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Posted By : Dikid - 2/7/2016 2:53 PM
Hi guys.
I don't normally hang out on this forum but I need some advice.

My dad is displaying some aggression and his personality is starting to change a bit.
Both of his moms brothers died of Alzheimer's and his mom (my grandmother) has very advanced Alzheimer's disease.

I don't know too much about Alzheimer's but I know that the earlier one begins treatment. The longer they can have without the debilitating symptoms.
It is scary to watch my grandmother lose all of her memories and abilities. She doesn't even know her own children. I want my dad to have as long as possible without being crippled by this devastating illnes.

Can you recommend specialists in Chicagoland area?
What specific tests or procedures were helpful/relevant etc...

I know Alzheimer's is difficult to diagnose but having the right care team will make things better.

Thanks
21 year old female
Diagnosed with severe UC on 4/27/15
Remicade 10 mg/kg
Imuran 50 mg
librax and zofran as needed
calcium and vitamin d, slow FE

Posted By : Red_34 - 2/8/2016 7:35 AM
Welcome to this side of the forum but I'm sorry that your dad seems to be having issues :(

This forum doesn't get much traffic but if you are looking for a specialist, go to ratemds.com This is a peer based website that gives reviews on doctors by speciality and location.

Actually Alzheimer's is not too difficult to diagnose but unfortunately when the symptoms are strong enough to warrant an evaluation, the disease has progressed. But, yes....early treatment MAY slow down progression. The key is finding the right treatment.

Best of luck with your father and if you have anymore questions don't hesitate to ask.
SHERRY
Moderator-Allergies/Asthma, Alzheimer's, IBS, Co-moderator-UC
Diagnosed Left sided UC '92 - meds: Apriso, Remicade) Unable to tolerate MOST mesalamines* Currently in Remission, IBS, Diverticuliar Disease, Fibro, Sacroiilitis, Raynauds, OA, PA, Rosacea, Psoriasis, Dry eye syndrome and allergies controlled by Zyrtec

Posted By : Dikid - 2/8/2016 7:55 AM
Thanks!!

I'm gonna check that out. I'll also ask my pcp for recommendations but sometimes real references from patients are good too

I'm sure I'll see you at the other side
21 year old female
Diagnosed with severe UC on 4/27/15
Remicade 10 mg/kg
Imuran 50 mg
librax and zofran as needed
calcium and vitamin d, slow FE

Posted By : Alice22 - 2/10/2016 10:09 PM
Dikid - I can't offer any help with specialists, but he should see a neurologist and if he is diagnosed with Alzheimer's he should get on Aricept as soon as possible. My mother has had Alz. for 8 years and I believe the aricept has really helped to slow down the progression of the disease. There are different assessment tests they'll use to determine whether or not he is starting to develop dementia/Azheimers, such as the "mini-mental" (MMSE I think). Is it possible there are other things going on in his life that could be responsible for the change in behavior (ie, stress, other health problems)? Good luck - I know how difficult this must be for you and your family. But I hope it's something else and not Alzheimer's.
Diagnosed with ulcerative colitis in 2005 and rheumatoid arthritis in 1998. On Remicade since 2005 for both diseases. For UC tried sulfasalazine, Lialda, colazal and others which made me ill. Started 50 mg. Imuran July 2015. Use Bentyl, peppermint oil capsules and Gas-X which all help with various UC symptoms during a flare.

Caregiver for mother with Alzheimer's Disease (for Alz. forum).

Posted By : Dikid - 2/10/2016 11:32 PM
Thanks Alice!

I appreciate it and I'm looking into finding a really good neurologist. I hope I can find someone who is in an academic setting who can supply us with the most current info.
21 year old female
Diagnosed with severe UC on 4/27/15
Remicade 10 mg/kg
Imuran 50 mg
librax and zofran as needed
calcium and vitamin d, slow FE

Posted By : Mary~Canada - 4/21/2016 7:41 PM
Don't know if you're still checking back here or not, but I was diagnosed in 2006 with alzheimers, and started immediately on Aricept, and two months later on Namenda (memantine). The combination of those two drugs has been an absolute life saver for me....along with the brain exercises I do every day, and the regimen of vitamins that are said to provide healthy brain cells.
I have a website with all the information we've found over the last ten years to help make life better for my husband and myself if you want to check it out. www.dodgingdementia.com
Good luck you.

Posted By : Dikid - 5/17/2016 10:42 PM
Thanks!

So just a little update,
My dad will be seeing John Cheponis at Rush university this week and we will see what he says from there. I hope that I have good news to share very soon.
He is most definitely suffering from stress at work and financial stresses etc. however, his behavior is off. Also, I noticed his formerly very good sense of smell has diminished
I recall reading at some point that smelling is associated with the area of the brain associated with early stages of dementia
21 year old female
Diagnosed with severe UC on 4/27/15
Remicade 10 mg/kg
Imuran 50 mg
librax and zofran as needed

Please excuse typos. Usually post from my phone.

Posted By : Red_34 - 5/18/2016 8:01 PM
I'm glad you found a doctor for him. And hopefully he will help and be able to find the cause of your fathers "distress". I sincerely hope it's not AD but if in the event it is, even tho there is no cure, there are medications to slow the progression.
SHERRY
Moderator-Allergies/Asthma, Alzheimer's, IBS, Co-moderator-UC
Diagnosed Left sided UC '92 - meds: Apriso, Remicade) Unable to tolerate MOST mesalamines* Currently in Remission, IBS, Diverticuliar Disease, Fibro, Sacroiilitis, Raynauds, OA, PA, Rosacea, Psoriasis, Dry eye syndrome (which caused a blockage -had the DCR surgery 2015 success!), allergies-Zyrtec

Posted By : Dikid - 5/18/2016 8:11 PM
Doctor ordered some testing to see if it's AD.
Mri and crapload of blood.
He also did some cognitive testing
21 year old female
Diagnosed with severe UC on 4/27/15
Remicade 10 mg/kg
Imuran 50 mg
librax and zofran as needed

Please excuse typos. Usually post from my phone.

Posted By : Red_34 - 5/19/2016 4:24 PM
How did he do on the cognitive test?
SHERRY
Moderator-Allergies/Asthma, Alzheimer's, IBS, Co-moderator-UC
Diagnosed Left sided UC '92 - meds: Apriso, Remicade) Unable to tolerate MOST mesalamines* Currently in Remission, IBS, Diverticuliar Disease, Fibro, Sacroiilitis, Raynauds, OA, PA, Rosacea, Psoriasis, Dry eye syndrome (which caused a blockage -had the DCR surgery 2015 success!), allergies-Zyrtec

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