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Posted By : answers4me2 - 8/7/2010 8:32 PM
Last night my stomach was feeling a little itchy, so I thought I would change my bag because my husband was due home at any minute. I am low on supplies since I am now in a convex wafer, so I thought I would try one of the convex samples I received from Coloplast.

Well, I got everything together and even put an eakin seal on the wafer....well, for some reason, the wafer would not stick to my skin....I even put the hair dryer on it, but when it still would not stick, I got freaked out and accidentally dropped the wafer face down on the floor. OMG,

So, I am almost in tears, walking around with a gauze pad over the stoma, and am using one hand to get everything together. I ended using the Hollister, one piece, and the adapt paste since I still have yet to figure out how to use the eakin seal. :(

My husband walks in and I was so relieved...but, I did not let him do anything but watch because I need to be able to do this alone. He did help me apply the sure seal though since I never used one of those before and I LOVE the SURE SEALS! I took a shower this morning and the wafer was mostly dry...I was a little concerned that the 10% that got wet would not dry, but it did dry and the wafer and sure seal are still sticking as tight as ever.

My stoma is also looking a little different...it seems settled at 7/8 inch, which is wonderful, but the top sticks out farther than the bottom...it almost looks like a water spigot??? I can also wiggle the stoma around? Is this normal? I still have some bloody spots of skin right around the edge of the stoma, but it is looking better every week.

I went ahead and ordered the Hollister since I seem to have the best luck with those. I ordered the 1 piece and 2 pieces. I like the 1 piece because it lays so flat against my body, but I prefer the 2 pieces because I like that I can change the bag without changing the wafer and I can also wear a smaller bag, a 9 inch, which I have been wearing during the day, and the 7 inch, which I have found works great during sex. :) And since I am low on supplies, I have been rinsing out the bags and reusing them the next day....it seems to be working out okay.

Is it okay if you lay on your stoma accidentally? This happened during sex and I didn't even notice until my husband freaked out because the clip pressed into his skin...my stoma looks okay and is working???

Life with this stoma is better than I could have ever imagined and I am considering keeping it for life...hmmm, I wonder if I have to have it changed to an end ileostomy? I read that end ileostomies are easier to handle than loops? Is this true?

I have been adding more foods to my diet and so far so good. :) My output is still too much at times, but that also is getting better as time goes on.

My doctor agree that I needed more time before going back to work, so I am now off until August 16th. I see him Thursday, and I am thinking September 7th will be a good time to go back to work. I will just have to see what he says.

I am still smokefree....YAY....and although I am still a little depressed, I feel better than I have felt in years. I can breathe, poop, and eat now....LIFE IS GOOD! Tracy
Diagnosed w/colonic inertia, obstructive defecation syndrome, anismus, rectocele, and intussusecption
2005-hysterectomy w/pelvic prolapse repairs
2006-sacralcolopopexy
2010-subtotal colectomy, rectopexy, and temporary diverting loop ileostomy
Take-Down-TBA
 


Posted By : summerstorm - 8/7/2010 10:05 PM
ok, its ok to lay on it, that wont hurt it, just dont take a hammer and hit it, lol. Sometimes though, if you run into something with, or put alot of pressure on it, it might bleed a little, thats ok though, dont worry about it.
YAY for you getting through a horrible change like that!
Its ok that its sticking out, mine kind of does that. And yes its ok if it moves around. There are some crazy things to get used to!
I personally liked the ones with the velcro better than the clip, i dont trust that clip.
For sex, i wear a belly band and tuck my bag into it, then its totally out of the way!
For the sureseals, you probably missed a spot thats why it got wet i usually have to patch mine up a little bit, just look really closely and see if there is a small spot showing some wafer.

and YAY im so glad things are going well for you!
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007!
-I have gone to find myself, if i get back before i return, keep me here-
No matter what kind of day you are having, take five minutes to sing loudly and dance like a fool!

Posted By : 2b ColonFree - 8/8/2010 3:05 AM
hey Tracy, i had a similar situation on friday... lol i made it eventually, but for some reason about an hour ago it was leaking, so i had to change AGAIN!

i love my stomie too :) life is so much easier with the stoma, isn't it? so happy you're doing good! i can't use the one peice, cuz my stools is too thick, so i can't empty the bag, therefore i have to put on a whole new bag like 5 times a day, so it's better with the wafer staying on me and just changing bags. the top of my stoma also sticks out more than the bottom, i have no idea why. but maybe it doesn't matter.

i laid on my stoma many times, i also usually sleep on my tummy, not totally flat on my tummy, just a bit bent on the side of the stoma, so there's some space between the stoma and the bed. there're no problems with that. and even when i sometimes lay flat on my stoma, it's no big deal.

i also wonder whether i should change mine to an end ileo..?? what does your dr think about this?

i'm so proud of you for staying smokefree!! you're my hero!

