This past year has been very hard on me. I am going to ask for some opinions about what you THINK could be wrong because my doctors are stumped and maybe one of you out there have gone thru the exact same thing as me and now have a diagnosis. All I know is that I'm getting very frustrated!
So here is my history:
I had back pains starting in my late teens. I went to a couple docs but they could never find anything wrong with me. It wasn't too bothersome so I didn't persue the matter. Fast forward about 25 years later. Last year, I started getting more extreme back pain. It started in my lower back/hip area. But mostly when I would do alot of bending, like cleaning the toilet floor area. My back would get super tight and when I laid down, I would get sharp shooting pains thru the muscles and what felt like in my spine as well. Well as the year progressed, those types of "spasms" became worse. So then I seen my PCP - she sent me to p/t and put me on Flexeril/Skelaxin/Neurontin. The p/t only worked a little. Eventually I stopped p/t. So then last November, the pain became unbearable again so I seen my PCP again. This time she sent me to a pain managment doctor who said I have sacroiliitis.
I had xrays of my hips and lower spine, an MRI with and without contrast of my hips/lower spine and head. These showed no abnormalities. So the pain doc gave me epidural injections. The first one worked wonders but 2 months later I had to go in for another because the pain came back and it didn't work so well. So then my PCP referred me out to a rheumy doc. He took some bloodwork but according to him, everything came out good. My pain doc then sent me for an EMG which revealed that I have spinal stenosis.
My pain doc is very confused because he can't find the source of my pain and I am getting frustrated!
Here is a summary of my symptoms so tell me if any of these sound like something you are suffering from, especially if they were in your early years of your condition(s).
Upper thoracic pain that wraps around to my ribs
Lumbar pain (sharp shooting pain to low dull cramping) upon standing, walking or bending
Leg weakness and pain that shoots down the buttocks and legs - it sometimes skips the legs all together and goes straight to my feet.
SI joint pain, especially bad near the tailbone
Frequent leg cramps and horrible toe twisting foot cramps
Now mind you, I have had numerous tests, xrays, MRI's etc and NOTHING has shown up as an abnormality. What WOULD you suggest the doc to do next?? I am seeing my pain doc today so if he doesn't bring anything up, maybe I can make suggestions to him.
I know this is long so thank you so much for taking the time to read this!
Moderator for Allergies/Asthma and Co-moderator for UC
~Left sided Uc-'92-Colazal(9 daily),6mp(50-100mgs),Prilosec,Biotin,Forvia,Pro-Bio**Unable to tolerate Asacol, Rowasa or Canasa**~Allergies-Singulair
~Secondary Reynauds Syndrome-'04-Norvasc~Spinal Stenosis~Sacroiliitis-epidural injections
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