Sorry, I didn't introduce myself sooner. I'm trying to figure this all out, so I hope you will forgive any messed up posts .
Is this ADD guy, cuz he looks like I feel, sometimes? I have Crohn's, but most all my symptoms are autoimmune/Arthritis.
I just found my first cousin and he suffers from Reiter's. I really see no point in being tested for the HLA-B27, it's most likely a given for me with my lack of GI symptoms, I share his lumbersom gait, and inablity to get out of bed and walk many mornings. I wonder if the Crohn's is a result of many years of NSAID use. I was a workaholic type, and would just pop Advil and keep going, until the amounts needed to control pain began causing headaches.
I can achieve good control of my symptoms with the SCD, but I'm not great with that. It's a 50/50 deal at this point. Some days I feel like I did in my 20-30's, others I just want to crawl in a hole. When I know how to post better I would like to post my story, but my head is a little scattered right now. I had "unspecfied autoimmune disorder" from 1990-2002 when I was told I have Crohn's.
I also wanted to ask Ducky if his "Graves of the eyes" is actually MG (Myasthenia Gravis). I am concerned about
this b/c my childrens Grandfather died from MG and one form seems to affect the eyes only. I think my Husband suffers from one form or both. I am afraid they (MY children)may get a double whammy, because I have so much inflammation in my eyes. One daughter has a droopy appearance in her eyes, but I wonder if it's just cuz she has Grandfathers eye shape. My cousin has a droopy look too, but the Reiters accounts for that, as one of his symptoms is the HLA-B27 Associated-Uveitis. To inheirate both would really Stink.
Ok, time to stop this ramble-thanks for being here,listening, and all you do for this forum.
Crohn's for life, just met first cousin who suffers from Reiters-explains sooo much