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Posted By : andwes - 3/22/2010 7:32 AM
Don't know if anyone has experienced this with their GERD but Just thought I would share this with you, as I was convinced I had severe heart disease only to find out after much testing that I have Roemheld Syndrome. I am 62 yearsw old and this started when I was in my twenties - I would get heart palpitations or arrythmia (feeling like your heart is skipping a beat), especially after eating a big meal.  I would take an antacid for awhile and eventually the indigestion would subside and so would the arrythmia.  It also felt like everything I was eating was just "sitting" at the  top of my abdomen right under my diaghphram and until I belched about a 100 times, the irregular heartbeat would continue.  I haven't noticed the arrythmia now in about four years and about a month ago it returned with a vengeance ESPECIALLY after eating.  Being older now I was really afraid this was the real thing and I had slipped into actually heart disease (I'm a smoker).  But I still noticed that it was the worst after eating.  When I awoke in the morning the arrythmia was barefly noticeable and after taking my blood pressure med (Toprol) it would improve even more.  After doing some reading on the subject of arrythmia I started on a regimen of Potassium, CoQ10, Magnesium and Folic Acid (which seemed to help a little) but I was still worried what was really going on.  After much testing, I was diagnosed with Roemheld Syndrome....."characterized by presure in the epigastric and left hypochondriac region it is believed this leads to elevation of the diaphragm, and secondary displacement of the heart causing stimulation of the vagus nerve and a variety of cardiac symptoms, e.g. arrhythmia, sinus bradycardia.  This is complemented by gastro-coronary reflexes whereby the coronary arteries constrict with cardiovascular symptoms similar to chest-pain on the left side and sometimes in the left shoulder, dyspnea, sweating, upt o angina pectoris-like attacks and tachycardia even though there are no changes related in the EKG detected.  I am being treated now with an anticholinergic to treat the vagus nerve, an alpha blocker, simethicone, beano and Nexium and the Toprol.  It seems to be helping already but too early to really know for sure.  Just wanted to share in case anyone out there has similar symptoms.
 
< Edit> to bold several words.

Post Edited By Moderator (stkitt) : 6/26/2014 7:46:34 AM (GMT-6)


Posted By : stkitt - 3/22/2010 8:15 AM
Thank you for sharing and this is a good explanation of Roemheld Syndrome. I am glad you finally received the right diagnosis. For members not familiar with this syndrome the sx may include:

(Symptoms are periodic, and occur only during an "episode" usually after eating)

Sinus Bradycardia
Difficulty inhaling
Angina pectoris
Left ventricular discomfort
Fatigue
Anxiety
Uncomfortable breathing
Poor perfusion
Muscle Pain (crampiness)
Burst or sustained Vertigo or dizziness
Sleep Disturbance (particularly when sleeping within a few hours of eating, or laying on the left side)
Extrasystoles
Hot Flashes
Treatment of the primary gastro interlogical distress is the first concern, mitigation of gastric symptoms will also alleviate cardiac distress.

anticholinergics treats the vagus nerve
Alpha blockers may increase gi motility if that is an issue, also 5 mg to 10 mg amitriptyline if motility is an issue that can't be solved by other methods
antigas - simethicone, beano, omnimax reduces epigastric pressure
antacids - nexium,tums, Pepcid AC, rolaids, etc. reduces acid reflux in the case of hiatal hernia.
If you feel this may be an issue for you, please do seek out the advice of your physician.

Take care all,

Kitt

Posted By : Hannelore - 6/6/2010 12:06 PM

Hello RS sufferers...

when i get my RS attack, I drink Beer in order to burst the air bubble trapped in my stomach, or I jump up and down or take a walk or lie on my right side to relieve the pressure to the heart...

sometimes drinking a lot (Beer, Water, Baking soda water) will also burst the bubble and burping will then slowly releave the pressure...

you can also massage the vegas? nerve...

I find that when i drink a lot it doesn't happen but when i drink a few swallows it can trigger RS...

it's a scary thing when your heart starts to palpitate and won't quit...

so eat lightly...

be well...

Lore


Posted By : snowy owl - 1/27/2011 3:44 AM
Andres, wondering how you are doing with the treatment indicated. Also, most Alopathic doctors in US don't recognize Roemhelds and far majority of alternatives, barring some in Germany, haven't heard of it - nor of the symptom profile. Do you have any resources and doctors to recommend. Thanks.

