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Posted By : CRANKY 1 - 6/9/2012 5:29 AM
Hey Gang,
 
Well, I had the BOTOX Injection Therapy a week ago, so I thought I'd report back on how things went and the progress(?) so far.  Just to reiterate the basics, I'm 47 and have had common migraines(no aura) since I was about 8 years old.  I've probably tried EVERY medication associated with prevention/aborting migraines that has been available in the past 38+ years.  I'm now on disability, partially due to the frequency of my migraines.  I average 2-3 migraines a week, roughly about 50% of my life I have some degree of migraine, which is the qualification to get the BOTOX Injection Therapy.  My main trigger is weather...changes in barometric pressure and/or temperature absolutely nail me every time.   I live in Central Virginia, and the weather changes here very FREQUENTLY! 
 
I currently take 400mg of Zonegran and 25mg of Atenelol as a preventative(not very successfully) on a daily basis.  I take 300mg. of Seroquel and 50mg. of Hydroxizine as an abortive when I feel a migraine beginning to take hold.  If I can't sleep off the migraine, about once a week I end up having to get an injection of 15mg. of Nubain and 50mg. of Phenergan.  The shot usually does the trick, although sometimes a DR will only give me 10mg of Nubain, which means I may end up having to get a shot two days in a row. 
 
ANYWAY, I'm really tired of spending so much time in migraine land, so last week I went to see my migraine specialist, Dr. Timothy Collins, a Neurologist at Duke University Hospital, in Durham, N.C. for the BOTOX Injection Therapy.  In order to qualify for the treatment, I had to chart my headaches on a daily basis for 4-5 months, and had to average being affected by migraines approximately 50% of the time. 
 
It's a good thing I didn't know what the procedure involved, because I might have talked myself out of it, as it sounds pretty bad.  The treatment is a series of 31 injections of BOTOX, spread out between the temples on either side of the head, across the forehead, between the eyebrows, around back of the head, and down into the neck.  The injections were pretty quick and thankfully the needle was fairly small.  It kind of felt like a sequence of reasonably quick bee stings.  The whole procedure only took a couple of minutes, and must be repeated again in three months.  Apparently, to get the full effect of the procedure, it takes more than one round of shots.
 
So, how has it turned out so far?  Well, a couple days after the procedure my first migraine started kicking in when a really bad weather front rolled in, and I ended up with some of the very rare side effects.  I got a really stiff neck and my TMJ started acting up.  It probably didn't help that I ran out of my muscle relaxer prescription the same morning and had to wait a day to get a refill called in by my PCP's office.  I had started to get some numbness in my forehead area, which is a good thing, but I ended up with a combination of muscle spasms and nerve twitching.  I had a combination of two things going on...first was the trauma to the muscles at all the injection sites, and second was the effect of the toxin proliferating in the nerve tissue.  So, in addition to my normal ice pick migraine pain behind my right eye, which I'm used to, it felt like I had rubberbands stretching and snapping all around my head, while my surface of my whole face twitched.  I have to say, it was the worst migraine I've had in as long as I can remember.
 
Unfortunately, I couldn't get in to see my PCP to get my normal Nubain shot, so I ended up going to the Emergency Room because I was so miserable.  That was not exactly a pleasant experience in itself, as the ER's "Migraine Cocktail" included a steroid that gave me "restless legs"...like I needed that...LOL!!!   They gave me a double dose of Benedryl to "counter-act" the steroid, and put me on IV fluids for a while.  I was given a second steroid and some IV Toredol, and eventually sent home to sleep.  I didn't actually get any real relief until I got my muscle relaxer prescription refilled.
 
Things definitely improved over the next couple of days, even though I kept getting migraines due to repeated weather fronts.  It's now been a week since the procedure, and I can report that even though I did fall into the minute 2-3% of people that have some adverse side effects(stiff neck, muscle spasms, nerve twitching), things seem to have settled down and the typical paralyzation process is well underway.  It's kind of a funny feeling to have the outside layer of your head somewhat numb and immobile, but it definitely taken the major edge off of the migraine experience.  I haven't had a fullblown migraine in three days and counting, so I am defintely cautiously optimistic.  I'm not looking forward to getting another round of shots, but if that's what I have to do every three months to keep the migraines down, then it's definitely worth it.  From the literature I've read, the side effects I've encountered usually only occur during the first and/or second round of injections.  I'm hoping that's the case anyway.
 
So, that's the scoop.  Feel free to comment or ask questions if you have any.
 
Leigh Ann cool
 
 

•On Disability for: Chronic Migraines, serious Back and Knee problems (will need surgery eventually), moderate Depression, Anxiety/Panic disorder, TMJ, stomach problems
•Divorced, 46, spawn-free

"THE WEATHER IS HERE, I WISH YOU WERE BEAUTIFUL." -Jimmy Buffett

Posted By : CRANKY 1 - 6/15/2012 3:57 AM
Hey Gang,
 
Here's another update...
 
Been a couple of weeks now since my treatment.  My forehead is basically numb and I pretty much can't raise my eyebrows anymore.  I can still squint or frown, so I think I'm looking kind of angrier than usual.  Weird thing is I can still see the injection marks from the needle.  Had a humdinger of a migraine on Monday, and the  side effects from the Botox made it a bit more miserable than usual, but the rest of the week hasn't been too bad.  I guess the benefits will increase over time. 
 
One really odd side effect occured today though at the dentist.  When I got injected with Carbocaine(a form of novacaine) to numb my teeth, my whole head felt like it was on fire, which I know was related to the Botox, since this has NEVER happen in my many visits to this same dentist before.  I felt a bit queasy and had someone drive me home.  Guess that kind of thing happens when you mess around with a TOXIN...LOL!!!!
 
More to come!

