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Posted By : Avjj0707 - 10/2/2017 4:01 PM
Hello! I'm going to try and keep this short...

My 5 year old had a celiac panel run ( family history) and she tested strong positive on just the AGA-IgG. Her ttg/DGP, EMA, ttg IgA/IgG were all negative. She is not iga deficient (53 - has to be above 50).

GI Dr said results are controversial. Primary said it means nothing.

I'm at a lose. Not sure if it is nothing, celiac disease or gluten sensitivity. Anyone know what her results could mean?

Posted By : straydog - 10/3/2017 8:05 AM
I cannot answer your question, however, I understand your concern because it is your child & a family history. In all honesty public forums are not a good place to get a diagnosis or answers to tests. Searching the internet once a diagnosis has been made is great for a person to educate their self. People are not drs that hang out in these forums & if they were, they would not be allowed to comment. Is there a reason that you are doubting 2 drs telling you there is nothing to be concerned with? You can go to the & type celiac levels to see what you can read there. Perhaps getting a 3rd opinion will help calm your fears.

Take care.
Moderator in Chronic Pain & Psoriasis Forums

Post Edited (straydog) : 10/3/2017 1:25:20 PM (GMT-6)

Posted By : cyclinglady - 10/4/2017 5:26 PM
The AGA test is now considered outdated. It has been replaced by the DGP test which is considered more accurate. Still, it is a positive and I can understand your frustration. Here is a study about a positive AGA test, though not common, can catch a CD diagnosis.

All celiac tests require you to be on a gluten diet. Was the child on a gluten diet? What did the GI recommend? Did he suggest a gene test? This test is used to help rule out celiac disease. Did he suggest re-testing in six months? Did he suggest an endoscopy to obtain intestinal biopsies (and still considered the gold standard for diagnosing celiac disease).

Susie is correct. Another professional opinion by a celiac-savvy GI may be in order. Celiac disease can develop at any age. If there is a first degree relative who has CD, your child should be screened every few years. To learn more visit the University of Chicago's celiac website which is well-written or the Celiac Disease Foundation.

Post Edited (cyclinglady) : 10/4/2017 6:55:18 PM (GMT-6)

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