Posted By : domesticangel - 3/3/2012 9:37 PM
I have. I think I've been suffering with this for about 10+ yrs. I began to get cold at night, and couldn't get warm. I started sleeping in a recliner after that. Back in 2002-3? I had all kinds of problems, but when I was eating a "healthy choice" meal one eve and nearly passed out. I went to the ER and told them that my heart was stopping but they thought I was faking or just crazy or having panic attacks. I continued to have all sorts of problems and saw many Drs and had all kinds of tests done. But they never found anything. What I have done for the past 8yrs has pretty well kept this condition under control? I stayed almost symptom free for 8-9yrs. I made sure to get all my vitamins, minerals, greens, etc. I would mix it all together and drink that in the morning. I would take a good probiotic, usu 35billion or so. And if I started having the digestive problems, I would take herbs to kill parasites. I haven't been doing my "regimen" lately and eating too much fiber and have been having problems again. I would up in the ER again last week and of course, they think you are crazy.

Posted By : plainrainman - 8/30/2012 3:31 AM
This has come the closest to explaining my symptoms which have been very hard to explain to my doctors. Being treated now for GERD with small sliding Hiatal Hernia and Anxiety. I have had a recent clear cardiac cath done. Symptoms started in 2009 and initially had negative stress tests and have been worked up a couple of times for chest pain. I'm 48 yrs old 5'10" and weight has gone from 190 to 170 due to frequently skipping evening meals (weight loss not a bad thing).
Symptoms I've had:
Sinus Bradycardia (my normal rate is 50s to 60s) so not sure if this is relevant
Difficulty inhaling
Angina pectoris
Abdominal Bloating and gas
Fatigue
Anxiety
Uncomfortable breathing
Burst or sustained Vertigo or dizziness
Sleep Disturbance (particularly when sleeping within a few hours of eating, or laying on the left side) Had several episodes of palpitations with extreme hot sensation all over which wakes me up.
Tinnitus
Tightness in throat
Frequent epigastric pressure and tightness/tenderness in left chest(hypochondriac area)
Have noticed that I can tolerate walking on treadmill to get pulse in the 120s, but doing yard work using upper body (like chopping with an axe) will cause my heart to beat very hard (can feel my pulse through my torso) and I get exhausted quickly. Wonder if this is related to pressure on heart causing some type of sympathetic reflex.

Does anyone know of a particular diet to decrease abdominal gas and bloating?
Am already taking Simethicone, Beano, Prilosec, Zantac, and Probiotics regularly. Will use Maalox, Alka Seltzer, or Baking Soda PRN.
Thanks for any feedback.

Posted By : snowy owl - 10/1/2012 2:37 AM
ref: roemhelds: check to make sure that you don't have a diverticulum on the stomach, as it can inflate with excess air in the belly and cause issues in addition to those which come with Roemehelds.

Based on my experience, it does not appear that western medicine, nor alternative physicians have an understanding of the Roemhelds paradigm and thus, am pursuing resources in Germany. It appears that physicians there have a much greater understanding of Roemheld's. If interested in the results of my research please respond and if you have resources please respond in kind.

Posted By : GaelRacer - 11/6/2012 10:00 AM
I was diagnosed with GERD 10 years ago and I take 20mg omeprazole daily.  Recently, it seems that omeprazole stopped working and I have suffered GERD-like attacks after meals.  I have very simlar symptoms after eating; gas, belching, abdominal cramps, diarhhea, vertigo, shortness of breath, palpitations (fast and pounding), chest pain, trouble inhaling, nausea, and I cannot lie on my left side.  I am visiting my PCP in a couple of days and will mention Roemheld Syndrome.    

Posted By : Holly Boo - 1/30/2013 7:13 PM
I have weird muscle weakness (especially in my legs), diarrhea after many meals, hot flashes at times, cannot lay on my left side in bed, heart palps mostly fast, fatigue, and dizziness/lightheadedness during my episodes. I have been to ER several times thinking I was having heart issues. My event monitor never showed anything, echo, EKG's and stress test normal. Then my MD put me on Celexa and Xanax prn stating the maybe I was anxious or having panic attacks. I stopped taking those a while ago as they did not help. I had my gall bladder removed and my endoscopy and colonoscopy were normal. I am at my wits end with whatever is going on. My husband and doctor probably think I am crazy. Could this be the Roemheld Syndrome that you all are talking about? I am so tired of felling like I am going to die during these episodes! Forgot to mention that I am now on Omeprazole and Levsin.

