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Posted By : FosterDad - Today 10:57 AM
Ok...this is just wacked......For about the last year, about ever couple of months I will notice that I get a VERY PUNGENT (kinda like a cross between mildew, fungus and skunk cabbage) smell coming from both my palms.  I try everything to get the smell to go away, but nothing works.  Not bleach, lemon juice, vinigar.....nothing.  Anyways, thats not the weird part.....since my UC has really been active (the last 2.5 months)  I usually have constipation and then every 4 - 7 days I have a major bowel eveactuation at 4am.  The evacuation usually starts off being typical constipation nuggets, then turn to more formed pencil type poops, which then turn into "D".  Well, the last part of the evacuation, the "D", is the nastiest smelling thing which smells EXACTLY like the stink that comes from my palms.  Now, Im guessing that the last part of the evacuation is the stool that has been stuck high up in the lower intestine or the end of the small intestine, but how would that smell be absorbed from my intestinal track to end up being extruded through my palms, not my pits or anywhere else, just my palms. 
 
I should probably mention this to my doc.  He will probably think Im nuts.
 
Anyone have any thoughts?
 
Has anyone else ever noticed that or had anything similar?


Just diagnosed Aug. 14/07
Asacol 8 / day (5-Aminosalicylic Acid 400mg)
Pred. 50mg
Cortafoam (butt mousse, not emima)
Florastor Probiotic


Posted By : quincy - Today 6:00 PM
It doesn't....it's probably the meds that's changed the chemistry of your sweat. Diet can also have an impact on the sweat...especially some spices and proteins.

Is the smell perceived by you or do others smell it as well. Have other people be honest with you.
 
Do your feet have the same smell....your breath????

You should, however....tell the doctor. Some skin smells do alert the doctor to possible liver and kidney disorders.

Have you done a search on it?

quincy


*Heather*Status:mini flare June 23* 6asacol daily+ Salofalk (tapered every 4th night)
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals 
~Probiotic 2 (Natural Factors Protec) + 1 (Primadophilus Reuteri) at bedtime
~Natural Factors Multi Digestive Enzymes with supper
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!

Post Edited (quincy) : 10/20/2007 6:02:50 PM (GMT-6)


Posted By : FosterDad - Today 6:38 PM
I noticed the smell before I started on my meds....I noticed it about a year ago.  I sleep on my stomach with my hands by my face and the smell is so bad that it actually will wake me up.
 
Yes....others can smell it. My brother-in-law is a military medic and he took a wiff of them on day.  He kinda kringed and said that it smelled like mildewy or rotting fungus.
 
Nothing else on me smells except my palms...and its not all the time.  Usually if my palms start to stink, the next day I dont feel very well.  Its almost like a pre-cursor to feeling like garbage.
 
I have tried to do a search on it but havent really come up with anything substantial.  If anyone is bored and find anything on this, it would be greatly appreciated.


Just diagnosed Aug. 14/07
Asacol 8 / day (5-Aminosalicylic Acid 400mg)
Pred. 50mg
Cortafoam (butt mousse, not emima)
Florastor Probiotic


Posted By : quincy - Today 6:57 PM
Definitely tell your doctor and get your thyroid, liver and kidney enzymes checked.

Have you tried a ph test strip on your skin?

What do you do for a living?

Do you use recycled paper towels?

The game's afoot Watson!

q


*Heather*Status:mini flare June 23* 6asacol daily+ Salofalk (tapered every 4th night)
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals 
~Probiotic 2 (Natural Factors Protec) + 1 (Primadophilus Reuteri) at bedtime
~Natural Factors Multi Digestive Enzymes with supper
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


Posted By : FosterDad - 10/21/2007 12:26 AM

Ya...I have a doc. appt. on Thurs.

I havent tried a ph test strip.

I run a Emergency Receiving Home for Foster Kids.  No fancy chemicals or anything.

I use Bounty paper towels.

It is kinda weird though.  Be interesting to find out if its connected in some way.  I was talking with my brother-in-law (the Medic) again today and he was saying that if I had some kind of a fungal infection, it could manifest pretty much anywhere through-out the body, but he thinks that it is kinda strange that the odor is limited to the intestine and palms but nowhere else.  Then that got me to thinking about how some people on the board do that anti-fungal cleansing thing and was wondering if there might be a connection with that.  Who knows.


Just diagnosed Aug. 14/07
Asacol 8 / day (5-Aminosalicylic Acid 400mg)
Pred. 50mg
Cortafoam (butt mousse, not emima)
Florastor Probiotic


Posted By : quincy - 10/21/2007 1:25 AM
They would think it does. Interesting no one in that camp has commented.

If it were fungal, I would thing that you were having other issues ... hand related such as would be with "athlete's foot".

