I'm glad this thread is here. I have the "hallmark" symptoms of AS (bilateral sacroliliitis, arthritis in the neck, very stiff all over, etc). I had the antibody blood test done last year and it came back negative. I'm not convinced. I know there is a percentage of people who are negative but still do have AS. How then is it diagnosed if the antibodies are negative?
Also, how progressive is the disease for the average person? Is deterioration and lack of mobility fast, or can it progress over a number of years? Can AS go in and out of flare ups, or is it normally a continual problem?
My diagnosis of sacroiliitis came in 2005, and the neck arthritis in 2007. I'm now dealing with horrible foot pain. Not sure if that's related.....
My rheumy doesn't want to proceed with the AS possibility. With all my issues, I don't know why she wouldn't want to make sure?
Lots of questions. Thank you for any feedback!
I can do anything through Jesus Christ who strengthens me. I have learned in whatever state I am in,to be content. Phillipians 4:11-13
34 years old. Diagnosed with lupus in 2000. Fibromyalgia, anti-phospholipid syndrome(APS)(stroke),Sjogren's, Raynaud's, seizure disorder-(miraclulously disappeared!), Libman Sach's Endocarditis, vasculitis, sacroiliitis, arthritis (neck) . Prednisone, Imuran, Coumadin, Clobazam, Amitriptyline, didrocal, Cozaar, calcium, Cykolokapron, multi-vitamin, vitamin D, Magnesium, vitamin B6, Acidophilus