Posted By : dencha - 1/31/2013 9:18 PM
Hi Holly Boo,
Welcome to Healing Well!  Honestly, I can't answer your question, but after reading the symptoms listed in the posts above, it sure sounds like a possiblity.  Why not go to your primary care doctor with your symptom list and see what he/she thinks. 
 
Here's a link with additional information:
 
Good luck!
Denise
GERD/Heartburn Moderator
Nissen Fundoplication 2/09
Allergy/Asthma

"Whatever you fight, you strengthen, and what you resist, persists.”

“Worry pretends to be necessary but serves no useful purpose”

“Accept - then act. Whatever the present moment contains, accept it as if you had chosen it. Always work with it, not against it.”
Eckhart Tolle

Posted By : rduval - 3/22/2013 9:19 AM
Anybody actually get a "cure" for Roemheld yet?

I'm 53, 160lbs, 5'11''. Had symptoms like this since my 20's. Panic attacks, etc.

In 2007 had a major AFIB episode and was converted easily in hospital with Diltiazem and they thought it was a lone incident. I now realize that I had eaten a very big meal (with friends who love to cook and tell you eat! eat! and I did) with a few cups of tea and dessert. Never put the 2 together until recently.

Then I had a TIA (small stroke) in 2008 and an MRI revealed 4 previous silent TIA's so they assumed the AFIB was the cause and put me on Warfarin which has been ok until recently. Aug 30 of 2012 I had a minor heart attack (minor in that I had almost no muscle damage, it was barely detectable) and they put me on Digabitran (Pradax or Pradaxa in Canada) and that set off my stomach like crazy.

Within a few weeks I had to get off the Pradax but then the PVC's and AFIB really started kicking in, especially at night. I go to sleep at about 10:30 and usually wake up at about 3:30 in AFIB (which I can luckily usually stop with the ValSalva manouvre) but then it's like that for the rest of the night every 20 minutes to an hour. It drives me crazy.

I'm going for a virtual colonoscopy on Apr 4th and a gastroscopy on Apr 15th but I believe that I (and maybe many of you IMHO) have Helicobactor Pylori infections causing ulcers that cause the inflamation, that causes the gastric pressure that causes our symptoms.

Unfortunately this particular Gastroenterologist refuses to treat me unless he has a confirmed diagnosis of H. Pylori so I will have to survive another month like this and hope the biopsies come back positive.

I will keep you informed but if anyone has had similar issues and found success I'm all ears.

BTW, my best solution for managing the condition so far is: small meals MANY times a day, Pepto Bismol (or any Bi****h Sulfate product) multiple times a day to keep inflammation down and especially rightr before bed time. I'm also eating Manuka Honey, which may sound like a typical "internet hokus pokus cure" but the FDA has actually recognized the antibacterial properties of Manuka honey and considers it a valid treatment option for H. Pylori.

Anyway, that's my $0.02 for now.

Rick, Whitby, Ontario, Canada.

Posted By : NCMIMI - 4/10/2013 3:01 PM
I am so glad I found this forum even though, at this point in time, I had, through my own experience over the last 20 years, decided my "heart issues" were in fact digestive related. Consulted many doctors through the years, not only about cardiac issues but also digestive issues (heartburn, reflux, hiatal hernia) and not one mentioned the possibility of connection between palps, etc. and digestive issues. In 2012 heart symptoms became more frequent and while eating dinner one evening had so many palps I nearly fainted, which scared me. Went to see my cardiologist and he suggested another event monitor for 7 days. Again, at that time, as all prior visits, I said I felt problems were connected in some way to eating. Heart event monitor recorded PAC, PVC, SVT and bradycardia. Most of this immediately after eating.

I had a one and only episode of AFib in 2008 (after eating). Hospitalized and all heart test performed, including cath (which showed clear arteries).

I was feeling really unwell and had some right side and back pain at the time I was wearing the event monitor so my pcp ordered scan of gallbladder, which did show gallstones and sludge. I had gallbladder surgery in April 2012. To my surprise, because I had no idea that a diseased gallbladder could effect heart, about six months after surgery all of the heart irregularities had lessened greatly. I was hoping they were gone. Not so lucky, I still have to be very careful to control gas, constipation, heartburn, reflux or I will still have an "episode". Hence my joy (seems strange to feel "joy") at finding this malady has a name. I do believe it is what I have.

