The original version of this page can be found at : http://www.healingwell.com/community/default.aspx?f=38&m=1762963
Posted By : qwerty1 - 4/1/2010 3:20 PM
I've been having extreme tiredness for the past week or so and I went to my GP today, he is running a blood test for me to see if it is anything to do with my thyroids. He said that the fact Colitis is an auto-immune disease it can begin to affect other organs, especially in my case because it hasn't been under control for most of the past 3 years. And so hes wondering whether it has begun to affect my thyroids. I'm constantly tired anyway and I know Colitis does cause this but I have never heard of it causing other auto-immune problems with thyroids. Anyone else?


23 year old female from the UK. Diagnosed with Ulcerative Proctitis Jan '08. Hospitalised Jan '09 and Feb '09. Resistant to most medications I've tried. Waiting for date for first Infliximab/Remicade infusion.
  
Currently taking daily: 
100mg Azathioprine, Pentasa sachets x 2, Asacol suppository x 1, Ranitidine x 2.
Motilium (anti sickness), 30mg Seroxat (anti-anxiety), Multivitamins, Iron.
                             
                             


Posted By : suebear - 4/1/2010 3:30 PM
There are thyroid conditions that are autoimmune diseases, I'm wondering if that is what your GP is referring to? I'm not aware of UC causing thyroid problems but there certainly are those who have UC that also have the autoimmune thyroid problems. I would hope you're getting your B-12 levels checked as well as Vitamin D and iron.

Sue


dx proctitis in 1987
dx UC in 1991, was stable until 1998

1998 started prednisone, asacol, pentasa, nortriptylene, ativan, 6MP, rowasa enemas and suppositories, hydrocortisone enemas, tried the SCD diet, being a vegetarian, omega 3s, flax, pranic healing, yoga, acupuncture, probiotics

2000 lost all my B-12 stores and became anemic

2001 opted for j-pouch surgery- now living life med-free


Posted By : qwerty1 - 4/1/2010 3:51 PM
suebear said...
There are thyroid conditions that are autoimmune diseases, I'm wondering if that is what your GP is referring to? I'm not aware of UC causing thyroid problems but there certainly are those who have UC that also have the autoimmune thyroid problems. I would hope you're getting your B-12 levels checked as well as Vitamin D and iron.

Sue

Thanks...maybe thats what he meant...that because I have an autoimmune disease thats obviously UC, its not unlikely to have another autoimmune disease such as thyroid problems.


23 year old female from the UK. Diagnosed with Ulcerative Proctitis Jan '08. Hospitalised Jan '09 and Feb '09. Resistant to most medications I've tried. Waiting for date for first Infliximab/Remicade infusion.
  
Currently taking daily: 
100mg Azathioprine, Pentasa sachets x 2, Asacol suppository x 1, Ranitidine x 2.
Motilium (anti sickness), 30mg Seroxat (anti-anxiety), Multivitamins, Iron.
                             
                             


Posted By : MyUC - 4/1/2010 4:01 PM
qwerty1:

It is well known that an individual that has one auto-immune disease process such as UC is more likely to develop another auto-immune disease. I have had UC for 2 decades and I saw a rhuemutologist who did a ton of blood tests on me. I have anti-bodies against my own thyroid. They haven't effected my thyroid as of yet but in the future it is likely. So the answer to your question is that with one auto-immune disease it is not uncommon to develop another later in life. I also highly agree that a person with UC should have thier iron, B-12 and folic acid levels checked periodically.

Hope that helps,

MyUC


39 Year Old Male, Dentist
Dx: Ulcerative Colitis 1996 via colonscopy and biopsy.  Pancolitis with chronic and moderate inflammation.
Started UC around 92.
Past Meds: Asacol and occasionally Prednisone
Have had 6 colonscopies throughout my hx with UC.
Current Meds: Imuran, started with 200 mg and recently lowered it to 150 mg
Most recent colonscopy 2009 after 6 months of Imuran, colon is 90% healed
Currently in remission
 
 


Posted By : trixi491 - 4/1/2010 4:40 PM
That is so crazy I went to my Dr today because I've been having these symptoms (fast heart rate, dizziness, shortness of breath, tiredness) and she thinks it might be a thyroid problem (I'm awaiting the blood test results). I'm currently in a flare as well so maybe this could have brought it on.


25 year old female
Diagnosed with UC in 2005
Tried (and failed):  Asacol, Cyclosporine, Prednisone, 6MP
Current:  Remicade every 8 weeks; Cortifoam 2x daily (currently in 1st flare since about 2 years)


Posted By : mom2threehasU/C - 4/1/2010 4:48 PM
I recently had my yearly c/u with the GP & he tested my thyroid for the same reasons symptoms you just mentioned.
It came back fine...Thank God along with all the other blood work which also showed currently no inflammation. YES!!
Anyway, try not to over think it & relax. One of the most common symptoms of U/C is chronic fatigue syndrome which can also cause
these same symptoms...

