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Posted By : jr991 - 9/8/2011 7:17 PM
For the past 8 years or so I have had a constant 24/7 spaced out or "brain fog" feeling which is sometime worse than others but it's always there and noticeable. I also feel somewhat off balance and dizzy (not a room spinning dizzy but more like a wozziness feeling). Along with this I am very sensitive in busy visual environments and under certain lighting conditions which can make these symptoms worse.

A little over a year ago I started getting some new symptoms which includes tons of eye floaters, near constant eye pain, persistent after images, tinnitus, and visual static which is noticeable on certain backgrounds.

To me this doesn't sound like migraine but I wanted to check here just in case anyone here has experienced something like this. Please let me know your thoughts.

thanks in advance.

Posted By : jewishmother - 9/8/2011 10:38 PM
Migraine is mostly a rule-out diagnosis. Have you had any neurological tests done? Some of the symptoms you describe can be migraine aura but it would be very rare for them to be constant. Please talk to a doc and keep us posted.

Posted By : jr991 - 9/9/2011 6:04 AM
Thanks for your reply. I have talked to my doctor and he has said that because my scalp in areas is tender it's a sign of migraine and gave me a whole list of foods to avoid which I already do anyways.

Also saw a neurologist who in his report back to my GP said my symptoms were almost dillusional.

I agree that to have most of these symptoms constantly doesn't make sense to be a migraine. Just thought I would check.

thanks again.

Posted By : sunnie1133 - 9/16/2011 6:01 PM
have you been to the opthalmologist? get your eyes checked...

Posted By : sleepyd3 - 1/9/2012 7:42 PM
Hi JR991,

How have you gone with getting a diagnosis?

I found your post by googling symptoms that I've been experiencing for a few months now. Essentially I have almost all the same symptoms (brain fog, visual static, increase in eye floaters, eye pain, difficulty in busy visual environments and general unsteadiness/dizziness), minus the tinnitus, but also with a nauseated feeling, especially if I bend over, run or lift anything vaguely heavy.

After recently seeing my GP, I have an appointment with an opthalmologist in a few weeks, but would really appreciate your feedback if you've been able to turn up something concrete on this, as it's driving me nuts!


Posted By : Fuzzyhead - 4/15/2012 11:14 AM
Same symptoms here guys, been like it for over a year now. Really bad eye floaters and constant light headed feeling, much worse in busy places, better at night time. I'm actually having eye surgery in June to remove the floaters in my left eye, hopefully will reduce the light headed feeling, but not getting my hopes up. The symptoms came on after a stressful few months.

Let us keep each other updated, it's really important if one of us finds an answer.


Posted By : SpicyCurry - 4/30/2012 11:58 AM
Hey...i have been researching this myself...the constant dizziness and nausea was making my life miserable. My new GP put me on an over the counter non-drowsy motion sickness medicine and it works like a champ. They are doing some tests to find out more. You definately need to be working with a doctor on this one. There hearing and inner ear symptoms could be and inner ear problem, vertigo, menieres disease or worse a tumor.

I myself am going to see an eye doctor this week...because I am very light sensitive, my vision is always blurry now, tons of floaters but no migraine has surfaced in a while which makes me suspect it is something more. I do in fact have migraine clusters that last months but i am no longer in a migraine cycle and still having the dizziness, nausea and vision problems which tells me i have something else going on.

A doctor is always the best answer to getting a clear answer but it doesn't hurt to educate yourself and ask the right questions the next time you are with your GP.

Good luck!

Posted By : newmomma - 4/30/2012 2:08 PM
I Have recently noticed a spaced out feeling as well almost as if i am on auto pilot. its been consistant for 5 days now and i have been experiencing a shooting pain from my neck to the top of the right side of my head as well. this occurs every half hour for the last 5 days it is worrying me but i am very familiar with migranes so I am not sure what this could be.