I would like to know if anyone has symptoms so severe they feel faint. And, what would cause a faint, SVT or bradycardia?

Posted By : ShareHealth - 5/30/2013 1:08 AM
Wow, I was actually trying to find information on vasovagal syncopy syndrome, but found a possible answer to something I have been plagued with for quite some time. I have for years now had unexplained episodes of tachycardia, never diagnosed with SVT even though my HR would go into 160's and higher. I would go to sleep knowing it was coming, and discovered it would happen a lot to me after eating a large meal and going to bed with a full feeling. Or after drinking a stronger alcoholic drink. I would wake up not feeling right and then feel my heart racing. I also would barely fall asleep and then gasp for air and sit up. This can repeat every hour for several hours until I figure I am so exhausted that I end up falling asleep. My cardiologist tells me all is well with my heart, no SVT, but I should consider they may be panic attacks. What I am reading in your posts is interesting and kind of describes what I have been dealing with. So glad I joined.

Posted By : CPA-Kim - 7/22/2013 12:48 PM
I have all the symptoms but I have been dx with SVT. Had an EP study to confirm. They could not ablate it because it was too close to the nerve that controls diaphragm. When I eat large meals, this brings on symptoms. I started on the Diet for GERD and it has helped. Small meals, no exercise after meals (I have to exercise on empty stomach when I first wake up), The book, Dropping Acid, has helped me to identify GERD trigger foods. I started taking digestive enzymes today to see if they help. I never eat processed food or food with too much fat. I eat all organic and drink a green drink after my walk and before breakfast. I'm on Sectral for heart palpitations, Aciphex and Gaviscon for GERD. I also take Vitamin D, magnesium, and DHA (oil from algae) as supplements. I am adding B-12 and folic acid next week.

Posted By : Andy1986 - 7/22/2013 1:39 PM
Im glad I found this, my GERD nightmare actually started out with severe heart palpitations and several trips to A&E. After all the heart tests they said it was fine and then started treating me for 'anxiety'.

I would go to the doctors and say my heart was fast constantly, theyd measure it at 80bpm and say it was fine but I KNEW it wasn't my heartrate is 50-60 when resting, not 80 lying down! Noone believed me and I was brushed off as having anxiety (they told me so much they even convinced me that it was all in my head which gave me enormous mental health problems).

It was only when I was at my wits end and started taking some gaviscon for stomach pain that my heart magically slowed down after pretty much beating out of my chest for weeks. Since then I have been 100% certain that my stomach/esophagus and acid causes my heart palpitations but have only ever used the anti acids as a treatment.

They aren't gone completely but I dont get 'attacks' anymore, just the odd skipped beats

Posted By : fight-gerd - 7/22/2013 6:43 PM
Original poster mentioned - anticholinergic to treat the vagus nerve

Does anyone know how the anticholinergic treats vegaus nerve. I googled and here is what it says

"Anticholinergic drugs are another group of bronchodilators that are different from the beta-agonists. While the beta-agonists affect the bronchioles (small airways), anticholinergics affect the muscles around the bronchi (large airways). When the lungs are irritated, these bands of muscle can tighten, making the bronchi narrower. Anticholinergics work by stopping the muscles from tightening."

Posted By : fight-gerd - 7/22/2013 7:08 PM
Original poster mentioned - anticholinergic to treat the vagus nerve

Does anyone know how the anticholinergic treats vegaus nerve. I googled and here is what it says

"Anticholinergic drugs are another group of bronchodilators that are different from the beta-agonists. While the beta-agonists affect the bronchioles (small airways), anticholinergics affect the muscles around the bronchi (large airways). When the lungs are irritated, these bands of muscle can tighten, making the bronchi narrower. Anticholinergics work by stopping the muscles from tightening."