Let us know what the doctor says.

quincy


*Heather*Status:mini flare June 23* 6asacol daily+ Salofalk (tapered every 4th night)
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals 
~Probiotic 2 (Natural Factors Protec) + 1 (Primadophilus Reuteri) at bedtime
~Natural Factors Multi Digestive Enzymes with supper
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


Posted By : ithurtsmom - 10/21/2007 7:23 PM
How do your nails look?  Do your hands sweat alot?  Could you have a nail fungus?


Joan
 
Daughter 5, UC
Pentasa 2X2 daily
Omega 3
Folic Acid 1000mcg.
Fiber
Probiotics
 


Posted By : nahhan12 - 10/21/2007 7:40 PM
have you thought about toxins in your system that your body is trying to expel? I don't know why it would be only through your hands, but if your stool smells similar, maybe when you get really backed up the toxin levels get too high and so your body tries to rid itself of them via your skin instead of your colon.


_______
age 21, female
Anchorage, AK
diagnosed UC-pancolitis March 2005 (age 18)
Asacol 3 x 400mg per day
no food allergies
no known genetically related anti-bodies


Posted By : FosterDad - 10/21/2007 10:43 PM
ithurtsmom said...
How do your nails look?  Do your hands sweat alot?  Could you have a nail fungus?


My nails look great.  They grow fine and are normal color.  Dont really have very sweaty anything except for the back of my head and neck when I sleep (think thats because of Pred.)


Just diagnosed Aug. 14/07
Asacol 8 / day (5-Aminosalicylic Acid 400mg)
Pred. 50mg
Cortafoam (butt mousse, not emima)
Florastor Probiotic


Posted By : quincy - 10/22/2007 12:14 PM
Keep us posted as to what the doc says.

q


*Heather*Status:mini flare June 23* 6asacol daily+ Salofalk (tapered every 4th night)
~diagnosed January 1989 UC (proctosigmoiditis)
~5ASA: Asacol + Salofalk enemas (increase for flares tapered to maintenance)
~Bentylol (dicyclomine) 20mg as needed
~vitamins/minerals 
~Probiotic 2 (Natural Factors Protec) + 1 (Primadophilus Reuteri) at bedtime
~Natural Factors Multi Digestive Enzymes with supper
~Ranitidine,Pariet (reflux) Effexor XR 75mg;  Pulmicort/Airomir (asthma)
~URSO for PSC (or PBC) 500mg X 2 daily (LFTs back to NORMAL!!)
My doc's logic.. "TREAT (FROM)BOTH ENDS"  worth it !!!


Posted By : NuffinButtTrouble - 10/22/2007 6:07 PM

Could be a lot of things. In the past I had issues like that with my underarms and sometimes with my whole body, usually when flaring badly. What I did was use anti-fungal creams on the area for a few days and I stopped consuming sweets, cheeses and breads during that time.

NBT

 


Diagnosed with Ulcerative Colitis January 2007
Meds: Remicade, Primal Defense Ultra, Multi-vitamins (also iron, B12, Magnesium and Zinc), Flaxseed/Natures Bounty Fish Oil
Swanson Ultra Caprylic Acid (natural anti-fungal) 600mg x2 daily
Carrot & Garlic supplements (natural anti-fungal) x2 daily
 


Posted By : mgiarnw300 - 12/11/2015 9:33 AM
FosterDad, yes, I have the exact same sypmtoms. I thought is what fungal, so I've been putting peroxide onmy hands and it always comes back in the mornings and usually I notice it around 5am and my body is always hot with my hands sweaty and maybe clenched. I've had the same bowl problems too.

I feel like it's related to some 50Billion probiotic pills I've been taking.

Can you please tell me what you found out and if it ever went away?

Posted By : mgiarnw300 - 12/11/2015 9:35 AM
Also, if you can help me get rid of it, I'm sure you know how wonderful that would be.

I've also been recently using Bounty paper towels! My roomy buys them.

Posted By : Dikid - 12/11/2015 12:23 PM
this is a very old thread the poster has not posted since 2007 chances are that he will not read this
(if you click on the name of a member than you can see their profile and last posts)
21 year old female
Diagnosed with severe uc on 4/27/15
Remicade 10 mg/kg
Imuran 50 my
calcium, slow FE, and vitamin d

Posted By : ushippedyourpants? - 12/11/2015 1:20 PM
mgiarnw300 -

Maybe you could try not taking your probiotic for a week and see if the symptoms you are experiencing go away.

Are you on any meds currently ?

Posted By : mgiarnw300 - 12/11/2015 2:39 PM
That's the plan and I'm cutting coffee. I'm sure that confounds the experiment a little, but it can't hurt to do both and make the assumption that coffee exacerbates whatever is wrong...

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