Joint Pain...but can't find a diagnosis

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Regular Member

Date Joined Nov 2007
Total Posts : 114
   Posted 1/1/2008 2:32 AM (GMT -7)   
Alright here is the deal...I have had symptoms for many years, and although docs have thought that it was arthritis I have never recieved a proper diagnosis. I also have crohn's disease so arthritis can be related to it, and is referred to crohn's related to arthritis or something. My symptoms are as follows: Oh I am a 23 yr old female
1. achey pain on the outside of my knees especially at the end of the day, or when I am being active.
2. achey pain on the outside of my hips especially at the end of the day, or when I am being active.
3. I am in college so I obviously write a lot of notes, and it takes no time until my fingers and wrists are aching.
4. General fatigue and overall feeling of joint instability or being tired
I have noticed that since I have had surgery removing the diseased part of my intestines that my symptoms haven't been as noticeable, but I think that this could also be because I am laying around, on pain meds, and not very active.
When I did see a rheumatologist he literally had me get into a gown, felt a few joints, and said nope not arthritis. What else could it possibly be? Not that I want arthritis or my joints to be eating themselves away, but I just want a little bit of help, and a reason for this pain. Any help would be glorious!
Diagnosed: 2003, age 18 (had issues with it since I was 12)
Meds for crohns: Off all meds for 1 month until I heal. Still on 10mg Prednisone, and 20mg Oxycodone every 3 hours, and Oxycontin 5mg every 12 hours. Also on a bunch of other meds for crohn's and my other glorious diseases.
Other medical issues: Hereditary Spherocytosis (hemolytic anemia) iron deficient anemia, polyarthralgia, ovarian cysts, Migraines
Surgeries: Spleen and gallbladder out at age 6, Tonsils and Adenoids out at age 21. Ileocecal (small bowel) resection on December 13th. Appendectomy during small bowel resection

Veteran Member

Date Joined Oct 2004
Total Posts : 3042
   Posted 1/1/2008 3:47 AM (GMT -7)   
Hi, I would recommened get a second opioion from another Rheumy. I also have Crohn's and in 2007 was diagnosed with Arthritis. It gets painful for me sometimes. So I now what you are going through.

Hi, I am teddybearweiser, I am a male.
I was diagnosed with crohns disease when i was admitted to the hospital
in 1992, in Jan of 1993 I was back in the hospital for surgery for my crohns. I had part of my right colon resectioned with ilecolonstomy.
 My GI doctor has me on Asacol, Dicyclomine,Imuran,Celebrex and Remicade. B-12 injection once a month.
My Internest doctor has me on Lisnopril-HTCZ and Folic Acid. Diagnosed
with Osteoarthritis July 2007

Veteran Member

Date Joined Mar 2005
Total Posts : 4305
   Posted 1/3/2008 10:35 PM (GMT -7)   
I as well have crohns and at first they were blaming my joint pain on the crohns but was sent to a Rheumy I was diagnosed with RA and OA.

Regular Member

Date Joined Nov 2007
Total Posts : 460
   Posted 1/4/2008 2:55 AM (GMT -7)   
Hi: I'd also say go to another RA. When I went to the RA, No gown . Only lots of questions and blood work turned out I did'nt have RA. But I was is pain for many years and was sent to an endocrinologyst who asked questions and reviewed all my previous labs x-rays scans and MRI's She told me I had degenerative arthritis knees, lower back , and disks. I also have , have really bad bone density . Was sent to get an infusion to see if it would help. Good luck : june

New Member

Date Joined Dec 2007
Total Posts : 11
   Posted 1/12/2008 3:05 AM (GMT -7)   
just try to consult with other rheumy is the good idea.Otherwise without diagnose with any disease still have a problem leads to trouble.

Veteran Member

Date Joined May 2006
Total Posts : 1179
   Posted 1/12/2008 6:11 AM (GMT -7)   
hi C8, hope this finds you feeling a bit better perhaps on break? anyways just wanted to drop in a offer my support as it is frustrating having joint pain and not getting the validation with a diagnosis. i am not a crohnie so i dont know a lot about crohnes to offer that corralation but i can offer some simple advice. first make certain you are going to a doc tor that listens to you. he may not have the answers but in listening he will search for them. also you are in college and i am certain sleep is not at a premium. often with lack of sleep our muscles never get to heal and this may be an inflammatroy reaction to stresses on your system which is already comprimised from the crohnes. in any matter as my rhuemmy told me after i suffered with pain for many many years before seeing a second opinion " it is not normal to have daily pain, just because you have daily pain does not mean it is normal" and for me it was and still is normal but i guess it is not for the rest of the world, which i often forget because i seem to center my life around those with pain just like me...... maybe i need to find new friends teeheee naw wouldnt leave this group for my life. take care and get rest!

Joan M
Veteran Member

Date Joined Jan 2006
Total Posts : 2045
   Posted 1/29/2008 12:44 PM (GMT -7)   
could it be fibromyalgia. are those the trigger points? I do not know. who would specialize in that?

Veteran Member

Date Joined Nov 2006
Total Posts : 1331
   Posted 1/29/2008 12:58 PM (GMT -7)   

I just wanted to chime in that you should get another opinion? I am sero-negative and didn't start out at a rhumatologist but at my primary care doctor after a few weeks of joint pain in my knees that later turned into swelling in my hands then hip pain, now at a rhumy and two and half years later! Still sero-negative and I am now finally moving on to Enbrel. Yes at first the doctor thought I had some type of virus that would run its course but even after 3 months he had to throw in the towel on that one! RA comes in so many varieties and it depends on the person. Pain is a sign that SOMETHING is wrong and if I were you I would seek a second opinion.
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