Posted By : shifting - 7/23/2013 8:03 AM
plainrainman said...
This has come the closest to explaining my symptoms which have been very hard to explain to my doctors. Being treated now for GERD with small sliding Hiatal Hernia and Anxiety. I have had a recent clear cardiac cath done. Symptoms started in 2009 and initially had negative stress tests and have been worked up a couple of times for chest pain. I'm 48 yrs old 5'10" and weight has gone from 190 to 170 due to frequently skipping evening meals (weight loss not a bad thing).
Symptoms I've had:
Sinus Bradycardia (my normal rate is 50s to 60s) so not sure if this is relevant
Difficulty inhaling
Angina pectoris
Abdominal Bloating and gas
Fatigue
Anxiety
Uncomfortable breathing
Burst or sustained Vertigo or dizziness
Sleep Disturbance (particularly when sleeping within a few hours of eating, or laying on the left side) Had several episodes of palpitations with extreme hot sensation all over which wakes me up.
Tinnitus
Tightness in throat
Frequent epigastric pressure and tightness/tenderness in left chest(hypochondriac area)
Have noticed that I can tolerate walking on treadmill to get pulse in the 120s, but doing yard work using upper body (like chopping with an axe) will cause my heart to beat very hard (can feel my pulse through my torso) and I get exhausted quickly. Wonder if this is related to pressure on heart causing some type of sympathetic reflex.

Does anyone know of a particular diet to decrease abdominal gas and bloating?
Am already taking Simethicone, Beano, Prilosec, Zantac, and Probiotics regularly. Will use Maalox, Alka Seltzer, or Baking Soda PRN.
Thanks for any feedback.


A good diet for the bloating is the Fast Track diet...good luck!

Posted By : harry 00 - 2/11/2014 9:50 AM
Never heard of Roemheld Syndrome until finding this forum, I'm 51 and have a sliding hiatus hernia, been on omazaprol for couple months but stopped this treatment 3 weeks ago, had many of the symptoms here, tight bloaty feeling just below bottom rib left side which would make it feel like my heart was restricted (speeding up thumping etc) together with lethagy, slight nausia and anxiety, felt like there was a bubble down there that was pressing on everything.
For me this would only come on after sex (etc!), exercise or some other form of excitement ie watching football, could last anything from few hours to few days and it a pisser.
Noticed that when was on omazaprol this never happened but has returned since stopping 3 weeks back. Stopped omazaprol because acid reflux improved and didn't want to stay on this drug too long.
Makes sense all this biz about vagus nerve, for now going try to diet and stay off beer/wine see if helps, will repost later with outcome. Anyone else tried anything that works??

Posted By : DCellTheAlphaMale - 3/15/2014 11:38 AM
Can someone tell me which anticholinergics in particular are being used to treat this condition?

Posted By : Sargem - 4/11/2014 8:17 PM
Hello out there..
Just signed up as I think I should share in what has been a nightmare for 6 years now. All the symptoms you guys are describing. Mine is slow than normal hear rate and eating actually helps... so not sure about this, but I do not feel heartburn or burp excesivelly. I am also the right weight for my height. But bouts of skipped beats so severe as to make me lightheaded and sick. Cannot stop them once they start. However: I have worked out that it has something to do with the way I sit (scrunched up stomach) for long periods, stress (tensing in the stomach area), leaning forward or streaching up. I do think the stomach and vagus are involved somehow, much to the doctors (and cardiologist's) disdain. So the biggest help has been adjusting position of my body, regardless if I'm working on a computer, driving, in social situations. And being super vigilant to what my body is telling me. If I am vacuming and I get one flutter, I literally drop the vacum and lie down and breathe for a while. Breathing exercises have helped a lot. If I ignore small early cues, then a huge episode will follow. Here is a corker though... I found years ago that a couple sips of alcohol of any type will make the skips go away. Sometimes for good, at bad times, only for a bit. I think it has to do with the vasodilating effect of alcohol as the ammount is way too small to be 'relaxing' as doctors suggested. So here it is. I hope it helps someone. I feel your pain, I too had heart checked several times and have developed anxiety and panic attacks as a result of this condition. I cannot believe that a condition that lowers the quality of life to this extent has been ignored by the doctors!! Maybe chats lie this will find solutions. Hurray for the internet! Good luck.