Good Luck, please keep us posted.


-Colleen
35 yr old mom to 4 yr old daughter & 21 month old twin boys :)
-Diagnosed w/proctitis 2003 & minimal left sided u/c in 2007. Last remission lasted 1yr/3months
-Last flare Dec 09'- Feb 10'
-Current med is colazal 750mgs 3x daily, Librax 2x daily, canasa suppository every other night.
-Take daily, Rainbow light Multi-vitamin, Ultraflora Plus DF 15billion x3 daily, ginger with meals, turmeric x2, calcium mag, Nordic Nat. Omega 3 x2, vit D 2500iu x1
-Altered diet to exclude- artificial sweetener, gluten. Carbs & casein in moderation. No carrageegnan & never anything "mono or dygliceride" ALWAYS READ THE LABEL!!


Posted By : fruitgirl - 4/1/2010 4:52 PM
I have thyroid nodules for about 7 years now. They just hang out there and don't seem to influence my thyroid function. They've been biopsied once (all clear) and have been checked via ultrasound twice. Who knows if it's related to my UC or not.

One thing I learned when I was reading about thyroid disorders is that you need iodine for production of thyroid hormones. So, make sure to always but iodized salt!


Co-Moderator, UC Forum
Status: Remission since May 2009!
Symptoms began in November 2008, ~4 weeks after giving birth to my son
Diagnosed with pancolitis on 1/30/09
Meds: Apriso (4 0.375g pills ONCE!! daily), mesalamine enema twice weekly, Natural Factors Ultimate probiotic 12/12 Formula, multivitamin.  Used prednisone (starting dose 40 mg) to get into remission.
 
 


Posted By : Terrapin - 4/1/2010 6:36 PM
I was dx'ed with hypothyriodism about 1.5 years ago, I never really connected it with UC. I didn't have any side effects from it, it just was caught through a health screening at work. I take a minimum doesage of synthroid to get my levels in the range they should be.


Chris
 
Dx: Ulcerative Proctitis: July 2003 (Quit smoking February 2003)
Status: Possible remission - last Colonoscopy Feb 2010 
Tried: Asacol - 6x2/day, Rowasa - 1x/day, Apriso - 4x1/day, Prednisone (1 course), Endocort Foam 1x/day, Canasa 1000mg x2/day
Currently on: Asacol 4x400mg 3 times daily, nightly Rowasa enema 4g, Canasa 1000mg x1 in the AM, Multi Vit


Posted By : quincy - 4/2/2010 1:21 AM
If in fact you do have a thyroid autoimmune disease, you would have to be thoroughly checked for specific markers, etc to determine if it is or isn't.

There are autoimmune thyroid disease that some with UC have....could be caused by some medications....

Did your doctor at least send you to an endocrinologist? or at the very least, a rheumatologist?

Do research and compile questions to ask your doc so that it can be dealt with properly if you do need meds, etc.

Sucks if you do indeed have another one...

quincy

Posted By : qwerty1 - 4/2/2010 2:53 PM
quincy said...


Did your doctor at least send you to an endocrinologist? or at the very least, a rheumatologist?

Nope he just said he wanted my blood checked...I'm due a blood test anyway because of the azathioprine. He said if they came back normal then the tiredness is a result of stress and the usual fatigue from UC.
 
Thank you everyone for your replies smilewinkgrin


23 year old female from the UK. Diagnosed with Ulcerative Proctitis Jan '08. Hospitalised Jan '09 and Feb '09. Resistant to most medications I've tried. Waiting for date for first Infliximab/Remicade infusion.
  
Currently taking daily: 
100mg Azathioprine, Pentasa sachets x 2, Asacol suppository x 1, Ranitidine x 2.
Motilium (anti sickness), 30mg Seroxat (anti-anxiety), Multivitamins, Iron.
                             
                             


Posted By : WIMOMOFTHREE - 4/2/2010 11:12 PM
I've had hypothyrodism since 2006 and I've been on medication for it since then.  I was diagnosed with UC in 3-09.  I give myself a B-12 shot every month and I still am tired all the time(it is horrible), dizzy, fast heart rate, just feel horrible.  I think it is the UC.  I do think we are more prone to other things happening.


Mom of Three(Two Boys and One Girl)
30 years old

Ulcerative Colitis(severe,whole colon)

Diagnosed March 2009

Allergic to Asacol, Lialda, and Imuran

Currently on Remicade

It took a couple infusions but the Remicade is really working. Also on Vitamin D, Calicium Citrate, Chewable Multi-Vitamin, Zyrtex, Prilosec, Zinc, Omega 3, and a Probiotic, I also give myself a B12 shot every month.


©1996-2017 HealingWell.com LLC  All rights reserved.

Advertise | Privacy Policy & Disclaimer