The original version of this page can be found at :
Posted By : mahboi - 11/4/2016 11:41 PM
I have my second doctor's appointment for this in five days, but I'm really struggling to wait, especially since I know it'll be even longer before I'm diagnosed. I just want to share my experience with this over the last year and a half and hear some input.

Back in May of last year, I noticed an area of my head where if I applied pressure in a certain way, I would feel pain in nearby areas of my head. My nature made me think "tumor" but I didn't take it too seriously since I knew it was based on very little. I posted about it here and was told it could be migraine, but that never really developed. This went away a few months later, but I still feel it come up on occasion. The next month, I noticed that I had developed what felt like mild carpal tunnel syndrome. Being a frequent computer user and, more notably, a piano player, this may not be too odd and I'm still unsure if that has anything to do with this. I'm too nervous to look up connections between tumors and carpal tunnel.

Things didn't really change for awhile after that, until around late February or early March the next year. I started feeling like I had water in my ears. Shortly after, I developed a bad cold. My ears would pop like crazy just from me talking. The ear symptoms mostly went away after that, but then began resurfacing and getting stronger in May. Whenever I move the ear area or surrounding muscles (not the jaw), there is popping and cracking. This is constant and has not stopped since it began in the last five to six months. Pressure, itchiness, and pains in the ears come and go, and all symptoms are stronger in the left than in the right. Being a choral singer, I also noticed around the same time that singing was beginning to hurt in...numerous areas. It's hard to pinpoint where exactly. This, along with jaw soreness when I chew certain foods, have also been continuous since they began many months ago. I've also developed throat tightness, or some feeling of having a lump or something in my throat, in the last couple of months. One more thing, but I sometimes have discomfort, and sometimes sharper pains, in the left side of head. It's never too bad, enough to be considered a full fledged headache, but it's been occasionally coming up for a long while now.

I noticed in the last few months that I might struggle to remember certain words or names that I should definitely know. This isn't too frequent and it has never stopped a conversation or anything, and it has seemed more common since I read that it was a symptom. So...that MIGHT be anxiety. But it makes me uncomfortable because if it isn't just anxiety, it instantly makes it so my problems are neurological.

Lastly, I had some concerning incident the other day. I had just gotten in bed, and immediately upon closing my eyes, I had that "falling" feeling that jolted me awake. Now, I know it's normal for me to experience this when I'm about to fall asleep, but not right after closing my eyes like that. Nevertheless, it only happened the one time and I went to sleep without any other issues. This part might be unrelated, but figured I should mention it just in case.

After waking up, I just lied in bed for awhile. I noticed that two spots of my body were twitching, kind of in tandem. I have been having a lot of twitching lately and that could very well be due to increased stress. Twitching overall is nothing new for me. However, a few seconds after I noticed this, the left side of the top of my head suddenly went numb, or at least some similar sensation. I didn't notice anything else at this time, and the sensation faded away in maybe 30 seconds to a minute. I didn't notice anything else unusual afterward or since.

That mostly covers it. The ear and jaw symptoms are definitely the most concerning, because they are always there and are the ones that are definitely not caused by anxiety or anything. I know there are potential normal causes for the ear issues, but not so much for it to be constant for this long. The consistency screams "tumor" to me. I've looked into TMJ being a potential cause, but the lack of any sensation when I feel the joint makes me doubtful. And why are most of my symptoms stronger in the left than in the right?

Here's a quick summary of the symptoms:
- Occasional pain when pressing a certain part of the head.
- Mild Carpal Tunnel Syndrome, or something resembling it. Sometimes causes numbness or tingling in fingertips.
- Constant ear popping/crackling when adjusted. Sometimes ears have pressure, brief pains, or itchiness.
- Soreness in jaw when chewing certain foods.
- Pain in area of mouth/cheeks/throat when singing.
- Throat tightness
- Possible trouble thinking of words or names.
- Occasional discomfort or pain, mostly in left side of head.
- Single instance of sudden numbness on top of head.

I'm just losing confidence that this isn't tumor related at this point. And it's been so long since my concerns started, that I'm worried I've waited too long to get proper treatment if this turns out to be the case. I had a doctor's appointment about two and a half weeks ago but I fear I didn't go into enough detail of my symptoms. She decided I just had some allergies and put me on a prescription and an OTC medicine, neither of which have done anything. I plan to be more detailed in the next appointment, but the wait is killing me. These symptoms aren't particularly strong and certainly aren't disabling me in any way (aside from the tons of health anxiety it's causing me), but it just seems like so much when I go over it like this. Anyway, sorry for the essay, and I appreciate any input.

Post Edited (mahboi) : 11/5/2016 12:03:44 AM (GMT-6)

Posted By : BnotAfraid - 11/6/2016 12:06 PM
Calm yourself please,

There are so many things it could be, out side of a tumor that the chances are slim.

the jaw and ear may indicate development of trigeminal neuralgia.

The feeling of falling when going in sleep is very common, I have it myself a lot of times.

The more stress you put on yourself the more uncomfortable you will feel.

Pushing and pulling on areas of you head is not helpful either. Lots of nerves everywhere, you irrate them, inflame them, bam, you have a problem. Look here it hurts!

Just breathe, get involved it other things. Wait to see what the doc says.
Moderator - Depression
Be still and know there is Peace.

Kabir says: "Student tell me, what is God? He is the breath inside the breath". from the poem Breath.
DX: reverse Trigeminal Neuralgia;Cluster headaches; Atypical face pain;Hemicrania Continua; raynauds;complex PTSD; recurring MDD,disassociative disorder;

Posted By : Labradorite - 11/6/2016 3:47 PM
I agree with BnotAfraid. The popping and cracking sounds more like you have fluid in your ears or an ear infection. Actually most of your symptoms sound like a combo of either ear infection, fluid and stress. I have had many of these symptoms in the past. have a visit to an ENT or your primary and they should be able to give you an answer.

Posted By : mahboi - 11/7/2016 11:52 PM
Thanks for the responses. I was feeling pretty good about things the last couple of days. But then today, while I was playing a video game, I felt a weird, heavy kind of rush in my head. It's really hard to describe it. It didn't bring on any pain or numbness or really dizziness I don't think. It lasted a few seconds and I felt normal afterwards, aside from feeling jittery due to my anxious reaction.

I just can't find any explanations for what could've caused that, or that numb sensation I felt earlier. If they were caused by anxiety, why would they only strike during the periods where I was calm? It's to the point where my ignorant self keeps thinking "could they be small seizures?" or something like that. Only a couple more days until I see a doctor again, but any ideas in the meantime?

Additionally, since I've already seen a doctor once, would it be possible to miss the cause if it was something as simple as fluid build up? Even if it wasn't an ENT, I feel like they would've caught that.

Posted By : Labradorite - 11/10/2016 7:11 AM
It depends on the doctor and the tests they did, they might have missed it. Make sure u mention the crackling. If it is anxiety there is like a let down reaction where sometimes as soon as you are in a calmer state you feel the symptoms of the anxiety. Especially if your body has gotten used to being in the anxious state.

Posted By : BnotAfraid - 11/11/2016 8:57 AM
If you are still concerned, get a 2nd opinion from another docter.

Worrying, will do nothing to solve the problem.

Catasrophizing will get you so stressed, symptoms could increase just from anxiety.

Moderator - Depression
Be still and know there is Peace.

Kabir says: "Student tell me, what is God? He is the breath inside the breath". from the poem Breath.
DX: reverse Trigeminal Neuralgia;Cluster headaches; Atypical face pain;Hemicrania Continua; raynauds;complex PTSD; recurring MDD,disassociative disorder;

©1996-2017 LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer