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Posted By : Medz - 6/26/2010 9:08 AM
Anyone have experience with these, any problems?


Diagnosed with UC 6/2009
Diet: chicken, broth, salmon, rice. rice cereal, rice milk, Sunbutter.
Supplements: Align probiotic, 10grams psyllium husk, artichoke extract
Medication: 2 Lialda and 20mg Bentyl per day.


Posted By : Ugh Just Ugh - 6/26/2010 9:12 AM
I have used and like both. No issues.


Jennifer
Originally Diagnosed: 7/08 Mild left sided UC
Current Flare started: 12/26/09, re-diagnosed with pancolitis.
Current Meds: Prednisone 20mg, Imuran 150mg, Starting Remicade in the next week or two, Lexapro (10mg), lunesta (3mg).
Past Meds: Mesalamine Enemas, Canasa, Hydrocortisone Enema & Supp. Oral Mesalamine Intolerant.
Supplements: Multivitamin, Fish Oil, C, Iron, D, Calcium, Potassium, Bio-K, Tumeric, Boswellia.


Posted By : sirenshooter - 6/26/2010 9:24 AM
I wanted to try almond milk too, it sounds good.


20yr old female diagnosed with UC in 2005 at age 15
Flaring (and away from home)
125mg Azathioprine 1xday
450mg Boswellia 1xday
Arthritis
Also: asthma, acid reflux, and Raynaud's Syndrome


Posted By : Gentle Now - 6/26/2010 10:58 AM
Rice milk tastes a little thin to me. Plus Almond Milk is the only one I have found that has a brand that has no carageenan. I can't say for sure that carageenan affects me, but knowing what we do - I avoid it at all costs.


taking 6 AsacolHD/day
take Rowasa enema as needed
Mega-dosing on iron due to anemia
Eating high Omega-3 foods daily

I know that the right combination for what my tender tummy needs is out there!


Posted By : Levi - 6/26/2010 12:08 PM
I like almond milk. I drink the Silk brand, and it has an unmistakable almond flavor. Not in a bad way. I do like the Silk vanilla almond milk better though.

Posted By : Zippy123 - 6/26/2010 1:40 PM
Rice milk seemed to make my gut bloated, it is also very high in carbohydrates, but it taste ok. Almond milk was better health wise, but didn't like the taste quite as well.
Just check to make sure the brand you get does not have carageenan in it.

Posted By : Susiebuddy - 6/26/2010 3:22 PM
Oh I L O V E Almond Breeze, Almond milk... Especially the vanilla flavored one.. WAYYYY Better than real milk and easier on the gut FUR SHUR!


 Diagnosed with Ulcerative Colitis January 31st, 2005, Testing for Crohn's 3/10
Prior Meds:
< I>
Canasa, Rowasa, Lialda, Apriso, Prednisone, 1 infusion of Remicade.. none of those worked for too long... Had neurological complications from the Remicade...
 
< I>
Current Meds:
Pentasa 2000mg 2x a day, Nexium 40mg 1x a day, Culturelle 2x a day, Xanax as needed and Ambien 10mg.  B-50 Complex 1x Day, Vitamin D 5000 IU per day.  
       http://www.myspace.com/77016897  


Posted By : Sara14 - 6/26/2010 6:20 PM
I drink almond milk most days in my cereal. I really like it -- way better than dairy milk, IMO, which I don't buy anymore. Rice milk is my second choice. Haven't had problems with either. Almond Breeze and the new Silk almondmilk are both tasty.


26 years old; diagnosed March 2007

Asacol, 4 tabs, 3xday; Rowasa once or twice weekly; Viactiv; multivitamin; sublingual allergy drops; Ortho Tri-Cyclen


Posted By : jse - 6/26/2010 6:43 PM
What about goat milk? Anyone tried that? My mom gets fresh goat milk every week and I've been thinking about trying it because the lady that sells it to my mom said that she has a lot of UC customers who get their milk from her. Anyone else use it?


Diagnosed with mild distal UC/30cm up
Asacol - 3 pills/3x day
Canasa - 2 suppositories a day 1 suppository a day when flaring
Kefir - 1 small glass/day
Currently in remission. Started to flare again in January of 10. Currently in a mini-flare
Currently trying to cleanse my system with a bland diet of chicken/rice/bananas and anything gluten free.
March 2010 - Started on Colazal 3 tablets/3x a day
1 Claritin 1xday


Posted By : nonohead57 - 6/27/2010 1:13 AM
I love both Almond Breeze and Rice Dream and had no problems. I like the taste of Almond Breeze better, but it's a matter of trying them for yourself. Good luck!


pan UC for over 40 years; initially misdiagnosed as hemmorhoids.

treatment: sulfasalizine initially with rowasa for flare-ups and prednisone (I hate it) for major flare ups; recently changed to lialda.

alternative treatments tried: guided meditation; healing touch and reiki


Posted By : Levi - 6/27/2010 4:28 AM
I tried the goat milk for the first time ever two weeks ago. I really like it and think it's taste is practically indistingushable from cow milk. In fact, it reminded me of the milk served during school lunches when I was in elementary school for some reason. It does have a tendency to coagulate and look curdled sometimes, which is kind of gross to me.

Posted By : robray - 6/27/2010 6:41 PM
+1 for Almond Breeze.


Medications: Dipentum, Remicade 1 (1st infusion 2010/06/25), prednisone (15mg/day), Salafalk (Rowasa) Enema

Other: Spinach & Sunflower Seeds, gluten free, dairy free (except for aged cheese and SCD yogurt), rice free, HPI (unsuccessful)

Osteoporosis (2008): Medications: None

GERD (2008, but had it forever) Medicaitons: Parriet (Stopped)


Posted By : Dr-A - 6/27/2010 7:30 PM
Susiebuddy said...
Oh I L O V E Almond Breeze, Almond milk... Especially the vanilla flavored one.. WAYYYY Better than real milk and easier on the gut FUR SHUR!


I second that. The chocolate is even better.


Proctitis DX 1999, Pancolitis DX 2008
Remicade, Sulfasalazine 3g/day, Rear meds as needed
Psyllium (palm full twice daily)
Probiotis/VitD3 5000IU+Ca/1000mg DHA


Posted By : Malkavian - 6/27/2010 8:44 PM
I use soy milk, myself, but almond milk has a better nutritional profile than rice milk. I've also heard rice milk is waaaaaaaaaaay too sweet.


Heather, 22/Female/NJ
Ulcerative colitis from rectum to mid transverse colon, diagnosed 3/6/2009, symptoms for 2 years beforehand
Remission?!?!?!
Currently on lialda 4x/day, azithioprine 150 mg/day, calcium and d, B12. Enemas make things WORSE
Allergies: penicillin, sulfa, bee stings, environmental (especially ragweed!), OTC meds as needed


Posted By : ~:*OneLove*:~ - 6/27/2010 11:19 PM
I like soy the best personally. TRying to gain some weight & it has the most calories. I only like Silk Very Vanilla. Almond is a close second. I only use plain rice milk for my recipes such as chowders.


~*~*~* One Love *~*~*~
2005 Diagnosed with Pancolitis
2006 light flare for 1 year... spent 1 week hospitalized Sept. 06
Remicade put me into full remission. Maintained with Asacol for
3 great years...
2010 MEGA flare March-May > 2 weeks in hospital, blood transfusions, TPN, severe anemia, 80mg Prednisone didn't work so I started Remicade again... anaphalytic shock, allergic
Current Status: In remission :)
Current Meds: Prednisone 10mg, Imuran, Asacol x 12, Ambien, Florastor Probiotics, Iron 150mg, Multi-Vitamin, Calcuium
Diet: pesco vegetarian, lactose free, no caffeine or alcohol


Posted By : ~:*OneLove*:~ - 6/27/2010 11:23 PM
No problems. I like soy the best personally. TRying to gain some weight & it has the most calories. I only like Silk Very Vanilla, though. Almond is yummy, & a close second. I only use plain rice milk for my recipes like chowders & sauces.


~*~*~* One Love *~*~*~
2005 Diagnosed with Pancolitis
2006 light flare for 1 year... spent 1 week hospitalized Sept. 06
Remicade put me into full remission. Maintained with Asacol for
3 great years...
2010 MEGA flare March-May > 2 weeks in hospital, blood transfusions, TPN, severe anemia, 80mg Prednisone didn't work so I started Remicade again... anaphalytic shock, allergic
Current Status: In remission :)
Current Meds: Prednisone 10mg, Imuran, Asacol x 12, Ambien, Florastor Probiotics, Iron 150mg, Multi-Vitamin, Calcuium
Diet: pesco vegetarian, lactose free, no caffeine or alcohol


Posted By : Levi - 6/28/2010 6:06 AM
I thought soy was a big problem for a lot of people with IBD? I remember reading that when first diagnosed so could be a sketchy memory and I might be wrong. I hope so, I like soy milk and like the sound of lots of calories.

Posted By : Levi - 6/29/2010 8:31 AM
Anybody have a problem with soy? Soy milk in particular? Is there a specific reason soy would aggravate IBD?

Posted By : Medz - 6/29/2010 9:29 AM
Levi said...
Anybody have a problem with soy? Soy milk in particular? Is there a specific reason soy would aggravate IBD?


Not sure about IBD, but you may want to avoid soy if you're a man:

http://www.soyonlineservice.co.nz/04infertility.htm


Diagnosed with UC 6/2009
Diet: chicken, broth, salmon, rice. rice cereal, rice milk, Sunbutter.
Supplements: Align probiotic, 10grams psyllium husk, artichoke extract
Medication: 2 Lialda and 20mg Bentyl per day.


Posted By : quincy - 6/29/2010 11:20 AM
Soy is a source of plant estrogen. I use a patch from it.

Some women are sensitive to surges of estrogen, and it might cause havoc with periods..etc.

Yes, for men, they shouldn't consume too much soy.

q

Posted By : weevil - 7/4/2010 1:47 AM
Soy is a trigger for me, so I avoid it for the most part (soy oil, soy sauce, etc don't seem to bother me, or other soy in very small amounts).

For the most part, I drink Rice Dream and will use Almond Dream for baking/cooking and for drinking if I'm in the mood for it.

Gentle Now said...
I can't say for sure that carageenan affects me, but knowing what we do - I avoid it at all costs.


Agreed. I'd so much rather be safe than sorry. Reading about how they use carrageenan to induce colitis in animals for studies is frightening (yes I understand it's a different form than put in food but I have read that it can turn into the 'bad' form in your gut - I don't know what to believe, so I avoid it).

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