cold enough cloth is so helpful.

Posted By : Jed S - 10/6/2012 11:43 AM
silke6490 said...
I've been suffering for the past 2 years severe headaches like i've never felt before. the pain is always in the back of my head, and when i lay down it makes it even worse in pressure back there. I've seen a specialist and he told me i have whats called a Hypnotic Headache. The sad part is, its only found in elderly people and I'm 23 years old (beginning to think i really don't have that type of headache). sometimes when i get the headache showers help. i always get them at night, and sometimes (Rarely) i get them in the day. i can tell when i'm getting them because i start with a tiny headache that becomes worse. my family doctor has me taking 800mg of ibuprofen for it since Tylenol and Advil and every other headache meds no longer work on me. these headaches make it impossible for me to do anything because of the pain. I'm not sensitive to anything, no lights or anything. anyone have this problem as well?
I was dx'd with Basilar Migraines. I was waking up nearly every night around 3am with nausea. I had ongoing neck pain that sprang from the top of my neck, bottom of my skull, forward to my eye, cheek, ears. Some times it would be worse than others. Sometimes it would back off and then hit really hard so I could tell the pain was moving from the back of my head to the front. It was also painful, nearly every night, to lay on my head. During the night I would switch positions several times, waking me up all night, to take the pressure off of my head.
After starting the Sumatriptan, I was able to begin Aborting my Migraines. For years I did not know what this was going on with my head. I had a few concussions from car accidents and such. The Abortive medication was not long lasting so I was given Prophalactics. After taking the Cyproheptadine and Val Proic Acid, I have not had the pain in the back of my head like I had before. I do have other Migraine symptoms, some have gotten worse such as tingling on my face and stinging here and there. But over all, I am not having Migraines every day and nausea every 3am-11am.
None of the other Over the Counter meds nor NAIDS helped my head/neck pain. I have had chronic pain from muscle spasms for 25+ yrs and those meds never worked. My Neuro meds are the first meds that actually work for me.
Hope that helps. Like others, I recommed finding a Neurologist for Head/Neck/Vertigo/Nausea pain symptoms.

Posted By : Elisag - 7/23/2014 3:25 AM
Maybe this can help some of you on this thread. I have had crippling migraines since puberty,(I'm now 66), but two years ago I had to go on a gluten-free diet for other problems, and one of the side effects of this diet has been that my migraines have almost completely disppeared, now I very occasionaly get a slight headache but nothing compared with the three day migraines I used to suffer. I also lost lots of other aches and pains and the problems that made me go gluten free in the first place. A completely gluten-free diet isn't easy but far preferable to all the medications I used to take in an effort to reduce the migraines.

Posted By : Penrichardson - 10/9/2016 6:58 AM
Are you still having your migraines? I too have been awakening with these awful headaches since my teens (I am 52). Your situation sounded similar to mine, and I was wondering if you had found a cause for the headaches and something to help.


Posted By : Elisag - 10/9/2016 7:17 AM
Hi Penny, I am still free from the migraines, still an occasional normal headache but haven't needed to take any meds for them since gluten free. Now just started taking coconut oil which is supposed to be great for lots of things, nourishes the brain, especially as preventative for alzheimers and dementia which my mother and grandmother had so heres hoping it works, lots of info about it online and video by Dr.Maty Newport.

Posted By : Elisag - 10/9/2016 7:43 AM
sorry typo Dr Mary Newport

Posted By : Penrichardson - 10/9/2016 1:40 PM
I awaken every morning with a migraine. I feel it lying in the bed and although when I stand up I get brief relief, it comes back very quickly, because it is already set in. I either walk it off or take immetrex if bad. When I lie down in the bed at night I can feel possibility of a headache in the back of my neck depending on what position I lie in-some positions worse than others. I have tried every type pillow and position at the advice of the Chiropractor. Once I get rid of the headache in the morning I don't have any during the day (I used to get them in the day too until I started the Chiropractor).

I've had migraines since my teens (I am 52), which have escalated the past 10 yrs. Have been to Neurologists, Neurosurgeons, Orthopedists, Pain Management. Tried preventives, Botox, Steroid Epidural Injections, Nerve Block, Accupuncture, PT and had MRI's, Xrays and 2 Sleep Studies.

I have bulging disk at C-5 and C-6 although the majority say it isn't anywhere bad enough for surgery. Chiropractor has helped the most in the past few years. The Chiropractor says it looks like trauma to my neck is the cause and probably nerve pinching, so I continue the Chiropractor therapy, massage and neck strengthening exercises. I dread going to bed because I know how I will wake up. Every few months I will awake with NO migraine whatsoever and my mind is clear & I feel so great.

Is this anything like yours?

Posted By : Elisag - 10/10/2016 6:52 AM
I didn't get a headache/migraine every day just maybe every 15 days but they lasted 3 days, and I needed another 3 days to get over them, felt like someone had been playing football with my head, it was just so exhausting, worse as I got older, I found some suppositories that zapped the pain but they left me feeling so nauseous for days that I stopped taking them, the only way I could sleep was to take a couple of strong paracetamol & codeine but sometimes even with these the pain would wake me again after a few hours. I was just so pleased to find that the migraines disappeared after going GF(2012) as it was something I hadn't expected. I have lots of back problems,(artrosis L3-L4,L4-L5 & L5-s1,Espondilolistesis L3-L4with estenosis,disc protrussion L4-L5), but this didn't seem to be the cause of the migraines, I suspect that it was something hormonal as I used to get them in the middle and end of the month. Why they have cleared now I don't eat gluten is a mistery, its not due to end of menopause as I still have hormone problems relating to this. I also have Hashimotos auto-immune thyroiditis and lots of the aches and pains I had before being diagnosed(2009) didn't go with the thyroiditis meds but disappeared after GF so in no way would I go back to eating gluten. Now I also try and eat moderately low carb, (not difficult as I cut out most grains and sugar on GF), this also seems to make me feel much more energetic and less tired and bloated. Maybe you should try GF for a while to see if it does anything for you. Your problem could also be due to dehydration as someone above mentioned, where I live it can get to 40ÂșC in summer and I have found that if I don't drink enough I do get a headache, try drinking at least two liters of water a day plus other drinks, and also cut out anything sweet after say 3pm,(or cut down if you eat a lot of sweet stuff), in case its due to Hypoglycemia, as I have also awoken with headaches caused by this on occasions. Hope you find relief keep me posted how you get on.

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