Posted By : pburr35 - 10/20/2014 8:39 PM
Well I too have had PVCs for ever! I always knew it was conected somehow to my stomach issues. Ive mentioned it to numerous doctors who basically said I was crazy. I was on all types of meds for GERD and reflux. I recently started seeing a holistic dr. He did the odd nutritional response testing and put me on all these whole food supplements. Its been two months and my GERD is gone!! I have been off my prescription meds for about two months now and still no GERD or relux. One thing he tested me for was dairy. Not an intolerant test. He tested me through the nutritional response testing method. He said my body does not like dairy at all. So feeling doubtful I went to my gastro and had an intolerance testing done for dairy. It came back that I wasnt lactose intolerant. But even my gastro said that just because your not lactose intolerant doesnt mean your body agrees with dairy. So I stopped all milk and dairy products and was doing great! No GERD no reflux no palps. Then I wanted to test things out.I stopped my ssupplements for a couple weeks and ate dairy for a week. Wouldnt you know im suffering almost instantly of the GERD reflux and palps. Needless to say I am never eating dairy again. And ill never stop my whole food supplements. It makes all the difference. Stay away from dairy!! Our bodies wernt meant for it. Its very hard for us to digest and causes a lot of gas. Getting off it is hard though. Just about everything has milk in it. Check your labels. I eat a ton of vegetables fruit twice a day and loads of protein. Almond milk is great too. Im telling you try it and it will rid those stomach issues and your palps.

Posted By : Trotters - 10/21/2014 4:27 AM
How nice it is to find this thread. It makes me feel like less of a freak and makes me realise I'm not alone with what I have been experiencing. I have had every single symptom that has been mentioned here. Granted it isn't every day thank the Lord. Really quite scary symptoms. The only comfort I have received is that I have had a cardiologist look at my heart.

It sucks to have to really watch I eat but then again, I'd rather that than having a completely sleepless night waking up gasping.

Once again, I'm thankful for healingwell for being able to reassure me, I'm not alone.

Posted By : skirabbit - 5/4/2015 5:32 AM
Hello All

I am pretty certain that I have RS as I tick off every symptom and cardiologists are at a loss as to what is causing an almost permanent state of tri and bi gemini. I have LBBB but all exams echo's, MRI's, ecgs, etc. come back negative for any heart muscle problem - they put it down to an "electrical" problem they cannot find a cause for. I suffer from the massive anxiety and especially at night the flick flacks in my chest. Though I am reassured by the cardio tests the anxiety will not go away - and the biggest impact it has is on my lack of sleep.

I have read as much as I can on RS and using google translate tried to make the most of the German web sites - all the Cardio's I have spoken to poo poo the idea of RS - it seems only in the DACH countries is it considered a real thing.

My main issue is that I eat well, I am fit and slim - so most of the "remedies" I find I do already. Anyone have any other sources ideas of what else I could do?

thanks

Ski

Posted By : Alcie - 5/4/2015 11:42 AM
Since you are trying to self-diagnose in the absence of a cardiologist figuring out what is going on -

That's what I have had to do too. I get tachycardia when I eat one of my food triggers. I have specific food intolerances, all the foods happen to contain sulfites, but others could have other food triggers.

I see you have tried burping. I did that too at first, until I found out it was the same principle as Valsalva maneuver. After the tach one time caused a heart attack, from the coronary arteries constricting, I got help from my allergist because I knew it was related to certain foods. She had me keep a food journal (see the search box for more posts) and I identified my foods and what they contained.

The reason the stomach is affecting the heart is that they are connected by the vagus nerve. It's called cardioesophageal reflex. (see Google and also the archives - search box) The heart can affect the GI system too. It sometimes has given me diarrhea! And an infection in a bit of my colon has caused arrhythmias too!

I'm not saying this is your diagnosis, but it's worth considering if certain foods are the trouble or just the effect of eating.

Posted By : skirabbit - 7/6/2015 11:41 AM
A cure?

this is my story and I hope it can help anyone who reads its. For years now I have been aware of ectopic beats. At first way back in 2011 I would feel one every now and again then in September last year they suddenly got very bad - I had two 48hr Holters which showed I had around 7 to 10% of my beats were ectopic. I was also suffering from a lot of burbing and of course had the constant feeling of anxiety and dread you get with ectopic beats. I went to several different doctors - all said the same thing - your heart is fine - no idea why you have these beats - yes it is horrible, sorry nothing we can do. By march this year the situation was so bad I was in permanent state of bi and tri gemini with some periods where the ectopic and normal beats would alternate. It got so bad they were battling to do MRI's and Untrasounds - same response - do not know what it is sorry. I then went to a highly recommended cardioligist who after one exam said we have to put in a pace maker immediately one with an icd. He told me the ef of my heart was 40% and I had cardiomyopathy. I was in a state of shock. He told me I had to have the op done immediately. Fortunately I had my doubts and I visited yet another cardio who told me that this guy was just trying to make money and that a pacemaker would not help me - that said he could not help me either. So I did tons of research and adopted a shotgun approach to cures and SOMETHING HAS WORKED - I have not had an ectopic beat in 4 weeks - they gradually started diminishing about 7 weeks ago. I am so happy for the first time in nearly a year I have no anxiety and I can sleep at night without my heart thumping and skipping in my chest. So here is what I did - hope something works for you.