Posted By : SpicyCurry - 5/1/2012 1:47 PM
I get those sensations in my brain/head too. Sometimes going to and from my eyes, other times not and they don't always lead to a migraine headache. The spaced out feeling is a daily thing for me as well. Some days are better than others. I suspect I might be having mild siezures or something else is also going on. I have had fibro for several years and these sensations and shooting pains in my brain are newer. Anytime there is a new symptom it means more testing to try and figure that out. :) I am a walking puzzle for sure! I would talk to your doctor about it.

Posted By : bb2176 - 9/5/2012 12:31 PM
I have the same symptoms that I've read here and it's comforting to know that others experience what I am going through. My spaciness worsens in places like restaurants and after a month and a half of this pattern of headaches, eye pain and not feeling well, I now too have floaters in my eyes.

Have any of you have had any concrete diagnosis or found a med that helps?

Posted By : bb2176 - 9/6/2012 9:55 AM
My GP seems to think my symptoms are migraines, and I do get migraines, but I'm convinced that my symptoms are cluster headaches, which can cause retina damage. This new york times article on cluster headaches is incredible and was really helpful to me:

Posted By : Jtoz54 - 9/10/2012 5:06 PM
Hi I suffered from headaches and dizziness all my life. 5 years ago I discovered that I was Salicylate Intolerant, allergic to aspirin and all foods containing salicylates. Aspirin is a salicylate that comes form the bark of the willow tree. All plants produce salicylates as a natural insecticide. It is in things likes fruit,most vegetables, tomato sauce, olive oil and many more. Theres a good list of foods in the book,"Salicylate Intolerance and The Healthier I Ate the Sicker I Got."

Right before I hit bottom I had such a pain in my right eye that I went for a CAT scan to rule out a tumor. Once I went on a low sal diet I got rid of my headaches,sizziness, nausea, neck pain, arthritis, asthma, dry eyes, nosebleeds and a foggy headed feeling.
Check out

There have been times where I ate or drank something and got a headache and dizziness with the whole room spinning. The last time it happened I had eaten Instant chocolate pudding with artificial colors (yellow #5 and Red 40) , artificial flavor and BHA preservative.
No one should just accept a diagnosis of Migraine Headaches when they can prevent them by finding out whats causing them. Its usually a food intolerance. Unfortunately there is no test for Salicylate Intolerance because it isnt an allergy. You have to go off the foods that are high and very high in sals as well as artificial colors and see how you feel. Good luck, Joan

Post Edited (Jtoz54) : 9/10/2012 5:12:02 PM (GMT-6)

Posted By : chuck_norris - 10/23/2012 3:07 PM
Oh, I'm so happy I found this. This is the first time I've ever seen anyone having the same issues. I have been having these symptoms for 6 years, sometimes worse and sometimes not as bad.I have been on the medical merry-go-round and still have no answers. Just two months ago, I had an episode so bad that I was basically home-bound for 4 weeks, mostly vertigo and nausea. I couldn't drive, couldn't go to work, couldn't do errands, etc. I now need a diagnosis more than ever, because I cannot go through that again. I have 2 children under 4 and have a growing career. I don't want this to be my quality of life forever.

I've also been given the silent migraines explanation, but I feel it was a brush off. I tried the anti-migraine medications and got no improvement. I've been through ENTs, cardiologists (I often pass out when it's bad), neurologists, neuro-opthamologist, endocrinologists, MRIs, CT scans, VNGs, echocardiograms, stress echocardiograms, etc. Nada.

If anyone figures anything out, please let me know. In the meantime, it is slightly comforting to know I'm not a crazy person, although I don't wish these symptoms on anyone.

Posted By : deltaforce - 10/25/2012 11:24 AM
There are so many posts spanning a period of about 18 months and everyone is ONLY complaining but nobody seems to be taking any effort to help themselves. Seriously, why doctors should not rip you off? If you don't study, wall street rips of you off and then there is not much complaint but with doctors only complaints.