Leigh Ann tongue
•On Disability for: Chronic Migraines, serious Back and Knee problems (will need surgery eventually), moderate Depression, Anxiety/Panic disorder, TMJ, stomach problems
•Divorced, 46, spawn-free

"THE WEATHER IS HERE, I WISH YOU WERE BEAUTIFUL." -Jimmy Buffett

Posted By : robberk - 6/18/2012 8:55 PM
Thank you for your postings. Please keep updating if you could. My wife is about to go that route after not finding the right cocktail of meds yet to help her. take care.

Posted By : headache girl - 4/8/2014 11:54 AM
I recently had the botox injections for the headaches. It sure does make me feel funny. It seems like it is hard to swallow. Did it make you feel that way. It seems my face, neck, forehead is so tight.. I dont know if I like the feeling but my headache do feel a little bit better. Would like to hear more from you.

Posted By : Sunny13 - 4/8/2014 2:29 PM
I just got home a couple minutes ago from getting my botox injections done. I have been getting them for migraines for maybe 1 1/2 years now. I still have to take several preventative meds, and also have a rescue med for when I do get a migraine, but overall, they have decreased my # of migraines from having one every single day to only having 2-3 a month, and even when I do get them, the severity is much less. It sounds a lot worse than it actually is--31 injections--but takes only minutes and stings a little bit. Only bad part is they need to be repeated every 3 months. But, for me, it's well worth it. I can always tell when it's getting close to the 3 months (even without looking at the calendar) cuz I start getting little migraines creeping back in. I have had no side effects (other than not being able to raise my eyebrows) from it. I also get botox injections for an eyelid spasm and inside my bladder to decrease spasms. I am so thankful that I am able to get all those injections.

Posted By : bonniesnyder - 11/29/2016 11:48 PM
Sunny13, what is your condition now?

GLO Antiaging

Post Edited (bonniesnyder) : 12/2/2016 3:03:58 AM (GMT-7)


Posted By : Calen - 5/10/2017 9:49 PM
I'm about to get my fifth Botox injection. I was having daily migraines and headaches. It seemed to help at first but this past month I've been back to daily headaches and two two-day long migraines. The headaches haven't resolved with a medrol pack which is usually the only thing that works when nothing else does. I hate getting the injections, I always get light headed from the pain.

Posted By : GrammyT - 5/12/2017 4:03 PM
Hopefully the Botox is still working for you! I agree, those 31 shots at once were not fun, but definitely less painful than a migraine.

Like you, I've had migraines a very long time (36+ years) - but I get them pretty much every single day. Nothing has worked to prevent them, and not everything I have taken to stop them worked either. Takes the edge off a bit, but doesn't get rid of them. I ran a business from home for nearly 18 years, and in December 2015, I finally had to shut it down and "retire". I have other health issues too, contributing to that, but it was just too much. I may consider disability.

I tried Botox last year and not only did it not work to stop my migraines, but after 8 weeks, I got the rare/weird symptom of feeling like I was being stung my swarms of bees all over my body. Very unpleasant. Lasted about 1.5 to 2 weeks. I decided I was not going through that again. So no more Botox.

I finally am getting into a Neurology & Headache Clinic fairly close to me. I have no clue what they will do, that I haven't already done, but I'm willing to give it a go. Both sides of my family have migraines; so definitely an inherited component for me.
Chronic Migraines, Bipolar II, Severe Depression, General Anxiety Disorder, Fibromyalgia, Osteoarthritis, Osteoporosis, Stage 3 Adrenal Insufficiency, Malabsorption, Hyperparathyroidism, Hypothyroidism, Spine Issues: bulging & herniated discs, disc degeneration, bone spurs, whiplash, scoliosis + severe facet arthropathy & osteoporosis in lumbar. Extreme quick wit & humor. ;)

Posted By : Beachbumgirl - 6/1/2017 3:49 PM
I have had 2 plus years of Botox without any side effects.
Sometimes I think it is the Expertise in the MD in giving
The Botox.
I would stop after those side effects too. sad

Posted By : straydog - 6/2/2017 7:52 PM
Beachbumgirl, I am very happy to read your success with Botox & hope this will continue for you. I know several people on Botox that are having great success when everything else failed.

I am afraid what happy with Grammy was more of an allergic reaction. Back many years ago I was rx'd Stadol nasal spray for migraines. I had one hit at work & as soon as I got home I was using it & in bed. Out of no where that feeling of bees stinging hit me all over. My dr said no more Stadol said it was an allergic reaction.

Take care.
Susie
Moderator in Chronic Pain & Psoriasis Forums

Posted By : Kub - 6/21/2017 4:10 PM
I'm not sure if this will. Be helpful or not but I have basically the same symptoms as CRANKY 1, I'm 48 and have seen every specialist and tryed every medication including fentanyl patches, then I ran across this head band called cefaly, it's basically a tens machine like that dr ho's thing on tv but only for migraines each country has there own site to sell it from but I'm in Canada and its http://www.cefaly.ca/ if your American just change the .ca to .com anyway I've been on disability for over 18 yrs because of these migraines and I got this head band last October and by December I was able to eliminate my fentanyl patch and now when I feel a migraine coming on as I too do not get the aura first I use the band maybe to rounds of 20 minutes each and I'm not only feeling better but almost asleep, which if you've ever suffered from a migraine all you want is it to either leave or go to sleep so this band has been a god send for me maybe it will help you if you have costco in your area check there web site as I got mine there for almost $100.00 cheaper. Anyway take a look as I was actually in line for a botox treatment for the first time and ran across this first and I'm glad that I did because it's a little pricey to purchase but one you have it it's basically free after that you just need the reusable stickers that go on your forehead but they last about a month or more and are only about $20.00 for three so it's pretty cheap to use I think.

Good luck

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