Chiropractor

I read that Chiro's can treat Roemholds syndrome - my chiro did the research in his community and started various treatments to my back and chest and even stomach.

Supplements


I read that magnesium and potassium deficiency can cause ectopic beats and that it can take a long time to build your magnesium back up - so I started taking high quality supplements

Holistic Doctor

I went for a full panel of tests - one strange thing came back - I had a very violent and strong reinfection of epstein bar - doc gave me some treatments for that as well as something called solunat 5 and Folgar12

Diet
I went LCHF - and followed the whole 30 for a month

Church
I am not religious - but on a trip to Malta we were taken to a church on a tour where the guide assured me that any health condition you asked to be cured would be cured in a year - so I asked for my heart to be fixed

So which one of these worked? Was it all a coincidence? Who knows and to be honest I do not care - Something worked and I am so happy i cannot describe it :-)

Posted By : skirabbit - 7/6/2015 11:55 AM
A cure?

this is my story and I hope it can help anyone who reads its. For years now I have been aware of ectopic beats. At first way back in 2011 I would feel one every now and again then in September last year they suddenly got very bad - I had two 48hr Holters which showed I had around 7 to 10% of my beats were ectopic. I was also suffering from a lot of burbing and of course had the constant feeling of anxiety and dread you get with ectopic beats. I went to several different doctors - all said the same thing - your heart is fine - no idea why you have these beats - yes it is horrible, sorry nothing we can do. By march this year the situation was so bad I was in permanent state of bi and tri gemini with some periods where the ectopic and normal beats would alternate. It got so bad they were battling to do MRI's and Untrasounds - same response - do not know what it is sorry. I then went to a highly recommended cardioligist who after one exam said we have to put in a pace maker immediately one with an icd. He told me the ef of my heart was 40% and I had cardiomyopathy. I was in a state of shock. He told me I had to have the op done immediately. Fortunately I had my doubts and I visited yet another cardio who told me that this guy was just trying to make money and that a pacemaker would not help me - that said he could not help me either. So I did tons of research and adopted a shotgun approach to cures and SOMETHING HAS WORKED - I have not had an ectopic beat in 4 weeks - they gradually started diminishing about 7 weeks ago. I am so happy for the first time in nearly a year I have no anxiety and I can sleep at night without my heart thumping and skipping in my chest. So here is what I did - hope something works for you.

Chiropractor

I read that Chiro's can treat Roemholds syndrome - my chiro did the research in his community and started various treatments to my back and chest and even stomach.

Supplements

I read that magnesium and potassium deficiency can cause ectopic beats and that it can take a long time to build your magnesium back up - so I started taking high quality supplements

Holistic Doctor

I went for a full panel of tests - one strange thing came back - I had a very violent and strong reinfection of epstein bar - doc gave me some treatments for that as well as something called solunat 5 and Folgar12

Diet
I went LCHF - and followed the whole 30 for a month

Church
I am not religious - but on a trip to Malta we were taken to a church on a tour where the guide assured me that any health condition you asked to be cured would be cured in a year - so I asked for my heart to be fixed

So which one of these worked? Was it all a coincidence? Who knows and to be honest I do not care - Something worked and I am so happy i cannot describe it :-)