This eye floating thing is called as Aura. For god sake, read up, visit local library, get some books. I had this when all drama started in 2003. I lived like all you folks until 2007. The it became unbearable and I was living on Alleve, so I decided to stop it. I read up voraciously and learned a lot of about this stuff. Agreed, my educational background helps a lot to understand it quickly, still there is a tons of literature for a layman, so read up and help yourself.

So back to eye floating, along with that feeling, do you see flash of lights? Do you see sparkles? Do you see blind spots in your vision? Everything is called as aura. Nausea is part and parcel of migraine, almost everyone with migraine will suffer from nausea, because the way migraine reaction is set up. It slows down gastric emptying time.

To all those who posted here, how many of you have maintained a headache diary? How many of you tried to find out migraine triggers? How many folks discussed with their docs after doing some homework (excluding ***holes doc who don't listen to the patient)? Sometimes it can take a while to diagnose it correctly. Even after almost 10 years and with decent study done on migraines, my migraines are still not classified correctly but meanwhile a patient needs to take an initiative to help themselves. Seriously guys, if you need some help, learn to ask right questions. Just I have same symptoms and I need relief is NOT a right way. Everybody has a different lifestyle. If you need help, read up other threads on this forum where I have posted and come up with a correct post, I may be able to help. I am NOT your doc but my posts may help you figuring out what to discuss with your doc so that you don't look like a lame duck when you visit your neuro.
Diagnosed March 2007 with left sided UC at the age of 30.
Currently on,
Colazal 9 daily, Imuran, 200mg daily, Vit. B12, 1mg, Multivitamin, 1 tablet daily, Fish oil 2400mg daily, Vit D 2000 IU daily.

Verapamil 320mg for migraine, Migraine episode now at least 4X a month,
Nabumetone 750mg as an abortive, so far so good with GI side effects.

Posted By : Twistedbydesign - 10/25/2016 1:25 PM
Hi, Brand new to this but came across your post whilst researching my own symptoms. Recent sufferer of constant headache, mainly on right hand side but occasionally left too, neck pain, loads of floaters and blurred vision, some shaking in right leg and right hand, involuntary clenched jaw, some temporary loss of vision in right eye... pretty frightening stuff for a healthy 31 year old with no previous health concerns. Migrane medication hasn't done a thing to ease symptoms and floaters/headache has now been constant for over 4 weeks so don't see how this can be a Migrane. Got MRI next month but just stumbled across this beauty and I think I've found my answer. Will still go to MRI to be on safe side but I would recommend clicking the link to see if it sounds like you. Hope this helps

Posted By : bf4550 - 6/26/2017 10:15 AM
Have you checked out Lyme disease? Lyme can cause a myriad of symptoms but all of these are possible Lyme symptoms.

Posted By : Immunity - 6/26/2017 10:01 PM
I actually have your same exact symptoms. Eye pain, bad brain fog, spaced out feeling almost like looking at life from a window or something. This included post exertion fatigue, and sometimes insomnia. I also see "visual snow" and after images, and sometimes tinnitus. I had this for over 2 years now, with the exception of eye floaters that I had for 4 years. Arguably the worst symptom is the spaced out feeling and brain fog as well as the fatigue. eye pain is terrible, and we thought it was multiple things, including eye inflammation and sinus infection but all of these always came out negative.
Just about a month a go I was diagnosed lyme positive by IGENEX lab criteria.
The neurologist telling you "symptoms were almost dillusional" is ridiculous. They thought I was depressed, which I know I am not, since I was always complaining of fatigue. Going to a doctor who actually wants to figure things out would help. sometimes when they can't figure it out in the 5 min office visit they label you as depressed, delusional, or paranoid. "Hey, I can't figure out what is wrong with you and since I am a doctor and I know everything you must have a psychiatric disorder".

Hope you find out what is going on soon, but would definitely recommend lyme testing.

Post Edited (Immunity) : 6/26/2017 10:14:18 PM (GMT-6)

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