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Posted By : Theo1 - 3/27/2017 10:11 AM
Hi, I really hope some people can relate to this, because I am just at my wits end with it.... ok this time last year I was diagnosed with postural Orthostatic Tachycardia (pots) my heart rate on just standing would go to 160 and my BP would go low and I faint... this happened 5 times one day and was admitted to hospital diagnosed with this. BUT, since this happened it's like my whole vestibular system is out...

I had a dreadful headache for a week, and would suffer with headaches on and off but my main problem is when I am walking I feel I am on a trampoline, and sometimes I become unsteady as I feel someone has but a threadmill on underneath me and I feel I am about to fall. I find shiny surfaces impossible to walk on and tiles, seem to be more stable on carpet.... I can't seem to judge how fast an escalator is going, and won't go near a travelator as I'm constantly feeling I am on one !!!! please can anyone relate to this..... or am I the only one ( yeah )

Posted By : BnotAfraid - 3/27/2017 5:51 PM

Here are two links for support groups.

I hope this helps.

Moderator - Depression

"...when the gift of sight is cause enough for jubilation."
Billy Collins from the poem. HIGH

DX: reverse Trigeminal Neuralgia;Cluster headaches; Atypical face pain;Hemicrania Continua; raynauds;complex PTSD; recurring MDD,disassociative disorder;

Posted By : Theo1 - 3/29/2017 6:57 AM
Thanks bnotafraid, i have done all my research on POTs.heart rate and BP are now fine so my POTs isnt the issue. Its migraine now seems to be causing my told..and hearing other people complain of floor dropping or moving sensation all related to migraine... was just hoping someone might be able to help. Thanks.

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