Posted By : SofieLV - 10/8/2015 2:58 AM
To skirabbit: i'm very happy that you are cured! As a person who has this problem i know how frustrating it is and how hard it is to find a cure.
I would like to share my experience, hope it can help others.
I've been suffering with this from 2013 triggered by antibiotic (ciprofloxacin) allergy. Going to many doctors and being told it's just stress and anxiety related problem. Until the end of last year a friend suggested to try bioresonance therapy (with bicom 2000 machine). I hesitate at the beggining but after sometime decided to try because all medicines that the doctor gave me are not working. Plus this therapy is painless and have no side effect. After couple of visit i improved a lot, not 100% but feel much better. i go once a week, and still doing it. I've been doing it for 6 months now. On my last therapy session i ask whether this machine can detect GERD, and she said it can. She check under gastric problems option and the machine detected that i have Roemheld syndrome. I never heard of it before in my life, but i instantly feel better right after that program for Roemheld syndrome applied on me. I google it on my way home and find out that i have all the symptoms mentioned in Roemheld syndrome. I don't know if this therapy can cure me 100% but so far i feel it is already at least 70%. Without taking any pills or prescribed medicine. So i can testify and recommend people to try bioresonance therapy if you have been to doctors but not cured yet.

Posted By : Pollygld - 12/21/2015 12:21 PM
I was recently diagnosed with Roemheld Syndrome and I am very glad that I finally have a name for the symtoms I have been having for 42 years. When I was 16, I started getting fainting episodes, but could never connect them to any reason. I was usually out for only a few seconds, sometimes a few minutes. They happened on average once a year, and I didn't pay any attention to them cos I had no other symptoms. At the age of 43, the fainting episodes stopped, maybe because I changed my diet, cut out wheat and dairy, however, I was never able to do a fast exercise class as I started to get palpitations, sweating, etc. heart rate went up to 160 and when I called the instructor and showed him on the treadmill, he said it's impossible!! Treadmill must be out of order. After menopause, the palpitations became much more frequent and I had 24 hr holters a few times and all the relevant tests and they never found anything wrong. My family doctor said its anxiety, and sent me to a psychiatrist. A few years later, diagnosis of electrical problem and had an ablation. Helped a little for a short time. I am very anti medications. The doctors wanted me to start taking beta blockers, nexium for reflux, and some other heart pill, I can't remember now. And so it continues. Now at the grand old age of 68, I had a body scan by Global Diagnostics, non invasive, and in only 8 minutes. Brilliant! Among other stuff was Roemheld Syndrome that I had never heard of. I was put on the Paleo diet which means no gluten, no dairy and no grains. Not easy, but my reflux and esophageal pain immediately went away, probably cos of the not eating grains. I find taking magnesium helps a little, but still get palpitations and breathing difficulty. I also am very stressed out, that's just my make up, and I think that's also part of the reason for the problems. So reading about the chiropractor helping was very interesting, now I will try to find a chiropractor who can understand the problem and hopefully help me. My father had an arrythmia and took medication. He refused a pacemaker and died suddenly of heart block. My uncle too. Is there a genetic link here?

Posted By : mothergoose16 - 5/17/2016 11:15 AM
Hi I am new here glad I found this thread. I had on mother's day an episode of Afib and was admitted to ICU for 4 days. I found out Reoemheld syndrome a couple of days ago and I think this is what I have. I am taking meds to slow the heart but I think my heart has not stopped skipping beats. I found a supplement that they say heals GERD is called
D-Limonene I heard this on a radio program from a doctor of the Life Extension Institute. Just ordered the supplement. . Also started taking gas-x because after I eat I burp all day long. Hope these self treatment will stop afib. I have an appointment next week with my cardiologist, so I will update later. I saw here people are talking about anti cholinergic meds, do you know that that class of drug causes Alzheimer syndrome?

Posted By : beautifulbooks - 4/30/2017 9:49 PM
Wow! I finally decided to research the fainting episodes I have been plagued with since teen years. I am now 51 years old. Many, many episodes, initially always with onset of severe menstrual cramps (had large benign tumor on my uterus that caused strong contractions to initiate menses). Then any intestinal cramping. Then any sleeping on a full stomach. Or sudden surprise. Or stress. Or fatigue. Several trips via ambulance and full workup of head CT, cardiac and carotid artery ultrasound. Everything fine. At least several episodes of GERD with ease after nitroglycerin dose. On betablocker for many years due to frequent Premature Ventricular Contractions (PVCs).

My grandmother was a "fainter." So was my father. So are my sister and me. So must have a strong genetic predispostion.

If anyone knows a knowledgeable doctor about this, in the US or elsewhere in the world, please let me know. It has happened to me twice in the past week and it is getting scary. Each time I fall off the toilet I end up with bumps and bruises on my head, shoulders, back and I am realizing I run a high risk of serious injury.

Thanks for any assistance!

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