Hodaya

06/05/2007 - STARR procedure

colonic inertia w/pelvic floor dysfunction

08/16/2009 - total colectomy w/ileorectal anastomosis

07/08/2010 - loop ileostomy


Posted By : Christine1946 - 8/8/2010 9:18 AM
Sex? What's sex?

Posted By : answers4me2 - 8/8/2010 9:44 AM
Christine, heehee....we had sex at 3 weeks post-op and I never had any problems or pain..just take it slow and easy!

Summer, I just bought a belly band at Target....it is made for pregnant women and seems to work great for hiding the bag.

I also saw Support Belts in the Edgepark catalog and I would like to order one of those...just not sure which one....they have 3 inch, 4 inch, etc and you just stick the bag through a hole in the belt. I ordered a Phoenix belt, but I don't like it because you have to turn your bag sideways and that just doesn't seem right to me. I am too worried about leaking with the bag turned sideways like that.

Hodaya, have you tried closed end bags? That way you can take the bag off and just throw it away...I have to empty too many times in a day to throw each bag away. YIKES I also saw disposable bags too, maybe you can look into those. Wow, it is like you have a colostomy....that is cool....my output changes from pure liquid, to thick, to so thick it just stays at the top of the bag right at the stoma. YUCK, that is the worst to empty, but normally if I wait long enough, some pure liquid will come out and wash the other stool down.

I love my stoma though....it has given me back my life....
Diagnosed w/colonic inertia, obstructive defecation syndrome, anismus, rectocele, and intussusecption
2005-hysterectomy w/pelvic prolapse repairs
2006-sacralcolopopexy
2010-subtotal colectomy, rectopexy, and temporary diverting loop ileostomy
Take-Down-TBA
 


Posted By : 2b ColonFree - 8/8/2010 11:13 AM
Trace, i have still enough supply with drainable bags. i have yet to try the adapt lubricant drops, they may help with draining the bag, but if they don't help, then i'll order the closed ends. i don't think i know what are disposable bags tho..? you mean of hollister's? yeah well, in a way it's cool my stools is thick, cuz it mean my absorbtion is good... REAL good lol. i can never be dehydrated like most you.

Hodaya

06/05/2007 - STARR procedure

colonic inertia w/pelvic floor dysfunction

08/16/2009 - total colectomy w/ileorectal anastomosis

07/08/2010 - loop ileostomy


Posted By : Christine1946 - 8/8/2010 11:15 AM
Sometimes my stools are thick and at other times watery. Today they are watery and I have a cramp in my left side. It comes and goes. I am drinking a lot of water today...hope it isn't a blockage.

Posted By : 2b ColonFree - 8/8/2010 11:19 AM
mine is always thick. i hope the cramps go away soon.

Hodaya

06/05/2007 - STARR procedure

colonic inertia w/pelvic floor dysfunction

08/16/2009 - total colectomy w/ileorectal anastomosis

07/08/2010 - loop ileostomy


Posted By : summerstorm - 8/8/2010 11:23 AM
christine, you are going to worry yourself to death! i did the same thing at first though, lol.

i dont understand the belts, i dont know why they are needed. Although i dont understand most things, lol.
And those adapt drops, they help with the smell but dont help get the stuff out. the best thing to do when its really sticky or thick is to swish some water around in it. i like to use a combo of water and mouthwash with a squirt bottle, fill the bag, close it up, swish it around, then empty it out. Gets all the junk out, although,be warned, when you reopen the bag it comes out fast!
UC for 8 years, before finally kicking its butt and having a permanent ileostomy April 17 2007!
-I have gone to find myself, if i get back before i return, keep me here-
No matter what kind of day you are having, take five minutes to sing loudly and dance like a fool!

Posted By : Christine1946 - 8/8/2010 11:35 AM
Summerstorm, the nurse who was coming to my house told me to swish the water around in the bag to rinse it out and that is what I have been doing.

Posted By : 2b ColonFree - 8/8/2010 12:20 PM
yeah, i know, i do it sometimes too with the hose next to my toilet at home.

Hodaya

06/05/2007 - STARR procedure

colonic inertia w/pelvic floor dysfunction

08/16/2009 - total colectomy w/ileorectal anastomosis

07/08/2010 - loop ileostomy


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